Re: Study on Nutriiveda/Happy Mother's Day!!

[Guest guest]

Hi Eisser and Happy Mother's Day!

Don't have time to go into all of this as like many have a fun day planned- but

just thought it would be good to mention mother like us, make food for our

family to eat, and that each ingredient in nutriiveda is 100 percent certified

food that is also made by a Mother, Mother Nature!

I do recommend sharing it with your child's doctor because too many of our kids

are put onto a medicine cabinet amount of supplements and the supplements in

nutriiveda are not added by man -but are from the whole foods which is the

purest form of supplementation. Many have found they can eliminate much of what

they are using (might I add that hasn't had the same dramatic results!) and just

use nutriiveda and fish oils outside of whatever is medical necessary. Or to

put it another way -nutriiveda is kind of like Carnation Instant Breakfast or

Pediasure if either of them could touch the formula of nutriiveda which in my

opinion and that of many experts I've spoken with (no way!). Many are still

afraid to give their children fish oils too (!!) but think it's cute to give a

preschool child their first french fry -which is one of the other reasons I

recommend knowledgeable health care professionals.

Please share the following with your child's doctor

http://pursuitofresearch.org/NutriiVeda_Information.pdf

And for theories behind why it's working

http://pursuitofresearch.org/science.html

I can't say everything I know about research other than if you wish to wait for

that to try nutriiveda for your child it could be a few years. I highly

recommend not waiting!!!!

Happy Mother's Day to all of us and to Mother Nature too !!

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[Guest guest]

Xun we are all parents entitled to our opinions- but...you are making it appear

as if the only type child that has responded to nutriiveda is one with apraxia

and that is not true. There are not only success stories for children, teens,

adults with autism, TBI, seizures etc but there are have been success stories

for children with genetic disorders if you check the archives. And because I

have not written any details about research, and because you have not viewed the

survey- you can only state your viewpoint, not facts, so please don't make it

appear as if you know something you don't.

Some don't understand whole food nutrition- some of which I try to explain here

http://pursuitofresearch.org/NutriiVeda_Information.pdf or let their child try

it, that's their prerogative. Some people still feel that way about fish oil.

But why discourage another parent from looking into it? What did I write Xun

other than for her to share the info with her child's doctor? And what makes

you so sure your child or anyone else's child for that matter has severe autism?

Did you read Ketchum's history?

....up till 17 years old various medical, speech, educational professionals all

over the US, including some fairly respected medical professionals diagnosed

Ketchum as autistic and mentally retarded. She was at the time of

starting nutriiveda twenty five years old, unable to feed, dress, bathe herself.

Essentially catatonic with little facial expression or ability to communicate.

She needed to be sedated to see a professional and wouldn't allow her sisters to

put make up on her or do her hair. Robin was unable to leave her side and had

to watch for any seizures as well because Mel had almost died twice of seizures

and was on high levels of Depakote. She had such severe headaches from her

seizures that she would hold her head and tears would just come down her face.

is not like my children who you state are the only type of children that

would respond to whole food nutrition/nutriiveda We have over two hundred

children, teens and adults from our group on nutriiveda now. Were you aware of

that? In my opinion I'd consider Ketchum's situation quite severe -I'd

say most would. But the point is people make mistakes -professionals and

parents are people too. At 17 years old due to this group Robin learned about

apraxia and it was found out through further evaluations from more medical

professionals that was NOT autistic, nor mentally retarded and instead

had profound global apraxia and traumatic brain injury. The PA school system

was sued for abuse on behalf of who on top of her impairments also

developed post traumatic stress from the inappropriate therapy and placements

(ABA for example) and the Ketchum family won on Mel's behalf.

Twenty five years of silence and no progress after numerous methods were

attempted including off label adult medication for Alzheimer's which some

parents of autistic children don't seem to question...and no progress. THREE

MONTHS (not years) of nutriiveda has brought not just a voice -but a

life back...and not once but twice as if you took the time to read her blog and

background http://littlemermaidmelanie.wordpress.com/about Mel's background

http://littlemermaidmelanie.wordpress.com/about Most recent blog messages

Clearly based on how quickly she has responded to nutriiveda, how within months

she was able to sit at the kitchen table and discuss with Robin her dreams for

the future...there was something maybe really simple missing from Mel's diet.

