Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 When my son was non verbal, we didn't sign language with Signing Times DVD 3 volumes. Then, I started using PECS system with his private therapist. Another thing, I think that help alot is turning the caption on the TV since he like to read, he can read what they are saying (I got TV caption from our Hyperlexia group) which has helped alot. My son will be 6 on Oct. 29th and most of time he only use 2 to 3 words to asked for he wants every now and then 5 words. Best of Luck, I hope it helps Tracey ________________________________ From: hubby4kids <hubby4kids@...> Sent: Monday, September 21, 2009 3:09:41 PM Subject: [ ] completely non-verbal I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. Thank you, (ny 11.5 yrs non-verbal) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Hi , My son is also 11 yrs he has severe Verbal and Oral Dyspraxia of speech. His current therapies are: 3x a wk 30 min one on one individual ST 2x a wk two 45 min individual OT 5x a wk 5 hrs a day one on one individual aide 5 x a wk 4 and half hrs of pull out resource room daily reading,math and spelling,work on ST and OT skills mainstreamed in a regular 5th grade classroom for science and social studies with one on one aide modifying work as needed. Jeanne and NH -- On Mon, 9/21/09, hubby4kids <hubby4kids@...> wrote: I would especially be interested in knowing what types of therapy you are doing with your child. Thank you, (ny 11.5 yrs non-verbal) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Hi I also have a nonverbal son who is 10 I quit theraphy it didnt seem to help he only got frustrated so I was wondering is therapy non good untill we heal them from all the metals and junk ? Thank you Kimmy From: hubby4kids <hubby4kids@...> Subject: [ ] completely non-verbal Date: Monday, September 21, 2009, 4:09 PM I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. Thank you, (ny 11.5 yrs non-verbal) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 My son just turned six and he has words that he uses sometimes hard to understand, receptively he is way ahead, expressively he is behind, is there hope at any age that more words will come in? What causes a surge in speech???? In a message dated 9/21/2009 5:41:13 P.M. Central Daylight Time, hubby4kids@... writes: I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. Thank you, (ny 11.5 yrs non-verbal) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 My son is 6 and only has a few words. He has Down Syndrome and Apraxia. We are using a combination of things to communicate. Signs, PECS and an augmentative device that they are now trialing in his school. He enjoys watching the Signing Time video's but does not like to use too many signs. The PECS he enjoys more. The electronic device he loves. They can program it to say almost anything for him so he can participate in class more. He also gets ST 3x, OT 2x and PT 1x week. I also go to a private PROMPT therapist 1x week. Debbie [ ] completely non-verbal I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. Thank you, (ny 11.5 yrs non-verbal) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 my son was completely non-verbal until we started fish oil. He started babbling within 2 or 3 days. We have since followed up with a lot of biomedical interventions with great results. > > I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. > Thank you, > (ny 11.5 yrs non-verbal) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Hi , My son is only 3.5 yo, but is non-verbal, diagnosed with severe verbal and oral apraxia (well he tries, but the best you get are some vowel sounds). We use PECS, but I am really excited about some applications for iPhone and apple iTouch. You can get the basic iTouch pretty inexpensive via ebay. Since your son is 11.5 he might like it better than the large and very expensive AAC devices out there. check these out on iTunes --proloquo2GO ---pricey, but looks fantastic! --look2learn --iconverse --learn to talk --icommunicate I know this doesn't answer your question, but I thought it might be of some interest to you! -Jenna (mom to Larsyn and Chance) > > I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. > Thank you, > (ny 11.5 yrs non-verbal) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 Have either of you tried the EFAs????(fish oil) It worked wonders for our adopted daughter..she was not speaking at age 4 when we met her. Good Luck to you both. _____ From: [mailto: ] On Behalf Of Kimmy Heil Sent: Tuesday, September 22, 2009 8:24 AM Subject: Re: [ ] completely non-verbal Hi I also have a nonverbal son who is 10 I quit theraphy it didnt seem to help he only got frustrated so I was wondering is therapy non good untill we heal them from all the metals and junk ? Thank you Kimmy From: hubby4kids <hubby4kids (DOT) <mailto:hubby4kids%40> com> Subject: [ ] completely non-verbal <mailto: %40> Date: Monday, September 21, 2009, 4:09 PM I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. Thank you, (ny 11.5 yrs non-verbal) __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 what kind of biomed did you do? thank you From: <ckrupa3672@...> Subject: [ ] Re: completely non-verbal Date: Tuesday, September 22, 2009, 3:50 PM my son was completely non-verbal until we started fish oil. He started babbling within 2 or 3 days. We have since followed up with a lot of biomedical interventions with great results. > > I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. > Thank you, > (ny 11.5 yrs non-verbal) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 We were recommended Nordic Naturals ProEFA which comes in a capsule you can poke a hole in and put in his food. I used to give me son a 1/2 teaspoon in his pureed fruit. It comes in a couple of flavors - lemon, berry, orange?..increase amount weekly depending on how he is handling it to a teaspoon. From: [mailto: ] On Behalf Of MELISSA KIRKLAND Sent: Wednesday, September 23, 2009 8:28 AM Subject: Re: [ ] completely non-verbal My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. ________________________________ This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 My son is 2.5 and we give 2 nordic naturals gel tabs we pop the oil and stir it into his yogurt in the morning. We have also put it in applesauce pudding and chocolate milk. We use the omega 369 which is also called proefa if you buy it online Sent from my Verizon Wireless BlackBerry Re: [ ] completely non-verbal