Vaccination

[Guest guest]

Margaretha;

I've asked myself MANY times - did I do anything different

in my life that might cause PA. I concluded that moving

2000 miles from home to go to school was one of them,

completely different climates, etc. I also concluded that

bad diet and wrong living habits finally caught up with

me. However, your email raised another question that I

never considered - vaccination. Being from Canada, the US

university required me to have all my 'shots,' and I had all

but one - 'DP?' (I don't know for sure what it is or if

that's the correct abreviation - dipth....something or

other). I had the shot sometime in the summer of 92,

arthritis kicked in beginning of August of the same year,

and I left for school two weeks after that. Maybe that was

the straw that broke the camels back? Then after MANY

drugs for the arthritis, psoriasis began....... It's very

interesting you brought that up - thank you. Although I

don't know what to do about it now, except try and get the

drugs out.

Thanks again,

Guy

[Guest guest]

Wow, if this is really true and becomes law I for one will be

outraged! I have very strong feelings about mandatory vaccination,

other than for the old routine " childhood " diseases.

After taking the " routine " Hepatitis B series about 6 yrs ago when

working in a hospital, I became extremely ill after shot 2 and was

told it " was all in my head " and had to complete shot 3(which also

made me very ill). Ever since then, I have suffered from immune

based problems among other related things, including candida.

What people don't know about different vaccines CAN hurt them. For

one, I would have NEVER taken the Hep B series if I knew it was made

from yeast, hence the beginning of the problems. In addition though

most vaccines do contain some sort of mercury, among other " additive "

chemical agents. It's never as simple as just getting " smallpox " -

that virus has to be emulsfied and put into an injectable base and to

get there, there are many chemicals involved. I know I'm ranting and

raving here, but for people such as ourselves that already have

immune stresses adding even more can create a whole world of new

problems.

Don't get me wrong, if an outbreak happened in my area, I would then

and only then take the vaccine because you have several days AFTER

exposure to get vaccinated with the same positive results. Then you

have to weigh the two outcomes and make an informed decision, but to

make it MANDATORY, that's ridiculous and obviously, these lawmakers

don't understand the long term consequences for many people. Too

many adults, especially immunocompromised and elderly, cannot

tolerate vaccination like a child would be able to.

Thanks for letting spill my guts here :-) Hopefully, this won't pass.

Debbie

> A new provision has been added to The Homeland Security Bill that

> would give the Secretary of the HHS the authority to call for

> universal smallpox vaccination and other smallpox interventions

with

> absolutely NO personal, No religous and No medical exceptions

allowed.

>

> If you're interested in the whole story go to the following link.

>

> http://www.mercola.com/2002/nov/16/vaccination_rights.htm.

[Guest guest]

Something's wrong with the link I posted, when you go there, click on

current newsletter, then on the vaccination link.

Sorry

> A new provision has been added to The Homeland Security Bill that

> would give the Secretary of the HHS the authority to call for

> universal smallpox vaccination and other smallpox interventions

with

> absolutely NO personal, No religous and No medical exceptions

allowed.

>

> If you're interested in the whole story go to the following link.

>

> http://www.mercola.com/2002/nov/16/vaccination_rights.htm.

[Guest guest]

Hi,

's ped rheumies insist on the flu shot every year.

Last year when there was such a huge shortage they sent me a letter to take

with me and get vaccinated anywhere that had the shot.

It even gave permission for a drug store to give it where you have to be 18

or older.

When got his first one he was on several drugs and the JRA was anything

but quiet.

Hugs

Becki and 7 systemic

[Guest guest]

Welcome! Your English is wonderful, so don't worry. My daughter's doctors

recommend the flu shot. It is a dead virus so the worries of getting the flu

from the vaccine are not present. If the disease is highly active or if steroids

are in use etc it may not give as good of protection as possible but every bit

helps. Remember though, the biggest way to combat the flu is for everyone to

wash their hands frequently, cover their mouths and noses with a disposable

tissue when coughing or sneezing etc. Sorry, one of my big pet peeves so had to

throw it in there. Teach your daughter the importance of frequent hand washing

or the use of the gels you can use without water.

e

gatpuy <gatpuy@...> wrote:

hello everybody

first of all , sorry for my bad english , I'm french.

my daughter is 4 years old , she is paucy since the age of 18 months.

