Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 Thanks sounds great! From: Madeline Wolfe <Madeline_wolfe. ar> Subject: Re: [childrensapraxiane t] completely non-verbal @groups. com Date: Wednesday, September 23, 2009, 11:37 AM , maybe this info is helpful for you --most people here using fish oils do this: http://www.facebook .com/topic. php?uid=11502973 5601 & topic= 7401 Re: [childrensapraxiane t] completely non-verbal My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. ____________ _________ _________ __ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 , I have the complete mega 3,6,9 and it looks like the same ingredeints as the pro efa do you know what the diffrence would be?Thank you From: Stahl <kstahl224@...> Subject: Re: [ ] completely non-verbal Date: Friday, October 2, 2009, 11:22 AM My 20 month old son was not speaking any words.� He only made vowel sounds.� I started the ProEFA (Omega 3, 6, 9 Junior) supplements 3 weeks ago and he now can say about 6-10 words.� He doesn't use them frequently, but it was wonderful to hear even one word!� You should consult with your pediatrician to get the right dosage of any supplement for your child's age and weight.� Good Luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 When I say nonverbal my son has apraxia and autism he is 10 he can say hi and bye but its not like a typical child would say it and that is all he can say and he trys really hard but just cant get the words out. We have been doing biomed for 6 years and tried many things. Thank you Kimmy From: sloneczko2004 <bakster6@...> Subject: [ ] Re: completely non-verbal Date: Thursday, October 1, 2009, 12:06 AM My understanding is(CHERAB org.recommends this protocol), that you should start with 1 pro-efa and 1vit.E, than around 6monts, or when your kid's speech plateaus than you add pro-epa, then after next plateau you add another pro-efa. Every child is different of course, so you my have to find your own balance. We actually had to increase vitE to 800IU. Krys > > > From: Madeline Wolfe <Madeline_wolfe@ ...> > Subject: Re: [childrensapraxiane t] completely non-verbal > @groups. com > Date: Wednesday, September 23, 2009, 11:37 AM > > > > > > > , maybe this info is helpful for you --most people here using fish oils do this: > > http://www.facebook .com/topic. php?uid=11502973 5601 & topic= 7401 > > Re: [childrensapraxiane t] completely non-verbal > > My son is 2.5 yrs old and I would like to try the fish oils, but what form do you give a child that age...is there a liquid or pill or what? My husband and I are willing to try anything at this point. > > ____________ _________ _________ __ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2009 Report Share Posted October 2, 2009 If it's the nordic naturals brand they are one and the same (or so I'm told).  I believe one is sold in stores and one sold online. -----Original Message----- From: Kimmy Heil <kimberly19ray@...> , I have the complete mega 3,6,9 and it looks like the same ingredeints as the pro efa do you know what the diffrence would be?Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 �one thing we should all keep in mind is that for many of these vitamins blood/plasma levels are not at all what the cellular levels are.� All people with fatty acid deficits need more vitamin E and other antioxidents in order to process that fatty acid at cellular level or it just oxidizes in the body--and can actually become a burden--toxic waste. my daughter did not show a ny E deficiencies either, but benefited greatly from carnitine and E combined and this regulated her free floating fatty acids which were rather high prior to this addition. Needless to say her speech also improved greatly, but then we're also doing other things--with B12 being the most amazing supplement of all--these kids also ahve methylation pathways blocked and B12 is also a big deficiency for them, but not always at plasma levels--her plasma levels were normal--but the supplementation via subcutaneous shot--cannot be absorbed in the lining in people with deficient intrinsic factor and nasal sprays every 4 h to maintain a steady constant supply in her blood stream sounds a lot more cruel than a hair thin needle under the skin every 3 days. Again, sublingual or pill will not help--a young child cannot be expectd to suck under the tongue a B12 pill and not crunch it up and swallow it--every 4 h or so day and night.� So the shots are the best way to deliver this vital brain nutrient that benefits so many kids with speech/attention/behavoral isues. My daughter only has apraxia, but her eye cotnact and behavior, as well as willingness to follow adult directed activities etc. ahve improved beyond belief with the MB12 shots. There ar emany supplements that help regulate metabolic problems and they do not all work the same for all kids. it is always a combination of genetics and environmental ecposures--triggers and it's ahrd to say wwhat will work and what won't.� But new tests are being developed all the time, tests that are more sensitive and can better interepret certain deficiencies--the problem is most doctors do not get training in these new tests, and insurance does not cover them considering anything that isn't in their existing guidelines--- " experimental " Let's not forget that everything was at some point " experimental " this is how science builds and every successful research project that helps answer some questions by default raises new ones. This is part of the scientific process and our speech impaired children have neurological damage that has its roots in metabolic disarray, malabsorptions of various kinds--fish oil and antioxidants being among the highest.