Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Alyssa what a Happy Mother's Day update!!! CONGRATULATIONS!!! I honestly think you should start a blog because this is just so exciting and we all feel like we are going through this with you. I am talking in private with , a parent from Oregon who is in the exact same situation as you and your story just like Mel's and all the other blogs inspire others and bring hope. Or could you write something special for our testimony page documenting this? http://pursuitofresearch.org/testimonials.html The other night I was watching Bill Maher and he had Silverman on saying how when she was 14 her doctor kept raising her Xanex until she was eventually on 4 pills 4 times a day -so 16 Xanex a day -at 14 years old (that seems crazy high to me but I don't know much about Xanex) I guess with some it's the same with seizure meds they can go up and up- that's what happened with Mel too prior. Good to know that what goes up- not will go down on it's own..but with a little help from nutriiveda can go down, did go down twice now for !! Mel's meds are also lowered quite a bit and her doc think's she'll be medication free by the end of this year (more detail here http://littlemermaidmelanie.wordpress.com ) -any word from Matt's doc on what's going on with Matt being seizure free for 14 weeks and if he believes it's possible Matt will be med free too? ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Alyssa I am so happy for you and ! I am sharing updates from you and Robin with a mom at my son's school who has a sister with epilepsy and I think a blog is a great idea too! Kate > > Alyssa what a Happy Mother's Day update!!! CONGRATULATIONS!!! > > I honestly think you should start a blog because this is just so exciting and we all feel like we are going through this with you. I am talking in private with , a parent from Oregon who is in the exact same situation as you and your story just like Mel's and all the other blogs inspire others and bring hope. Or could you write something special for our testimony page documenting this? http://pursuitofresearch.org/testimonials.html > > The other night I was watching Bill Maher and he had Silverman on saying how when she was 14 her doctor kept raising her Xanex until she was eventually on 4 pills 4 times a day -so 16 Xanex a day -at 14 years old (that seems crazy high to me but I don't know much about Xanex) I guess with some it's the same with seizure meds they can go up and up- that's what happened with Mel too prior. Good to know that what goes up- not will go down on it's own..but with a little help from nutriiveda can go down, did go down twice now for !! > > Mel's meds are also lowered quite a bit and her doc think's she'll be medication free by the end of this year (more detail here http://littlemermaidmelanie.wordpress.com ) -any word from Matt's doc on what's going on with Matt being seizure free for 14 weeks and if he believes it's possible Matt will be med free too? > > > ===== > Quote Link to comment Share on other sites More sharing options...
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