Re: can someone with a son maybe explain this??

[Guest guest]

Sherry I know you and Josh have been through so much in the past few years, and

the poor little guy has some special needs...and Yay for him that nutriiveda is

at least helping that area move along. But to me...the fact that he clearly

'can' pee in the toilet, and the way he 'refused' to get up when he started to

pee all over the couch and floor, that sounds like it's behavioral- perhaps

control issue, perhaps stress? To me it doesn't sound medical even though

clearly I'd speak to his pediatrician about it. But here are some suggestions

from me. Not that I went through this exactly but my older son took longer to

stay dry through the night and I got him one of those simple moisture-sensor

alarms that go off with the first drop of urine (don't think they are meant for

daytime use -but if used at home...why not?!) I recall it also came with a

calendar with stars...and each dry night got a star and X amount of dry nights a

week meant a certain prize, from small to large depending on days -simple

behavioral approach. Here's the one that I used...and it worked so well we only

had to use it for a few nights ...but for anyone going through this worth every

penny http://sleepdryalarm.com

But we didn't use the alarm and calendar alone...I also did something else. It

may have been one of the many suggestions that come with the alarm? Can't

remember but I had my older son (notice I'm not using his name even though just

about everyone knows who I mean!) help me pull off the dirty sheets and make the

bed with the dry sheets. He had to also by himself change his dirty clothing

and help me carry the wet clothes and sheets into the laundry room so I could

wash them. He was always half asleep and I would say " You have to help me do

this " Prior to this I would do everything and it seemed like he slept through

it all! You can teach Josh as he is a bit older how to do the laundry and how

to wash the clothing he is soiling.

You can try also working this out with clay and some water. Make a little clay

family just like yours and the one little child has to pee...and let Josh take

over that character and see if any clues come out. Maybe he is afraid you'll

leave him too? (I'm not saying his Dad left him -but you don't know how kids

think) Sometimes children find it easier to express more difficult feelings

through stuffed animals or through clay etc.

I know how stressful this is for you too Sherry -but probably just try to find a

way to stay calm as you work through this. There has to be a logical

explanation and I'd say start with a call to the pediatrician and see if he

believes you need to take Josh to a urologist and/or a psychologist. I'm not

sure he should be using Depends if there is no underlying medical condition.

I'd seek psychological opinion on this.

I know the last thing you need is more stress in your life....so just remember

once you get through this- it's all good! As you posted - " Just now, I came home

from work and his kidsitter was going on and on about the progress she's seen

since Josh started the NV "

That's awesome! Way to go Sherry and Josh on that end!!

=====

[Guest guest]

Sherry:

I am sorry to hear you are having a hard time. When E was stressed at school

last year he had several accidents. He has been going to the restroom since he

turned 5 with no issues. Then all of the sudden he started peeing his pants at

school. It was really difficult to understand what was going on. I found that

it was due to stress. Once we fixed a few things that were going on during the

day in his schedule this issue went away.

I can tell you that it was like all defenses shut down and he was forgetting and

by the time he remembered it was too late. He would get really upset about it.

Once we pin pointed a few things that were upsetting to him we made changes. It

turned out that his teacher was the issue - but, enough said about that! You

might try and map out his day and find out what is going on with him. Maybe he

feels stressed about something.

Hope this helps.

Ethan's mom

Illinois

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Wed, June 9, 2010 7:20:25 PM

Subject: [ ] Re: can someone with a son maybe explain this??

Sherry I know you and Josh have been through so much in the past few years, and

the poor little guy has some special needs...and Yay for him that nutriiveda is

at least helping that area move along. But to me...the fact that he clearly

'can' pee in the toilet, and the way he 'refused' to get up when he started to

pee all over the couch and floor, that sounds like it's behavioral- perhaps

control issue, perhaps stress? To me it doesn't sound medical even though

clearly I'd speak to his pediatrician about it. But here are some suggestions

from me. Not that I went through this exactly but my older son took longer to

stay dry through the night and I got him one of those simple moisture-sensor

alarms that go off with the first drop of urine (don't think they are meant for

daytime use -but if used at home...why not?!) I recall it also came with a

calendar with stars...and each dry night got a star and X amount of dry nights a

week meant a certain prize,

from small to large depending on days -simple behavioral approach. Here's the

one that I used...and it worked so well we only had to use it for a few nights

....but for anyone going through this worth every penny http://sleepdryalarm.com

But we didn't use the alarm and calendar alone...I also did something else. It

may have been one of the many suggestions that come with the alarm? Can't

remember but I had my older son (notice I'm not using his name even though just

about everyone knows who I mean!) help me pull off the dirty sheets and make the

bed with the dry sheets. He had to also by himself change his dirty clothing

and help me carry the wet clothes and sheets into the laundry room so I could

wash them. He was always half asleep and I would say " You have to help me do

this " Prior to this I would do everything and it seemed like he slept through

it all! You can teach Josh as he is a bit older how to do the laundry and how

to wash the clothing he is soiling.

You can try also working this out with clay and some water. Make a little clay

family just like yours and the one little child has to pee...and let Josh take

over that character and see if any clues come out. Maybe he is afraid you'll

leave him too? (I'm not saying his Dad left him -but you don't know how kids

think) Sometimes children find it easier to express more difficult feelings

through stuffed animals or through clay etc.

I know how stressful this is for you too Sherry -but probably just try to find a

way to stay calm as you work through this. There has to be a logical

explanation and I'd say start with a call to the pediatrician and see if he

believes you need to take Josh to a urologist and/or a psychologist. I'm not

sure he should be using Depends if there is no underlying medical condition.

I'd seek psychological opinion on this.

I know the last thing you need is more stress in your life....so just remember

once you get through this- it's all good! As you posted - " Just now, I came home

from work and his kidsitter was going on and on about the progress she's seen

since Josh started the NV "

That's awesome! Way to go Sherry and Josh on that end!!

=====

[Guest guest]

Hi ,

Yep, Josh has a lot of stressors in his life - and he's dealing with some PTSD,

I think, from what was described to me as verbal and physical abuse by an aid

not this past school year but the previous one.  In fact, he is having these

psychogenic non-epileptic seizures from it as well as from having broken his leg

this past fall, and a father who barely sees him anymore.  I know deep down

that the peeing is the result of all of this.  But it just seems like it

started all of a sudden (for the last few weeks).  It could be that he is just

processing all the stressors now - it takes Josh a really long time to process

things - and the peeing is the manifestation of it.  The non-epileptic

seizures started in December (after he wsa diagnosed actually with epilepsy -

he's on meds for that and the " real " seizures are under control).  I'm so

hopeful that the NV will have a positive effect.  I think I just want to rule

out anything that might be going on

with a 12-year old boy - hormones, tween stuff, etc.  Maybe it's all of

this.   He does see a psychologist and the doc recommended contacting the

mental health board to set up a team to work with Josh in the home on a more

frequent basis.

 

Thanks for the insight.

 

Sherry and Josh

From: Humphreys <csljh2000@...>

Subject: Re: [ ] Re: can someone with a son maybe explain

this??

Date: Wednesday, June 9, 2010, 9:00 PM

 

Sherry:

I am sorry to hear you are having a hard time. When E was stressed at school

last year he had several accidents. He has been going to the restroom since he

turned 5 with no issues. Then all of the sudden he started peeing his pants at

school. It was really difficult to understand what was going on. I found that it

was due to stress. Once we fixed a few things that were going on during the day

in his schedule this issue went away.

I can tell you that it was like all defenses shut down and he was forgetting and

by the time he remembered it was too late. He would get really upset about it.

Once we pin pointed a few things that were upsetting to him we made changes. It

turned out that his teacher was the issue - but, enough said about that! You

might try and map out his day and find out what is going on with him. Maybe he

feels stressed about something.

Hope this helps.

Ethan's mom

Illinois

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Wed, June 9, 2010 7:20:25 PM

Subject: [ ] Re: can someone with a son maybe explain this??

