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apraxia in the uk

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Have been on the board for quite some time but finding lot of the issues not

revelent in the uk is there anyone else on the board from uk

Here we are lucky if we get speech theraphy more than every 3 months for a hour

and it comes down it just the parents.Riordan has severe verbal and oral apraxia

at 4 is still not talking or produeces much sound

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Hi,

I have been on the board for 6 months and based in Bristol in the UK. I haven't

contributed that much but find the information very helpful.

>

> Have been on the board for quite some time but finding lot of the issues not

revelent in the uk is there anyone else on the board from uk

>

> Here we are lucky if we get speech theraphy more than every 3 months for a

hour and it comes down it just the parents.Riordan has severe verbal and oral

apraxia at 4 is still not talking or produeces much sound

>

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Hi,

I have followed this group for over a year now- I live in West Midlands and have

got so much useful info that has really helped. My 10 year old son has ASD and

verbal dyspraxia. I run a full time home based son-rise prog for him so do a lot

of 1:1 work with him myself. We have a private speech therapist who comes

monthly / sometimes fortnightly but who i get to show me what to do(initially

paid for ourselves, now paid by LEA). We are using the Nuffield Dyspraxia

symbols which represent sounds rather than letters (eg pic of octopus for o ,

picture of fish with mouth open bubbles coming out for oh.) WE also use talk

tools - i told speech therapist about this and she went on a course to learn

about it - this has been great for developing oro motor skills. My therapist has

also just been thro Prompt training - this is great if your child will allow you

to manipulate their mouth. Before prompt i purchased a programme called Phenome

touch and say (Canadian so some sounds slightly different) but this was great

too - basically you are showing your child tongue positions etc for the

individual sounds) I think this only cost about £80 for dvd and workbook/ photos

i would recommend it.

Oh i also find that the fish oils etc are really beneficial.

Oh forgot to mention UK charity - Cerebra - they ran a speech therapy voucher

scheme enabling you to have an assessment and 6 sessions with a private

therapist free - that's how i got started. So do a search on all the things i've

mentioned and then start researching therapists in your area. If you cant afford

one go to NHS and mention some specific things you want help with - eg Nuffield

prog, cued articulation, oro motor exercises.

Hope this helps, please contact me directly if you want any more info

Sue Finnes

> >

> > Have been on the board for quite some time but finding lot of the issues not

revelent in the uk is there anyone else on the board from uk

> >

> > Here we are lucky if we get speech theraphy more than every 3 months for a

hour and it comes down it just the parents.Riordan has severe verbal and oral

apraxia at 4 is still not talking or produeces much sound

> >

>

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Oh, you really need more support than that! Both for you and your child. Is

private speech therapy available or an option for you? Even if you could get a

few private sessions to help get a home program going.

How about using oral-motor dvds? Or connecting with some other apraxia parents

in your area to compare exercises and activities?

MRL

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>Am looking into finding a private speech therapist but it comes down to money .

Never herd of the dvds will have to look around.

there is no one else local to me or even further afield no support groups , did

try asd one but as he doe snot ahve dx of asd wa snot comfortable situation,Few

people have spoke to their dc seem to be at the other end of the scale , its

just so upsetting bcaus ehe really does want to communicate

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