Re: Re: BIOMEDICAL INTERVENTIONS

June 9, 2010

I'm confused after reading this:

So you can find that out pretty quick and easy and don't worry about the

DHA Jr going to waste- it's still healthy and you can take it. Then try

this. Once your child is on 2 ProEFA and you'd like to raise it -try 3 capsules

of ProEFA...and then...switch it to 2 ProEFA and 1 ProEPA and see where

you notice dramatic more surges. We can wait -I'm just letting you know what

has worked in this group for most for years.

So, are you saying that some people give 3 ProEFA instead of the 2:1 ratio?

Or am I reading it wrong? We are starting our fish oil tomorrow and want

to make sure I'm doing it right---I was planning on the 2 EFA and 1 EPA.

Thanks!

>

> Over the years we have found that in most cases a higher EPA to DHA has

created more surges. For some reason the both the essential fatty acids and the

essential amino acids (from whole foods) create surges so quickly on,

regressions so quick off -that it's easy enough to try various formulas yourself

and find out what the rest of us did.

>

> EPA is a more expensive and harder to process fish oil. ProEPA has extremely

high EPA with some DHA and no GLA. Most in our group found GLA (the O6 from

primrose or borage seed oil) to be important too for some reason. The GLA has

high anti inflammatory properties so perhaps enables the EPA and DHA to get to

where it's needed crossing the tiny vessels into the brain? You only need a wee

bit of GLA however.

>

> What you can try is...pure Omega 3 with high DHA which is the DHA Jr. See if

you notice anything. For a huge parental feedback we organized through Cherab

years ago most of us saw...nothing to so little maybe it was just normal small

surges that you'd see in any speech impaired/apraxic child. To one capsule of

ProEFA which is higher EPA to DHA -small amount of GLA and in almost all cases

moderate to dramatic surges in the same few weeks.

>

> So you can find that out pretty quick and easy and don't worry about the DHA

Jr going to waste- it's still healthy and you can take it. Then try this. Once

your child is on 2 ProEFA and you'd like to raise it -try 3 capsules of

ProEFA...and then...switch it to 2 ProEFA and 1 ProEPA and see where you notice

dramatic more surges. We can wait -I'm just letting you know what has worked in

this group for most for years.

>

> The only difference today is that with adding nutriiveda it appears you won't

need as much fish oils after a few months of nutriiveda...not sure why. Perhaps

it's because it supports the metabolic system? I just know I was able to reduce

Tanner's dosage in half. A few of us from this group are now working with some

of these doctors http://pursuitofresearch.org/advisors.html to find out why

What's good about it as well as the entire product is a food and water soluble-

even the vitamin A and vitamin E in it from whole food- this is because it's a

powder and the way it's processed.

>

> Speaking of which -any fish oil from the liver of the fish naturally will

contain vitamin A. Fish oils not made from the liver of the fish won't contain

vitamin A. Cod liver oil does contain vitamin A so it's something to be aware

of as it's a fat soluble vitamin. We learned in this group the hard way you

don't want to mess with high levels of fat soluble vitamins when in liquid form

unless under strict supervision of a medical doctor that has knowledge in this

area and that you trust highly!

>

> And back to oil therapy -may want to read up on our professional anecdotal

feedback from the First Apraxia Conference hosted by the Cherab Foundation

http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-conference

>

> =====

>

June 9, 2010

Ha, thanks! I do care why and have read it several times in my search

through the archives of messages, but thought maybe I missed something. So, is

it advised to try different combos?? Or is it really just the one that

works??? I'm confusing myself more than necessary, I think.

....Thanks!

In a message dated 6/9/2010 2:17:39 P.M. Eastern Daylight Time,

kiddietalk@... writes:

I'm so sorry -didn't mean to confuse you! The only reason I posted it was

because had asked " > I just want to get some clarification on the

fish oil. Why do we want

> to mix PRO-EFA and PRO-EPA??? Why not just one? Why not the DHA Jr.?