I would like to know if in the United-states , children with JRA get

vaccination against conventional influenza ? ( each winter, an average

of 36 000 people die of influenza in the United States ).

I would like to know how you manage with the use of vaccines for your

children with JRA ?

at the present time in europe we are very concerned with the problem

of avian influenza (bird flu)

do you know also , if children with JRA got vaccination against

influenza during the last flu pandemic in 1968 ?

I have asked my daughter's doctor about a flu shot for her , but she

said it is better to wait until the arthritis become " quiet " ( I hope

you understand what I mean !!!)

what do your children's doctors usually say about getting

vaccinnations ?

thank you very much for your help

hello from paris

Françoise , Anaïs's mother

[Guest guest]

thank you e for your explanations

how old is your daughter ? what is her disease ?

I made a mistake in my mail, Anaïs is not pauci but oligo ( less than

five joints ), knee, fingers and ankle .

she has uveitis in both eyes , in the anterior area . she has been

gotten drops in her eyes since 2002 , VEXOL . she is at a " low " level

: 2 drops a day , but she cann't stop . as soon as she stops the

disease comes back. The eye doctor says she may stop when she is older

, 7 or 8 years old . until now we are lucky : no complication . she

gets her eyes check at the eyes doctor every month.

Françoise

> hello everybody

> first of all , sorry for my bad english , I'm french.

>

> my daughter is 4 years old , she is paucy since the age of 18 months.

> I would like to know if in the United-states , children with JRA get

> vaccination against conventional influenza ? ( each winter, an average

> of 36 000 people die of influenza in the United States ).

> I would like to know how you manage with the use of vaccines for your

> children with JRA ?

>

> at the present time in europe we are very concerned with the problem

> of avian influenza (bird flu)

> do you know also , if children with JRA got vaccination against

> influenza during the last flu pandemic in 1968 ?

>

> I have asked my daughter's doctor about a flu shot for her , but she

> said it is better to wait until the arthritis become " quiet " ( I hope

> you understand what I mean !!!)

> what do your children's doctors usually say about getting

> vaccinnations ?

>

> thank you very much for your help

> hello from paris

>

> Françoise , Anaïs's mother

>

>

>

>

>

>

>

>

[Guest guest]

Hi

thank you very much for your explanations

it is very hepfull...even if I don't know yet what to do ...

but I think I will ash the shot for her

I made a mistake , she is not pauci but oligo (less than 5 joints ? )

Hugs

Françoise et Anaïs 4 oligo , anterior uveitis, from Paris -France

>

> Hi,

> 's ped rheumies insist on the flu shot every year.

> Last year when there was such a huge shortage they sent me a letter

to take

> with me and get vaccinated anywhere that had the shot.

> It even gave permission for a drug store to give it where you have

to be 18

> or older.

> When got his first one he was on several drugs and the JRA was

anything

> but quiet.

> Hugs

> Becki and 7 systemic

>

>

>

[Guest guest]

Our rheumy also insists on the flu shot and recommends that everyone

in the family gets one. Welcome and maybe you could teach us a

little French!

Stacia and Hunter systemic, 9 uveitis

>

> hello everybody

> first of all , sorry for my bad english , I'm french.

>

> my daughter is 4 years old , she is paucy since the age of 18

months.

> I would like to know if in the United-states , children with JRA

get

> vaccination against conventional influenza ? ( each winter, an

average

> of 36 000 people die of influenza in the United States ).

> I would like to know how you manage with the use of vaccines for

your

> children with JRA ?

>

> at the present time in europe we are very concerned with the

problem

> of avian influenza (bird flu)

> do you know also , if children with JRA got vaccination against

> influenza during the last flu pandemic in 1968 ?

>

> I have asked my daughter's doctor about a flu shot for her , but

she

> said it is better to wait until the arthritis become " quiet " ( I

hope

> you understand what I mean !!!)

> what do your children's doctors usually say about getting

> vaccinnations ?

