Re: Re: why so mad at non-verbal stats?

[Guest guest]

I disagree.  It is just my way of thinking I guess.  I think we should be

prepared for the worst and hope for the best.  I always wanted my child to

speak but I was very prepared for her to never say anything.  We did GF/CF,

pecs, a go to talk speaking device, sign language, 3 different speech teacher 4

times a week, and the winner was the b12 injections.  If you need to believe

that your child will talk then do it.  But for me If i believed that mine would

talk and she never did I would feel cheated.  I tried very hard to help her

speak even with my opinion she never would on the tiny chance that maybe I was

wrong.  I am happy to say I was wrong and she graduated from all 3 speech

teachers in 9 months for speaking more advanced than her age!  I do not think

she would have ever spoken if we had waited to intervein until she was older. 

I think it had everything to do with age.  I know several families personally

that are doing what we did and

more and their kids are a little bit older and they still can not talk.  I do

not care what studies say because they can be slanted either way.  I am in a

community where there are many many children that are non-verbal from apraxia to

ACC (part of the brain is missing) and I have seen the same thing over and

over.  After about school age it is too late.

cathy

From: jlukemom <94111@...>

Subject: [ ] Re: why so mad at non-verbal stats?

Date: Sunday, May 30, 2010, 8:28 AM

 

I'm with on this one.

The " hard boiled egg " theory that there is a window of opportunity that closes

at age " 5 " (plug in any number) has been disproven many, many times. brain

studies have shown that the brain remains plastic throughout a lifetime. that

is one reason why some stroke patients are able to recover full function.

children can and do start speaking after age 5 or 8 or 13... just post an

inquiry on any autism or apraxia board and you will get stories of

children/adults who have.

" experts " who go around saying that children after the age of X will not speak

are lowering the expectations of many parents and professionals who work with

those children. No one should give up hope or have low expectations of any

child.

just my 2 cents

>

> From: kiddietalk <kiddietalk@...>

> Subject: [ ] Any thoughts on this???

>

> Date: Saturday, May 29, 2010, 1:52 PM

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> The NIH recently held a conference on autism

http://www.nidcd.nih.gov/funding/programs/10autism/detail.htm

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> There are a few facts (translate -fact = what we know today not tomorrow) that

you may want to read...but I want opinions on this fact here under What are the

characteristics and predictors of the school-aged children who move from

nonverbal to verbal?

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> A retrospective review of the literature on cases and studies of individuals

who began speaking at age 5 or older (Pickett et al., 2009) highlighted the

following factors:

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> " Age (most children who started speaking were between 5 and 7)†" none over

age 13 "

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> I hate quotes like this!! How can they say ZERO autistic kids who didn't

speak by the age of 13 have NEVER spoken? What about those that are

misdiagnosed? What about those that never got appropriate therapies? What

about Ketchum who just started to speak at TWENTY FIVE YEARS OLD???

http://littlemermaidmelanie.wordpress.com/

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> OK granted you might say " but , you yourself say that is

misdiagnosed as autistic, so she wouldn't count " But was diagnosed ALL

HER LIFE up till adulthood by numerous medical, speech, and educational

professionals as autistic, and not just in one state -but in various

states...and some of those that diagnosed her were and I believe still are

considered to be " experts " on autism. So answer that!

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> Clearly if Mel's parents didn't continue to dig for more answers as to why no

progress, her daughter today would still be considered a " non verbal autistic "

adult and clearly she would have remained nonverbal... and not upset that one

stat.

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> It's funny -we have more parents of almost teen and teen children diagnosed

with autism on nutriiveda then young- or perhaps those are the parents that fill

out the survey. But nutriiveda alone proves that stat 100% wrong as you can

read here and on the testimony page at PursuitofResearch.org.

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> But am I the only one that is not sleeping to notice that autism used to have

almost NOTHING to do with expressive speech??? More about not wanting to talk,

or not being able to understand what is said rather than not being ABLE to talk.