> I would love some clarification.

> Thanks so much,

> "

So I was just explaining to her why. You don't have to do it that way -was

just saying that it doesn't take long to find out which formula is the

most effective.

There are parents and professionals that have more

inquisitive/investigative minds and want to know why- and I respect that as

that's the way I am

too. So just letting those people that do want to know why we advice the 2/1

ratio of ProEFA to proEPA to know why I do, how to find out for themselves

-and giving some example of what we have found out in this group over the

past 11 years.

But to keep it simple -yes you can just use the 2 ProEFA and 1 ProEPA to

start and that's what works for most of us. For those that don't care why

that's the formula -ignore the rest.

=====

June 9, 2010

I am literally LOL at this. I know you know I care and I see what you are

saying :-) ha ha ha I guess I'll do the 2:1 and if I have questions later

on, I know who to come to!! :-)

In a message dated 6/9/2010 2:58:31 P.M. Eastern Daylight Time,

kiddietalk@... writes:

Yes I wouldn't stress over it. Sometimes when you write stuff in emails

you don't get the point across the way it's meant...I didn't mean " care " as

in you don't care...I meant it in the same way you may buy " new and

improved " Crest not really wanting to know every detail of why it's new and

improved...know what I mean? Most likely as you are a parent you will mix it up

a

bit at some point...run out of something for example and pick up a

different brand and think " well fish oil is fish oil " and not expect to see a

regression...and not know why. So now you know- the only thing that matters

when

it comes to fish oil is dosage, formula, and quality of the oil...not name

brand. In reality I discovered the higher EPA to be more effective when my

niece was born and I was working on The Late Talker book and my husband

took my boys to Boston as you can find in the archives ...the ProEPA was only

meant for Dakota's ADHD and that was due to my conversat ion with Dr. AJ

which was prior to her publication of the Durham study -and while

she was at our conference. So Glenn left for Boston with both the boys and

both ProEFA and ProEPA and gave both oils to both boys and all noticed the

surges in Tanner's speech just in that one weekend. Like nutriiveda

sometimes surprises are the best. (I wrote about that here

_http://pursuitofresearch.org/letter_lisa.html_

(http://pursuitofresearch.org/letter_lisa.html)

how I found this out to be good with Tanner but clearly so much more to it

now than then) Oh by the way...my husband Glenn will say that HE is the one

that discovered that higher ProEPA is better for apraxia because of what

happened in Boston...and yes I guess so as that's how it started -but it's a

long story and lots of us trying it behind the scenes and me noticing you

can't get the EPA TOO high over the rest... even before I wrote about it in

this group. I'm just trying not to confuse you more...but probably now got

you more confused.

....and so yes the 2 ProEFA and the 1 ProEPA is the formula that most of us

found to create the most dramatic surges. And because this is email -I

know you care...just that you don't have to know every detail -unless you want

to (and much of it again is in the archives)

=====

Geng

President CHERAB Foundation

Communication Help, Education, Research, Apraxia Base

_http://www.cherab.org_ (http://www.cherab.org/)

_http://www.pursuitofresearch.org_ (http://www.pursuitofresearch.org/)

_http://www.apraxia.org_ (http://www.apraxia.org/)

_http://twitter.com/TheLateTalker_ (http://twitter.com/TheLateTalker)

772-335-5135

" Help give our cherubs a smile and a voice "

> > >

> > > Over the years we have found that in most cases a higher EPA to DHA

> has created more surges. For some reason the both the essential fatty

acids

> and the essential amino acids (from whole foods) create surges so

quickly

> on, regressions so quick off -that it's easy enough to try various

formulas

> yourself and find out what the rest of us did.

> > >

> > > EPA is a more expensive and harder to process fish oil. ProEPA has

> extremely high EPA with some DHA and no GLA. Most in our group found GLA

(the

> O6 from primrose or borage seed oil) to be important too for some

reason.