>

> thank you very much for your help

> hello from paris

>

> Françoise , Anaïs's mother

>

[Guest guest]

thank you very much for your help

finally i have got the information from my daughter'rheumy

she called the rheumy " n°1 " in France from JRA in children , may be

you know her name : Anne Marie PRIEUR she wrote a very good book

" rhumatolohie pédiatrique " may be this book is also translate in

english , since she writtes some articles in english too . so, my

rheumy called her and she said there is no problem for children with

JRA to get a flu shot , except for those who take medication that

makes they immune system less " strong " (i don't know in english) i

hope you understand

my daughter she is paucy with uveitis both eyes , she will get the flu

shot next week and then another one 4 weeks later , because she is

less than 8 years old and this is her first flu vaccination

my husband and i got the flu shot yesterday (for the first time too)

one of my pediatrics doctors says that may be if the virus mute somme

genes would be the same and then human flu vaccination could help a

little . i don't know. i read an article on the web from the FAO ,

they said they have to know the " right " virus between the 15 subtypes

of HxNy because there is no crossprotection ! (that's bad )

on the other hand , my rheumy said if the virus mute in an human form

and if people have got the human vaccination and even then got the flu

, it could be easier to give immediately the good antivirus medication

, no need to wait to know wich kind of flu it is .

so... good luck to every body !

if you want to learn french i'm OK

à bientôt (see you soon)

et merci beaucoup ( and thanks a lot)

bisous à hunter (kiss to hunter)

françoise, from Paris/france,

anaïs's mom , 4 y.o. , pauci, uveitis

> >

> > hello everybody

> > first of all , sorry for my bad english , I'm french.

> >

> > my daughter is 4 years old , she is paucy since the age of 18

> months.

> > I would like to know if in the United-states , children with JRA

> get

> > vaccination against conventional influenza ? ( each winter, an

> average

> > of 36 000 people die of influenza in the United States ).

> > I would like to know how you manage with the use of vaccines for

> your

> > children with JRA ?

> >

> > at the present time in europe we are very concerned with the

> problem

> > of avian influenza (bird flu)

> > do you know also , if children with JRA got vaccination against

> > influenza during the last flu pandemic in 1968 ?

> >

> > I have asked my daughter's doctor about a flu shot for her , but

> she

> > said it is better to wait until the arthritis become " quiet " ( I

> hope

> > you understand what I mean !!!)

> > what do your children's doctors usually say about getting

> > vaccinnations ?

> >

> > thank you very much for your help

> > hello from paris

> >

> > Françoise , Anaïs's mother

> >

>

[Guest guest]

My husband and I were talking last night about vaccinations... we are

unsure why it is necessary for the entire family to get a flu shot (or

any other vaccination) if our daughter has had the vaccination. We are

not necessarily opposed to getting vaccinated, but are just unclear

why it would be important for all of us if she is immune.

Does anyone know why?

TIA,

[Guest guest]

Hi!

My name is Laimi and my son's name is . It has been a long time since I

wrote. is talking like a parrot, but his articulation is still a mess. We

are working on it though. Considering that 15 months ago he could only say 2

words, having articulation problems is something expected.

I still need your help. I would like to know where/how I can find all the

archives about vaccination. It is time for him to get another MMR and I want to

wait. I would hate to see a regression at this point. He is home-bound anyways

and will stay at home for another year or so before he can go into a classroom

with other kids. I need all the information available to have the school board

respect my right to delay vaccination or not have it at all; even if it implies

lying about religious beliefs or whatever. Thank you and good luck to all!!

Laimi

[Guest guest]

I received the vaccine waiver for religious reasons from my county last

Friday. No questions asked. However, I am now worried about the school my son

goes to. They have stated that they must have complete vaccination records

or can refuse to let a child in. It is a private school and I am worried

that they can cancel his enrollment (he's in preschool)or am I just worrying

for nothing and they can't do this on the grounds of discrimination? The

only vaccine he hasn't had is the MMR2. He is 4 and a half and I don't think

that is due yet. Any ideas, out there?

[Guest guest]

Actually the second dose of mmr is recommended between the ages of 4 and 6.