So what if another parent read your message who has a child like and

instead of trying nutriiveda which is simple and inexpensive to TRY- they got

that book written by a woman who is 'not keen on selling you a supplement' Oh

yes I'm sure they all work for free. And again -food doesn't always need

research to prove it's necessary to our bodies as it's not electroshock therapy-

which BETTER (try) to back up it's abuse with " research " . I wrote about why

essential amino acids are important for our bodies- I didn't make that up -it's

well known. http://pursuitofresearch.org/science.html

And speaking of credible doctors writing papers to support electroshock for

autism -I just posted one here by some autism doctors who state the reasons for

electroshock...and there are medical doctors recommending off label adult

medications for children too. Again if you are going to use possible dangerous

or life threatening means to possibly try to help a child -you BETTER have solid

clinical research behind it. And even more important in today's research you

probably have a huge pharmaceutical company behind you to help fund the

research. But do you have to have solid clinical research behind eating an

apple? Yes...and in that same light you can find solid clinical research for

each food in nutriiveda- because again it's nutrition from whole foods. But a

clinical study using fish oil or any other food is much harder to secure funding

in today. And we've tried. I mean I've been around this block more than once

and know there STILL isn't good clinical research to show the importance of fish

oils for our group of children...but fish oils are working - there's no money

from Mother Nature as our Moms always told us money doesn't grow on trees.

And I get it Xun -I talked to one parent who spent in her own words a million

dollars on trying everything in the world for her autistic son who by the way

has had success with nutrivieda. So perhaps nutriiveda is some sort of threat

to not that mom -but to some who feel -how can it be that easy?

How many sailors died of scurvy prior to them learning all that was needed was

vitamin C...or an orange? Did some have to go through blood letting or whatever

" medical " means back then that failed? And what about Dr. Withering's life long

goal to find out why the witches brew cured that woman with heart disease only

to find out it was the herb fox glove which to this day is still better than any

man made drug for that particular heart condition?

http://www.historyofscience.com/articles/jmnorman-william-withering.php

isn't autistic but you are again 100 percent wrong in stating that

nutriiveda is not having an affect on those diagnosed with autism based on

feedback here even -there are possibly more with autism than apraxia on

nutriiveda doing really well actually! Or perhaps autism and apraxia -have to

check the survey. I am getting calls from doctors (Dan included) who work with

autistic children who are seeing the dramatic results in their patients and are

as shocked as anyone else. And again -up till 17 was considered so

severe autistic and MR that in Robin's words most 'gave up hope on her' And who

is to say since wasn't diagnosed appropriately up till 17 years old that

there are some of you reading this right now with a child diagnosed with autism

that is not progressing...and like Mel not because the autism is so severe...but

because it's a misdiagnosis?

It's up to each of us what we feed our children- I have no issues with whole

foods, fish oils...and while yes there will most certainly be research to

validate one does NOT need clinical research before they order dinner at a

restaurant or drink a protein shake! Or most I know anyway. The most logical

thing to me would be to try nutriiveda and come back and post here how it did or

didn't work for your child with autism or whatever the diagnosis. As a healthy

food -nutriiveda is showing strong results in 9 out of 10 children based on the

survey results, and again no...not all the children have just apraxia.

I don't know how many other ways to say this -nutriiveda is not a drug, it's a

food. Our nonprofit is selling it at our cost and using it as a fundraiser but

you are free to buy it from Chopra and pay more. Water it down and it's a

protein shake with an ayurvedic twist formulated by world renowned medical

doctors. I'm not sharing what I know about any upcoming research so as not to

compromise anything but let's just say I'll be happy a few years from now.

In addition to the testimonies posted here -and Mel's blog -you can read more

testimonies here and as you will read some of them are for children with autism

and other issues as well.

http://pursuitofresearch.org/testimonials.html

Again hope all had a Happy Mother's Day and again thankful for Mother Nature so

Happy Mother's Day to Mother Nature as well!

=====

[Guest guest]

Xun nutriiveda is new but the ingredients are all well established foods that

either you can research at PubMed or share with a PhD in nutrition. I for

example was familiar with the whey protein because as one that cares about my

health and what I consume I have worked out and drank a protein shake each AM

for years now. But I wasn't familiar with all the ayurvedic foods...but have

learned these are all everyday foods found in any kitchen in India and used in

ayurvedic medicine for five thousand years. Ayurveda means the science of life

and while it may not be mainstream yet in the US it is accepted as medicine in

other parts of the world. And from what I can see- a very very cool thing and I

am SO thankful for it!!!