Sherry I know you and Josh have been through so much in the past few years, and

the poor little guy has some special needs...and Yay for him that nutriiveda is

at least helping that area move along. But to me...the fact that he clearly

'can' pee in the toilet, and the way he 'refused' to get up when he started to

pee all over the couch and floor, that sounds like it's behavioral- perhaps

control issue, perhaps stress? To me it doesn't sound medical even though

clearly I'd speak to his pediatrician about it. But here are some suggestions

from me. Not that I went through this exactly but my older son took longer to

stay dry through the night and I got him one of those simple moisture-sensor

alarms that go off with the first drop of urine (don't think they are meant for

daytime use -but if used at home...why not?!) I recall it also came with a

calendar with stars...and each dry night got a star and X amount of dry nights a

week meant a certain prize,

from small to large depending on days -simple behavioral approach. Here's the

one that I used...and it worked so well we only had to use it for a few nights

....but for anyone going through this worth every penny http://sleepdryalarm.com

But we didn't use the alarm and calendar alone...I also did something else. It

may have been one of the many suggestions that come with the alarm? Can't

remember but I had my older son (notice I'm not using his name even though just

about everyone knows who I mean!) help me pull off the dirty sheets and make the

bed with the dry sheets. He had to also by himself change his dirty clothing and

help me carry the wet clothes and sheets into the laundry room so I could wash

them. He was always half asleep and I would say " You have to help me do this "

Prior to this I would do everything and it seemed like he slept through it all!

You can teach Josh as he is a bit older how to do the laundry and how to wash

the clothing he is soiling.

You can try also working this out with clay and some water. Make a little clay

family just like yours and the one little child has to pee...and let Josh take

over that character and see if any clues come out. Maybe he is afraid you'll

leave him too? (I'm not saying his Dad left him -but you don't know how kids

think) Sometimes children find it easier to express more difficult feelings

through stuffed animals or through clay etc.

I know how stressful this is for you too Sherry -but probably just try to find a

way to stay calm as you work through this. There has to be a logical explanation

and I'd say start with a call to the pediatrician and see if he believes you

need to take Josh to a urologist and/or a psychologist. I'm not sure he should

be using Depends if there is no underlying medical condition. I'd seek

psychological opinion on this.

I know the last thing you need is more stress in your life....so just remember

once you get through this- it's all good! As you posted - " Just now, I came home

from work and his kidsitter was going on and on about the progress she's seen

since Josh started the NV "

That's awesome! Way to go Sherry and Josh on that end!!

=====

[Guest guest]

Thanks, -

 

Yep, I think it is behavioral more than anything else (although as I wrote to

, there are some very real stressors he's dealing with)  I really like the

idea of the clay family (or dolls, or his stuffed animals, whatever will

work).  Yeah, the head nurse at school, when the peeing started up, said to

stay away from the Depends and just keep him in the underpants.  He just gets

so upset when he does pee in his pants, though, that I thought maybe the extra

stress from that wasn't helping.  I just don't know about that part of this. 

I will look at the alarm thing - I know they're out there and they do work. 

And, yep, Josh now knows how to mop a floor!  He's gone so far as to go into

the bathroom as if he is going to pee, then he will lay down on the floor and

just pee laying down!  So, he has learned to take his clothes to the laundry

basket and learned to mop the floor.

 

And, I do think there is a very real " abandonment " thing going on.  I know I've

written to you about it but his father really is a huge part of the problem

(although he would never admit that) and there probably is a real fear that I'm

going to go away, too.  I know I wrote on the blog that one day that Josh was

really upset about me going to the doctor.  I had just a regular check up

scheduled but Josh equated it with the time last December when the ambulance

came and took me away - was in hospital for three days.  I knew then he would

be affected by it, but I didn't realize how much until the night before my

check-up and he was just totally sobbing and upset that I was going to the

" hopital. "   It is amazing what our kids internalize and how they interpret

things.

 

Thanks for the advice!

 

Sherry and Josh

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: can someone with a son maybe explain this??

Date: Wednesday, June 9, 2010, 7:20 PM

 

Sherry I know you and Josh have been through so much in the past few years, and

the poor little guy has some special needs...and Yay for him that nutriiveda is

at least helping that area move along. But to me...the fact that he clearly

'can' pee in the toilet, and the way he 'refused' to get up when he started to

pee all over the couch and floor, that sounds like it's behavioral- perhaps

control issue, perhaps stress? To me it doesn't sound medical even though

clearly I'd speak to his pediatrician about it. But here are some suggestions

from me. Not that I went through this exactly but my older son took longer to

stay dry through the night and I got him one of those simple moisture-sensor

alarms that go off with the first drop of urine (don't think they are meant for

daytime use -but if used at home...why not?!) I recall it also came with a

calendar with stars...and each dry night got a star and X amount of dry nights a

week meant a certain prize, from

small to large depending on days -simple behavioral approach. Here's the one

that I used...and it worked so well we only had to use it for a few nights

....but for anyone going through this worth every penny http://sleepdryalarm.com

But we didn't use the alarm and calendar alone...I also did something else. It

may have been one of the many suggestions that come with the alarm? Can't

remember but I had my older son (notice I'm not using his name even though just

about everyone knows who I mean!) help me pull off the dirty sheets and make the

bed with the dry sheets. He had to also by himself change his dirty clothing and

help me carry the wet clothes and sheets into the laundry room so I could wash

them. He was always half asleep and I would say " You have to help me do this "

Prior to this I would do everything and it seemed like he slept through it all!

You can teach Josh as he is a bit older how to do the laundry and how to wash

the clothing he is soiling.

You can try also working this out with clay and some water. Make a little clay

family just like yours and the one little child has to pee...and let Josh take

over that character and see if any clues come out. Maybe he is afraid you'll

leave him too? (I'm not saying his Dad left him -but you don't know how kids

think) Sometimes children find it easier to express more difficult feelings

through stuffed animals or through clay etc.

I know how stressful this is for you too Sherry -but probably just try to find a

way to stay calm as you work through this. There has to be a logical explanation

and I'd say start with a call to the pediatrician and see if he believes you

need to take Josh to a urologist and/or a psychologist. I'm not sure he should

be using Depends if there is no underlying medical condition. I'd seek

psychological opinion on this.

I know the last thing you need is more stress in your life....so just remember

once you get through this- it's all good! As you posted - " Just now, I came home

from work and his kidsitter was going on and on about the progress she's seen

since Josh started the NV "

That's awesome! Way to go Sherry and Josh on that end!!

=====

[Guest guest]

Sherry:

It sounds like he has a LOT going on. I can tell you one of the things we have

done supplement wise to help with mood among other things is 5 HTP. We also

used a liquid spray version of taurine - it was rootbeer flavored. We did this

after some basic urine tests were run. My uncle is a chiropractor in our

community and he referred us to a nutritionist. These two items did seem to

help Ethan - we only did them for a short while as we retested when he seemed to

be doing better and things leveled out. If you are interested in some

information on this I can look through what I have on it and pass this along. I

am rooting for the NV though! Have you started it yet?

________________________________

From: sherry silvern <srsilvern@...>

Sent: Wed, June 9, 2010 10:53:25 PM

Subject: Re: [ ] Re: can someone with a son maybe explain

this??

Hi ,

Yep, Josh has a lot of stressors in his life - and he's dealing with some PTSD,

I think, from what was described to me as verbal and physical abuse by an aid

not this past school year but the previous one. In fact, he is having these

psychogenic non-epileptic seizures from it as well as from having broken his leg

this past fall, and a father who barely sees him anymore. I know deep down that

the peeing is the result of all of this. But it just seems like it started all

of a sudden (for the last few weeks). It could be that he is just processing

all the stressors now - it takes Josh a really long time to process things - and

the peeing is the manifestation of it. The non-epileptic seizures started in

December (after he wsa diagnosed actually with epilepsy - he's on meds for that

and the " real " seizures are under control). I'm so hopeful that the NV will

have a positive effect. I think I just want to rule out anything that might be

going on

with a 12-year old boy - hormones, tween stuff, etc. Maybe it's all of this.

He does see a psychologist and the doc recommended contacting the mental health

board to set up a team to work with Josh in the home on a more frequent basis.

Thanks for the insight.

Sherry and Josh

From: Humphreys <csljh2000@...>

Subject: Re: [ ] Re: can someone with a son maybe explain

this??

Date: Wednesday, June 9, 2010, 9:00 PM

Sherry:

I am sorry to hear you are having a hard time. When E was stressed at school

last year he had several accidents. He has been going to the restroom since he

turned 5 with no issues. Then all of the sudden he started peeing his pants at

school. It was really difficult to understand what was going on. I found that it

was due to stress. Once we fixed a few things that were going on during the day

in his schedule this issue went away.

I can tell you that it was like all defenses shut down and he was forgetting and

by the time he remembered it was too late. He would get really upset about it.

Once we pin pointed a few things that were upsetting to him we made changes. It

turned out that his teacher was the issue - but, enough said about that! You

might try and map out his day and find out what is going on with him. Maybe he

feels stressed about something.