Just curious if he had all the other vaccines then what is the waiver for? If

it's just for the mmr2, then how about talking to the pediatrian about doing a

titers test. It's possible that the antibodies levels from the first dose are

sufficient enough that he may not require the second. You can also check your

state reqs but in NJ the schools will accept the titers results in place of the

second mmr.

Good luck with this, it's not easy making these decisions..

[Guest guest]

I told the schools I was giving my son his vaccines at the age of 6 (esp. DPT)

since the brain is more developed. The CDC gives the age limit between 4-6 for

these boosters to be given so I waited until his 6th year! The MMR titers

showed my son was well in the area of inoculation. The school accepted both so

I was able to delay using the religious exemptions. My son attended a parochial

preschool and he started preschool at 3 but I kept him for 3 years in preschool

due to his speech apraxia and overall emotional development. He was 6 when

starting Kindergarten.

[Guest guest]

My son is going to be six as well, the shots he still needs are DTP,

Chicken Pox and Polio. I believe it is best to wait until their brains are

matured as well. My son has PDD NOS and Apraxia, he didn't get a flu shot last

year, I just couldn't do it, now with this H1N1 flu, I just am so nervous

about it, on the one hand I don't want him getting really sick, but now it is

not one shot, in some cases it can be up to four shots, that is if

boosters are needed, etc. Jen

[Guest guest]

I do know that where I live theschool district sent me home a notice the last

day of school stating that my son was due for DPaT for 5th grade. He had to have

this shot and documentation of it  or a date in writing of a appiontment for it

to the school nurse or he would not be aloud in school on the first day.

 

We went to the ped office this past Tuesday fro his 11 yo well child and for the

shot.

Well when I walked in the room with my son he was very upset and nervous ( i had

told him weeks before that when we went he was going to get the shot). The ped

informed me that the State of NH changed the vaccination requirement recently

that all children these ages ( i do not remember them) ( i was not happy to hear

this that is why i do not remember I was so annoyed) that not only do they

require DPaT booster but now are requiring a 2nd dose of Varicella ( chicken Pox

) too. I was not happy cause i was not informed of this ahead of time. So I was

caught in the I had no choice spot since he had to have the first one.( My son

at this point was having a sensory meltdown and was hysterically panicking)

over the 2nd shot.  My son does much better if he forewarned ahead of time and

it is talked about in general conversation with no stress involved so it looks

like no big deal.

 

My son is fully immunized. I would of most likely  agreed to the shot. I just

wished i wa told ahead of time. My son would of done much better without the

sensory meltdown. i know I would of not had a migraine from it myself.

 

At least the the ped and his nurse actualy were sympathic to him. They did not

tell him to calm down. They told himt hat it would hurt and he could scream

after but he had to hold still for the shots. The nurse gave him ahug and told

him it was okay.

 

I wish u luck. I do not really understand what the big deal is about the booster

shots. If they have already had the 1st vaccination.  In some cases there are

actually 4 and 5 doses they have to recieve vaccines. I know my son has had

several MMR, IPV ( 4 i think it was) , DtaP he had several of them prior to this

recent one,  Now he has Varicella (2).

 

Jeanne and

NH

From: cyncallas@... <cyncallas@...>

Subject: Re: [ ] Re: Vaccination

Date: Wednesday, August 26, 2009, 6:54 PM

 

I received the vaccine waiver for religious reasons from my county last

Friday. No questions asked. However, I am now worried about the school my son

goes to. They have stated that they must have complete vaccination records

or can refuse to let a child in. It is a private school and I am worried

that they can cancel his enrollment (he's in preschool)or am I just worrying

for nothing and they can't do this on the grounds of discrimination? The

only vaccine he hasn't had is the MMR2. He is 4 and a half and I don't think

that is due yet. Any ideas, out there?

[Guest guest]

Yes, I believe you are right. I got the vaccine waivers for both my son and

daughter (she's missing many more) and they are good for their lifetimes.

(I guess so long as we live in Florida)? . I don't know if Florida has the

titers law but that totally makes sense to me.