Autism a half a century ago was more of a psychological diagnosis, perhaps

language was affected, but not ability to speak. How dare anyone say that a

child diagnosed today with autism that doesn't talk by 13 years old...when did

they start counting the years because clearly it wasn't from 50 years ago! I

mean it would be one thing if this conference was held at the Boonstown Autism

Support group in a backroom of Dennys on Main Steet in Doohicky USA and stated

by a local 6th grade teacher based on what he has seen in his own experience of

13 year old children with autism in his own class...but...? I don't buy it as

fact or even possible...Not even for today!

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[Guest guest]

I agree it is possible to talke at any age but I still say unlikely.  that is

why you may hear those stories. . . because it is very rare.  Also Do you all

not agree that it is possible that some children do not ever talk.  Ever.   I

think some moms start to forget this is a true possibility.  Like it or not it

does happen and it is our job as parents to help them cope with their

disability.

From: jennyjudy@... <jennyjudy@...>

Subject: [ ] Re: why so mad at non-verbal stats?

Date: Sunday, May 30, 2010, 6:40 PM

 

Each child is different, I think people get upset that anyone would assume

that at any age a child cannot learn to talk. Children progress

differently, there is no magic age or number.....just like someone waking up

after so

many years from a stroke and talking etc. no one knows no one

[Guest guest]

and , I agree with both of you. I think it is very good to be

optimistic so positive energies and all will continue to surround us. I am a

believer and I will always hold on to that Faith. On the other hand, I am

also a realist. So I tend to hope and yet I have to make sure that my feet are

on the ground.

I can sense that since we are in this listserv, we are all good parents. I

believe that we are all doing the best we can and we will do whatever it takes

to help our kids in the best possible way we know how and in the best way our

kids can take it.

From:

[mailto: ] On Behalf Of Christiansen

Sent: Sunday, May 30, 2010 9:21 PM

Subject: Re: [ ] Re: why so mad at non-verbal stats?

I agree it is possible to talke at any age but I still say unlikely. that is

why you may hear those stories. . . because it is very rare. Also Do you all

not agree that it is possible that some children do not ever talk. Ever. I

think some moms start to forget this is a true possibility. Like it or not it

does happen and it is our job as parents to help them cope with their

disability.

From: jennyjudy@... <mailto:jennyjudy%40aol.com> <jennyjudy@...

<mailto:jennyjudy%40aol.com> >

Subject: [ ] Re: why so mad at non-verbal stats?

<mailto: %40>

Date: Sunday, May 30, 2010, 6:40 PM

Each child is different, I think people get upset that anyone would assume

that at any age a child cannot learn to talk. Children progress

differently, there is no magic age or number.....just like someone waking up

after so

many years from a stroke and talking etc. no one knows no one

[Guest guest]

Negative is the message here, talking or not talking is not the issue, it

is that it is possible, it isn't very rare, in fact it is more common than

you think, true, you have to accept what is, but I am never giving up on my

son, and he has made progress, slowly very slowly but it is being made and

he will be 7 in September. I know it is a possibility I worry about it

every day, I will help him cope with anything that comes his way.. you nor

anyone else knows the future of anyone's child. The rarer the better!! Believe

me I don't forget it is a true possibility, how could you forget it, it is

not like I am in denial???

In a message dated 5/30/2010 10:19:42 P.M. Central Daylight Time,

cathychristiansen84@... writes:

I agree it is possible to talke at any age but I still say unlikely. that

is why you may hear those stories. . . because it is very rare. Also Do

you all not agree that it is possible that some children do not ever talk.

Ever. I think some moms start to forget this is a true possibility. Like

it or not it does happen and it is our job as parents to help them cope

with their disability.

From: _jennyjudy@..._ (mailto:jennyjudy@...) <_jennyjudy@..._

(mailto:jennyjudy@...) >

Subject: [ ] Re: why so mad at non-verbal stats?

_ _

(mailto: )

Date: Sunday, May 30, 2010, 6:40 PM

Each child is different, I think people get upset that anyone would assume

that at any age a child cannot learn to talk. Children progress

differently, there is no magic age or number.....just like someone waking

up after so

many years from a stroke and talking etc. no one knows no one

[Non-text portions of this message have been removed]