Even say I did walk into a neurology center with nutriiveda and a check for a

million dollars or something which is what I was told by an attorney for UMDNJ

years ago how research typically happens by the way (and all the PhDs jump to

come up with studies for it) -what makes you think that there aren't already

medical doctors from mainstream hospitals both recommending and planning studies

on what's in nutriiveda right now? Just because a few months have gone by and

you haven't heard any research? You do appreciate that is going to take years

don't you? Please don't tell me you'd wait to have a food researched for your

child's specific condition prior to feeding it to your child! You don't run

every morsel your child consumes for meals, even snacks and drinks past his

doctor prior to feeding him food- which is what nutriiveda is do you?

Mainstream doctors have not written off the importance of essential amino acids

and as we wrote back and forth about here when nutriiveda (first) came out -the

University of Pittsburgh published the study " feeding amino acids to

brain-injured animals restores their cognitive abilities and may set the stage

for the first effective treatment for cognitive impairments suffered by people

with traumatic brain injuries. "

http://www.sflorg.com/comm_center/medical/p974_99.html

BTW just love that they have to use mice to " test " ESSENTIAL amino acids but use

kids to test electroshock and adult off label meds...yes that makes perfect

sense to me.... if I was on the Twilight Zone...or insane!!

Anyway -of course Mel's case is not typical which is why I am speaking to people

about making it into a movie...I'm thinking of a working title " A Quarter Of A

Century " because it was 25 years of her life lost!

http://littlemermaidmelanie.wordpress.com But I wouldn't say her case

unfortunately is the only one like it. Look at Kimmie who just posted about her

10 year old who only makes guttural sounds and only has the words " ma " and " da "

and says Mom but in 3 parts. Child is in a public school system and has been to

professionals and yet no definitive diagnosis just a " working " diagnosis of

suspected autism and apraxia. I have put Kimmie in touch with a professional

from her state who already has a number of patients on nutriiveda -all having

surges I hear- and is going to be both documenting her son via video -and then

once nutriiveda is started the results can be seen as well. Goodness knows no

matter how severe a 3 to 8 year old is -the average person is thinking when they

see a surge no matter what " kids! what do you expect he would have been fine

anyway! "

But clearly based on what you have read here- the blogs- the testimony

page...you are not trying to say that it's rare for nutriiveda to have a

positive affect in various areas http://pursuitofresearch.org/pursuit.html as

it's rare for it not to from our feedback.

And yes Dr. Agin and Dr. Jonas and many other doctors have patients on

nutriiveda -again it's not like you need medical approval to go to Whole Foods

(the store) to feed your child whole foods! (the food)

And one other thing you may have missed -I am being flown out to Chicago to Bill

Farley's house http://www.meetbillfarley.com (I know the website makes it seem

like it's to be flown out to his house -but it's just a website about who he is)

He is the billionaire behind the company that makes nutriiveda. Aware of what

is going on in our group. Is neighbors and friends with Oprah Winfrey -and is

good friends as well with the world renowned medical doctor Dr. Deepak Chopra

who is just one of the respected medical doctors behind nutriiveda's formulation

http://pursuitofresearch.org/advisors.html I may be able to share more when I

come back after my dinner meeting with Bill Farley -but perhaps not. In

addition to research I did discuss with Bill about 's movie. Our website

is called http://www.pursuitofresearch.org Bill Farley inspired that for us -as

he is the man who inspired the movie Pursuit of Happyness (that's how the movie

title is spelled) about Gardner -played in the movie by Will . (movie

trailer if you missed this wonderful movie

)

We again will not have to raise monies for nutriiveda research, just PUFA

research because while you even know it's accepted by medical doctors all over

we have YET to have any clinical research to support it's use for our children

and some parents are STILL afraid of fish oils!!! -and while others may be

interested in research we have numerous doctors behind this product who are

already interested in helping out here. Tim is for example one of the parents

here working on neurotransmitter testing with Dr. Tom

http://pursuitofresearch.org/science.html (anyone else interested let me know)

And due to Dr. Tom's offer I'm working with Trish and Jack from the UK- Jack was

diagnosed with Parkinson's Disease last year and they are going to be

documenting Jack's results on PD as we don't know if there will be any affect or

not.

Xun what I don't get it why don't you just share the info

http://pursuitofresearch.org/science.html with your child's doctor and just try

it? And if your doctor doesn't know much about nutrition and you need help in

finding a health care professional in your area I have a page for that too!

http://pursuitofresearch.org/professionals.html

As I learned long ago when I worked as a toy designer... " the proof is in the

pudding " And when it comes to nutriiveda...that for sure is just one of the

foods you may find it mixed into!