[Guest guest]

Thanks for this advise. This is what I will do, if they ask me. I haven't

pulled out the religious waiver yet but it is good for his lifetime((

according to the state county nurse).

[Guest guest]

Yes this new H1N1 flu thing has extremely worried. What if this shot actually

causes people to get it?????

 

My son usually gets the flu shot due to having asthma  and he gets very sick

very fast and extremely ill.  I never have had a flu shot. Not getting it this

year either.

 

My son also is fully immunized.

 

This will be a shot my son is definately not getting . There is no way I am

taking the risk of it causing him to get H1N1.

 

The fact the public schools are discussing making this shot mandatory for all

public school children has me totally freaked out.

 

The thought of my son having to undergo 4 shots in a row for this is terrifying.

From: jennyjudy@... <jennyjudy@...>

Subject: Re: [ ] Re: Vaccination

Date: Thursday, August 27, 2009, 5:40 PM

 

My son is going to be six as well, the shots he still needs are DTP,

Chicken Pox and Polio. I believe it is best to wait until their brains are

matured as well. My son has PDD NOS and Apraxia, he didn't get a flu shot last

year, I just couldn't do it, now with this H1N1 flu, I just am so nervous

about it, on the one hand I don't want him getting really sick, but now it is

not one shot, in some cases it can be up to four shots, that is if

boosters are needed, etc. Jen

[Guest guest]

As we prepare to send our children with special health care needs back to school

this year, the H1N1 (swine) flu pandemic will surely weigh on our minds.

Resources and information regarding the cross-agency preparations being made can

be found here:

http://www.schoolhealthservicesny.com/h1n1.cfm

The U.S. Department of Health and Human Services offers “Action Steps for

Parents of Children at High Risk for Flu Complicationsâ€:

http://flu.gov/plan/school/parentfactsheet3.html

[Guest guest]

I refuse to give my son the H1N1 flu shot. After I saw my son crumble and go

into himself after getting the shot pro-quad (which was reaclled in 2006, right

after my son got it) vaccinations are a scary thing to me. If my son didn't have

regressive autism, and I didn't know now what I know about vaccines, I probably

would have considered it.

I know the risk of people getting the flu from the shot. I worked at a

retirement home for 3 years and after the health department would come around

administering flu shots, I would say 30% of people (including staff) would just

be sick and we would be under staff due to people having to take time off to get

well. I never got a flu shot and I never had the flu.

I know in Oregon people have a right to refuse vaccinations and I am going to

exercise that right. I would encourage you to also if your state allows it and

you have a desire to.

There was never a time when a vaccine needed 4 " nasal sprays " to get immune to

something. Just like the booster shots used are not needed in 99% of people that

get them, because the first vaccine does it's job.

I pray for all the people getting this shots and hope all goes well for them.

~

[Guest guest]

My 8dd has had her flu shot every year--even during the shortage years--the Ped

saved it for children like her with underlying conditions. I dont have any

underlying conditions--so I dont get one either. It is recommeded for children

with underlying conditions and the elderly..which is why its given in nursing

homes every winter. Its not meant to keep you from getting it--just to give the

elderly and children a lesser case of it--so there might be a 30% absentee rate

of staff instead of a 60%absentee rate of those who work in that environment.

I also live in NY where the highest concentration of deaths have been from Swine

Flu. My dd will get her flu shot. I am a little nervous about giving her a new

shot that is just coming out--but I know she cannot fight the way my NT kids

would be able to fight off the flu or H1N1.

two years ago- a seven year old boy died because he had severe asthma and never

had a flu shot. He went into the hospital on a Sunday and passed on Tuesday.

Seeing my sons whole entire school attend his funeral was gut-wrenching and just

shows that kids wiht underlying conditions do not have the immunity to fight off

such a scary thing--and I dont want to sit in the hospital this winter wondering

if she will recover fully.

My heart goes out to those who leave their kids to fight on their own.

[Guest guest]

In my original post about the H1N1 shot. I forgot to mention that my son will

get the flu shot itself due to he has severe asthma and is a child that if h e

gets sick he gets it worse than anyone else. I am very scared of this vaccine. I

will have to give it to my child if it comes down to his pediatrician wants him

to have it. I am scared though of the fact of the unknown so little is known

about this whole H1N1 flu and a shot for it.