Hope this helps.

Ethan's mom

Illinois

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Wed, June 9, 2010 7:20:25 PM

Subject: [ ] Re: can someone with a son maybe explain this??

Sherry I know you and Josh have been through so much in the past few years, and

the poor little guy has some special needs...and Yay for him that nutriiveda is

at least helping that area move along. But to me...the fact that he clearly

'can' pee in the toilet, and the way he 'refused' to get up when he started to

pee all over the couch and floor, that sounds like it's behavioral- perhaps

control issue, perhaps stress? To me it doesn't sound medical even though

clearly I'd speak to his pediatrician about it. But here are some suggestions

from me. Not that I went through this exactly but my older son took longer to

stay dry through the night and I got him one of those simple moisture-sensor

alarms that go off with the first drop of urine (don't think they are meant for

daytime use -but if used at home...why not?!) I recall it also came with a

calendar with stars...and each dry night got a star and X amount of dry nights a

week meant a certain prize,

from small to large depending on days -simple behavioral approach. Here's the

one that I used...and it worked so well we only had to use it for a few nights

....but for anyone going through this worth every penny http://sleepdryalarm.com

But we didn't use the alarm and calendar alone...I also did something else. It

may have been one of the many suggestions that come with the alarm? Can't

remember but I had my older son (notice I'm not using his name even though just

about everyone knows who I mean!) help me pull off the dirty sheets and make the

bed with the dry sheets. He had to also by himself change his dirty clothing and

help me carry the wet clothes and sheets into the laundry room so I could wash

them. He was always half asleep and I would say " You have to help me do this "

Prior to this I would do everything and it seemed like he slept through it all!

You can teach Josh as he is a bit older how to do the laundry and how to wash

the clothing he is soiling.

You can try also working this out with clay and some water. Make a little clay

family just like yours and the one little child has to pee...and let Josh take

over that character and see if any clues come out. Maybe he is afraid you'll

leave him too? (I'm not saying his Dad left him -but you don't know how kids

think) Sometimes children find it easier to express more difficult feelings

through stuffed animals or through clay etc.

I know how stressful this is for you too Sherry -but probably just try to find a

way to stay calm as you work through this. There has to be a logical explanation

and I'd say start with a call to the pediatrician and see if he believes you

need to take Josh to a urologist and/or a psychologist. I'm not sure he should

be using Depends if there is no underlying medical condition. I'd seek

psychological opinion on this.

I know the last thing you need is more stress in your life....so just remember

once you get through this- it's all good! As you posted - " Just now, I came home

from work and his kidsitter was going on and on about the progress she's seen

since Josh started the NV "

That's awesome! Way to go Sherry and Josh on that end!!

=====

[Guest guest]

Hi ,

 

Yep, he has a LOT going on and I know my losing my cool does not help so I know

I need to try, as said, remain calm.

 

What were they testing for with the urine tests?  I'm supposed to take Josh for

some blood work up and urine tests (today?).  What is 5HTP?  I would be

interested in knowing more.

 

Where in IL are you?  I'm in Crystal Lake.

 

Sherry and Josh

From: Humphreys <csljh2000@...>

Subject: Re: [ ] Re: can someone with a son maybe explain

this??

Date: Wednesday, June 9, 2010, 9:00 PM

Sherry:

I am sorry to hear you are having a hard time. When E was stressed at school

last year he had several accidents. He has been going to the restroom since he

turned 5 with no issues. Then all of the sudden he started peeing his pants at

school. It was really difficult to understand what was going on. I found that it

was due to stress. Once we fixed a few things that were going on during the day

in his schedule this issue went away.

I can tell you that it was like all defenses shut down and he was forgetting and

by the time he remembered it was too late. He would get really upset about it.

Once we pin pointed a few things that were upsetting to him we made changes. It

turned out that his teacher was the issue - but, enough said about that! You

might try and map out his day and find out what is going on with him. Maybe he

feels stressed about something.

Hope this helps.

Ethan's mom

Illinois

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Wed, June 9, 2010 7:20:25 PM

Subject: [ ] Re: can someone with a son maybe explain this??

Sherry I know you and Josh have been through so much in the past few years, and

the poor little guy has some special needs...and Yay for him that nutriiveda is

at least helping that area move along. But to me...the fact that he clearly

'can' pee in the toilet, and the way he 'refused' to get up when he started to

pee all over the couch and floor, that sounds like it's behavioral- perhaps

control issue, perhaps stress? To me it doesn't sound medical even though

clearly I'd speak to his pediatrician about it. But here are some suggestions

from me. Not that I went through this exactly but my older son took longer to

stay dry through the night and I got him one of those simple moisture-sensor

alarms that go off with the first drop of urine (don't think they are meant for

daytime use -but if used at home...why not?!) I recall it also came with a

calendar with stars...and each dry night got a star and X amount of dry nights a

week meant a certain prize,

from small to large depending on days -simple behavioral approach. Here's the

one that I used...and it worked so well we only had to use it for a few nights

....but for anyone going through this worth every penny http://sleepdryalarm.com

But we didn't use the alarm and calendar alone...I also did something else. It

may have been one of the many suggestions that come with the alarm? Can't

remember but I had my older son (notice I'm not using his name even though just

about everyone knows who I mean!) help me pull off the dirty sheets and make the

bed with the dry sheets. He had to also by himself change his dirty clothing and

help me carry the wet clothes and sheets into the laundry room so I could wash

them. He was always half asleep and I would say " You have to help me do this "

Prior to this I would do everything and it seemed like he slept through it all!

You can teach Josh as he is a bit older how to do the laundry and how to wash

the clothing he is soiling.

You can try also working this out with clay and some water. Make a little clay

family just like yours and the one little child has to pee...and let Josh take

over that character and see if any clues come out. Maybe he is afraid you'll

leave him too? (I'm not saying his Dad left him -but you don't know how kids

think) Sometimes children find it easier to express more difficult feelings

through stuffed animals or through clay etc.

I know how stressful this is for you too Sherry -but probably just try to find a

way to stay calm as you work through this. There has to be a logical explanation

and I'd say start with a call to the pediatrician and see if he believes you

need to take Josh to a urologist and/or a psychologist. I'm not sure he should

be using Depends if there is no underlying medical condition. I'd seek

psychological opinion on this.

I know the last thing you need is more stress in your life....so just remember

once you get through this- it's all good! As you posted - " Just now, I came home

from work and his kidsitter was going on and on about the progress she's seen

since Josh started the NV "

That's awesome! Way to go Sherry and Josh on that end!!

=====

[Guest guest]

Hi again, -

 

I just did some quick research on the 5HTP and the L-taurine.  Since they are

in the NV, maybe we'll just keep going with the NV and see how it goes for a

little bit.  It could be that Josh will need the additional 5HTP/taurine to

help with the anxiety but he has been on the NV for only 13 days so far.  I

know his kidsitter was saying yesterday that he seems " more in control "

generally so perhaps the peeing thing will get better as a bit more time goes

on.  I did start a blog about Josh on the NV - http://budsnvblog.blogspot.com -

so you can see some of the things that are going on so far.

 

Thanks again for the advice, support, and suggestions!

 

Sherry and Josh

From: Humphreys <csljh2000@...>

Subject: Re: [ ] Re: can someone with a son maybe explain

this??

Date: Wednesday, June 9, 2010, 9:00 PM

Sherry:

I am sorry to hear you are having a hard time. When E was stressed at school

last year he had several accidents. He has been going to the restroom since he

turned 5 with no issues. Then all of the sudden he started peeing his pants at

school. It was really difficult to understand what was going on. I found that it

was due to stress. Once we fixed a few things that were going on during the day

in his schedule this issue went away.

I can tell you that it was like all defenses shut down and he was forgetting and

by the time he remembered it was too late. He would get really upset about it.

Once we pin pointed a few things that were upsetting to him we made changes. It

turned out that his teacher was the issue - but, enough said about that! You

might try and map out his day and find out what is going on with him. Maybe he

feels stressed about something.

Hope this helps.

Ethan's mom

Illinois

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Wed, June 9, 2010 7:20:25 PM

Subject: [ ] Re: can someone with a son maybe explain this??

