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The lighter side of apraxia

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Hello, my name is Lysa. My daughter Anya, now 8, has apraxia, diagnosed when she

was 3. She's been through therapy for 5+ years and speaks with about 80%

intelligebility now. Mostly I lurk, reading and being grateful we live in a time

with all this medical help for our lovely children. We had a couple of funny

incidents related to her apraxia I thouht I would pass on.

Two weeks ago, Anya reported that her class mate accused her of saying " sh*t "

instead of " shut " ... because welll, let's face it, she still has trouble with

her short vowel sounds. The teacher of course understood the problem and

assured Anya's classmase that she did say " shut " .

Second, my 18 month old just learned the word fork, but he leaves out the 'r',

saying " fok " . Anya saids, " He says that really well. It sounds just like fork. "

Of course it sounds perfect to Anya, since she leaves out the 'r' too.

Maybe these are " you had to be there " kind of things, but I laughed good and

hard at them. I'm glad we're at a point in our apraxia experience where we can

laugh at these little things. It took a long time and many tears to get here,

but I wouldn't trade the things I've learned about myself, my daughter or IEPs

for anything. Best wishes to all of you on your apraxia journey.

Lysa

" What you do speaks so loud that I cannot hear what you say. " Ralph Waldo

Emerson

" A mother who radiates self-love and acceptance actually vaccinates her daughter

against low self-esteem.' " Naomi Wolf

Date: Sat, 13 Jun 2009 16:32:47 +0000

From:

Subject: [ ] Digest Number 6581

Late talker/speech delay vs. apraxia? Learn about children's communication

Late talker/speech delay vs. apraxia? Learn about children's

communication

Messages In This Digest (20

Messages)

1a.

Re: evals show EXTREME DELAY - UNITS OF SERVICE PROPOSED DON'T MATCH

From:

Maureen

1b.

Re: evals show EXTREME DELAY - UNITS OF SERVICE PROPOSED DON'T MATCH

From:

Racinnuts@...

2a.

Re: working on self esteem

From:

Soliday

3a.

How to get the child to take fish oils

From:

swadickj

3b.

Re: How to get the child to take fish oils

From:

Grassia

3c.

Re: How to get the child to take fish oils

From:

taranowakowski@...

3d.

Re: How to get the child to take fish oils

From:

texascarebear_21

3e.

Re: How to get the child to take fish oils

From:

sandy lehmann

3f.

Re: How to get the child to take fish oils

From:

tinanico2

3g.

Re: How to get the child to take fish oils

From:

Anja

3h.

Re: How to get the child to take fish oils

From:

masterrosa

3i.

Re: How to get the child to take fish oils

From:

Chang

3j.

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From:

RM10@...

4a.

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5a.

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From:

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5b.

Re: If your child had Gerd

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6a.

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From:

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7a.

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8a.

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From:

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9a.

Re: I spoke with you today- can anyone help?

From:

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Messages

1a.

Re: evals show EXTREME DELAY - UNITS OF SERVICE PROPOSED DON'T MATCH

Posted by: " Maureen "

mosense@...

mosense

Fri Jun 12, 2009 9:36 am (PDT)

Is there a full-day ESY available?If you reject ESY--what other options

are there? Have you spoken to the school personnel about your concerns..maybe

they agree that he needs more services--but only you can request a meeting for

changes to be made. good luck.

what does PT with his aide mean?

>

> The ESY proposed to us is only Tues, Weds, Thurs from 8:30-11:45..which is

only 9.75hrs/week ... and during that time they want to squeeze in his related

services.? Therefore, he will be losing the class time if the related services

are worked into this time and not added onto the end of the day.?

>

>

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