grateful

[Guest guest]

I'm also just new and during the past 2 weeks since I have discovered this

group, my knowledge of Apraxia has grown leaps and bounds. My son, ,

recently turned 4 and was just diagnosed with verbal apraxia about 6 months ago.

I know there are many children worse off than my Josh, he talks very little --

he probably has a vocabulary of 15 words. He can't even say his own name.

Fortunately, he has a very easy-going personality and is patient with all of us

when he tries to communicate his needs. He did early intervention at 2 years

old and had his speech therapist, who was visiting our home weekly, very

perplexed - she wasn't sure what to diagnose him with since according to her,

didn't show all oblivious signs of apraxia. I hate to say this, but with 5

children, I completely gave my trust to the school system and what they told me

he needed (which clearly isn't enough). It wasn't until I read THE LATE TALKER

(and might I add, I cried through most of it) that I realized I'm not doing near

enough for him. That book is a life saver and I'm so grateful for a plan now

thanks to this group and that book. Sometimes I feel completely alone in this

battle -- my husband, as great as he is, totally downplays it. We lost a child

12 years ago to cancer so I think he just figures that since this isn't life

threatening, everything will work out fine on it's own. I, on the other hand,

grew up with my youngest brother having a severe speech problem and saw

personally how cruel other children can be -- he had few friends growing up and

his self esteem was zero. Just last week I started the fish oils and just

received my NV 2 days ago. I'll be meeting with his pediatrician soon so he can

back me up when I go to his preschool class and request more than the ONCE a

week - 30 min. speech therapy he's currently receiving. I still need to check

with our private insurance to see if they cover more therapy. I can't wait to

see some progress....I hope it's soon. So thank you .....and everyone else.

Mesa, Arizona

[Guest guest]

I am grateful as well for all of the help that this group provides. I

was very fortunate to find the Late Talker when my daughter was two.

What a HUGE impact that had in my life! I remember the day that I

realized that we had the wrong speech therapist... when she told me that

she knew the book, and that I was giving fish oils to " calm her down. "

I also was dumbfounded by her opinion that my daughter could talk, but

was choosing not to! Switch to today, two years later, and we are

saying sentences! The fish oil was a big help, and we don't ever go to

bed without our " num-nums " . (Funny name I know, but when we started

them she wasn't talking, and I would coax her into taking it saying

" Num, num, good stuff! " .... It stuck!) Back to topic, you will be

amazed at what your determination can bring, along with advice from

those who have forged a path before us... a huge reason that I have

ordered Nutriiveda today!

I can't wait to start!

[ ] Re: grateful

,

Good luck to you and yor son. He is lucky to have a mom like you

willing to advocate for him. The school will almost always put 30

minutes per week on his IEP b/c it is the minimum service needed to be

provided (actually think 20 min is), but anyway, they will always put

the minimum, but can always provide more. Does he get outside speech? Do

you practice at home? Is he around good speech models in school/at home?

I tried the fish oils w/ my son, didn't see any difference, but I know

many people have. I have not tried NV, don't think I will, but we'll

see. I look at my son now and see how far he's come since he was first

dx (right before age 2). His vocab is huge, still struggles getting

those sounds/words out at times, but for the most part I can understand

him. I watch how he really has to work on getting his tongue to go in

the right position, he will try multiple times to get the right sound.

The other day in the car, he was asking me how to spell words, so we

were sounding them out & he was spelling! He will be starting kdg in the

fall!

Bonnie

>

> I'm also just new and during the past 2 weeks since I have

discovered this group, my knowledge of Apraxia has grown leaps and

bounds. My son, , recently turned 4 and was just diagnosed with

verbal apraxia about 6 months ago. I know there are many children worse

off than my Josh, he talks very little -- he probably has a vocabulary

of 15 words. He can't even say his own name. Fortunately, he has a very

easy-going personality and is patient with all of us when he tries to

communicate his needs. He did early intervention at 2 years old and had

his speech therapist, who was visiting our home weekly, very perplexed -

she wasn't sure what to diagnose him with since according to her, didn't

show all oblivious signs of apraxia. I hate to say this, but with 5

children, I completely gave my trust to the school system and what they

told me he needed (which clearly isn't enough). It wasn't until I read

THE LATE TALKER (and might I add, I cried through most of it) that I

realized I'm not doing near enough for him. That book is a life saver

and I'm so grateful for a plan now thanks to this group and that book.

Sometimes I feel completely alone in this battle -- my husband, as great

as he is, totally downplays it. We lost a child 12 years ago to cancer

so I think he just figures that since this isn't life threatening,

everything will work out fine on it's own. I, on the other hand, grew up

with my youngest brother having a severe speech problem and saw

personally how cruel other children can be -- he had few friends growing

up and his self esteem was zero. Just last week I started the fish oils

and just received my NV 2 days ago. I'll be meeting with his

pediatrician soon so he can back me up when I go to his preschool class

and request more than the ONCE a week - 30 min. speech therapy he's

currently receiving. I still need to check with our private insurance to

see if they cover more therapy. I can't wait to see some progress....I

hope it's soon. So thank you .....and everyone else.

>

>

> Mesa, Arizona

>

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>