new member request and help needed

Posted July 27, 2009 · July 27, 2009

Hello

This is my second time writing requesting to be a member I WAS denied first

time not clear why but I continue to read the web site and find it very

beneficial

My name is AMY and I have a child 3 years old diagnosed by her speech therapist

and OT with dyspraxia . My insurance is kaiser and they do not have an MD to

back up this diagnosed(no expertise) so they are giving her the DX of

Developmental delay AND REFUSED TO SEND her OUT THE PLAN .

She is hypo tonic , could not chew until we started oral motor therapy and now

can say 150 words with difficulty in vowel grading .She has gross motor and fine

motor delay mostly related to poor motor planning, poor co-ordination and

inability to mimic new things until it divided into steps and then mastered .

SHE is on fish oil and has been in therapy almost 2 years

SHE is accepted in school with IEP yet they only want to give her group and

refused to have an oral motor goal.School refused to take the diagnosis of

dyspraxia with out a doctor signing on it ,even thought her OT and speech

therapist went To IEP - nor provide a prompt speech therapist which is the only

approach that helped her . Since I was not given an official diagnosis by an Md

, then I have no foot to stand on requesting individual therapy and proving she

can not benefit from groups

At this time I can not afford further paying for therapy and her insurance give

her 2 OT session per week . Insurance stated she has no medical necessity for

speech therapy .

I live in the San valley in California . Any tips of A developmental

neurologist or pediatrician aware of this area and willing to write

recommendation around my area .?

ANY suggestion how to move forward with the school and my insurance ?

I am also interested in having a copy of Debra article about dyspraxia -

looking forwards to join the group

Thank you

AMY

Posted July 27, 2009 · July 27, 2009

My daughter was diagnosed by s/t with apraxia. I switched to a new pediatrician

because we moved and when I first interviewed her I just told her I had a 2 year

old diagnosed with hypotonia and Apraxia. I made copies of all my medical

records including 2 years of therapy and gave them to her. When I told her we

needed letters of medical necessity she never had a problem writing apraxia in

the letters. Why not just switch to a new pediatrician.

-------------- Original message from amy n <amyralph1@...>: --------------

Hello

This is my second time writing requesting to be a member I WAS denied first

time not clear why but I continue to read the web site and find it very

beneficial

My name is AMY and I have a child 3 years old diagnosed by her speech therapist

and OT with dyspraxia . My insurance is kaiser and they do not have an MD to

back up this diagnosed(no expertise) so they are giving her the DX of

Developmental delay AND REFUSED TO SEND her OUT THE PLAN .

She is hypo tonic , could not chew until we started oral motor therapy and now

can say 150 words with difficulty in vowel grading .She has gross motor and fine

motor delay mostly related to poor motor planning, poor co-ordination and

inability to mimic new things until it divided into steps and then mastered .

SHE is on fish oil and has been in therapy almost 2 years

SHE is accepted in school with IEP yet they only want to give her group and

refused to have an oral motor goal.School refused to take the diagnosis of

dyspraxia with out a doctor signing on it ,even thought her OT and speech

therapist went To IEP - nor provide a prompt speech therapist which is the only

approach that helped her . Since I was not given an official diagnosis by an Md

, then I have no foot to stand on requesting individual therapy and proving she

can not benefit from groups

At this time I can not afford further paying for therapy and her insurance give

her 2 OT session per week . Insurance stated she has no medical necessity for

speech therapy .

I live in the San valley in California . Any tips of A developmental

neurologist or pediatrician aware of this area and willing to write

recommendation around my area .?

ANY suggestion how to move forward with the school and my insurance ?

I am also interested in having a copy of Debra article about dyspraxia -

looking forwards to join the group

Thank you

AMY

Posted July 28, 2009 · July 28, 2009

Amy, I can't help w/ the dr referral (you can do an online check for docs in

your area on one of the apraxia web sites or ask your insurance for a list of

docs or call the local children's hospital), but I just wanted to put my 2 cents

in about the oral motor therapy in school. I am a sped teacher and SLP's that

I've worked w/ have told me that they just don't have the experience w/ oral

motor therapy. I think (my opinion) that in most public schools the kids they

see don't (at least in the past) have the severity that perhaps a MRDD school

might see. MRDD may be more familiar w/ that or SLP's in the private sector.

That being said, my son's EI SLP gave us some exercises/suggestions to do (she

was an EI SLP affiliated w/ MRDD), I then shared them w/ the SLP that currently

sees my son and the one that I work w/ at my school.

As far as the group therapy, have you tried showing them research on how kids w/

apraxia need 1:1 therapy, NOT group therapy?

Good luck.

