Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 There is a difference between language and speech help Kathy and my concern is if your child NEEDS ABA therapy? What is your son's diagnosis? ABA if not appropriate can be detrimental- read Mel's background? http://littlemermaidmelanie.wordpress.com/about ABA was a main cause of her post traumatic stress syndrome and your child from what you are writing is already showing frustrated (in addition to you!) Nutriiveda is not a drug -it's whole food -but if you read a few of the stories here including Mel's -it's getting children off Depakote who have seizures. I am not one for medicating a child unless necessary -are you noticing surges with nutriiveda? If your child is stressed it may again have to do with inappropriate therapy, placement which could even be from inappropriate diagnosis. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 HI , His Dx is autism. However I am trying to figure if this is really the case. First of all he has a deletion in one of his chromosome 4 q arm top last 2. He never lined things up and do repetitive things like play with the doors and open and close them like I hear others bring up. We went to see a neuropsychologist in Chicago and he has some doubts my son is autistic . Quite frankly kids of all kinds are getting this dx that I am so confused . So really I have no idea now what my son's dx is. I do know about genetics but there are kids that are and are not dx with autism with similar genetics. I know if I take my son here in Indiana to get reassessed they will come up with autism . Because he is not social and he doesn't initiate language. He is social with family he watches kids and smiles but has no idea what to do with them. Kathy > > There is a difference between language and speech help Kathy and my concern is if your child NEEDS ABA therapy? What is your son's diagnosis? ABA if not appropriate can be detrimental- read Mel's background? http://littlemermaidmelanie.wordpress.com/about > > ABA was a main cause of her post traumatic stress syndrome and your child from what you are writing is already showing frustrated (in addition to you!) > > Nutriiveda is not a drug -it's whole food -but if you read a few of the stories here including Mel's -it's getting children off Depakote who have seizures. I am not one for medicating a child unless necessary -are you noticing surges with nutriiveda? If your child is stressed it may again have to do with inappropriate therapy, placement which could even be from inappropriate diagnosis. > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 2010 Report Share Posted June 3, 2010 HI , His Dx is autism. However I am trying to figure if this is really the case. First of all he has a deletion in one of his chromosome 4 q arm top last 2. He never lined things up and do repetitive things like play with the doors and open and close them like I hear others bring up. We went to see a neuropsychologist in Chicago and he has some doubts my son is autistic . Quite frankly kids of all kinds are getting this dx that I am so confused . So really I have no idea now what my son's dx is. I do know about genetics but there are kids that are and are not dx with autism with similar genetics. I know if I take my son here in Indiana to get reassessed they will come up with autism . Because he is not social and he doesn't initiate language. He is social with family he watches kids and smiles but has no idea what to do with them. Kathy > > There is a difference between language and speech help Kathy and my concern is if your child NEEDS ABA therapy? What is your son's diagnosis? ABA if not appropriate can be detrimental- read Mel's background? http://littlemermaidmelanie.wordpress.com/about > > ABA was a main cause of her post traumatic stress syndrome and your child from what you are writing is already showing frustrated (in addition to you!) > > Nutriiveda is not a drug -it's whole food -but if you read a few of the stories here including Mel's -it's getting children off Depakote who have seizures. I am not one for medicating a child unless necessary -are you noticing surges with nutriiveda? If your child is stressed it may again have to do with inappropriate therapy, placement which could even be from inappropriate diagnosis. > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 Kathy, Hi from an SLP who specializes in apraxia & autism! Without evaluating your son, I can't give you too many specifics but can give you some ideas. 1st, is he taking fish oils? If not, you may want to consider starting them. One of my clients who is around the same age & drinking NV, had some increased energy/behaviors, so he started EFAs/fish oils & he has " mellowed out " again, according to his mom. Discuss w/his ped. 2nd, most of my clients have found that the full dose for the child's age helps the most. Most docs recommend 4 scoops/day for anyone over 9 yrs old to adult. http://pursuitofresearch.org/faq.html#dosage 3rd, how verbal is your son? Is he using single words or combining words? If he's combining them, how many does he combine at once? If he is using word approximations, he may benefit from PROMPT therapy. 