> The GLA has high anti inflammatory properties so perhaps enables the EPA

and

> DHA to get to where it's needed crossing the tiny vessels into the

brain?

> You only need a wee bit of GLA however.

> > >

> > > What you can try is...pure Omega 3 with high DHA which is the DHA

Jr.

> See if you notice anything. For a huge parental feedback we organized

> through Cherab years ago most of us saw...nothing to so little maybe it

was just

> normal small surges that you'd see in any speech impaired/apraxic child.

> To one capsule of ProEFA which is higher EPA to DHA -small amount of GLA

and

> in almost all cases moderate to dramatic surges in the same few weeks.

> > >

> > > So you can find that out pretty quick and easy and don't worry about

> the DHA Jr going to waste- it's still healthy and you can take it. Then

try

> this. Once your child is on 2 ProEFA and you'd like to raise it -try 3

> capsules of ProEFA...and then...switch it to 2 ProEFA and 1 ProEPA and

see

> where you notice dramatic more surges. We can wait -I'm just letting you

know

> what has worked in this group for most for years.

> > >

> > > The only difference today is that with adding nutriiveda it appears

> you won't need as much fish oils after a few months of nutriiveda...not

sure

> why. Perhaps it's because it supports the metabolic system? I just know

I

> was able to reduce Tanner's dosage in half. A few of us from this group

are

> now working with some of these doctors

> __http://pursuitofresearch.org/advisors.html__'>http://pursuitofresearch.org/advisors.html__

(http://pursuitofresearch.org/advisors.html_)

(_http://pursuitofresearch.org/advisors.html_

(http://pursuitofresearch.org/advisors.html) ) to find out why

> What's good about it as well as the entire product is a food and water

> soluble- even the vitamin A and vitamin E in it from whole food- this is

because

> it's a powder and the way it's processed.

> > >

> > > Speaking of which -any fish oil from the liver of the fish naturally

> will contain vitamin A. Fish oils not made from the liver of the fish

won't

> contain vitamin A. Cod liver oil does contain vitamin A so it's

something

> to be aware of as it's a fat soluble vitamin. We learned in this group

the

> hard way you don't want to mess with high levels of fat soluble vitamins

> when in liquid form unless under strict supervision of a medical doctor t

hat

> has knowledge in this area and that you trust highly!

> > >

> > > And back to oil therapy -may want to read up on our professional

> anecdotal feedback from the First Apraxia Conference hosted by the

Cherab

> Foundation

>

__http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-conferen\

ce__

(http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-conferenc\

e_)

(_http://www.cherabfoundation.org/2001/cherab-foundations-first_

(http://www.cherabfoundation.org/2001/cherab-foundations-first)

> -apraxia-conference)

> > >

> > > =====

> > >

June 9, 2010

Hi all,

I just want to get some clarification on the fish oil. Why do we want

to mix PRO-EFA and PRO-EPA??? Why not just one? Why not the DHA Jr.?

I would love some clarification.

Thanks so much,

On 6/9/10, kiddietalk <kiddietalk@...> wrote:

> Not sure if all are aware that even fish oils and nutriiveda are considered

> " biomedical " interventions. And for most of us it's the only biomedical

> intervention needed to bring our children up to speed as one provides

> essential amino acids and whole food nutrients and one essential fatty acids

> -all being linked today in research to neuro repair. Fish oils has been the

> gold standard in this group for over a decade -but even though relatively

> new -nutriiveda hands down, has created surges, so dramatic and sudden I

> might add, in so many areas for so many diagnosis and ages in this group

> that try it that it's mind blowing. And yes fish oils and nutriiveda appear

> to compliment each other and can and probably should be used together.

