Guest guest Posted November 20, 2008 Report Share Posted November 20, 2008 Well in that light Kris, now that you bring it up... I want to just Jersey this subject for a sec. I have not been around much either in the past 2 weeks and I too noticed that the group has gone in a different direction by a handful. I have no problem with any of the posters and know they are all people that love the children and are trying to help...but things are just getting a bit carried away. For example I noticed that a parent of a 2 year old posted that her child was evaluated and found to be " a sweet child " and " not viewed as autistic by any doctor " which sounds like it could be just about any child with or without any condition at all (outside of autistic). I may have skipped where she mentions specific issues in the child or missed some first step advice as I was really busy and haven't been around much these past 2 weeks - but she was adviced that she needs to go the biomedicalnacdspecialdiet route. ? Why ? Am I missing something? Do we even know if it's a simple delay in speech or what yet? I get it that some love the in some cases unknown and unproven biomedicalnacdspecialdiets...but no mention of the zillions of proven methods or types of schooling that we've shared and that have worked over close to a decade here? This group is close to a decade old and we have parents of children that are now pre teen, teenager and adult age who have done well in school, are social, and blending as close to " normal " as normal -and as far as I know it wasn't broken until we tried to " fix " it which led to MRIs which I'd rather not bring up again. Lots of the parents who have children doing well find it hard to read the group now as they don't relate to the handful that post over and over...and now I'm seeing newer parents complaining about the same thing. How do I put this... This isn't a blog. And back to you Tara. Living in Florida I can tell you that the professionals here mean well but I have found quite a few don't know about apraxia because around where I live there just are not that many -outside of those of us that moved here... For example my son Tanner was diagnosed by various MDs and SLPs and OTs up in NJ and NY and all agreed on the diagnosis of apraxia. Here in Florida, Tanner, who has the concentration of a pit-bull and tends to be more lethargic unless he pushes himself was " diagnosed " as ADHD and the doctor said " I've never seen a child quite like this before. He is unique. " Being I have an ADHD son and knowing how many other children were just like Tanner (apraxic with sensory issues and low tone) I knew to just laugh at that and say " you need to take a sabbatical for a month in Jersey! " Tara you really should take your not yet 3 year old child to Dr. Renai Jonas who works for early intervention in Palm Beach, is a consultant to the Palm Beach County School system and an adjunct professor at FAU to help secure appropriate diagnosis and appropriate Early Intervention now and then 3 and up with the school preschool program. 561 670 4562 As far as a starting point... The Late Talker book.... That's what we wrote the book for. First steps of what to do -what's the difference between various neuromedical doctors etc. We are all aware that there's a handful of people that have to explore other ways to help their child as they may have communication impaired children that fall outside the norm. Of course whatever works...but again please people let's stick with the basics for new parents and let's not assume every single child that's a late talker needs to go to the fringe ever no less to start. And to make it clear -to me the fish oils and other alternative therapies like hippotherapy are part of the basics...but so is traditional speech and occupational therapy. Speaking of which K sent me an awesome article that was written about her by a Jewish magazine that I have to figure out how to post here or put up in the files. ===== Quote Link to comment Share on other sites More sharing options...
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