biomedical approach and apraxia and genetic link within families????

[Guest guest]

1. Anyone doing a biomedical approach to help their child with apraxia? If so,

I would like to chat with you! My son (turns 3 in Oct) has apraxia, hypotonia

in trunk and face only and mild SI issues. He also has chronic eczema (somewhat

mild). We are exploring the malabsorption avenue as my son's fecal matter has

never been formed and he is low on fat souble vitamins. We also just found out

he has a food sensitivity to 71 foods (including, most grains, eggs, dairy,

soy). I feel like we are finally getting most of the puzzle pieces and I am

hopeful that a change in diet may make some significant changes in speech!

2. I have a younger daughter (now 16 months old) who has some of the hallmark

signs of apraxia but we're still on the fence about a diagnosis... waiting to

work with her more on speech for the moment and see what happens. Does anyone

know if there is a family link?

Thank you,

[Guest guest]

I think it's really important for you to explore the biomedical approach given

the food sensitivities your son has and the tell-tale signs of his bowel

movements... really provides evidence that there is a gut issue going on. We

are just starting the Specific Carbohydrate Diet with my almost 4 yr old son...

he has apraxia and ASD and we are convinced that he is not absorbing essential

nutrients - we tried the fish oil protocol described on this group with some

good results, but I think we kept plateauing b/c my son's gut wasn't able to

absorb the oils effectively. You should read Natasha -McBride's " Gut

and Psychology Syndrome " where she describes clearly the connection between what

our children's guts are struggling with and how to correct the problem using the

SCD. Also, pecanbread.com is the website that tells you how to implement the

diet. There are some wonderful success stories with the approach, BUT it also

needs to be paired with good therapies for speech/ot/etc... I can't tell you

yet what changes we are going to see with my son, but the science behind the

approach makes a lot of sense and with your son's test results, it certainly

cannot hurt. Hope this helps!

Tatyana

[ ] biomedical approach and apraxia and genetic

link within families????

1. Anyone doing a biomedical approach to help their child with apraxia? If

so, I would like to chat with you! My son (turns 3 in Oct) has apraxia,

hypotonia in trunk and face only and mild SI issues. He also has chronic eczema

(somewhat mild). We are exploring the malabsorption avenue as my son's fecal

matter has never been formed and he is low on fat souble vitamins. We also just

found out he has a food sensitivity to 71 foods (including, most grains, eggs,

dairy, soy). I feel lik e we are finally getting most of the puzzle pieces and I

am hopeful that a change in diet may make some significant changes in speech!

2. I have a younger daughter (now 16 months old) who has some of the hallmark

signs of apraxia but we're still on the fence about a diagnosis... waiting to

work with her more on speech for the moment and see what happens. Does anyone

know if there is a family link?

Thank you,

[Guest guest]

Many of us are doing biomedicals. I'm using Autism: Effective Biomedical

Treatments, which says there are a number of things in addition to CF/GF

dieting which can be tried at home -- many good over-the-counter

supplements. If I keep good records and try each new item for 5 days --

with, perhaps, three-day challenges -- I may get good information about what

foods my daughter handles and mis-handles. BTW, I finally asked a

pediatrician to order blood serotonin, heavy metals, and amino acid tests,

for a bit north of $300. The results gave the strongest imaginable

indication of GI problems underneath behavior ones.

I'm doubtful about leaping toward " family " links, if by that is meant pure

genetic weaknesses. It's a popular assoication, but I think I have to watch

for " same environment " possibilities, such as the fact my daughter has been

playing on a cheap garage rug a lot, whcih, without my awareness, could be

giving her antimony poisoning. Similarly " the family " could all be exposed

to the same fungus, virus, or bacterium. Autism appeared significantly in

children of Desert Storm soldiers; their incidence of a nasty myco-something

was high, indicating not genetics but something Papa caught in the Middle

East.

On Wed, Aug 12, 2009 at 2:33 PM, Creager <lisad529@...> wrote:

>

>

> 1. Anyone doing a biomedical approach to help their child with apraxia? If

> so, I would like to chat with you! My son (turns 3 in Oct) has apraxia,

> hypotonia in trunk and face only and mild SI issues. He also has chronic

> eczema (somewhat mild). We are exploring the malabsorption avenue as my

> son's fecal matter has never been formed and he is low on fat souble

> vitamins. We also just found out he has a food sensitivity to 71 foods

> (including, most grains, eggs, dairy, soy). I feel like we are finally

> getting most of the puzzle pieces and I am hopeful that a change in diet may

> make some significant changes in speech!

>

> 2. I have a younger daughter (now 16 months old) who has some of the

> hallmark signs of apraxia but we're still on the fence about a diagnosis...

> waiting to work with her more on speech for the moment and see what happens.

> Does anyone know if there is a family link?

>

> Thank you,

>

>

>

>

[Guest guest]

My son's apraxia has been resolved using biomedical interventions. We've been

seeing a DAN! doctor for over a year now and we're getting steady improvements.

Our last big issue is attention and focus.

Feel free to email me if you want to chat in depth.

>

> 1. Anyone doing a biomedical approach to help their child with apraxia? If

so, I would like to chat with you! My son (turns 3 in Oct) has apraxia,

hypotonia in trunk and face only and mild SI issues. He also has chronic eczema

(somewhat mild). We are exploring the malabsorption avenue as my son's fecal

matter has never been formed and he is low on fat souble vitamins. We also just

found out he has a food sensitivity to 71 foods (including, most grains, eggs,

dairy, soy). I feel like we are finally getting most of the puzzle pieces and I

am hopeful that a change in diet may make some significant changes in speech!

>

>

> 2. I have a younger daughter (now 16 months old) who has some of the hallmark

signs of apraxia but we're still on the fence about a diagnosis... waiting to

work with her more on speech for the moment and see what happens. Does anyone

know if there is a family link?

>

> Thank you,

>

>

[Guest guest]

What kind of biomed did you do that helped with apraxia? I am loosing hope here!

thank you

From: ckrupa3672 <ckrupa3672@...>

Subject: [ ] Re: biomedical approach and apraxia and genetic

link within families????

Date: Friday, August 14, 2009, 12:26 PM

 

My son's apraxia has been resolved using biomedical interventions. We've been

seeing a DAN! doctor for over a year now and we're getting steady improvements.

Our last big issue is attention and focus.

Feel free to email me if you want to chat in depth.

>

> 1. Anyone doing a biomedical approach to help their child with apraxia? If so,

I would like to chat with you! My son (turns 3 in Oct) has apraxia, hypotonia in

trunk and face only and mild SI issues. He also has chronic eczema (somewhat

mild). We are exploring the malabsorption avenue as my son's fecal matter has

never been formed and he is low on fat souble vitamins. We also just found out

he has a food sensitivity to 71 foods (including, most grains, eggs, dairy,

soy). I feel like we are finally getting most of the puzzle pieces and I am

hopeful that a change in diet may make some significant changes in speech!

>

>

> 2. I have a younger daughter (now 16 months old) who has some of the hallmark

signs of apraxia but we're still on the fence about a diagnosis... waiting to

work with her more on speech for the moment and see what happens. Does anyone

know if there is a family link?

>

> Thank you,

>

>