Re: Stopping fish oils for DAN appt.?

[Guest guest]

I'm sure opinions will vary, but DAN trained doctors know what to look for

and how to account for the fish oil, may even suggest a better formula for your

child etc.--or not, mine didn't really , but agrees now that the PRO EFA EPA + E

is a good choice.  Anyway, i just wouldn't stop any of the important stuff for

DAN appt.---For school evaluations for a child with resolving apraxia--it might

be the smart thing to do--they don't believe in it anyhow, right?  --but for a

DAN see her first and stop what she tells you to stop for the tests. We stopped

everything for the Allergist recommended tests that were looking at her immune

response and gluten intolerance IgG, a, e, etc.  --It wasn't pretty and I

wouldn't do ti again--by the end the therapists couldn't work with her any more

and the last 2 speech sessions with both therapists were shot completly---she

refused to comply and cried and crawled under the table like she used to do a

year ago...

 Unless really needed ---I'm still not sure what affected her behavior--mood the

most being off the diet or off the supplements or both, but the point is we

gradually introduced them back and the big behavioral difference seemed to be

the diet and the B122 for her. The fish oil didn't produce enough of an

effect-regression wise i mean, but effects may be delayed. You never know.  Just

tell the doctor what your child is on and she knows what to make of it and if

she wants it stopped for whatever reason she'll tell you.  These doctors work

with the parent and believe what they are told, they trust the parent's

instincts and observations and make them full partners in the child's heath care

management---it's very different model than the doctors who act like they know

it all and parents are idiots who are either incapable of observing what is

happening to their child or are just not capable of knowing what to make of what

they observe. 

I've now learned to only go to doctors who fully listen to me and we collaborate

on treatment plans, i tell them what I think, they tell me why it is or not

so--it's a common effort, not a top down we're the experts kind of thing.

So she'll tell you what you need to do for assessment or treatment purposes--and

she'll believe what you tell her after asking the right questions.  Good luck!

Keep us posted.

Elena

From: Buchanan <lisambuch@...>

Subject: [ ] Stopping fish oils for DAN appt.?

Date: Sunday, November 30, 2008, 3:37 PM

Hi all,

Thought I'd pick your brains on another issue, hopefully you don't

mind. :-) We're taking our son to see Dr. Megson in a week...should

we stop the fish oils now so that he won't be on them when we see her? I

know a lot of people often stop them before things like school/speech evals, but

I wasn't sure if it'd be good or appropriate to stop them for a DAN dr.

appt. Any thoughts would be hugely appreciated. Many thanks!!!

B.

------------------------------------

[Guest guest]

Thank you, Elena, you make great points, many thanks for sharing your

experiences. I'll definitely keep you all posted on how it goes!

From: Buchanan <lisambuch (DOT) com>

Subject: [childrensapraxiane t] Stopping fish oils for DAN appt.?

@groups. com

Date: Sunday, November 30, 2008, 3:37 PM

Hi all,

Thought I'd pick your brains on another issue, hopefully you don't

mind. :-) We're taking our son to see Dr. Megson in a week...should

we stop the fish oils now so that he won't be on them when we see her? I

know a lot of people often stop them before things like school/speech evals, but

I wasn't sure if it'd be good or appropriate to stop them for a DAN dr.

appt. Any thoughts would be hugely appreciated. Many thanks!!!

B.

[Guest guest]

most of the neurologists that are aware of the importance of the

right formula of fish oils actually tell the parents to put their

child on it prior to the visit. If your doctor is not aware of the

changes on and off fish oils that's a clue that he or she wouldn't be

the one to advice you about fish oils!!

Also for almost 100% of this group it's the exact same formula of

fish oils that work. I've yet to hear about a Dan presenting a fish

oil formula better then what we have learned here. Cod liver oil is

healthy if you aren't going into megadosages -but it's not the

formula that works for most. It's higher in DHA to EPA -no GLA...besides

I'm more afraid of fat soluble vitamins now then hurricanes and I

live in Florida so that's saying lots. (contains natural vitamin A)

In general you want a formula

that has more EPA than DHA with a bit of GLA. The three top brands

over the years here are Nordic Naturals -ProEFA (or Omega 369),

Equazen's EyeQ (for those in the UK) and at this point last resort

would be Efalex A. because it's harder to find and B. because it's

not longer made by Efamil which was when it was higher quality I was

told. In my opinion speak is not a fish oil as much as it's

megadosage fat soluble vitamins E and K. Also in my opinion there is

not need to supplement with additional vitamin E unless you want to

do what most of us did -once in awhile give your child some extra

because the fish oil depletes the vitamin E. But be aware that

Nordic Naturals for example provides 15 IUs of vitamin E per

capsule. There are many here -Kathy http://www.shoptobeheard.com who

just gave their child the " fish pills " (in her twins case it is just

the ProEFA she uses) and her kids are mainstreamed and for the most

part " normal " That is outside of Logan who has a 75% permanant

hearing loss in one ear and needs a hearing aid now.