Sherry I know you and Josh have been through so much in the past few years, and

the poor little guy has some special needs...and Yay for him that nutriiveda is

at least helping that area move along. But to me...the fact that he clearly

'can' pee in the toilet, and the way he 'refused' to get up when he started to

pee all over the couch and floor, that sounds like it's behavioral- perhaps

control issue, perhaps stress? To me it doesn't sound medical even though

clearly I'd speak to his pediatrician about it. But here are some suggestions

from me. Not that I went through this exactly but my older son took longer to

stay dry through the night and I got him one of those simple moisture-sensor

alarms that go off with the first drop of urine (don't think they are meant for

daytime use -but if used at home...why not?!) I recall it also came with a

calendar with stars...and each dry night got a star and X amount of dry nights a

week meant a certain prize,

from small to large depending on days -simple behavioral approach. Here's the

one that I used...and it worked so well we only had to use it for a few nights

....but for anyone going through this worth every penny http://sleepdryalarm.com

But we didn't use the alarm and calendar alone...I also did something else. It

may have been one of the many suggestions that come with the alarm? Can't

remember but I had my older son (notice I'm not using his name even though just

about everyone knows who I mean!) help me pull off the dirty sheets and make the

bed with the dry sheets. He had to also by himself change his dirty clothing and

help me carry the wet clothes and sheets into the laundry room so I could wash

them. He was always half asleep and I would say " You have to help me do this "

Prior to this I would do everything and it seemed like he slept through it all!

You can teach Josh as he is a bit older how to do the laundry and how to wash

the clothing he is soiling.

You can try also working this out with clay and some water. Make a little clay

family just like yours and the one little child has to pee...and let Josh take

over that character and see if any clues come out. Maybe he is afraid you'll

leave him too? (I'm not saying his Dad left him -but you don't know how kids

think) Sometimes children find it easier to express more difficult feelings

through stuffed animals or through clay etc.

I know how stressful this is for you too Sherry -but probably just try to find a

way to stay calm as you work through this. There has to be a logical explanation

and I'd say start with a call to the pediatrician and see if he believes you

need to take Josh to a urologist and/or a psychologist. I'm not sure he should

be using Depends if there is no underlying medical condition. I'd seek

psychological opinion on this.

I know the last thing you need is more stress in your life....so just remember

once you get through this- it's all good! As you posted - " Just now, I came home

from work and his kidsitter was going on and on about the progress she's seen

since Josh started the NV "

That's awesome! Way to go Sherry and Josh on that end!!

=====

[Guest guest]

We had a similar issue not associated with NV, but too many of some vitamins can

sometimes cause the need to go to the bathroom. He may be getting all he needs

in his diet and any supplements that he is taking may be overloading him. We

took our son off of the multi-vitamin and he stopped peeing himself.

>

> OK, Josh is making progress on the NV in a lot of different ways.  But this

one thing has been regressing, even before starting the NV so I'm hoping someone

with a son can maybe have an explanation.

>  

> Josh has peed in the toilet since he was about 4 - no problems, the occasional

accident, but no big deal.  In the last month (even before starting on NV), it's

like he has totally regressed in this area.  He still gets up first thing in the

a.m., goes right into the bathroom stands and pees, and we go about our day. 

But as the day goes on, he just shuts down when it comes time to pee.  I've

resorted to Depends again (he does occasionally still use them at nighttime),

even " double bagging him " since he won't pee in the bathroom, and he still pees

through the Depends because he won't go into the bathroom at any other time! 

Just now, I came home from work and his kidsitter was going on and on about the

progress she's seen since Josh started the NV.  She left and I asked him to get

up to pee or at least let's change the Depends (since I knew he hadn't peed

since she got here this a.m.).  He partially rolled off the couch, onto his

knees, and peed

> all over the side of the couch!  Then he wouldn't get up so the carpet got

all wet as well.  I totally lost it and started yelling at him!

>  

> Can someone with a boy give me some insight here before I completely lose it

with this whole thing???  His doc checked him out so it's not anything physical

or medical, it's strictly emotional/psychological/behavioral.  So what do I

do??  He's 12 years old and this is crazy!!!

>

>

[Guest guest]

Josh has had the regression in the peeing area for about a month, and only

started nutriiveda 13 days ago (according to Sherry's blog

http://budsnvblog.blogspot.com and what she wrote below and a few times here )

Sherry doesn't think it has to do with nutriiveda and said so a few times. She

just wishes this would have been an area of surge as well. Who knows perhaps it

will be but will take longer? Nutriiveda in my opinion as well has nothing to

do with it, and it would be sad to stop the one bright spot that is happening

for him right now. People are complimenting him due to his recent surges on

nutriiveda and that's great for his self esteem and self confidence!

There is so much going on with Josh that would be above and beyond just dealing

with a special need. He has much on his plate. I know my sister went through a

stage at some point that she wanted to be a baby again -wanted a bottle and a

diaper. My mother let her do that -and don't think it lasted more than a few

days. Sometimes regressions such as this are signs of abuse and in my sister's

case it was -and it was through the school. Josh went through what Sherry

called abuse as well with the school, and as if that's not enough his parents

recently split up which is never easy for a child even if both parents clearly

love the child very much and it's an amicable divorce.

In my sister's case, and this was going back a few years ago, my mother found

out about what happened and threw a fit after what was going on occurred. My

sister has dyslexia but back when she was little there was little knowledge

about that and the school assumed my sister was slow. They put her in a

different school with students that were low functioning in the cognitive area.

It was not the least restrictive environment for my sister as she is very

bright. To this day however she has emotional issues from what happened in that

school -and a low self esteem. As if the inappropriate placement wasn't enough

there was at least one incident of abuse. The teacher once locked my sister

in a dark closet with no windows where she was terrified and crying.

was a good kid -I have no idea why the teacher did this -but growing up

with a brother that was diagnosed " hyperactivity child " by Dr. Gold (from

Columbia) and a dyslexic sister who wasn't diagnosed until years after the

school made a mess of her...I learned as the " normal " middle child and an honor

roll student that if you color outside the lines in life- people want to slap

you down -but that doesn't mean it's wrong -it means people are wrong for

judging those that color outside the lines. After my mother learned about the

abuse from the school (how I know about the clay -what my mom did with my sister

-they made a closet and everything so my sister could act it out) My mother took

to get her tested privately and learned that she had normal cognitive

ability -unlike where the school system placed her. Even though my mother

advocated hard -the damage was done. We've all read 's story

http://littlemermaidmelanie.wordpress.com Maybe I'm sharing a bit more as to

why I advocate so hard for others to not let their children fall through the

cracks. I am fully aware there are warm and caring and wonderful educators in

the world -but I'm also aware there are people that should not be working with

the public no less children that are teachers too. Just like you can question

doctors -you can question teachers -or the school system in general if they

judge your child a certain way and you don't agree.

My sister today is a middle aged woman married with 2 children and while she has

what most would consider a normal life - is scarred.

So not sure if this has to do with abuse that Josh went through from the school,

the divorce of his parents and then the stress (even though good stress moving

is always stress) of moving to a new house...but Josh is a kid who's got his own

worries to overcome -and lots on his plate. And I'm writing all of this because

I know there are always those parents that read and don't post -and know that my

sister and Josh aren't the only two that went through some sort of abuse whether

it's from the school or elsewhere. So unfortunately this is something some of

our kids have to deal with as well -and it's good for parents to know there are

ways to help the child.

Sherry is on it working with him, she is an incredible parent who has been

through so much herself. Both of them need huge hugs and prayers from all of

us.

It's awesome that in spite of whatever is going on emotionally for Josh that he

is being reported to have surges in speech and other areas by those around him

-not just Sherry -since being on nutriiveda.

Also unlike vitamins- the nutrients and all the essential amino acids in

nutriiveda are not added -they are 100% natural from whole food which is the

purest form of supplementation. http://pursuitofresearch.org/ingredients.html

It would be like saying " don't feed him too much healthy food " It's when you

get into giving separate nutrients as one needs another to utilize it etc that

you can get into some issues. Nutriiveda is providing nutrients to Josh that

his body appears to have needed and from what I recall from Josh's past Josh

having a healthy diet while staying clear of foods he is allergic to is an area

of concern for Sherry. So fortunately this will be one less area that Sherry

has to worry about -and to have surges on top of that? Priceless.

Sherry as a PS to you -I was thinking about this. The blog may also be a good

thing to spot if there are any patterns or triggers which may provide clues for

this behavior. As you can tell -we are all rooting for you and Josh!

=====

[Guest guest]

Could you get him a timer that goes off every few hours and he just needs to go

into the bathroom and try whenever it goes off? Then he won't have to worry

about paying attention to if he needs to go and get all stressed trying to get

there in time, etc. I do know that the NV made me and my son need to go more

often the first several weeks and my son also went through a pretty defiant

stage at the same time

Hope you can get to the bottom of this.

