Feeling Lost

[Guest guest]

Check out the references personally. That will tell you what you need to know.

--- cajun_in_nc4 <rwleon@...> wrote:

> Hi everyone,

> Let me start out by saying that I do not have cancer, so at no

> time will I pretend to " know how you feel " . I am here with a BIG

> question that I hope someone here can help with. I am the mother of

> an autistic 5 1/2 year old. He has mercury toxicity, and we've

> chelated. We are certainly not the " norm " ....but who cares

> Tomorrow morning we have an appt. with a Dr. who wants to do Scalar

> electro therapy on him..He said it involves taking a poloroid pic. of

> my son and " testing " it, and then placing it on an electrically

> charged " table " ... He said that he has had many cancer patients that

> have been cured beyond a shadow of doubt (and offered references).

> My husband and I have always been open to new and " weird " treatments,

> because quite frankly, I don't like watching my child suffer with

> autism. Supposedly there are NO harmful side effects, which I do

> believe, but I would like to know if any of you have even HEARD of

> this type of treatment. Any response is greatly appreciated. I hope

> I didn't offend anyone by coming into your group, but no one else

> really understands " different " treatments. If you'd prefer to email

> me privately, please do so.

> rwleon@...

> again, I thank each and every one of you for allowing me to be here,

> and ask my questions. If there's anything I can answer for you, I'm

> here.... (only ask about chronic fatique or autism though, lol)

> the only exposure I've ever had to cancer is with people who didn't

> want help, treatment, or love. I could do nothing but watch as both

> my grandparents fought all help. I have such a great respect for all

> of you. You will all be in my prayers.

> Thank You,

> W.L.

>

>

>

>

[Guest guest]

>

> This weekend was excruciating! I feel like I can't get anything

right. Bee, I know you said it's

> best to ease children onto the diet, but I can't figure out what to

leave in. My husband thinks

> I am crazy and is threatening to leave me. My 3 year old is having

screaming emotional fits

> every night. My husband hates the texture and taste of grass fed

beef, natural chicken and

> pork. I am being accused of starving my son and asked why I can't

just be normal and not a

> health nut. My husband says he goes to bed starving every night.

I am at the end of my

> rope and I don't know what to do. Is there a test I can take my

son to the doctor to get to

> satisfy my husband. He believes this is all something I have

cooked up. Did I come this only

> to be beat down?

==>Hi. Is your name ? The article " Curing Candida, How to Get

Started " helps you decide what to leave in and when to eliminate

foods. I believe you started on the diet too quickly, and if you are

now cooking that way you husband could be having problems too - he

could be experiencing healing reactions and symptoms. If he hates

the texture of meats you listed, see if he would like them ground up,

or if he prefers fish.

Some women have to cook separately for their husbands. One can't

force another person into this way of eating. It will create a lot

of dissension and upsets between you.

You can leave in some grains, nuts, fruits, and veggies not on the

candida diet.

There are no tests that are conclusive for candida - give Dr. Crook's

Questionnaire to your husband and ask that he fill it out for

himself, and also for your son. Ask him " how would our ancestors

have survived " without the food industry? Tell him we get sick from

a lack of nutrients which is according to Mother nature's design. If

we neglect that, we will get sick.

I wish you the best my dear. It is tough when your husband isn't

getting educated along with you.

Love, Bee

[Guest guest]

Dear ,

The only way to a man's heart is through his stomach. Just feed him carbs to

satisfy his hunger. Then when you have a quiet hubby at least you can attend to

your little one in peace. It's too nerve wrecking not to mention stressful to

deal with so many " negatives " all at once.Just my opinion

Joni

Boyer <lisajane_s@...> wrote: This

weekend was excruciating! I feel like I can't get anything right. Bee, I know

you said it's

best to ease children onto the diet, but I can't figure out what to leave in.

My husband thinks

I am crazy and is threatening to leave me. My 3 year old is having screaming

emotional fits

every night. My husband hates the texture and taste of grass fed beef, natural

chicken and

pork. I am being accused of starving my son and asked why I can't just be

normal and not a

health nut. My husband says he goes to bed starving every night. I am at the

end of my

rope and I don't know what to do. Is there a test I can take my son to the

doctor to get to

satisfy my husband. He believes this is all something I have cooked up. Did I

come this only

to be beat down?