=====

[Guest guest]

Dr. Megson is a GREAT doctor. I wouldn't take my boy off the fish oils, she's

just going to tell you to put him right back on them! She is a big fan of CLO

because of its' natural vitamin A for eye issues. If your child has any type of

eye issues, i.e. hyper-peripheral vision, making eye contact or eye stims of any

kind, she will want him on CLO and then probably other oils too. She is

extremely well informed and has made presentations and published on this

subject. She is well versed in the genes related to this as well. She is a

VERY good doctor and has been treating kids mainstream long before DAN, I

believe. She knows her stuff..... can you tell I'm a little jealous that you

get to see her?

Take care,

Janice

Mother of Mark, 13

[Guest guest]

Thank you, , that's so great to hear that the DAN drs will support the

formula that everyone here uses (we've definitely been having success since

starting the fish oils...'s currently on 2 capsules of the Nordic

Naturals Complete Omega 3,6,9. We still have a long way to go, but he's now

combining some words, which was a HUGE step! And he never used to call his

sister Cecilia anything, but he's now actually nicknamed her " CeCe " . :-) And

we're going to be adding a capsule of ProEPA soon, so I'm hoping we'll see some

more surges, God willing.) Per your and Elena's thoughts, I'm very relieved to

hear that it's OK to still keep him on the oils. Many thanks again!!!!

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: Stopping fish oils for DAN appt.?

Date: Sunday, November 30, 2008, 7:44 PM

most of the neurologists that are aware of the importance of the

right formula of fish oils actually tell the parents to put their

child on it prior to the visit. If your doctor is not aware of the

changes on and off fish oils that's a clue that he or she wouldn't be

the one to advice you about fish oils!!

Also for almost 100% of this group it's the exact same formula of

fish oils that work. I've yet to hear about a Dan presenting a fish

oil formula better then what we have learned here. Cod liver oil is

healthy if you aren't going into megadosages -but it's not the

formula that works for most. It's higher in DHA to EPA -no GLA...besides

I'm more afraid of fat soluble vitamins now then hurricanes and I

live in Florida so that's saying lots. (contains natural vitamin A)

In general you want a formula

that has more EPA than DHA with a bit of GLA. The three top brands

over the years here are Nordic Naturals -ProEFA (or Omega 369),

Equazen's EyeQ (for those in the UK) and at this point last resort

would be Efalex A. because it's harder to find and B. because it's

not longer made by Efamil which was when it was higher quality I was

told. In my opinion speak is not a fish oil as much as it's

megadosage fat soluble vitamins E and K. Also in my opinion there is

not need to supplement with additional vitamin E unless you want to

do what most of us did -once in awhile give your child some extra

because the fish oil depletes the vitamin E. But be aware that

Nordic Naturals for example provides 15 IUs of vitamin E per

capsule. There are many here -Kathy http://www.shoptobe heard.com who

just gave their child the " fish pills " (in her twins case it is just

the ProEFA she uses) and her kids are mainstreamed and for the most

part " normal " That is outside of Logan who has a 75% permanant

hearing loss in one ear and needs a hearing aid now.

=====

[Guest guest]

Thank you, Janice! My brother had recommended her to us since she treats my

nephew, but this will be our first appt with her, so I'm VERY excited to hear

what she says. And thank you for the heads up about her eye expertise...I had

no idea she was so knowledgeable about that specific area. Many thanks again,

I'll keep everyone posted!!!

From: Janice <jscott@...>

Subject: Re: [ ] Stopping fish oils for DAN appt.?

Date: Sunday, November 30, 2008, 9:54 PM

Dr. Megson is a GREAT doctor. I wouldn't take my boy off the fish oils, she's

just going to tell you to put him right back on them! She is a big fan of CLO

because of its' natural vitamin A for eye issues. If your child has any type of

eye issues, i.e. hyper-peripheral vision, making eye contact or eye stims of any

kind, she will want him on CLO and then probably other oils too. She is

extremely well informed and has made presentations and published on this

subject. She is well versed in the genes related to this as well. She is a VERY

good doctor and has been treating kids mainstream long before DAN, I believe.

She knows her stuff..... can you tell I'm a little jealous that you get to see

her?

Take care,

Janice

Mother of Mark, 13

[Guest guest]

Pediatrician for 22 years. Amazing woman. We see her in Jan.

>

> Dr. Megson is a GREAT doctor. I wouldn't take my boy off the fish

oils, she's just going to tell you to put him right back on them!

She is a big fan of CLO because of its' natural vitamin A for eye

issues. If your child has any type of eye issues, i.e. hyper-

peripheral vision, making eye contact or eye stims of any kind, she

will want him on CLO and then probably other oils too. She is

extremely well informed and has made presentations and published on

this subject. She is well versed in the genes related to this as

well. She is a VERY good doctor and has been treating kids

mainstream long before DAN, I believe. She knows her stuff..... can

you tell I'm a little jealous that you get to see her?

>

> Take care,

>

> Janice

> Mother of Mark, 13

>