Liralen

> ________________________________

> From: sherry silvern <srsilvern@...>

>

> Sent: Wed, June 9, 2010 10:53:25 PM

> Subject: Re: [ ] Re: can someone with a son maybe explain

this??

>

> Hi ,

> Yep, Josh has a lot of stressors in his life - and he's dealing with some

PTSD, I think, from what was described to me as verbal and physical abuse by an

aid not this past school year but the previous one. In fact, he is having these

psychogenic non-epileptic seizures from it as well as from having broken his leg

this past fall, and a father who barely sees him anymore. I know deep down that

the peeing is the result of all of this. But it just seems like it started all

of a sudden (for the last few weeks). It could be that he is just processing all

the stressors now - it takes Josh a really long time to process things - and the

peeing is the manifestation of it. The non-epileptic seizures started in

December (after he wsa diagnosed actually with epilepsy - he's on meds for that

and the " real " seizures are under control). I'm so hopeful that the NV will have

a positive effect. I think I just want to rule out anything that might be going

on

> with a 12-year old boy - hormones, tween stuff, etc. Maybe it's all of this.

He does see a psychologist and the doc recommended contacting the mental health

board to set up a team to work with Josh in the home on a more frequent basis.

>

> Thanks for the insight.

>

> Sherry and Josh

>

[Guest guest]

Yeah, I don't know if it's worrying about needing to pee that is the problem,

although it could be a chicken and egg thing - does needing to pee stress him

out or does having to get up and go into the bathroom (which is where I think

some of the abuse occurred by the previous aide) cause the stress so he pees

(where he's at).  That is interesting about the need to pee more when starting

on NV - wonder if it is simply because he's drinking a little more generally?

Thanks for the suggestion about the timer.

 

Sherry and Josh

[Guest guest]

Boy, , thank you so much for all that you have written.  I truly appreciate

the support you and the folks here have shown all this time.  I gotta say this

has been such an emotional day for me - Josh and I had a wonderful a.m. and then

a very short rough spot early afternoon that just put me over the edge and I

couldn't stop crying.  I thought I finally got whatever has been stuck within

me out with the crying (I hoped), only to lose it again later.  My family was

having a dinner for my Dad's birthday at a restaurant not really conducive to

kids.  I had found this " drop-in " daycare center, spoke with them the other day

about Josh, and they were open to having him come there - they're open until

10:00 or 11:00p.m.! (fantastic idea to help parents out).  I was sooo nervous

about leaving him there - they originally said no other kids were scheduled for

this evening but when we got there, they had been surprised by 6 other kids who

" dropped in. "  

I had gotten there in time to talk with the caregivers about Josh, get him

settled in, etc.  They were so amazing - the woman who was going to hang with

Josh the most turns out to have a husband who has seizures - so she was well

aware how to handle things if Josh had a seizure.  The woman who was acting

director not only has a 12yo son going through the tween stuff, she had

incredible suggestions for sensory activities for Josh.  They put me so at ease

that, when I finally left, I just started sobbing in the car - this is the first

time I've ever left Josh at a place like this (he did have daycare and after

school care when he was younger but not since a lot of the things he's dealing

with now started up) and it's been forever since I've actually gone out for a

" grown up dinner " with real adult conversation.  I walked into my parent's

house crying - my poor Dad thought something terrible had happened!  My Mom

said she thinks I was so emotional

just because of the relief in finding a place like this.  My folks kidsit for

me on occasion but they're in their 80's and it's always a concern whether they

can really handle it if Josh were to have a seizure.  Of course I called the

place twice during dinner to see how Josh was doing (great).  When I picked him

up, they had four pictures for me of Josh - one of them with him sitting on the

couch at the place with all the other kids around him, smiling, watching a

movie.  This place is just a lifesaver, knowing it's there if I need to just

run out for errands (getting in/out of the car several times for errands is

really tough on Josh), and knowing he'll be OK with the other kids and with

caregivers who really do understand him and want to help him (they even asked

for a copy of his IEP so they could implement some things when he does do the

drop-in thing).

Then I came home to check emails and read yours - and just sat here crying

again.  I thank you again for your support, your kind words, and your faith in

all of our kids.

 

Sherry and Josh

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: can someone with a son maybe explain this??

Date: Thursday, June 10, 2010, 8:29 AM

 

Josh has had the regression in the peeing area for about a month, and only

started nutriiveda 13 days ago (according to Sherry's blog

http://budsnvblog.blogspot.com and what she wrote below and a few times here )

Sherry doesn't think it has to do with nutriiveda and said so a few times. She

just wishes this would have been an area of surge as well. Who knows perhaps it

will be but will take longer? Nutriiveda in my opinion as well has nothing to do

with it, and it would be sad to stop the one bright spot that is happening for

him right now. People are complimenting him due to his recent surges on

nutriiveda and that's great for his self esteem and self confidence!

There is so much going on with Josh that would be above and beyond just dealing

with a special need. He has much on his plate. I know my sister went through a

stage at some point that she wanted to be a baby again -wanted a bottle and a

diaper. My mother let her do that -and don't think it lasted more than a few

days. Sometimes regressions such as this are signs of abuse and in my sister's

case it was -and it was through the school. Josh went through what Sherry called

abuse as well with the school, and as if that's not enough his parents recently

split up which is never easy for a child even if both parents clearly love the

child very much and it's an amicable divorce.

In my sister's case, and this was going back a few years ago, my mother found

out about what happened and threw a fit after what was going on occurred. My

sister has dyslexia but back when she was little there was little knowledge

about that and the school assumed my sister was slow. They put her in a

different school with students that were low functioning in the cognitive area.

It was not the least restrictive environment for my sister as she is very

bright. To this day however she has emotional issues from what happened in that

school -and a low self esteem. As if the inappropriate placement wasn't enough

there was at least one incident of abuse. The teacher once locked my sister

in a dark closet with no windows where she was terrified and crying.

was a good kid -I have no idea why the teacher did this -but growing up with a

brother that was diagnosed " hyperactivity child " by Dr. Gold (from Columbia) and

a dyslexic sister who wasn't

diagnosed until years after the school made a mess of her...I learned as the

" normal " middle child and an honor roll student that if you color outside the

lines in life- people want to slap you down -but that doesn't mean it's wrong

-it means people are wrong for judging those that color outside the lines. After

my mother learned about the abuse from the school (how I know about the clay

-what my mom did with my sister -they made a closet and everything so my sister

could act it out) My mother took to get her tested privately and learned

that she had normal cognitive ability -unlike where the school system placed

her. Even though my mother advocated hard -the damage was done. We've all read

's story http://littlemermaidmelanie.wordpress.com Maybe I'm sharing a

bit more as to why I advocate so hard for others to not let their children fall

through the cracks. I am fully aware there are warm and caring and wonderful

educators in the world

-but I'm also aware there are people that should not be working with the public

no less children that are teachers too. Just like you can question doctors -you

can question teachers -or the school system in general if they judge your child

a certain way and you don't agree.

My sister today is a middle aged woman married with 2 children and while she has

what most would consider a normal life - is scarred.

So not sure if this has to do with abuse that Josh went through from the school,

the divorce of his parents and then the stress (even though good stress moving

is always stress) of moving to a new house...but Josh is a kid who's got his own

worries to overcome -and lots on his plate. And I'm writing all of this because

I know there are always those parents that read and don't post -and know that my

sister and Josh aren't the only two that went through some sort of abuse whether

it's from the school or elsewhere. So unfortunately this is something some of

our kids have to deal with as well -and it's good for parents to know there are

ways to help the child.

Sherry is on it working with him, she is an incredible parent who has been

through so much herself. Both of them need huge hugs and prayers from all of us.

It's awesome that in spite of whatever is going on emotionally for Josh that he

is being reported to have surges in speech and other areas by those around him

-not just Sherry -since being on nutriiveda.

Also unlike vitamins- the nutrients and all the essential amino acids in

nutriiveda are not added -they are 100% natural from whole food which is the

purest form of supplementation. http://pursuitofresearch.org/ingredients.html It

would be like saying " don't feed him too much healthy food " It's when you get

into giving separate nutrients as one needs another to utilize it etc that you

can get into some issues. Nutriiveda is providing nutrients to Josh that his

body appears to have needed and from what I recall from Josh's past Josh having

a healthy diet while staying clear of foods he is allergic to is an area of

concern for Sherry. So fortunately this will be one less area that Sherry has to

worry about -and to have surges on top of that? Priceless.