4th, in order to get a child to talk, he must have something to work for. What does he like the most? Use that toy or item as the " hook " to get him engaged so he is interested in requesting/communicating Warmest wishes, Barbara , M.S., CCC-SLP www.helpmespeak.com 410-442-9791 Ask me about NutriiVeda! > > > > > > There is a difference between language and speech help Kathy and my concern is if your child NEEDS ABA therapy? What is your son's diagnosis? ABA if not appropriate can be detrimental- read Mel's background? http://littlemermaidmelanie.wordpress.com/about > > > > ABA was a main cause of her post traumatic stress syndrome and your child from what you are writing is already showing frustrated (in addition to you!) > > > > Nutriiveda is not a drug -it's whole food -but if you read a few of the stories here including Mel's -it's getting children off Depakote who have seizures. I am not one for medicating a child unless necessary -are you noticing surges with nutriiveda? If your child is stressed it may again have to do with inappropriate therapy, placement which could even be from inappropriate diagnosis. > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2010 Report Share Posted June 4, 2010 Jeanne here. I have to chime in both my boys have different diagnosis'. Adam my oldest has apraxia and was diagnosed at age 2, now almost 15. Josh who is diagnosed with pdd at age 2, now almost 11. the big difference between the two is Adam couldn't pronouce any sounds of speech just said mmmm only, had low muscle tone in his face and cheeks when he was born, and it wasn't until 6-7 that we were able to understand Adam because of his jargon and articulation issues.Josh who was in his own world and didn't listen to his name, was clearly autistic, and repeated certain sentences and phrases that he saw on tv or like to hear on his computer games. At the same time Josh' words at the beginning came slowly but was not really sociable but he was able to say the full word even though we had to coax it from him ages 3-4 until he could repeat a whole sentence. Which he does now. I certainly wouldn't have given Adam ABA therapy because it wasn't the right therapy for him, but for Josh absolutely. > > > > > > There is a difference between language and speech help Kathy and my concern is if your child NEEDS ABA therapy? What is your son's diagnosis? ABA if not appropriate can be detrimental- read Mel's background? http://littlemermaidmelanie.wordpress.com/about > > > > > > ABA was a main cause of her post traumatic stress syndrome and your child from what you are writing is already showing frustrated (in addition to you!) > > > > > > Nutriiveda is not a drug -it's whole food -but if you read a few of the stories here including Mel's -it's getting children off Depakote who have seizures. I am not one for medicating a child unless necessary -are you noticing surges with nutriiveda? If your child is stressed it may again have to do with inappropriate therapy, placement which could even be from inappropriate diagnosis. > > > > > > ===== > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Jeanne this is a very good message for me to share with my son's school. Thank you for sharing. Kate > > > > > > > > There is a difference between language and speech help Kathy and my concern is if your child NEEDS ABA therapy? What is your son's diagnosis? ABA if not appropriate can be detrimental- read Mel's background? http://littlemermaidmelanie.wordpress.com/about > > > > > > > > ABA was a main cause of her post traumatic stress syndrome and your child from what you are writing is already showing frustrated (in addition to you!) > > > > > > > > Nutriiveda is not a drug -it's whole food -but if you read a few of the stories here including Mel's -it's getting children off Depakote who have seizures. I am not one for medicating a child unless necessary -are you noticing surges with nutriiveda? If your child is stressed it may again have to do with inappropriate therapy, placement which could even be from inappropriate diagnosis. > > > > > > > > ===== > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2010 Report Share Posted June 6, 2010 Hi Kathy. It is not possible to make specific recommendations without seeing your son. You mentioned your frustration with ABA but you didn't mention if he is receiving speech therapy. His dx is autism. Does he also have a dx of apraxia? When a parent and child are frustrated with therapy, it is time for a change. I have found that high frustration leads to very little progress. I would call a TEAM meeting to discuss what changes can be put into place. If you think he does not have the correct dx, I would seek out a SLP with a background in Autism and Apraxia. The proper diagnosis is important for many reasons, however, his therapists should be treating his symptoms, not his diagnosis. While you are seeking other expert opinions, changes can be made now based on the symptoms observed, his response to his current therapies, and your feeback. Best wishes, Deb MA CCC/SLP and mom of 4 amazing kids Visit my blog: http://speechgadget.blogspot.com/ <http://speechgadget.blogspot.com/> Follow me on twitter: http://twitter.com/SpeechGadgetDeb <http://twitter.com/SpeechGadgetDeb> > > > > There is a difference between language and speech help Kathy and my concern is if your child NEEDS ABA therapy? What is your son's diagnosis? ABA if not appropriate can be detrimental- read Mel's background? http://littlemermaidmelanie.wordpress.com/about > > > > ABA was a main cause of her post traumatic stress syndrome and your child from what you are writing is already showing frustrated (in addition to you!) > > > > Nutriiveda is not a drug -it's whole food -but if you read a few of the stories here including Mel's -it's getting children off Depakote who have seizures. I am not one for medicating a child unless necessary -are you noticing surges with nutriiveda? If your child is stressed it may again have to do with inappropriate therapy, placement which could even be from inappropriate diagnosis. > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
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