>

> Years ago I posted the main problem with fish oils is that once the children

> get up to speed the parents no longer post and reach out here to help the

> newbies. Translate they no longer post here. Just a few like me stick

> around once their children are doing well -most move on. With

> nutriiveda....OMG it's happening even faster that we are losing members to

> normal life!! (which is a good thing) I encourage any of you that are

> curious to go through the testimony page

> http://pursuitofresearch.org/testimonials.html as most of you know the

> parents or professionals behind each one there and appreciate there are many

> others here and email in private any one of those parents....because they

> are pretty much all moving on doing " normal " stuff.

>

> For example I just got an email from Dianne for example where she wrote

> " Liam is still making huge gains and everyone comments on it! He has

> developed a sudden and very age-appropriate love of dinosaurs and I have

> only been online as much as I have this afternoon because I've been

> searching for and ordering dinosaur bedding to surprise him. We're just so

> pleased to have him this interested in this! Our big boy! His speech

> continues to improve, as well as his language skills in general - just as

> using common phrases and answering WH questions. Amazing! "

>

> And as you'll read on the testimony page or from the parents direct -most

> did not expect to see any surges with nutriiveda...but just tried it and

> like all of us are shocked -in a great way!

>

> As Dr. Cal Lightman from Lie to Me says - " I'll eat my shoes " if you try

> nutriiveda and it doesn't work (or get you your money back since it comes

> with a 30 day 100 percent money back guarantee) I just want all the

> skeptics to try it because I know what your children are missing!!!

> Theories as to why it may be working

> http://pursuitofresearch.org/science.html (need to add a few more!)

>

> And again with this one unlike fish oils we won't need to raise monies for

> research and it won't be long until this is validated. The good news for

> those that want to wait- it even works for adults as I know from my Aunt

> Leona- and from 26 year old Ketchum

> http://littlemermaidmelanie.wordpress.com (but why would you even want to

> wait!)

>

> =====

>

June 9, 2010

-

This is right up your alley... Also , you might try the Late

Talker, and some of the old archives talk about the Jr. not working for

the kids.

Hope those things help-

M.

Re: [ ] Re: BIOMEDICAL INTERVENTIONS

Hi all,

I just want to get some clarification on the fish oil. Why do we

want

to mix PRO-EFA and PRO-EPA??? Why not just one? Why not the DHA

Jr.?

I would love some clarification.

Thanks so much,

On 6/9/10, kiddietalk <kiddietalk@...

<mailto:kiddietalk%40> > wrote:

> Not sure if all are aware that even fish oils and nutriiveda

are considered

> " biomedical " interventions. And for most of us it's the only

biomedical

> intervention needed to bring our children up to speed as one

provides

> essential amino acids and whole food nutrients and one

essential fatty acids

> -all being linked today in research to neuro repair. Fish oils

has been the

> gold standard in this group for over a decade -but even though

relatively

> new -nutriiveda hands down, has created surges, so dramatic

and sudden I

> might add, in so many areas for so many diagnosis and ages in

this group

> that try it that it's mind blowing. And yes fish oils and

nutriiveda appear

> to compliment each other and can and probably should be used

together.

>

> Years ago I posted the main problem with fish oils is that

once the children

> get up to speed the parents no longer post and reach out here

to help the

> newbies. Translate they no longer post here. Just a few like

me stick

> around once their children are doing well -most move on. With

> nutriiveda....OMG it's happening even faster that we are

losing members to

> normal life!! (which is a good thing) I encourage any of you

that are

> curious to go through the testimony page

> http://pursuitofresearch.org/testimonials.html as most of you

know the

> parents or professionals behind each one there and appreciate

there are many

> others here and email in private any one of those

parents....because they

> are pretty much all moving on doing " normal " stuff.

>

> For example I just got an email from Dianne for example where

she wrote

> " Liam is still making huge gains and everyone comments on it!

He has

> developed a sudden and very age-appropriate love of dinosaurs

and I have

> only been online as much as I have this afternoon because I've

been

> searching for and ordering dinosaur bedding to surprise him.