Sherry as a PS to you -I was thinking about this. The blog may also be a good

thing to spot if there are any patterns or triggers which may provide clues for

this behavior. As you can tell -we are all rooting for you and Josh!

=====

[Guest guest]

That's an idea.  However, I did stop his multi prior to starting NV.  I think

it really is more a behavior/emotional thing going on (although I would really

love to just blame it all on being 12, going through hormonal changes, and just

being a stubborn tween!).

 

Sherry and Josh

[Guest guest]

Sherry,

I am so sorry I haven¹t responded sooner but my Dad had surgery on Monday

and I have been taking care of him and my Mom (stroke last year) out of

state. I brought my laptop but have been too busy until now to email. My

son had some issues many years ago where he started having pee accidents.

He was peeing huge amounts but was also drinking a lot. I started worrying

about diabetes but someone (I can¹t remember if it was Dr. Kartzinel or

another parent) told me to give him evening primrose oil. I did and it

fixed the problem within hours! I have recommended this to a couple of

other parents over the years dealing with this and it did the same for their

children. I couldn¹t begin to explain why it worked but it did. As an

aside, Rob was still taking fish oil during this time but for some reason it

was the evening primrose oil that helped. Best of luck to you-I know what

you are going through.

Janet

On 6/11/10 12:07 AM, " sherry silvern " <srsilvern@...> wrote:

>

>

>

>

>

> Boy, , thank you so much for all that you have written.  I truly

> appreciate the support you and the folks here have shown all this time.  I

> gotta say this has been such an emotional day for me - Josh and I had a

> wonderful a.m. and then a very short rough spot early afternoon that just put

> me over the edge and I couldn't stop crying.  I thought I finally got whatever

> has been stuck within me out with the crying (I hoped), only to lose it again

> later.  My family was having a dinner for my Dad's birthday at a restaurant

> not really conducive to kids.  I had found this " drop-in " daycare center,

> spoke with them the other day about Josh, and they were open to having him

> come there - they're open until 10:00 or 11:00p.m.! (fantastic idea to help

> parents out).  I was sooo nervous about leaving him there - they originally

> said no other kids were scheduled for this evening but when we got there, they

> had been surprised by 6 other kids who " dropped in. "  

> I had gotten there in time to talk with the caregivers about Josh, get him

> settled in, etc.  They were so amazing - the woman who was going to hang with

> Josh the most turns out to have a husband who has seizures - so she was well

> aware how to handle things if Josh had a seizure.  The woman who was acting

> director not only has a 12yo son going through the tween stuff, she had

> incredible suggestions for sensory activities for Josh.  They put me so at

> ease that, when I finally left, I just started sobbing in the car - this is

> the first time I've ever left Josh at a place like this (he did have daycare

> and after school care when he was younger but not since a lot of the things

> he's dealing with now started up) and it's been forever since I've actually

> gone out for a " grown up dinner " with real adult conversation.  I walked into

> my parent's house crying - my poor Dad thought something terrible had

> happened!  My Mom said she thinks I was so emotional

> just because of the relief in finding a place like this.  My folks kidsit for

> me on occasion but they're in their 80's and it's always a concern whether

> they can really handle it if Josh were to have a seizure.  Of course I called

> the place twice during dinner to see how Josh was doing (great).  When I

> picked him up, they had four pictures for me of Josh - one of them with him

> sitting on the couch at the place with all the other kids around him, smiling,

> watching a movie.  This place is just a lifesaver, knowing it's there if I

> need to just run out for errands (getting in/out of the car several times for

> errands is really tough on Josh), and knowing he'll be OK with the other kids

> and with caregivers who really do understand him and want to help him (they

> even asked for a copy of his IEP so they could implement some things when he

> does do the drop-in thing).

> Then I came home to check emails and read yours - and just sat here crying

> again.  I thank you again for your support, your kind words, and your faith in

> all of our kids.

>  

> Sherry and Josh

>

>

>

> From: kiddietalk <kiddietalk@... <mailto:kiddietalk%40> >

> Subject: [ ] Re: can someone with a son maybe explain this??

>

> <mailto: %40>

> Date: Thursday, June 10, 2010, 8:29 AM

>

>  

>

> Josh has had the regression in the peeing area for about a month, and only

> started nutriiveda 13 days ago (according to Sherry's blog

> http://budsnvblog.blogspot.com and what she wrote below and a few times here )

> Sherry doesn't think it has to do with nutriiveda and said so a few times. She

> just wishes this would have been an area of surge as well. Who knows perhaps

> it will be but will take longer? Nutriiveda in my opinion as well has nothing

> to do with it, and it would be sad to stop the one bright spot that is

> happening for him right now. People are complimenting him due to his recent

> surges on nutriiveda and that's great for his self esteem and self confidence!

>

> There is so much going on with Josh that would be above and beyond just

> dealing with a special need. He has much on his plate. I know my sister went

> through a stage at some point that she wanted to be a baby again -wanted a

> bottle and a diaper. My mother let her do that -and don't think it lasted more

> than a few days. Sometimes regressions such as this are signs of abuse and in

> my sister's case it was -and it was through the school. Josh went through what

> Sherry called abuse as well with the school, and as if that's not enough his

> parents recently split up which is never easy for a child even if both parents

> clearly love the child very much and it's an amicable divorce.

>

> In my sister's case, and this was going back a few years ago, my mother found

> out about what happened and threw a fit after what was going on occurred. My

> sister has dyslexia but back when she was little there was little knowledge

> about that and the school assumed my sister was slow. They put her in a

> different school with students that were low functioning in the cognitive

> area. It was not the least restrictive environment for my sister as she is

> very bright. To this day however she has emotional issues from what happened

> in that school -and a low self esteem. As if the inappropriate placement

> wasn't enough there was at least one incident of abuse. The teacher once

> locked my sister in a dark closet with no windows where she was

> terrified and crying. was a good kid -I have no idea why the teacher did

> this -but growing up with a brother that was diagnosed " hyperactivity child "

> by Dr. Gold (from Columbia) and a dyslexic sister who wasn't

> diagnosed until years after the school made a mess of her...I learned as the

> " normal " middle child and an honor roll student that if you color outside the

> lines in life- people want to slap you down -but that doesn't mean it's wrong

> -it means people are wrong for judging those that color outside the lines.

> After my mother learned about the abuse from the school (how I know about the

> clay -what my mom did with my sister -they made a closet and everything so my

> sister could act it out) My mother took to get her tested privately and

> learned that she had normal cognitive ability -unlike where the school system

> placed her. Even though my mother advocated hard -the damage was done. We've

> all read 's story http://littlemermaidmelanie.wordpress.com Maybe I'm

> sharing a bit more as to why I advocate so hard for others to not let their

> children fall through the cracks. I am fully aware there are warm and caring

> and wonderful educators in the world

> -but I'm also aware there are people that should not be working with the

> public no less children that are teachers too. Just like you can question

> doctors -you can question teachers -or the school system in general if they

> judge your child a certain way and you don't agree.

>

> My sister today is a middle aged woman married with 2 children and while she

> has what most would consider a normal life - is scarred.

>

> So not sure if this has to do with abuse that Josh went through from the

> school, the divorce of his parents and then the stress (even though good

> stress moving is always stress) of moving to a new house...but Josh is a kid

> who's got his own worries to overcome -and lots on his plate. And I'm writing

> all of this because I know there are always those parents that read and don't

> post -and know that my sister and Josh aren't the only two that went through

> some sort of abuse whether it's from the school or elsewhere. So unfortunately

> this is something some of our kids have to deal with as well -and it's good

> for parents to know there are ways to help the child.

>

> Sherry is on it working with him, she is an incredible parent who has been

> through so much herself. Both of them need huge hugs and prayers from all of

> us.

>

> It's awesome that in spite of whatever is going on emotionally for Josh that

> he is being reported to have surges in speech and other areas by those around

> him -not just Sherry -since being on nutriiveda.

>

> Also unlike vitamins- the nutrients and all the essential amino acids in

> nutriiveda are not added -they are 100% natural from whole food which is the

> purest form of supplementation. http://pursuitofresearch.org/ingredients.html

> It would be like saying " don't feed him too much healthy food " It's when you

> get into giving separate nutrients as one needs another to utilize it etc that

> you can get into some issues. Nutriiveda is providing nutrients to Josh that

> his body appears to have needed and from what I recall from Josh's past Josh

> having a healthy diet while staying clear of foods he is allergic to is an

> area of concern for Sherry. So fortunately this will be one less area that

> Sherry has to worry about -and to have surges on top of that? Priceless.