---------------------------------

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[Guest guest]

Did I come this only

> to be beat down?

>

Hi ,

I can empathize with you, although my husband is well aware of

my 'health-nuttiness' and accepts me for it, most of the time. (Not

always, mind you.) Our three sons and myself are on Bee's diet, but

my dh still eats starches and sugars. Sometimes he has what we're

having but usually he has his own thing. Yesterday was 'fun.' But,

to be honest with you, I don't double cook for him. If he's not

going to eat what we're having (which he's more than welcome to), he

makes his own stuff. It's a slow road with him but he is moving over

to our 'side', just at his own pace. I would move ever so

slowly...even with your son. I believe I threw my kids into this.

My oldest and youngest are fine with it, but my 10yo constantly is

looking for something else and he's the only one who's outright

defiantly cheated. I feel guilty sometimes...I'm just a different

person and it's very easy for me to drop everything and try something

new. Not so for others, I now realize. I am currently thinking

about adding in the things Bee told you not to cut out of your

hubby's diet...for my kids. Maybe not for my oldest because he seems

to be able to deal better with the self-denial. Anyway, I'm

rambling, but I just wanted you to know you are a good mom for trying

to help your family. It's very hard to go against the status quo,

and I commend you for doing so.

Hang in there, don't stress yourself unnecessarily. Make changes

slowly and your dh will hopefully come around.

Hugs,

Cathe

[Guest guest]

Cathe,

Thanks for your post! My dh is a high maintenance

type, so I have been trying to just make what I want

and then through in his rice or what not. I am

drawing certain lines, like sweets, pasta,

biscuts..... My older sons have been so good. They

don't complain of hunger after dinner nor have they

complained about losing certain foods. This is

challenging to say the least, but what choice do we

have? I did give aidan a couple of spoons full of

rice last night, but he ate 3 bowls of homemade

meatballs with tomato sauce. He is just so tired and

only feels like laying in front of the tv. After

dinner he felt like going outside though (: Please

keep me posted on the progress of your children!

Thanks again,

--- Cathe Schmidt <cathe616@...> wrote:

> Did I come this only

> > to be beat down?

> >

>

> Hi ,

> I can empathize with you, although my husband is

> well aware of

> my 'health-nuttiness' and accepts me for it, most of

> the time. (Not

> always, mind you.) Our three sons and myself are on

> Bee's diet, but

> my dh still eats starches and sugars. Sometimes he

> has what we're

> having but usually he has his own thing. Yesterday

> was 'fun.' But,

> to be honest with you, I don't double cook for him.

> If he's not

> going to eat what we're having (which he's more than

> welcome to), he

> makes his own stuff. It's a slow road with him but

> he is moving over

> to our 'side', just at his own pace. I would move

> ever so

> slowly...even with your son. I believe I threw my

> kids into this.

> My oldest and youngest are fine with it, but my 10yo

> constantly is

> looking for something else and he's the only one

> who's outright

> defiantly cheated. I feel guilty sometimes...I'm

> just a different

> person and it's very easy for me to drop everything

> and try something

> new. Not so for others, I now realize. I am

> currently thinking

> about adding in the things Bee told you not to cut

> out of your

> hubby's diet...for my kids. Maybe not for my oldest

> because he seems

> to be able to deal better with the self-denial.

> Anyway, I'm

> rambling, but I just wanted you to know you are a

> good mom for trying

> to help your family. It's very hard to go against

> the status quo,

> and I commend you for doing so.

>

> Hang in there, don't stress yourself unnecessarily.

> Make changes

> slowly and your dh will hopefully come around.

>

> Hugs,

> Cathe

>

>

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[Guest guest]

>

> Cathe,

> Thanks for your post! My dh is a high maintenance

> type, so I have been trying to just make what I want

> and then through in his rice or what not. I am

> drawing certain lines, like sweets, pasta,

> biscuts..... My older sons have been so good. They

> don't complain of hunger after dinner nor have they

> complained about losing certain foods. This is

> challenging to say the least, but what choice do we

> have? I did give aidan a couple of spoons full of

> rice last night, but he ate 3 bowls of homemade

> meatballs with tomato sauce. He is just so tired and

> only feels like laying in front of the tv. After

> dinner he felt like going outside though (: Please

> keep me posted on the progress of your children!