We're just so

> pleased to have him this interested in this! Our big boy! His

speech

> continues to improve, as well as his language skills in

general - just as

> using common phrases and answering WH questions. Amazing! "

>

> And as you'll read on the testimony page or from the parents

direct -most

> did not expect to see any surges with nutriiveda...but just

tried it and

> like all of us are shocked -in a great way!

>

> As Dr. Cal Lightman from Lie to Me says - " I'll eat my shoes "

if you try

> nutriiveda and it doesn't work (or get you your money back

since it comes

> with a 30 day 100 percent money back guarantee) I just want

all the

> skeptics to try it because I know what your children are

missing!!!

> Theories as to why it may be working

> http://pursuitofresearch.org/science.html (need to add a few

more!)

>

> And again with this one unlike fish oils we won't need to

raise monies for

> research and it won't be long until this is validated. The

good news for

> those that want to wait- it even works for adults as I know

from my Aunt

> Leona- and from 26 year old Ketchum

> http://littlemermaidmelanie.wordpress.com (but why would you

even want to

> wait!)

>

> =====

>

June 9, 2010

Right now, I haven't figured out how to get fish oils the same ratio according

to and Late Talker- into my kids. So right now we " re sticking to the

Coromega packets for my older kids ages 15, 13, 11, 7 and 6. (Asa my dyspraxic

is the 6). But only one packet because I don't know how much to give Asa

For the 2 little ones who have serious feeding aversions, I can only get the

fish gummies into them. Right now they're getting 3 gummies w/ the bottle saying

2 but these are also speech kids

All of us have noticed a HUMONGOUS serge w the babies' talking on just the

Nordic Natural Gummies (not sure what ratio or strength is in it) and w/ only 3

a day. I'm super impressed how well they are doing, and anything is a good

thing, but this has done well so far

Bek

Sent from my Verizon Wireless BlackBerry

Re: [ ] Re: BIOMEDICAL INTERVENTIONS

Hi all,

I just want to get some clarification on the fish oil. Why do we

want

to mix PRO-EFA and PRO-EPA??? Why not just one? Why not the DHA

Jr.?

I would love some clarification.

Thanks so much,

On 6/9/10, kiddietalk <kiddietalk@...

<mailto:kiddietalk%40> > wrote:

> Not sure if all are aware that even fish oils and nutriiveda

are considered

> " biomedical " interventions. And for most of us it's the only

biomedical

> intervention needed to bring our children up to speed as one

provides

> essential amino acids and whole food nutrients and one

essential fatty acids

> -all being linked today in research to neuro repair. Fish oils

has been the

> gold standard in this group for over a decade -but even though

relatively

> new -nutriiveda hands down, has created surges, so dramatic

and sudden I

> might add, in so many areas for so many diagnosis and ages in

this group

> that try it that it's mind blowing. And yes fish oils and

nutriiveda appear

> to compliment each other and can and probably should be used

together.

>

> Years ago I posted the main problem with fish oils is that

once the children

> get up to speed the parents no longer post and reach out here

to help the

> newbies. Translate they no longer post here. Just a few like

me stick

> around once their children are doing well -most move on. With

> nutriiveda....OMG it's happening even faster that we are

losing members to

> normal life!! (which is a good thing) I encourage any of you

that are

> curious to go through the testimony page

> http://pursuitofresearch.org/testimonials.html as most of you

know the

> parents or professionals behind each one there and appreciate

there are many

> others here and email in private any one of those

parents....because they

> are pretty much all moving on doing " normal " stuff.

>

> For example I just got an email from Dianne for example where

she wrote

> " Liam is still making huge gains and everyone comments on it!

He has

> developed a sudden and very age-appropriate love of dinosaurs

and I have

> only been online as much as I have this afternoon because I've

been

> searching for and ordering dinosaur bedding to surprise him.