My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 I think Communicating Partners (www.jamesdmacdonald.com - be sure to put the " d " in his name) would be helpful for your son! (ny 11.5 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Thank you to those who responded to my question regarding therapy that your child is doing. We have tried MANY things and still have a non-verbal son! We keep our eyes and ears open to what might possibly be a help for him. (ny 11.5 yrs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 HI my son takes codliver oil dha and omega 3, 6, 9 but still no language Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 I recently started my 20month old non-verbal son on ProEFA (otherwise known as Omega 3,6,9) by Nordic Naturals. This is a pharmaceutical grade supplement made from the freshest fish oils, so it doesn't taste as fishy as some. Within 3 weeks, I have seen a difference. This particular product is for 5 year olds and up. They are supposed to take two capsules a day. I consulted with my pediatrician and he said to give my son 1 capsule a day. This particular product has a lemon flavor. He doesn't mind taking it at all. I hope this helps. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 My son is 20 months old. We have started giving him the Omega 3,6,9 supplement (otherwise known as ProEFA) by Nordic Naturals. You can get it here at the vitamin shoppe for just under $17. http://www.vitaminshoppe.com/store/en/browse/sku_detail.jsp?id=YE-7001 This supplement is for 5year olds or older. They are supposed to take 2 capsules a day. I consulted with our pediatrician and he said it was safe to give our son 1 capsule a day. It is lemon flavored, and he can chew it. My older son doesn't like the taste, so I puncture the capsule and mix it in a spoonful of apple sauce or yogurt. I haven't really had any trouble that way. I hope this helps! I saw improvement in my non-verbal 20 month old within 3-4 weeks! Hope this helps, > > My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. > > > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 My son is 3.5 years old and I give him capsules of fish oil. I put a tack through the capsules, squirt it into a cup and put it in juice. I give him a ProEFA in the morning, and a ProEPA at noon and another ProEFA at night. At first he was one one then we switched to 2 and now we are at 3 because he has went from babbling to actually mouthing words without sound. The pills are both 1000mg. I think it is worth a try because it is healthy and something everybody needs. Because my son doesn't consume fish, this is a way for him to get his Omega fatty acids. I would start with Nordic Naturals ProEFA and see how that does fpr a while.If he does well do a ProEPA also. ~ > > My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. > > > > > ________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 , maybe this info is helpful for you --most people here using fish oils do this: http://www.facebook.com/topic.php?uid=115029735601 & topic=7401 Re: [ ] completely non-verbal My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. ________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 I want to thank everyone for your responses to the " fish oil " questions. They were all VERY helpful and we will be looking into those soon!! ________________________________ From: Madeline Wolfe <Madeline_wolfe@...> Sent: Wednesday, September 23, 2009 10:37:45 AM Subject: Re: [ ] completely non-verbal , maybe this info is helpful for you --most people here using fish oils do this: http://www.facebook.com/topic.php?uid=115029735601 & topic=7401 Re: [childrensapraxiane t] completely non-verbal My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. ____________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 We started out with fish oil and vitamin E. We then started seeing a DAN! doctor. We are currently using: fish oil, vitamin E, probiotics, acetyl-l-carnitine, MB-12 shots, creatine, & candizyme (enzymes for yeast). All of these have helped with speech. > > > > I am wondering if there are many in this group whose kids are completely non-verbal. Our son is 11 and has no words. I would especially be interested in knowing what types of therapy you are doing with your child. > > Thank you, > > (ny 11.5 yrs non-verbal) > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 HI , We are doing all those things except b12 shots he doesnt do well on methyl and what is the creatine for? Thank you so much, Kimmy From: <ckrupa3672@...> We started out with fish oil and vitamin E. We then started seeing a DAN! doctor. We are currently using: fish oil, vitamin E, probiotics, acetyl-l-carnitine, MB-12 shots, creatine, & candizyme (enzymes for yeast). All of these have helped with speech. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 I believe creatine helps build muscles - my son tested low for this. My DAN! didn't suggest I supplement because she said people don't have a lot of success. I tried anyway and got good results. It definitely helped his speech. > > > From: <ckrupa3672@...> > > We started out with fish oil and vitamin E. We then started seeing a DAN! doctor. We are currently using: fish oil, vitamin E, probiotics, acetyl-l-carnitine, MB-12 shots, creatine, & candizyme (enzymes for yeast). All of these have helped with speech. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2009 Report Share Posted September 27, 2009 Thank you CAthy From: <ckrupa3672@...> Subject: [ ] Re: completely non-verbal Date: Saturday, September 26, 2009, 9:21 AM I believe creatine helps build muscles - my son tested low for this. My DAN! didn't suggest I supplement because she said people don't have a lot of success. I tried anyway and got good results. It definitely helped his speech. > > > From: <ckrupa3672@ ...> > > We started out with fish oil and vitamin E. We then started seeing a DAN! doctor. We are currently using: fish oil, vitamin E, probiotics, acetyl-l-carnitine, MB-12 shots, creatine, & candizyme (enzymes for yeast). All of these have helped with speech. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2009 Report Share Posted September 28, 2009 Can you please tell me how much carnitine you are giving to your son and how old he is (lb)? Do you give Acetyl-L-Carnitine? Thank you, Lucy > > I believe creatine helps build muscles - Quote Link to comment Share on other sites More sharing options...
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