 

Jeanne and

NH

From: mosense <mosense@...>

Subject: [ ] Re: Vaccination

Date: Friday, September 4, 2009, 1:32 PM

 

My 8dd has had her flu shot every year--even during the shortage years--the Ped

saved it for children like her with underlying conditions. I dont have any

underlying conditions-- so I dont get one either. It is recommeded for children

with underlying conditions and the elderly..which is why its given in nursing

homes every winter. Its not meant to keep you from getting it--just to give the

elderly and children a lesser case of it--so there might be a 30% absentee rate

of staff instead of a 60%absentee rate of those who work in that environment.

I also live in NY where the highest concentration of deaths have been from Swine

Flu. My dd will get her flu shot. I am a little nervous about giving her a new

shot that is just coming out--but I know she cannot fight the way my NT kids

would be able to fight off the flu or H1N1.

two years ago- a seven year old boy died because he had severe asthma and never

had a flu shot. He went into the hospital on a Sunday and passed on Tuesday.

Seeing my sons whole entire school attend his funeral was gut-wrenching and just

shows that kids wiht underlying conditions do not have the immunity to fight off

such a scary thing--and I dont want to sit in the hospital this winter wondering

if she will recover fully.

My heart goes out to those who leave their kids to fight on their own.

[Guest guest]

pediatricians do what they are told. they get guidelines and follow them. Please

never do something just becuase the pediatrician tells you so.� it is time

parents understood that doctors are NOT Gods, they are business people who

follow guidelines and can gtet sued if they do not so they don't really question

them. There are lots of politics involved in vaccines. Read up all sides

CAREFULLY> Particularly because you have a child with an autoimmune

disease--asthma plus other neurological issues if you are on this list--and yes

there is a connection between the two, the brain is not in a vacuum, it is very

much connected to the rest of the body and how things get processed, enzyme

productions.� The doctor's assumption is that the vaccine will protect him and

not cause harm Particularly for these kids with autoimmune disorders that has

been called into question.� Do not ever let yourself be intimidated into doing

something just because the

doctor says so. Educate yourself and make your own decisions. The doctor will

not suffer any consequences if anything happens as long as he followed

guidelines. You and your child however will if autoimmune issues are worsened by

a live vaccine with all the toxic substances it contains including

squalene--definite neurotoxic...anyway read up and be sure you are comfortable

with what you decide after reading both sides.�

Good luck!

Elena

[Guest guest]

Why don't you put your son on LDN along with high vitamin D3, A and C?!!!

 

I have had asthma and fibromyalgia and since on LDN it stopped!!! I have no use

for my inhaler or have any issues with Flu... I just had the Flu and it was very

mild compared to all the times I have gotten sick!!! This is an alternative to

the Flu shot... I just wanted to share so you know that there are other

options...(smile)

 

LDN - LOW-DOSE NALTREXONE FOR IMMUNOMODULATION

Naltrexone is an FDA-approved drug used as an opiate antagonist for treating

opiate drug and alcohol addiction since the 1970's, available in generic

form as well as ReVia in 50mg tablets. At regular dosing, usually 50mg a

day, it blocks the euphoric response to opiate drugs such as heroin or

morphine. I as well as many other DAN! doctors have tried Naltrexone with

our ASD children hoping to offset the " opioid " effects of the large peptides

in wheat, milk and soy. I found it mostly ineffective and abandoned this

therapy long ago. Naltrexone has always been considered very safe and has

never been reported as being addicting.

Opioids are known to operate as cytokines, the principal communication

signalers of the immune system, creating immunomodulatory effects through

opioid receptors on immune cells. A popular immune classification method is

referred to as the Th1/Th2 balance; Th1 cells promote cell-mediated immunity

while Th2 cells induce humoral immunity. The inability to respond adequately

with a Th1 response can result in chronic infection and cancer; an

overactive Th2 response can contribute to allergies and various syndromes

and play a role in autoimmune disease, which most ASD children show on

immune testing.

