Re: Possible Pdd-Nos diagnosis and adhd I have questions.....

[Guest guest]

Hi Bernice!

Just months ago you posted that the SLP is positive your child has

apraxia. What makes this neurologist believe your child is autistic?

What signs of autism does your child have? And being I have a 14 YO

son diagnosed many times as ADHD when he was younger (but school age) I

know that they won't -or I was told 'they' meaning medical doctors

won't diagnose ADHD until school age (looking at it affecting school or

social aspects) I know they can say 'suspected' ADHD for preschool -but 3

YO?!!!

How do I put this?....can you ask here for a recommendation for a

second opinion from a traditional neuromedical doctor? Where do you

live -what state or country?

Oooooh and why are you asking about diet? My advice is don't spill

milk that you shouldn't cry over. This whole milk thing holds no water

if you check the archives and if you want another crazy expression -

just say no to untested drugs and diets for kids.

Keep your child as normal as possible. What I mean is keep it simple

for the sake of you and your child because more isn't always better.

In fact if the more makes your child different -or puts your child on

an unproven medication -or takes away monies that could be going

to " normal " fun activities for your child -less is more.

If you have to go all crazy extreme do it then -when you 'have' to.

Did you read The Late Talker? If not that would probably be a good

start.

=====

[Guest guest]

In defense of the diets they are tested. , there are books on

these diets that predate the birth of your children. There are

mainstream doctors who have supervised these interventions for 25

years. There are tests and resources to be found to know what does

and does not apply to your kid so you do not fall into untested

waters.

As for the initial post, yes there is hope and for all that I

disagree with 's post, at that young age with so much in question

I agree a second opinion is warranted by a good neurodevelopmental

pediatrician. If you are going to look at diet my best advice would

be to find a metabolic neuro but also read the books to see what

applies.

Some books :

Is this your child? Doris Rapp, MD

Special Diets for Special kids, PhD

Breaking the Vicious Cycle Elaine Gotschall

Feast Without Yeast

>

> Hi Bernice!

>

> Just months ago you posted that the SLP is positive your child has

> apraxia. What makes this neurologist believe your child is

autistic?

> What signs of autism does your child have? And being I have a 14 YO

> son diagnosed many times as ADHD when he was younger (but school

age) I

> know that they won't -or I was told 'they' meaning medical doctors

> won't diagnose ADHD until school age (looking at it affecting

school or

> social aspects) I know they can say 'suspected' ADHD for

preschool -but 3 YO?!!!

>

> How do I put this?....can you ask here for a recommendation for a

> second opinion from a traditional neuromedical doctor? Where do you

> live -what state or country?

>

> Oooooh and why are you asking about diet? My advice is don't spill

> milk that you shouldn't cry over. This whole milk thing holds no

water

> if you check the archives and if you want another crazy expression -

> just say no to untested drugs and diets for kids.

>

> Keep your child as normal as possible. What I mean is keep it

simple

> for the sake of you and your child because more isn't always better.

> In fact if the more makes your child different -or puts your child

on

> an unproven medication -or takes away monies that could be going

> to " normal " fun activities for your child -less is more.

>

> If you have to go all crazy extreme do it then -when you 'have' to.

>

> Did you read The Late Talker? If not that would probably be a good

> start.

>

> =====

>

[Guest guest]

Liz...) (sigh) I know that for specific conditions diets are

tested as I grew up on one since I was diagnosed with celiac. Until

put on that diet I spent much of my preschool years living in

hospitals. What I am referring to are the " milk somehow makes your

child autistic or apraxic " posts and the " oh your chidl isn't talking

yet, try the GFCF diet " posts. In regards to the two messages above -

neither are tested for apraxia. (I can say since just about no

research has been done on apraxia!)

And in regards to tested I've posted many times that when we all met

in person which is to me the best way to know how well these things

work or don't work- and more didn't mean better -as we have in The

Late Talker book we found those that had their kids in appropriate

speech therapy with the right formula of oils by far had the greatest

success. (and yes even back then some tried autism methods for

apraxia) (and Jen if your child is allergic to milk that's different)

If some of you want to concentrate on autism methods for apraxia

that's your choice -but this group shouldn't move away from proven

methods for apraxia -like therapy -therapy toys (thanks Rita!!)

Here's just one new member that is asking for more about apraxia even

though her child has autism as well. Goodness knows one can find

autism info all over -not the same to be said about apraxia. This is

one of the few places to learn more about that.

If anyone wants to help this parent just copy and paste this message

below and answer here -she's a member of this group.

" Hi, . I hope you and your family had a wonderful Thanksgiving.

I'm emailing you to mainly seek just a boost, I guess, because I am

in the beginning stages of my " fight " for services for _____. At his

3-yr check up 2 weeks ago, verbal apraxia was confirmed along with

sensory issues and mild autism. Yes, I was prepared for all three,

but the autism i wasn't sure about until the appointment. It's kind

of thrown me for a loop. I am trying to get things going within my

school district, but I fear that they are going to try to focus

mainly on the autism, and I would like to focus on speech. I'm

already frustrated with it and it hasn't even started. I know that I

am being impatient, but ____ and his difficulties are on my mind

24/7 -- and I realize that this isn't the case for anyone else,

especially those shuffling the paperwork and doing it for however

many kids. I just know I'm going to have to get that mamma bear

mindset going (again). I am armed with your book and all of it's

wonderful and so important support, so I guess I'm ready to battle

for ____. I think that I may be in a bit of a unique situation since

I homeschool and plan to homeschool ____, too. I can't imagine

turning him over to strangers who don't know his quirks and triggers,

etc. I wonder if that will work against us?

I also notice the board has turned autistic - mainly postings about

autism. I'm still relatively new there, but I was just wondering if

that's something new or something that comes around now and then. I

DO want to learn more about autism, but I also want to keep up to

date on apraxia. It's clear there are a LOT of kids with both autism

and apraxia, more than I even realized, but they are two separate

issues, aren't they?

Thanks for your time. Happy Holidays

_________

=====

[Guest guest]

I did not say any of the offending things you mention. I also never

implied the diets were tested for apraxia. What they were and are

used for are mito conditions, both dysfunction (which is easy to miss

as most of the kids can appear fine) or disorder (less easy to miss

but still missed in this day and age where HMOs control the purse

strings). I did not say try a diet. I said consider goinf to a dr. to

see what is up.

Since no research has been done trying something is the only path

many of us have. Also, you continuously point to apraxia, time

tested, this board yet no polls are done with specificity and

comparing older children to younger on this board is apples and

oranges. " The young ones are getting more vaccines, more often and

with more aluminum. That alone changes a lot. I am not saying to go

on a diet. I am saying, since the original poster asked, that there

are ways, tested ones, to see if that is warranted. I would not dare

say more than that on this board at this point for the reactions that

would follow.

As for this: " milk somehow makes your child autistic or apraxic " I

don't recall anyone saying that. What I do recall are many resources

listed on milk allergy, etc.