Re:REALLY IMPORTANT ARTICLE ON SPEECH APRAXIA -- Blood Work To Consider

[Guest guest]

Hi All,

I just want to let all the 'newcomers' know that there are " blood labs to

consider " in the 'links' section of this group that relate to this

study. (I posted them below.) These are the labs that the study participants

ran on their kids and the results point to a common metabolic profile, at

least in a subset of apraxic kids. It's especially important to test for

carnitine deficiency--make sure to test before supplementing. (And if you do

supplement, use prescription grade carnitine, not over-the-counter from the

health food store.) There is a lot of good information in the links section

of this group!

Debra in CA :-)

Blood tests to consider for kids with apraxia:

Celiac panel

Vitamin E plasma levels (alpha and gamma)

Other fat soluble vitamins (A, D, K) (Many have fat malabsorption)

Metabolic studies: Lead level, CBC, complete metabolic panel, plasma

quant amino acids

carnitine (total, free, esters), acyl-carnitine panel (plasma),

urine organic acids, lactic acid, comprehensive fatty acid profile

(C8-26) -

a send out to Mayo clinic - but other labs do it too.(rule out

metabolic disorder as cause of severe neurodevelopmental disorder -

apraxia/dyspraxia).

Celiac pane includes:

serum for

1) human tissue transglutaminase antibodies (TTG),

2) antiendomysial antibodies (EMA),

3) anti-gliadin IgA antibody,

4) anti-gliadin IgG antibody, and

5) total immunoglobulin A.

Consider below:

Supplement with omega 3/6/9 (2 caps) + 1 EPA given 2-3 times a day.

(Twice a

day may be sufficient with Vit E)

Vit E (alpha " d " tocophorol) NOT synthetic " dl " 400 IU

Gamma tocophorol 200-300 mg day

Consider comprehensive multivit. Marilyn Agin recommended the

following to

me: Super NuThera from Kirkman's Labs (tastes nasty)

http://www.kirkmanlabs.com/products/multivitamins/super_nuthera/snt_3

07_454.

html.

L-Carnitine if testing shows a deficit.

Consider a trial of gluten/casein free diet, but I would give the

above supplements at least a month or 2, since the diet may not be

necessary? Unless celiac positive, of course. Then gluten-free is

essential.