We're just so

> pleased to have him this interested in this! Our big boy! His

speech

> continues to improve, as well as his language skills in

general - just as

> using common phrases and answering WH questions. Amazing! "

>

> And as you'll read on the testimony page or from the parents

direct -most

> did not expect to see any surges with nutriiveda...but just

tried it and

> like all of us are shocked -in a great way!

>

> As Dr. Cal Lightman from Lie to Me says - " I'll eat my shoes "

if you try

> nutriiveda and it doesn't work (or get you your money back

since it comes

> with a 30 day 100 percent money back guarantee) I just want

all the

> skeptics to try it because I know what your children are

missing!!!

> Theories as to why it may be working

> http://pursuitofresearch.org/science.html (need to add a few

more!)

>

> And again with this one unlike fish oils we won't need to

raise monies for

> research and it won't be long until this is validated. The

good news for

> those that want to wait- it even works for adults as I know

from my Aunt

> Leona- and from 26 year old Ketchum

> http://littlemermaidmelanie.wordpress.com (but why would you

even want to

> wait!)

>

> =====

>

June 9, 2010

-

Not the gummy fish- but:

NN Nordic Omega-3 Gummies

Tangerine Treats- they look like gum drops not fishies.

I believe the gal at the store said they're getting the red fish soon- are these

the ones you liked?

(Sorry- playing monopoly w kids and reading via phone)

Serving size 2 gummies

Fish Oil 273 mg

EPA 41 mg

DHA 27mg

Other omega 3's 14mg

Total Omega 3's. 82mg

How many of these should be good for Aurick who is 4 and 35 lbs or so. And

Aramis who is 2 and 23lbs. (He's tiny)

I started out w 2 then increased to now @ 3

Sent from my Verizon Wireless BlackBerry

[ ] Re: BIOMEDICAL INTERVENTIONS

I'm so sorry -didn't mean to confuse you! The only reason I posted it was

because had asked " > I just want to get some clarification on the fish

oil. Why do we want

> to mix PRO-EFA and PRO-EPA??? Why not just one? Why not the DHA Jr.?

> I would love some clarification.

> Thanks so much,

> "

So I was just explaining to her why. You don't have to do it that way -was just

saying that it doesn't take long to find out which formula is the most

effective.

There are parents and professionals that have more inquisitive/investigative

minds and want to know why- and I respect that as that's the way I am too. So

just letting those people that do want to know why we advice the 2/1 ratio of

ProEFA to proEPA to know why I do, how to find out for themselves -and giving

some example of what we have found out in this group over the past 11 years.

But to keep it simple -yes you can just use the 2 ProEFA and 1 ProEPA to start

and that's what works for most of us. For those that don't care why that's the

formula -ignore the rest.

=====

June 9, 2010

fish oild and nv are not enough to be biomed.Â for us biomed was urine tests

and treating based one her results.Â You can't just give fish oil and say it is

biomed.Â It is a group effort from antifungals to probiotics and not using

harsh chemicals like bleach around your children anymore.Â This is why you

really should find your local DAN!Â Ther is a dan protocal and my daughter is

speaking now from it.

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: BIOMEDICAL INTERVENTIONS

Date: Wednesday, June 9, 2010, 9:59 AM

Â

Not sure if all are aware that even fish oils and nutriiveda are

considered " biomedical " interventions. And for most of us it's the only

biomedical intervention needed to bring our children up to speed as one provides

essential amino acids and whole food nutrients and one essential fatty acids

-all being linked today in research to neuro repair. Fish oils has been the

gold standard in this group for over a decade -but even though relatively new

-nutriiveda hands down, has created surges, so dramatic and sudden I might add,

in so many areas for so many diagnosis and ages in this group that try it that

it's mind blowing. And yes fish oils and nutriiveda appear to compliment each

other and can and probably should be used together.

Years ago I posted the main problem with fish oils is that once the children get

up to speed the parents no longer post and reach out here to help the newbies.