� While not every apraxic child may need the very high levels of E, everyone taking fish oil should increase their intake of E to a comfortable level--a nd this is more than what is in the fish oil itself to preserve it. You cna gradually increase and observe.� teh only danger is increased sensitivity to bleeding--the fish oil has the same effect--vitamin K counteracts this.� it si good to be cautious but also open minded and learn as much as you can--becuase most apraxic kids--if not all are dealing with metabolic problems which if not the direct cause of the speech problems are most certainly implicated in the treatment process. the brain cannot function if it is missing vital nutrients and if it is affected by oxidative stress--which is an incresing problem in the environment, particularly in genetically susceptible individuals who have enzyme deficiencies and a family history of autoimmune disorders such as --asthma, diabetes, skin problems --eczemas/psoriasis, systemic Lupus, early Onset Alzheimer's Parkinson etc.� All these neurological disorders have metabolic roots and can be if not " cured " certainly helped and perhaps even prevented once we understand what the brain needs to function optimally. The neuroscience research is there, the microbiology research is there--but clinical medical practice takes it's cues from the pharmaceutical companies who help set guidelines and treatments� with--what else?--drugs.. There's so much we can learn and do for our speech and otherwise motor planning challenged children and it's not just about fish oil, although this can help greatly but not alone ain many cases. i had wrongly concluded my daughter was not a responder when in fact she just needed so much more to properly process that fish oil.� I urge all parents to do their research and this doesn't just mean asking your doctor who most likely has never had a true nutrition course in medical school back when they knew so little about metabolic effects on the brain etc. This is a new field and not enough doctors get training in it, but ther eis an evergrowing number of physicians who are realizing our brains are not in a vacuum up there but connected to the rest of our bodies and nutritional deficiencies can and do affect neurological and immune functioning in ways that were previously not known or suspected. We now have technology that is much more advanced and there are tests to help us but again, not in mainstream medicine unfortunately--that takes sometimes decades to catch up because no one wants to foot the bill and pay for retraining, more tests, more treatments. Good luck to all and may we all be strong enough and inspired enough to do the best we can for our children--and this means learning to think outside the box and accepting the responsibility and ambiguity that comes with a new frontier of science.� As Dr. said in her articles and handouts that discussed her findings on nutritional supplements used to treat her son's speech apraxia and hypotonia---- " our children do nOT have decades to wait " for clinical trials that would need to be doen differently anyway since not every child needs the exact same protocol and more than one supplement is needed--it's not the " one pill " that fixes all, it is a highly inmdicvidualized treatment for each and every child according to genetic make up and envoironmental exposure and symptoms, as well as progress. All the best, Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 I actually called Nordic Naturals with this same question a few weeks ago. Omega 3-6-9 is the name it is sold under to retailers; ProEFA is the name it is sold under to medical professionals. Either way, they are the exact same product. > > If it's the nordic naturals brand they are one and the same (or so I'm told).  I believe one is sold in stores and one sold online. > > > -----Original Message----- > From: Kimmy Heil <kimberly19ray@...> > > , I have the complete mega 3,6,9 and it looks like the same ingredeints as the pro efa > do you know what the diffrence would be?Thank you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Sandy that is awesome! But the fish oils my son has been on them for years and he doesnt babble just makes guterral noise llike in his throat and all he says is da da hi and bye everything else he tries but just cant I hope I can find the thing that works too. thank you Kim From: sandy lehmann <mommie2chris@...> Subject: Re: [ ] completely non-verbal Date: Friday, October 2, 2009, 11:52 AM my son only said his first word (mama) at 4.5 years old.� we hadn't heard of the oils back then, but i did start him on them after i found out about them.� i noticed babbling right away and that was huge for me! by grade 1 he had about 10 words.� When he was 7 i started the vitamin e and within days he signed that he was cold. he had never noticed being frost bitten or hot or pain before that. He is 10 years old now, and has tons of words and can be a little chatterbox. Remember, it's not always the words that you'll find with the omegas, increased babbling is also an indication that he is a responder.� Just beware though, the first couple of weeks when you start are tough.� My sons behaviour was off the charts but we rode it out and boy am I glad I did!!!!! I almost gave up and shudder to think where we might be today if i did give up. One of our first slp's told me he would never talk. Not to be juvenile or anything, but i almost want to go back to her and show her how far he's come� Never give up sandy Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.