Re: anyone with oral defenive kids?

[Guest guest]

my child does have some mouth issues but they are a little different.  I will

say that the " ba " sound is super!  At first my duaghter was mute then " ba " was

used for everthing.  Do you want milk?  " ba "   Or what color do you want? 

" ba "   Eventually it changed into more and now she talks great!

cAthy

From: wandre_k <wandre_k@...>

Subject: [ ] anyone with oral defenive kids?

Date: Sunday, June 13, 2010, 10:39 AM

 

we got a new ot/slt " team " who have figured out that my son isn't using

his tongue at all which is why he isn't talking. when he eat, he will

strategically put the food in the back of his mouth right over his back teeth to

avoid his tounge. Currently-we can't brush his teeth and doctors can't even put

a tounge depressor in his mouth because he bites it so hard he shatters it. he

doesn't bite people, but he bites his hand alot or his clothes (sleeves,

collers). we have never seen the tongue out at all.

does anyone else's child have this problem? i have to call this week to find

out when he is going to be scheduled for therapy, but they may do back to back

appointments (ot then slt).

this may be why the NV isn't helping. he is saying ba ba all the time now, but

this sound doesn't use the tounge very much. if we can get that tongue moving,

maybe there will be more sounds. he does " mouth " words sometimes, but nothing

comes out.

brenda

[Guest guest]

Without seeing your child, I can't tell you exactly what is happening. It

sounds like it may be several factors. He may have: a tonic bite reflex--this

occurs when a child clamps the mouth shut whenever anything is put into it;

highly probably that he has oversensitivity to touch on his tongue, esp the

front and midblade--the best for this are oral motor activities that normalize

the sensitivity on his tongue, start slowly w/your OT/SLPs advice. For example,

sing and make it fun as you use firm touch and a Zvibe (vibration) to " play "

around his lips, on his lips, just inside his mouth, etc., working back each

time (as he allows) on his tongue. It also sounds like he is seeking deep

proprioceptive input by biting his sleeves, collars---ask your SLP to show you

how to use bite blocks--targets jaw stability, control, and gives the feedback

he is seeking. Chewy tubes will also be helpful.

Barbara A , M.S., CCC-SLP

Speech-Language Pathologist

Executive Director, Help Me Speak, LLC

410-442-9791

www.helpmespeak.com

Ask me about NutriiVeda!

Jun 13, 2010 03:04:37 PM, wrote:

===========================================

we got a new ot/slt " team " who have figured out that my son isn't using his

tongue at all which is why he isn't talking. when he eat, he will strategically

put the food in the back of his mouth right over his back teeth to avoid his

tounge. Currently-we can't brush his teeth and doctors can't even put a tounge

depressor in his mouth because he bites it so hard he shatters it. he doesn't

bite people, but he bites his hand alot or his clothes (sleeves, collers). we

have never seen the tongue out at all.

does anyone else's child have this problem? i have to call this week to find

out when he is going to be scheduled for therapy, but they may do back to back

appointments (ot then slt).

this may be why the NV isn't helping. he is saying ba ba all the time now, but

this sound doesn't use the tounge very much. if we can get that tongue moving,

maybe there will be more sounds. he does " mouth " words sometimes, but nothing

comes out.

brenda

[Guest guest]

Hi !

Barbara had some great suggestions. How is your child with lollipops? Favorite

flavor lollipop? Jawbreaker lollipop that you CAN'T bite??? Does he only try

to bite them and not suck them at all? Have you tried this?

There used to be vibrating lollipops around that were awesome when Tanner was

little that we incorporated into therapy for oral stimulation. They now sell

something called Zvibe that you can attach a lollipop to for that same vibration

http://www.beyondplay.com/CATALOG/ORA1.HTM

In the same light there are the vibrating toothbrushes -you can find them all

over. Speaking of which I know you said you can't brush his teeth and that is a

concern...what about using a washcloth that he can bite on but that you can use

to rub over his teeth with some tooth paste on it? I did find this link for

special needs and dentists

http://www.our-kids.org/Archives/dentistry_disabled.html

You say " this may be why the NV isn't helping. he is saying ba ba all the time

now, but this sound doesn't use the tounge very much. if we can get that tongue

moving, maybe there will be more sounds. he does " mouth " words sometimes, but

nothing comes out. "

In your last update about nutriiveda you wrote " I don't check the chat room

everyday so i get bits and pieces of what is going on. My son has been on NV

since February. And even though he is made great improvements in understanding

language, eye contact and social interactions, he still isn't talking. "

The reason this grouplist is powerful is because it forces those that post to

document...and sometimes we want surges so quick that it's unrealistic, and we

don't appreciate all the good going on. I mean both in your last message and

this one clearly there is some progress -but probably due to your frustration of

it not being fast enough you aren't being positive to it yet. You may want to

keep a private journal so you can write down day to day things and then read

progress over weeks or months vs hours. Progress is never straight up -there

are sometimes steps back prior to a surge forward. Today many parents keep

blogs and it serves the same purpose. Just a suggestion.

What dosage is your child on and what age? Are you working with his doctor with

the nutriiveda as some of the MDs have raised the dosages slightly from what I

have here http://pursuitofresearch.org/faq.html#dosage That's because the

product is 100 percent water soluble and all the nutrients including all the

essential amino acids are from whole food sources. Also if he's made great

strides in " understanding language, eye contact and social interactions " those

are all huge areas- I'd stay positive that NV IS working -just may a bit more

time for speech. Is the " ba ba ba " that is says constantly now new or did he

always do that?

=====

[Guest guest]

Also, you can use a " spin pop " lollipop, look in the candy aisle. (battery

powered)

Warmest wishes,

Barbara , M.S., CCC-SLP

www.helpmespeak.com

410-442-9791

Ask me about NutriiVeda!