>

> Sherry as a PS to you -I was thinking about this. The blog may also be a good

> thing to spot if there are any patterns or triggers which may provide clues

> for this behavior. As you can tell -we are all rooting for you and Josh!

>

> =====

>

[Guest guest]

Well, if you think the bathroom is part of the problem, what about asking his

doctor for one of those hand held pee in things. My grandfather used to have

one. It's not so fun to clean out, but probably better than cleaning the couch

and floor all the time.

I don't think the greater need to pee is from drinking water, b/c when I first

went on NV I was very lax about water and peed all the time and got super

dehydrated. I think something in the mix facilitates pulling toxic fluids from

the muscles and washing them out. If you don't drink water to replace it, you

can end up with bad headaches and back aches. After the first few weeks, it

normalizes.

>

> Yeah, I don't know if it's worrying about needing to pee that is the problem,

although it could be a chicken and egg thing - does needing to pee stress him

out or does having to get up and go into the bathroom (which is where I think

some of the abuse occurred by the previous aide) cause the stress so he pees

(where he's at).  That is interesting about the need to pee more when starting

on NV - wonder if it is simply because he's drinking a little more generally?

> Thanks for the suggestion about the timer.

>  

> Sherry and Josh

>

>

>

>

>

[Guest guest]

That's an interesting suggestion about the hand held pee thing.  Don't know how

he'd take to it, but you never know!  Also interesting about the water - I've

been kind of lax about drinking water or taking fluids of other types since

starting it - I better drink more!!

 

Sherry and Josh

 

From: liralendoncov <liralendoncov@...>

Subject: [ ] Re: can someone with a son maybe explain this??

Date: Friday, June 11, 2010, 8:16 AM

 

Well, if you think the bathroom is part of the problem, what about asking his

doctor for one of those hand held pee in things. My grandfather used to have

one. It's not so fun to clean out, but probably better than cleaning the couch

and floor all the time.

I don't think the greater need to pee is from drinking water, b/c when I first

went on NV I was very lax about water and peed all the time and got super

dehydrated. I think something in the mix facilitates pulling toxic fluids from

the muscles and washing them out. If you don't drink water to replace it, you

can end up with bad headaches and back aches. After the first few weeks, it

normalizes.

>

> Yeah, I don't know if it's worrying about needing to pee that is the problem,

although it could be a chicken and egg thing - does needing to pee stress him

out or does having to get up and go into the bathroom (which is where I think

some of the abuse occurred by the previous aide) cause the stress so he pees

(where he's at).  That is interesting about the need to pee more when

starting on NV - wonder if it is simply because he's drinking a little more

generally?

> Thanks for the suggestion about the timer.

>  

> Sherry and Josh

>

>

>

>

>

[Guest guest]

sherry......sending hugs....why is it that when good things appear and happen,

we cry harder?  I know what it's like on this roller coaster journey and have

found that my best crying comes from someone being kind to my son, or helping us

in some small way.  I hope things get better for you and josh. 

Sandy

________________________________

From: sherry silvern <srsilvern@...>

Sent: Fri, June 11, 2010 12:07:57 AM

Subject: Re: [ ] Re: can someone with a son maybe explain

this??

 

Boy, , thank you so much for all that you have written.  I truly appreciate

the support you and the folks here have shown all this time.  I gotta say this

has been such an emotional day for me - Josh and I had a wonderful a.m. and then

a very short rough spot early afternoon that just put me over the edge and I

couldn't stop crying.  I thought I finally got whatever has been stuck within

me out with the crying (I hoped), only to lose it again later.  My family was

having a dinner for my Dad's birthday at a restaurant not really conducive to

kids.  I had found this " drop-in " daycare center, spoke with them the other day

about Josh, and they were open to having him come there - they're open until

10:00 or 11:00p.m.! (fantastic idea to help parents out).  I was sooo nervous

about leaving him there - they originally said no other kids were scheduled for

this evening but when we got there, they had been surprised by 6 other kids who

" dropped in. "  

I had gotten there in time to talk with the caregivers about Josh, get him

settled in, etc.  They were so amazing - the woman who was going to hang with

Josh the most turns out to have a husband who has seizures - so she was well

aware how to handle things if Josh had a seizure.  The woman who was acting

director not only has a 12yo son going through the tween stuff, she had

incredible suggestions for sensory activities for Josh.  They put me so at ease

that, when I finally left, I just started sobbing in the car - this is the first

time I've ever left Josh at a place like this (he did have daycare and after

school care when he was younger but not since a lot of the things he's dealing

with now started up) and it's been forever since I've actually gone out for a

" grown up dinner " with real adult conversation.  I walked into my parent's

house crying - my poor Dad thought something terrible had happened!  My Mom

said she thinks I was so emotional

just because of the relief in finding a place like this.  My folks kidsit for

me on occasion but they're in their 80's and it's always a concern whether they

can really handle it if Josh were to have a seizure.  Of course I called the

place twice during dinner to see how Josh was doing (great).  When I picked him

up, they had four pictures for me of Josh - one of them with him sitting on the

couch at the place with all the other kids around him, smiling, watching a

movie.  This place is just a lifesaver, knowing it's there if I need to just

run out for errands (getting in/out of the car several times for errands is

really tough on Josh), and knowing he'll be OK with the other kids and with

caregivers who really do understand him and want to help him (they even asked

for a copy of his IEP so they could implement some things when he does do the

drop-in thing).

Then I came home to check emails and read yours - and just sat here crying

again.  I thank you again for your support, your kind words, and your faith in

all of our kids.

 

Sherry and Josh

From: kiddietalk <kiddietalk@...>

Subject: [ ] Re: can someone with a son maybe explain this??

Date: Thursday, June 10, 2010, 8:29 AM

 

Josh has had the regression in the peeing area for about a month, and only

started nutriiveda 13 days ago (according to Sherry's blog

http://budsnvblog.blogspot.com and what she wrote below and a few times here )

Sherry doesn't think it has to do with nutriiveda and said so a few times. She

just wishes this would have been an area of surge as well. Who knows perhaps it

will be but will take longer? Nutriiveda in my opinion as well has nothing to do

with it, and it would be sad to stop the one bright spot that is happening for

him right now. People are complimenting him due to his recent surges on

nutriiveda and that's great for his self esteem and self confidence!

There is so much going on with Josh that would be above and beyond just dealing

with a special need. He has much on his plate. I know my sister went through a

stage at some point that she wanted to be a baby again -wanted a bottle and a

diaper. My mother let her do that -and don't think it lasted more than a few

days. Sometimes regressions such as this are signs of abuse and in my sister's

case it was -and it was through the school. Josh went through what Sherry called

abuse as well with the school, and as if that's not enough his parents recently

split up which is never easy for a child even if both parents clearly love the

child very much and it's an amicable divorce.

In my sister's case, and this was going back a few years ago, my mother found

out about what happened and threw a fit after what was going on occurred. My

sister has dyslexia but back when she was little there was little knowledge

about that and the school assumed my sister was slow. They put her in a

different school with students that were low functioning in the cognitive area.

It was not the least restrictive environment for my sister as she is very

bright. To this day however she has emotional issues from what happened in that

school -and a low self esteem. As if the inappropriate placement wasn't enough

there was at least one incident of abuse. The teacher once locked my sister

in a dark closet with no windows where she was terrified and crying.

was a good kid -I have no idea why the teacher did this -but growing up with a

brother that was diagnosed " hyperactivity child " by Dr. Gold (from Columbia) and

a dyslexic sister who wasn't

diagnosed until years after the school made a mess of her...I learned as the

" normal " middle child and an honor roll student that if you color outside the

lines in life- people want to slap you down -but that doesn't mean it's wrong

-it means people are wrong for judging those that color outside the lines. After

my mother learned about the abuse from the school (how I know about the clay

-what my mom did with my sister -they made a closet and everything so my sister

could act it out) My mother took to get her tested privately and learned

that she had normal cognitive ability -unlike where the school system placed

her. Even though my mother advocated hard -the damage was done. We've all read

's story http://littlemermaidmelanie.wordpress.com Maybe I'm sharing a

bit more as to why I advocate so hard for others to not let their children fall

through the cracks. I am fully aware there are warm and caring and wonderful

educators in the world

-but I'm also aware there are people that should not be working with the public

no less children that are teachers too. Just like you can question doctors -you

can question teachers -or the school system in general if they judge your child

a certain way and you don't agree.

