Kim Re: Study on Nutriiveda/Happy Mother's Day!!

[Guest guest]

Kim,

ABSOLUTELY correct!!

Yvette A.

Re: [ ] Re: Study on Nutriiveda/Happy Mother's

Day!!

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> I did read 's story. However, my impression is that this is still a

rare anecdotal case. If you have so much faith in Nutriiveda, I am wondering why

you have not convinced a mainstream neurology department of a major hospital to

organize a scientific placebo trial for you on the effective of Nutriiveda on

autism. That is the right way for pursuit of research, if you would agree.

>

> Mainstream neurologists normally write off all alternative treatment other

than fish oil as lack of scientific basis and not worth trying. However, some

has warmed up to these ideas. E.g., a major neurology department on the west

coast is organizing a placebo trial for B12 shots.

>

> Also, I am wondering whether you have involved your developmental

pediatrician friend, Dr, Marilyn C. Agin, in having her patient try out

Nutriiveda.

>

> Anyway, I am not trying to be a " party pooper " but just to provide a fair

and balanced view for the parents on this board since all of them have gone

through a lot searching for a cure for our kids.

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> Xun

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> Xun we are all parents entitled to our opinions- but...you are making it

appear as if the only type child that has responded to nutriiveda is one with

apraxia and that is not true. There are not only success stories for children,

teens, adults with autism, TBI, seizures etc but there are have been success

stories for children with genetic disorders if you check the archives. And

because I have not written any details about research, and because you have not

viewed the survey- you can only state your viewpoint, not facts, so please don't

make it appear as if you know something you don't.

>

> Some don't understand whole food nutrition- some of which I try to explain

here http://pursuitofresearch.org/NutriiVeda_Information.pdf or let their child

try it, that's their prerogative. Some people still feel that way about fish

oil. But why discourage another parent from looking into it? What did I write

Xun other than for her to share the info with her child's doctor? And what makes

you so sure your child or anyone else's child for that matter has severe autism?

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> Did you read Ketchum's history?

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> ...up till 17 years old various medical, speech, educational professionals

all over the US, including some fairly respected medical professionals diagnosed

Ketchum as autistic and mentally retarded. She was at the time of

starting nutriiveda twenty five years old, unable to feed, dress, bathe herself.

Essentially catatonic with little facial expression or ability to communicate.

She needed to be sedated to see a professional and wouldn't allow her sisters to

put make up on her or do her hair. Robin was unable to leave her side and had to

watch for any seizures as well because Mel had almost died twice of seizures and

was on high levels of Depakote. She had such severe headaches from her seizures

that she would hold her head and tears would just come down her face.

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> is not like my children who you state are the only type of children

that would respond to whole food nutrition/nutriiveda We have over two hundred

children, teens and adults from our group on nutriiveda now. Were you aware of

that? In my opinion I'd consider Ketchum's situation quite severe -I'd

say most would. But the point is people make mistakes -professionals and parents

are people too. At 17 years old due to this group Robin learned about apraxia

and it was found out through further evaluations from more medical professionals

that was NOT autistic, nor mentally retarded and instead had profound

global apraxia and traumatic brain injury. The PA school system was sued for

abuse on behalf of who on top of her impairments also developed post

traumatic stress from the inappropriate therapy and placements (ABA for example)

and the Ketchum family won on Mel's behalf.

>

> Twenty five years of silence and no progress after numerous methods were

attempted including off label adult medication for Alzheimer's which some

parents of autistic children don't seem to question...and no progress. THREE

MONTHS (not years) of nutriiveda has brought not just a voice -but a

life back...and not once but twice as if you took the time to read her blog and

background http://littlemermaidmelanie.wordpress.com/about Mel's background

> http://littlemermaidmelanie.wordpress.com/about Most recent blog messages

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> Clearly based on how quickly she has responded to nutriiveda, how within

months she was able to sit at the kitchen table and discuss with Robin her

dreams for the future...there was something maybe really simple missing from

Mel's diet. So what if another parent read your message who has a child like

and instead of trying nutriiveda which is simple and inexpensive to TRY-

they got that book written by a woman who is 'not keen on selling you a

supplement' Oh yes I'm sure they all work for free. And again -food doesn't

always need research to prove it's necessary to our bodies as it's not

electroshock therapy- which BETTER (try) to back up it's abuse with " research " .