> Thanks again,

==> your husband could be experiencing withdrawal symptoms and

cravings which can also make a person feel hungry.

Bee

[Guest guest]

I am at a loss on what I am supposed to do next and where to go. How

am I supposed to know what Neruo to go see? Will they be the right fit

for my son? My SLP says the one that is closest to me is not a good

one and most likely outdated on what an apraxia dx would be. She says

he will most likely just do a developmental delay. The next closest

Ped neuro is in Madison. Which is 3 hours away.

How do I know my 3 hour drive will not just be a waste of time. What

are the questions I need to ask? This is all overwhelming and I have

no idea what to do or where to turn.

[Guest guest]

Here, Here!!!  - I second and third that.

Speech therapy was helping  my now 4 year old daughter repeat sounds in therapy,

but not outside therapy, barely had 25-30 words after 6 months of intensive

therapy and a whole year of so called Early Intervention.  (What a waste that

was!) and she was not building a real language, not focusing and was very

frustrated because she couldn't communicate verbally.  She threw herself to the

ground and refused to follow adult directed activities--3 apraxia experts

declared they couldn't work with her.  I was desperate to find an SLP who would

stick it out and be willing to approach her therapy in a playful way, letting

her lead the activities but being the emotional lead to prevent the tantrums and

frustrations. Not an easy thing to find!

The biomedical approach has finally made speech therapy actually work, she went

from 30 words to over 400-500 I've stopped counting and 4 and even 5 word

sentences now and I see progress everyday. I saw it withing days of the B12

shots and everything else just made her voice clearer, her attention span

stronger and longer, her ability to communicate and interact verbally and jump

into the conversation, take turns, play and be more social...

I cannot say enough good things about medical approaches that look at each

individual child and try to see what could be affecting him/her neurologically,

metabolically, immune system wise. To pretend all these things are unrelated is

to live under a rock and to practice medicine this way is really borderline

unethical.  It seems that only doctors who are themselves affected by

neurological disorders like having an apraxic or autistic child begin to dare to

step outside their " guild " recommendations and actually pay attention to the

growing body of research and to the parents.

Neurologists who only learned about adult /stroke onset apraxia, should at least

have the decency to say they are limitted to that knowledge, but not act like

they know it all and claim apraxia in children does not exist, just like many

doctors and of course insurance companies do not believe in SID and so many

other disorders of the whole body that affect our children in many ways but

manifest most visibly neurologically.  The neuroscience research is so ahead of

clinical practice it's a joke to actually pay these doctors money to examine our

children when they don't even read their own journals which are increasingly

showing the immune system/gut/ malabsorption/ neurological disorders link.  Some

enlightened doctors have known about this for decades, but their research and

clinical observations were dismissed as " anecdotal " .  What we see here with the

fish oils is considered " anecdotal " and most doctors would roll their eyes and

not comment or warn

us to be careful and only follow clinically proven treatments like

say.....Ritalin, right!?? 

Only large scale double blind studies count because those are all done by the

Big Pharmaceutical industry --the only one who can afford the millions to carry

on such studies. 

If we wait for them to figure out a profitable angle on biomedicine it will be

too late for our children, and those double blind clinical studies will never be

possible anyway on biomedical treatments, not the same way because each patient

has different genetic structures and environmental burdens and is therefore

affected slightly different and requires individualized protocols, not one

" magic pill " that cures all.  This is why it's not happening in the medical

field--it would require embracing a new paradigm, retraining and figuring out a

new profit angle.  As always, just follow the money and you'll know the reason

something is or isn't done... So sad, but true, it really is up to us and the

few medical professionals who are willing to really practice the art of healing

and not just blindly follow guidelines. As I said, the research is all there,

there are doctors who are experienced in treating children with

immune/metabolic/neurological

disorders---it is up to us the parents to seek them and to work with them to

heal our children. 

In the end, it's really a matter of belief and being able to accept that doctors

don't and can't know it all and their role is changing just as our parental role

is changing and we need to work together to help our children heal and reach

their full potential what ever their disorders may be.

Janice and Rene, and so many other parents on this list your efforts are

such an inspiration to me.

May we all be empowered and inspired to do the best for our children. it really

is mostly up to us.

-Elena