My sister today is a middle aged woman married with 2 children and while she has

what most would consider a normal life - is scarred.

So not sure if this has to do with abuse that Josh went through from the school,

the divorce of his parents and then the stress (even though good stress moving

is always stress) of moving to a new house...but Josh is a kid who's got his own

worries to overcome -and lots on his plate. And I'm writing all of this because

I know there are always those parents that read and don't post -and know that my

sister and Josh aren't the only two that went through some sort of abuse whether

it's from the school or elsewhere. So unfortunately this is something some of

our kids have to deal with as well -and it's good for parents to know there are

ways to help the child.

Sherry is on it working with him, she is an incredible parent who has been

through so much herself. Both of them need huge hugs and prayers from all of us.

It's awesome that in spite of whatever is going on emotionally for Josh that he

is being reported to have surges in speech and other areas by those around him

-not just Sherry -since being on nutriiveda.

Also unlike vitamins- the nutrients and all the essential amino acids in

nutriiveda are not added -they are 100% natural from whole food which is the

purest form of supplementation. http://pursuitofresearch.org/ingredients.html It

would be like saying " don't feed him too much healthy food " It's when you get

into giving separate nutrients as one needs another to utilize it etc that you

can get into some issues. Nutriiveda is providing nutrients to Josh that his

body appears to have needed and from what I recall from Josh's past Josh having

a healthy diet while staying clear of foods he is allergic to is an area of

concern for Sherry. So fortunately this will be one less area that Sherry has to

worry about -and to have surges on top of that? Priceless.

Sherry as a PS to you -I was thinking about this. The blog may also be a good

thing to spot if there are any patterns or triggers which may provide clues for

this behavior. As you can tell -we are all rooting for you and Josh!

=====

[Guest guest]

Hi Janet -

 

I hope your father is doing well after his surgery.  Sorry to hear all you're

going through - you will be in my thoughts.

 

A couple of years ago, I was concerned about the diabetes with Josh.  I'm

diabetic so I decided to jab his finger one morning just to see where he was at

- it was a little above the recommended range by the ADA so I ran him over to

the doc, went to an endocrinologist, had a work up done - he was fine.  He

recently had a blood work up and it showed him well within the range.  I'm

supposed to take him for another blood work up (was going to yesterday but

punked out on it) so I'll see what that shows.  I'm not really sure if it's a

question, though, of increased urination, but more of the

emotional/psychological thing going on.  The blood tests will show, though!

 

Thanks for the idea about evening primrose, though!

 

Sherry and Josh

>

> From: kiddietalk <kiddietalk@... <mailto:kiddietalk%40> >

> Subject: [ ] Re: can someone with a son maybe explain this??

>

> <mailto: %40>

> Date: Thursday, June 10, 2010, 8:29 AM

>

>  

>

> Josh has had the regression in the peeing area for about a month, and only

> started nutriiveda 13 days ago (according to Sherry's blog

> http://budsnvblog.blogspot.com and what she wrote below and a few times here )

> Sherry doesn't think it has to do with nutriiveda and said so a few times. She

> just wishes this would have been an area of surge as well. Who knows perhaps

> it will be but will take longer? Nutriiveda in my opinion as well has nothing

> to do with it, and it would be sad to stop the one bright spot that is

> happening for him right now. People are complimenting him due to his recent

> surges on nutriiveda and that's great for his self esteem and self confidence!

>

> There is so much going on with Josh that would be above and beyond just

> dealing with a special need. He has much on his plate. I know my sister went

> through a stage at some point that she wanted to be a baby again -wanted a

> bottle and a diaper. My mother let her do that -and don't think it lasted more

> than a few days. Sometimes regressions such as this are signs of abuse and in

> my sister's case it was -and it was through the school. Josh went through what

> Sherry called abuse as well with the school, and as if that's not enough his

> parents recently split up which is never easy for a child even if both parents

> clearly love the child very much and it's an amicable divorce.

>

> In my sister's case, and this was going back a few years ago, my mother found

> out about what happened and threw a fit after what was going on occurred. My

> sister has dyslexia but back when she was little there was little knowledge

> about that and the school assumed my sister was slow. They put her in a

> different school with students that were low functioning in the cognitive

> area. It was not the least restrictive environment for my sister as she is

> very bright. To this day however she has emotional issues from what happened

> in that school -and a low self esteem. As if the inappropriate placement

> wasn't enough there was at least one incident of abuse. The teacher once

> locked my sister in a dark closet with no windows where she was

> terrified and crying. was a good kid -I have no idea why the teacher did

> this -but growing up with a brother that was diagnosed " hyperactivity child "

> by Dr. Gold (from Columbia) and a dyslexic sister who wasn't

> diagnosed until years after the school made a mess of her...I learned as the

> " normal " middle child and an honor roll student that if you color outside the

> lines in life- people want to slap you down -but that doesn't mean it's wrong

> -it means people are wrong for judging those that color outside the lines.

> After my mother learned about the abuse from the school (how I know about the

> clay -what my mom did with my sister -they made a closet and everything so my

> sister could act it out) My mother took to get her tested privately and

> learned that she had normal cognitive ability -unlike where the school system

> placed her. Even though my mother advocated hard -the damage was done. We've

> all read 's story http://littlemermaidmelanie.wordpress.com Maybe I'm

> sharing a bit more as to why I advocate so hard for others to not let their

> children fall through the cracks. I am fully aware there are warm and caring

> and wonderful educators in the world

> -but I'm also aware there are people that should not be working with the

> public no less children that are teachers too. Just like you can question

> doctors -you can question teachers -or the school system in general if they

> judge your child a certain way and you don't agree.

>

> My sister today is a middle aged woman married with 2 children and while she

> has what most would consider a normal life - is scarred.

>

> So not sure if this has to do with abuse that Josh went through from the

> school, the divorce of his parents and then the stress (even though good

> stress moving is always stress) of moving to a new house...but Josh is a kid

> who's got his own worries to overcome -and lots on his plate. And I'm writing

> all of this because I know there are always those parents that read and don't

> post -and know that my sister and Josh aren't the only two that went through

> some sort of abuse whether it's from the school or elsewhere. So unfortunately

> this is something some of our kids have to deal with as well -and it's good

> for parents to know there are ways to help the child.

>

> Sherry is on it working with him, she is an incredible parent who has been

> through so much herself. Both of them need huge hugs and prayers from all of

> us.

>

> It's awesome that in spite of whatever is going on emotionally for Josh that

> he is being reported to have surges in speech and other areas by those around

> him -not just Sherry -since being on nutriiveda.

>

> Also unlike vitamins- the nutrients and all the essential amino acids in

> nutriiveda are not added -they are 100% natural from whole food which is the

> purest form of supplementation. http://pursuitofresearch.org/ingredients.html

> It would be like saying " don't feed him too much healthy food " It's when you

> get into giving separate nutrients as one needs another to utilize it etc that

> you can get into some issues. Nutriiveda is providing nutrients to Josh that

> his body appears to have needed and from what I recall from Josh's past Josh

> having a healthy diet while staying clear of foods he is allergic to is an

> area of concern for Sherry. So fortunately this will be one less area that

> Sherry has to worry about -and to have surges on top of that? Priceless.

>

> Sherry as a PS to you -I was thinking about this. The blog may also be a good

> thing to spot if there are any patterns or triggers which may provide clues

> for this behavior. As you can tell -we are all rooting for you and Josh!

>

> =====

>

[Guest guest]

So true Sandy -sometimes we do cry more when we are shown kindness- there are

probably more than a few reasons why. One of them is just in knowing that

others really do care. I do believe with all my heart that things are going to

get better for Sherry and Josh -and Sherry -that place you found sounds like

it's going to be not just a good place for you as a safe place to drop Josh off

at when needed -but honestly -it kind of sounds like it could be a healing place

for him. He'll be around adults that sound like they are knowledgeable and

caring and in this situation with no stress- to have fun. Hmmmm -you may have

just found another answer to help Josh overcome. I mean he must be so dependent

and bonded to you. Fear makes you hold on -love makes you let go. He'll be

able to embrace the love and let go and enjoy himself even when you aren't there

-that's healthy!

And good for you that you'll be able to take care of Sherry! Just think now you

can go for a pedicure and know that Josh is having some sort of healthy

" therapy " at the same time..OMG!! Just don't let this place know any of this.

Don't want them to raise their " baby sitting " rates!!!

=====