I wrote about why essential amino acids are important for our bodies- I didn't

make that up -it's well known. http://pursuitofresearch.org/science.html

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> And speaking of credible doctors writing papers to support electroshock for

autism -I just posted one here by some autism doctors who state the reasons for

electroshock...and there are medical doctors recommending off label adult

medications for children too. Again if you are going to use possible dangerous

or life threatening means to possibly try to help a child -you BETTER have solid

clinical research behind it. And even more important in today's research you

probably have a huge pharmaceutical company behind you to help fund the

research. But do you have to have solid clinical research behind eating an

apple? Yes...and in that same light you can find solid clinical research for

each food in nutriiveda- because again it's nutrition from whole foods. But a

clinical study using fish oil or any other food is much harder to secure funding

in today. And we've tried. I mean I've been around this block more than once and

know there STILL isn't good clinical research to show the importance of fish

oils for our group of children...but fish oils are working - there's no money

from Mother Nature as our Moms always told us money doesn't grow on trees.

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> And I get it Xun -I talked to one parent who spent in her own words a

million dollars on trying everything in the world for her autistic son who by

the way has had success with nutrivieda. So perhaps nutriiveda is some sort of

threat to not that mom -but to some who feel -how can it be that easy?

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> How many sailors died of scurvy prior to them learning all that was needed

was vitamin C...or an orange? Did some have to go through blood letting or

whatever " medical " means back then that failed? And what about Dr. Withering's

life long goal to find out why the witches brew cured that woman with heart

disease only to find out it was the herb fox glove which to this day is still

better than any man made drug for that particular heart condition?

> http://www.historyofscience.com/articles/jmnorman-william-withering.php

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> isn't autistic but you are again 100 percent wrong in stating that

nutriiveda is not having an affect on those diagnosed with autism based on

feedback here even -there are possibly more with autism than apraxia on

nutriiveda doing really well actually! Or perhaps autism and apraxia -have to

check the survey. I am getting calls from doctors (Dan included) who work with

autistic children who are seeing the dramatic results in their patients and are

as shocked as anyone else. And again -up till 17 was considered so

severe autistic and MR that in Robin's words most 'gave up hope on her' And who

is to say since wasn't diagnosed appropriately up till 17 years old that

there are some of you reading this right now with a child diagnosed with autism

that is not progressing...and like Mel not because the autism is so severe...but

because it's a misdiagnosis?

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> It's up to each of us what we feed our children- I have no issues with whole

foods, fish oils...and while yes there will most certainly be research to

validate one does NOT need clinical research before they order dinner at a

restaurant or drink a protein shake! Or most I know anyway. The most logical

thing to me would be to try nutriiveda and come back and post here how it did or

didn't work for your child with autism or whatever the diagnosis. As a healthy

food -nutriiveda is showing strong results in 9 out of 10 children based on the

survey results, and again no...not all the children have just apraxia.

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> I don't know how many other ways to say this -nutriiveda is not a drug, it's

a food. Our nonprofit is selling it at our cost and using it as a fundraiser but

you are free to buy it from Chopra and pay more. Water it down and it's a

protein shake with an ayurvedic twist formulated by world renowned medical

doctors. I'm not sharing what I know about any upcoming research so as not to

compromise anything but let's just say I'll be happy a few years from now.

>

> In addition to the testimonies posted here -and Mel's blog -you can read

more testimonies here and as you will read some of them are for children with

autism and other issues as well.

> http://pursuitofresearch.org/testimonials.html

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> Again hope all had a Happy Mother's Day and again thankful for Mother Nature

so Happy Mother's Day to Mother Nature as well!

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