Bernard Bihari, MD, a New York physician studying the immune responses in

AIDs patients, discovered that a very low dose of naltrexone in less than

one-tenth the usual dosage boosts the immune system and helps fight diseases

characterized by inadequate immune function. Low-Dose Naltrexone (LDN) tends

to normalize the immune system by elevating the body's endorphin levels and

accomplishes its results with virtually no side effects or toxicity. Since

endorphins are an integral part of the immune system, when a tiny dose of

naltrexone is given between 9-12pm at night the body attempts to overcome

the opioid block and the endorphins rise, to stay elevated throughout the

next 18 hours.

LDN had been studied in ASD children using from 5-12.5mg daily or every

other day in the early 90s; researchers were looking for opioid antagonism.

Results were equivocal with non-compliance because of the bitterness of the

drug. Dr. Tyrus at Coastal Compounding agreed to create a transdermal

cream for my study; that way we could adjust the dose easily (some of the

smaller kids did better with only 1-1/2mg), the bitter taste was no problem,

and it could be put on their bodies while they slept. The cream is put into

syringes, ? cc providing 3mg, with a month's supply of the child dose (3mg)

costing $19, the adult dose (4.5mg) $30, plus shipping, no refrigeration

required. Dr. has offered to share this very effective formula with

any compounding pharmacist who wishes to call him, 912-354-5188.

I have completed an 8-week informal clinical study on 15 of my ASD patients

using 3mg of LDN transdermally between 9-12pm. Several adults participated

also, one with Crohn's Disease and one with Chronic Fatigue Syndrome using

4.5mg nightly. Parents reported weekly; 8 of the 15 children had positive

responses, with five of these 8 having results considered quite phenomenal

according to their parents. The primary positive responses have been in the

area of mood, cognition, language, and socialization. 5 of the children had

equivocal results and three children dropped out, one because of no response

after 4 weeks, the other two for personal family reasons. Two very small

children did better when changed to 1-1/2mg dosing. No allergic reactions

were noted to the cream, with the primary negative side effect being

insomnia and earlier awakening when first taking it, usually lasting 3-5

days. The two adults in the study, one with Crohn's and the other with

Chronic Fatigue Syndrome, have had very positive responses; the Crohn's

participant says she has been in remission since starting LDN (almost 3

months now). All participants who completed my study have indicated they

wish to continue, and hundreds of other ASD kids have started this

non-toxic, non-invasive, inexpensive intervention by now.

All my study children were on well-controlled dietary restriction. I am

receiving reports from the e-lists I monitor of about 5% of other children

besides those in my study having side effects such as irritability,

agitation, and restlessness. Side effects subside as soon as the drug is

withdrawn. I am querying these parents about gluten/casein/soy in diet, as

this could be withdrawal symptoms of opioid block. I suspect that children

on a strict GF/CF/SF diet may demonstrate the positive immune modulation

effect sooner than the child who needs to go through opioid withdrawal

first, but I assume it is possible for the block to stimulate withdrawal

effects and also have the endorphin rush if parents want to stick out the

side effects.

It may be a while before a formal study can be conducted, so although I

assume the positive effects are due to up-regulation of the immune system, I

do not yet have studies to prove it. I suspect we will get lots of informal

clinical data long before we can get a formal study conducted. I am hoping

this will be another weapon in our ever-expanding arsenal to help the

children get as immune-efficient as possible. I want to thank those who

participated in the study for being trusting enough to go along with me in

trying something new, and I thank Dr. Tyrus at Coastal Compounding for

helping devise a successful form to use in our children. This list has

been started for reporting and discussion of this intervention. Jaquelyn

McCandless, M.D. 7-18-05

P.S. Both my ASD boys are also on LDN and they are also doing better... If you

want more info on LDN just ask... (smile)

Love, Gabby. :0)

http://stemcellforautism.blogspot.com/

http://www.facebook.com/gabby911

http://twitter.com/stemcell4autism

 

" I know of nobody who is purely Autistic or purely neurotypical. Even God had

some Autistic moments, which is why the planets all spin. " ~ Jerry Newport