Bonnie

Posted July 29, 2009 · July 29, 2009

The below is a good group regarding insurance questions:

_ASDInsuranceHelp _

(mailto:ASDInsuranceHelp )

Also there is a group specifically for these types of situations and

how to solve them called: KaiserSpectrumKids, composed of only parents with

these types of situations specifically with Kaiser,

MG

**************Hot Deals at Dell on Popular Laptops perfect for Back to

School

(http://pr.atwola.com/promoclk/100126575x1223106546x1201717234/aol?redir=http:%2\

F%2Faltfarm.mediaplex.com%2Fad%2Fck%2F12309%2D81939%2D1629%2D8)

Posted August 18, 2009 · August 18, 2009

As for the IEP, you should do a search and see if your State Offers Parent

Mentors and if your State Board of Education offers IEP Facilitators. I can

tell you first hand that most school districts are going to try to get by with

offering the minimum and even at progress report times make contradictory

statements. They will often say your child is making adequate progress on

progress reports but then on the IEP current status they will make it sound like

he has hardly made any progress and that his speech is still a very limiting

factor.

My son was diagnosed with apraxia a little over 2 years ago. We are looking at

trying to force the schools hand on more than just group therapy. According to

them, he makes " AP " (adequate progress) on his progress reports. But: 1) He has

never met a single IEP objective; 2) If you read his current status from the

speech therapist at the school, she says he is still very, very limited in his

speech and that it has a significant impact on his learning. He appears to

often times not know how to answer a question (as in lacks the words) and then

becomes extremely embarassed.

>

> Hello

> This is my second time writing requesting to be a member I WAS denied first

time not clear why but I continue to read the web site and find it very

beneficial

> My name is AMY and I have a child 3 years old diagnosed by her speech

therapist and OT with dyspraxia . My insurance is kaiser and they do not

have an MD to back up this diagnosed(no expertise) so they are giving her the

DX of Developmental delay AND REFUSED TO SEND her OUT THE PLAN .

> She is hypo tonic , could not chew until we started oral motor therapy and

now can say 150 words with difficulty in vowel grading .She has gross motor and

fine motor delay mostly related to poor motor planning, poor co-ordination and

inability to mimic new things until it divided into steps and then mastered .

SHE is on fish oil and has been in therapy almost 2 years

> SHE is accepted in school with IEP yet they only want to give her group and

refused to have an oral motor goal.School refused to take the diagnosis of

dyspraxia with out a doctor signing on it ,even thought her OT and speech

therapist went To IEP - nor provide a prompt speech therapist which is the only

approach that helped her . Since I was not given an official diagnosis by an Md

, then I have no foot to stand on requesting individual therapy and proving she

can not benefit from groups

>

> At this time I can not afford further paying for therapy and her insurance

give her 2 OT session per week . Insurance stated she has no medical necessity

for speech therapy .

>

> I live in the San valley in California . Any tips of A developmental

neurologist or pediatrician aware of this area and willing to write

recommendation around my area .?

> ANY suggestion how to move forward with the school and my insurance ?

>

> I am also interested in having a copy of Debra article about dyspraxia -

> looking forwards to join the group

>

> Thank you

> AMY

>

Posted August 18, 2009 · August 18, 2009

Hi Amy~

I am in the Oregon area, but kaiser is my son's insurance also!! I wanted to

tell you that we were deined services for speech because my son is non-verbal

and has autism, and I had noticed that the ICD-9 code Kaiser gave my son was a

999.0 (something like that)which meant that his condition was chronic and he

wasn't going to get better. Me and his Grandmother, for about a month straight,

stayed on the phone with kaiser(pretty much pestering them) and sent email daily

about how my son's condition is not chronic and he would benifit from speech

therapy! Then one day we got a phone call saying that my son had been approved!!

I say talk to your doctor and the adminisator at the Kaiser your child goes to

and bug them until they submit!! My son's grandmother called the adminisator

daily and would be on the phone for hours and he was the one that finally said

" Enough, give this child services so these people can leave me alone "

Now he has been in speech for a little under a year!

The school district can give your a child a " educational diagnosis " meaning

someone from the school has to diagnios your child, and if no one is able to

request they find someone and PAY FOR IT!

The education system and insurance system are corrupted. When my son had a

medical dignosis the school system said " No he can not start school without a

educational diagnosis "

When you feel you are not being treated fairly, don't give up and keep fighting.

My son's grandmother is the biggest fighter and she is the reason we are as far

as we are!

HTH

~

--

Posted August 18, 2009 · August 18, 2009

I wouldn't say all school districts are like that, just the great majority of

them. It is something I am learning fast.

>

> Hi Amy~

> I am in the Oregon area, but kaiser is my son's insurance also!! I wanted to