=====

[Guest guest]

Xun, I understand your concern for science. And good for you for being cautious.

But I want to present another side to this story. Please, don't assume that

science or medicine has all the answers. I am trained scientist with 12 + years

of training after high school. The more we find out we know, the more we find

out we don't know. Medicine and science have much to offer. But, I am also fully

aware of how much medicine does not know about helping our

apraxic/autistic/otherwise neuroatypical children. I have a son with a

microdeletion syndrome (and by the way, many autistic children also have a

microdeletion syndrome), and will not do anything to hurt him. I research my

options fully. You are absolutely correct: as parents we have a responsibility

to protect our children and our pocketbooks.

Unfortunately, in autism and other neurological disorders, there aren't many

answers available yet. Because of the limitations of science and medicine, I

have chosen to research my options and give my son every REASONABLE chance to

reach his maximum potential. Because there are no answers, I am left to find

them on my own. In this area, in fact, Western Medicine may actually mislead us.

I have been aware of cases of autism cured since the 1980's. Do you know it is

not until the last year or so that " Scientists " have acknowledged that some

people have been cured of autism,even thirty years ago? So, although they have

helped keep parents from spending oodles of money or causing other harm from

therapies that don't work, if all parents had listened to 'scientists' some

parents would never have cured their children of autism. It is the parents of

autistic children who are the originators of much of the research currently

being done on treating autism. Scientists have spent a lot of time and money on

figuring out what autism is and what causes it....that is very important. There

are many different causes and that contributes to confusion and difficulty

performing treatment studies. But, I have decided I am not going to wait 20

years for the studies to come out and find that I have damaged my son by NOT

making a simple/harmless intervention that would have benefitted him when his

young brain was still forming. If there is a chance that I might try something

that will benefit him and won't hurt him, and will only cost me $80 to try

it...... (contrast that with many other alternative and complementary medicine

approaches that are either known to be harmful or that cost thousands of

dollars.)You better believe I am going to try it. In fact, I do not sell

Nutriiveda and never will...it's not my thing. However, I have bought it as a

gift for other people with medical issues and have seen it help. It has helped

my son some, not as dramatically as many others. He does not have autism. I want

to keep him on it for several months because there are studies that turmeric has

helped prevent damage to nerves in some inherited neuropathies. It will probably

take time to see if there is more benefit than the small surges I have seen in

speech, behavior, maturity, impulse control and frustration tolerance. At some

point, probably one year, I will have to decide if it is worth $80 or

$160/month. It might not be. Then I will discontinue it. Or it might be worth

it. However, until then, because I have seen small surges in many areas, I will

continue it and give it a chance to work. If you look, there is tons of science

behind whey protein isolates and the other contents of the Nutriiveda. There is

tons of research on how our typical American diet creates high levels of

inflammation in our system, causing many chronic health problems. Good nutrition

that is easily absorbed is good science and good medicine and good sense. No,

there is not a specific research study out on Nutriiveda yet, because it is a

recent and serendipitous finding that it helped our kids. Research takes time.

Do you know ph Lister was laughed at for years by his fellow surgeons

because he believed that germs could cause surgical infections, and that they

should wash their hands before operating?

http://en.wikipedia.org/wiki/ph_Lister,_1st_Baron_Lister There are thousands

of examples like this in medicine/science.

So, what I am saying, is, as a parent of a special needs child it is our

responsibility to decided what to try to help them. We should not try every whim

that comes around. We should not make ourselves poor trying things that have

little research or support. And we should be careful about doing things that

aren't proven safe. But, because the research isn't done yet, We have to do our

own research, whether we like it or not. Every parent has to make decisions

based on what they believe is best. But do it with knowledge, and gut instincts

about your child. Or you can depend on your doctor to research this, but I can

guarantee you have more time and energy for researching things that will help

your child or yourself than your physician has.

If your gut reaction tells you NV is not right for your son, trust your

instincts. However, if your 'reason' to try NV is that there is no research, I

would suggest you research whey protein and turmeric (curcumin) for starters.

Then you could do your own research on each ingredient in NV. You could research

the effects of the typical American diet on inflammation and chronic disease.

Then your decision would be based on science, and I believe you might reconsider

your decision......based on science. Good luck with your son. It's clear that

you care very much about your son, and are very careful in making good decisions

for him and for your family.

Gretchen, mother 6, microdeletion syndrome, and triplet girls, age 8