Translate they no longer post here. Just a few like me stick around once their

children are doing well -most move on. With nutriiveda....OMG it's happening

even faster that we are losing members to normal life!! (which is a good thing)

I encourage any of you that are curious to go through the testimony page

http://pursuitofresearch.org/testimonials.html as most of you know the parents

or professionals behind each one there and appreciate there are many others here

and email in private any one of those parents....because they are pretty much

all moving on doing " normal " stuff.

For example I just got an email from Dianne for example where she wrote " Liam is

still making huge gains and everyone comments on it! He has developed a sudden

and very age-appropriate love of dinosaurs and I have only been online as much

as I have this afternoon because I've been searching for and ordering dinosaur

bedding to surprise him. We're just so pleased to have him this interested in

this! Our big boy! His speech continues to improve, as well as his language

skills in general - just as using common phrases and answering WH questions.

Amazing! "

And as you'll read on the testimony page or from the parents direct -most did

not expect to see any surges with nutriiveda...but just tried it and like all of

us are shocked -in a great way!

As Dr. Cal Lightman from Lie to Me says - " I'll eat my shoes " if you try

nutriiveda and it doesn't work (or get you your money back since it comes with a

30 day 100 percent money back guarantee) I just want all the skeptics to try it

because I know what your children are missing!!! Theories as to why it may be

working http://pursuitofresearch.org/science.html (need to add a few more!)

And again with this one unlike fish oils we won't need to raise monies for

research and it won't be long until this is validated. The good news for those

that want to wait- it even works for adults as I know from my Aunt Leona- and

from 26 year old Ketchum http://littlemermaidmelanie.wordpress.com (but

why would you even want to wait!)

=====

June 9, 2010

Also join lists for biomed and neurological disorders in kids-and learn from

other parents--no DAN should be fully trusted--they are only as good as the info

presented to them at the DAn conferences, some are MDs--some are not--go with

recommendations and with the ones who are well prepared and have medical

degrees-- holistic nutritionists can work too-- we use both a biomed

pediatrician with homeopathic training and a holistic nutritionist as the

nutrition issues are HUGE---one doc alone can't do it all----this is a new and

unregulated field--a lot of trial and error and some things are OK to try--but

others shoudl only be done the right way and finding that right way is not as

easy as one might think.

Parents need to educate themselves and choose a biomed doctor they can work

with--most DANs at some point use inappropriate and even dangerous protocols

that can harm kids--even ours suggested something we later luckily learned was

not appropriate given her profile--we discussed it and agreed our protocol was

safer--again--parents beware--no doctor can know it all--nor shoudl they alone

be in charge--it is up to us --the parents to make informed decisions and do the

best for our neurologically and metabolically damaged kids---it is our

responsibility---no one else has their best interest at heart as we do--we can

observe what works and what doesn't--no two kids are the same nor should they be

treated the same--there are similarities yes, and the DANs have some

experience--but we should be the ones making the ultimate decisions--NOT the

DANs.

Yes there are tests, different protocols, reasons to prioritize one intervention

over another--we have to co-construct our child's protocol with the DAN--not

just blindly follow, --join lists that have parents who've been through it and

you can tap into the knowledge and experience of all the DANs and all the

aprents who've lived it and healed their kids. The metabolic /neurological

disorder connections are very complex---mainstream medicine is decades

behind---parents have to educate themselves and find flexible medical

professionals to work with them to help their kids normalize. it is not easy

but if we don't do it who will?

All the best,

Elena

________________________________

From: Christiansen <cathychristiansen84@...>

Sent: Wed, June 9, 2010 11:59:14 AM

Subject: Re: [ ] Re: BIOMEDICAL INTERVENTIONS

fish oild and nv are not enough to be biomed. for us biomed was urine tests and

treating based one her results. You can't just give fish oil and say it is

biomed. It is a group effort from antifungals to probiotics and not using harsh

chemicals like bleach around your children anymore. This is why you really

should find your local DAN! Ther is a dan protocal and my daughter is speaking

now from it.