Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 I try to give Matt four heaping scoops a day but we have not been consistant lately. He always gets at least two heaping scoops. Alyssa On Jun 29, 2010, at 11:41 PM, <anitahsvlle24@...> wrote: This is blessed news that your son has been without seizure. How much NV do you use for your son? > > I am so happy to hear how wonderful all of our children are doing since they have started NV. I also wanted to thank everyone for there kind words about 's fantastic progress. > We (really Matt) is now into his 22nd week seizure free. He is also into his second week without any Depakote!!! He continues to make wonderful progress in other areas too. His speech intelligibility has increase (at least I think so). He is putting longer sentences together and trying harder to add the ending's of words. At times I catch him doing such " typical " stupid things that a ten year old would do and it makes me laugh. still has an enormous way to go but I am more than pleased with the gains he has been making. Now if I can just get his school placement in order we might really be making some progress > Sorry if I keep saying the same thing over and over again but is 5 1/2 months SEIZURE FREE!!!!!! > Have a safe and wonderfully steamy summer, > Alyssa > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2010 Report Share Posted June 30, 2010 is only off Depakote but is still taking Carbatrol at a low dose. At this time we have no plans to wean him off of that. However he his only on one seizure med with no add on therapy.. Yippy...... Alyssa On Jun 30, 2010, at 11:19 AM, " kiddietalk " <kiddietalk@...> wrote: 5 1/2 months SEIZURE FREE!!!!!! 5 1/2 months SEIZURE FREE!!!!!! 5 1/2 months SEIZURE FREE!!!!!! 5 1/2 months SEIZURE FREE!!!!!! 5 1/2 months SEIZURE FREE!!!!!! 5 1/2 months SEIZURE FREE!!!!!! OMG this is incredible Alyssa...so just 2 weeks to Matt being off all meds?! Congratulations on all the surges you are seeing in speech and Matt finally being able to live seizure free and good riddance to the seizures!!! And for new people that don't know...just when Alyssa started Matt on nutriiveda he was planned to have part of his brain taken out to stop seizures, he had been on multiple seizure medications and combinations of seizure medications for years and they didn't stop them -you can read Alyssa's synopsis of that here http://pursuitofresearch.org/testimonials.html This SO has to be validated in a clinical study! Otherwise just like fear of fish oil- fear of anything healthy and natural will continue. ===== Quote Link to comment Share on other sites More sharing options...
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