On Jun 13, 2010, at 10:17 PM, " kiddietalk " <kiddietalk@...> wrote:

> Hi !

>

> Barbara had some great suggestions. How is your child with lollipops? Favorite

flavor lollipop? Jawbreaker lollipop that you CAN'T bite??? Does he only try to

bite them and not suck them at all? Have you tried this?

>

> There used to be vibrating lollipops around that were awesome when Tanner was

little that we incorporated into therapy for oral stimulation. They now sell

something called Zvibe that you can attach a lollipop to for that same vibration

http://www.beyondplay.com/CATALOG/ORA1.HTM

>

> In the same light there are the vibrating toothbrushes -you can find them all

over. Speaking of which I know you said you can't brush his teeth and that is a

concern...what about using a washcloth that he can bite on but that you can use

to rub over his teeth with some tooth paste on it? I did find this link for

special needs and dentists

http://www.our-kids.org/Archives/dentistry_disabled.html

>

> You say " this may be why the NV isn't helping. he is saying ba ba all the time

now, but this sound doesn't use the tounge very much. if we can get that tongue

moving, maybe there will be more sounds. he does " mouth " words sometimes, but

nothing comes out. "

>

> In your last update about nutriiveda you wrote " I don't check the chat room

everyday so i get bits and pieces of what is going on. My son has been on NV

since February. And even though he is made great improvements in understanding

language, eye contact and social interactions, he still isn't talking. "

>

> The reason this grouplist is powerful is because it forces those that post to

document...and sometimes we want surges so quick that it's unrealistic, and we

don't appreciate all the good going on. I mean both in your last message and

this one clearly there is some progress -but probably due to your frustration of

it not being fast enough you aren't being positive to it yet. You may want to

keep a private journal so you can write down day to day things and then read

progress over weeks or months vs hours. Progress is never straight up -there are

sometimes steps back prior to a surge forward. Today many parents keep blogs and

it serves the same purpose. Just a suggestion.

>

> What dosage is your child on and what age? Are you working with his doctor

with the nutriiveda as some of the MDs have raised the dosages slightly from

what I have here http://pursuitofresearch.org/faq.html#dosage That's because the

product is 100 percent water soluble and all the nutrients including all the

essential amino acids are from whole food sources. Also if he's made great

strides in " understanding language, eye contact and social interactions " those

are all huge areas- I'd stay positive that NV IS working -just may a bit more

time for speech. Is the " ba ba ba " that is says constantly now new or did he

always do that?

>

> =====

>

[Guest guest]

Good one Barbara -forgot they still make the spin pops! Below I have some of

the articles about the other type of lollipop holder that was so awesome...that

they don't make anymore!!!

From: " kiddietalk "

Date: Mon Oct 30, 2000 11:54 pm

Subject: Halloween Therapy? Yup!

With Halloween upon us, here is a creative way to use those lollipop

treats.

If you are the parent or therapist of an apraxic child, and you find

Sound Bites in a toy store, buy one. Any lollipop will work in the

Sound Bites holder. My son Tanner's therapist told me that this is

one of the best inventions for an apraxic child (and the inventors

probably don't even know what apraxia is.) The best Sound Bites is

the one that you can record into, (second article) because it will

vibrate the sounds or words you are working on right inside the

child's mouth. Wait until you see their faces when that happens! I

came across these articles and thought they may be helpful in

tracking this Sound Bites lollypop holder down.

Happy and Safe Halloween!

[Guest guest]

Thanks for the info-

unfortuntately, he won't do suckers at all. he actually hates candy or any sort

of sweets. I will get some suckers for therapy and maybe they can get him to

use it.

as for his doctor-she isn't on board with the NV or fish oil. i was hoping that

it would have worked better for him to show her that it was the cause and get

her on board (she is the top autism specialist at Rainbow Babies and Children

hospital). I am not going to stop giving it to him, but maybe i will just work

on adjusting his levels. he is in the upper percentiles for his height and

weight so maybe he could use more.

-FYI- 1 scoop of NV= 3 tablespoons. We are currently giving him 2 tbs in

the morning and 2 tbs in the evening and 1/2 tsp of the fish oil in morning. he

still won't do the Nordic Natural pills or the lemon flavor 3-6-9. he is taking

the barleans orange flavor omega-3 epa/dha. It has Omega 3 (850 mg EPA, 540 mg

DHA, 385 other Omega 3), Omega 6 (Linoleic Acid 55 mg, Omega 6 35 mg) and Omega

9 (685 mg). Note that this is for a 1 tsp so he is getting half this amount.

Am I missing something?

>

> Good one Barbara -forgot they still make the spin pops! Below I have some of

the articles about the other type of lollipop holder that was so awesome...that

they don't make anymore!!!

>

> From: " kiddietalk "

> Date: Mon Oct 30, 2000 11:54 pm

> Subject: Halloween Therapy? Yup!

>

>

> With Halloween upon us, here is a creative way to use those lollipop

> treats.

>

> If you are the parent or therapist of an apraxic child, and you find

> Sound Bites in a toy store, buy one. Any lollipop will work in the

> Sound Bites holder. My son Tanner's therapist told me that this is

> one of the best inventions for an apraxic child (and the inventors

> probably don't even know what apraxia is.) The best Sound Bites is

> the one that you can record into, (second article) because it will

> vibrate the sounds or words you are working on right inside the

> child's mouth. Wait until you see their faces when that happens! I

> came across these articles and thought they may be helpful in

> tracking this Sound Bites lollypop holder down.

>

> Happy and Safe Halloween!

>

>