Guest guest Posted April 27, 2010 Report Share Posted April 27, 2010 your update sounds like my child. He made huge gains in the same areas, plus sleep. His concentration and focus is spotty at best, but so is mine so I'm not too concerned about that. He's not on a full dose yet, but it's been over three weeks and his behavior is beginning to level off. I have trouble getting him to drink the full amount of NV during the day. But for water, I've been able to increase his water intake by having drinking contests. I bring his 12 oz Klean Kanteen and my 27 oz KK. I say, " Here's your cup, here's my cup " then I put mine to my mouth and he does the same. Then we drink for the same amount of time. I pull my cup away and say " ahhh " and he mimics me. He gets quite a bit more water in him that way. It doesn't work for the NV and if you let it sit in liquids, the protein and botanicals hydrate and the drink becomes gritty. Liralen > > Hi, > It must be 2 months since I put up my first msg - I have a 4yr old with no dx as yet. Living in Ireland - we started NV after Easter I started really low dosage and built up very slowly! > BEFORE NV > Talking one word level - very poor articulation > No interaction with other children > poor play skills > Very poor focus & concentration > > We are now on day 4 of NV full dosage - 2 scoops and he is only 32lbs! > Putting two and three words together - words sounding clearer - he now attempts to repeat most things I say. > He is beginning to interact with other children > His play skills have really improved > Focus and concentration - WORSE - gone through roof!!! Hoping this is just detox - we have the loose smelly bowels - so hoping in another 10 days things improve with the focus. Its an area of difficulty for him - a lot of things have improved over the last year since we started interventions but the focus and concentration haven't really improved. So I would be interested to hear if anyone has had improvements in these areas with NV. > > I have him on fish oils but only regular ones i get in local health shop. Bought the Nordic have them in fridge - but didn't want to do NV and new fish oils at same time. Plan to start them in a few weeks. The only difficulty with the NV is find it hard to get him to drink the required amount of liquids. > > Rosemarie > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Well I just gave my Tanner update but can add to it that when Tanner woke up today- he's not sore one bit from all the working out he did yesterday. Again Glenn repeated that to me...three times. I'm telling you in all the surges I have seen in Tanner (most here http://pursuitofresearch.org/pursuit.html ) this I think has Glenn the most baffled -a close second was Tanner's new found ability to write beautiful and imaginative long stories as that was his biggest weakness prior to nutriiveda. I just shared a link about Dr. Tocco. She is very excited about working more with our children and knows what is going on with fish oils and nutriiveda in this group and Liralen- who knows -maybe in a few months or so from now you and a few other parents with your kids will be sitting on her new TV show http://myown.oprah.com/audition/index.html?request=video_details & response_id=168\ 63 & promo_id=1 I don't even care if people are skeptical anymore -because the results on nutriiveda are even hard for me to believe and I see them with my own eyes. I mean you figure if it helped a bit in one area- but look at what we are seeing -and all you just wrote too!! Amazing. I mean who can imagine surges across the board such as this? And in addition to all you have below wasn't it you that told me that the entire last year Liam only gained a much needed pound but did that in a month on nutriiveda?! I was just one the phone with one of the parents from here who is afraid to share nutriiveda with others because what if they have trouble getting the slow growing vegetation from the whole food ayuvedic side, the leaves, fruits and roots of these trees that take like 15 years to develop even before they are ready to harvest anything. But the way it typically works is that when there is a need - it helps form new jobs and new technologies to make it happen. The owner of the company that makes nutriiveda has been a solid billionaire who's brought 6 other companies from multi million to multi billion. He doesn't need to work- he wants to bring eastern and western medicine together and this is " his baby " -his dream http://www.meetbillfarley.com I can only imagine that much will be learned from the importance for health and wellness from whole food nutrients nutriiveda to help not just our children -but all of us. I just read this article http://www.reuters.com/assets/print?aid=USTRE65M0SU20100623 that the US scored DEAD LAST in healthcare. " Americans spend twice as much as residents of other developed countries on healthcare, but get lower quality, less efficiency and have the least equitable system, according to a report released on Wednesday. " So you know what that tells me -all US medical professionals -not just the upper echelon, not just those from the prestigious hospitals -but ALL should be open to exploring some of the newer science coming down the pike including about the study of proteins, nutritional bio medicine. Clearly more surgery and more medication isn't the only answer! And on the alternative side giving a child a medicine cabinet of supplements may be on the same path of over -doing it. But whole food sources of nutrients is pure and balanced. Essential nutrients such as the essential fatty acids and the essential amino acids...the average American is afraid to give anything containing them to their child without asking a doctor's permission but will go to a party and give their child a YooHoo without a thought! I spoke with a nurse from a small town in the middle of the country who's doctor still doesn't " believe " in fish oil! 2010?! Not making that up as crazy as that sounds. If there are still doctors who don't " believe " in essential fatty acids after all the tons of research -and even the NIH educational site for it http://efaeducation.nih.gov what hope is there for the average individual? Why not examine nutritional ways that are benign, healthy and can help? Especially whole food sources. Share this with your child's doctor http://pursuitofresearch.org/NutriiVeda_Information.pdf And new info like what I just posted about gut health and essential amino acids here which will be presented to the USDA http://www.pigprogress.net/article-database/using-weanling-pigs-to-uncover-gut-s\ ecrets-id1015.html and all the theories I've added to the theory page http://pursuitofresearch.org/science.html Yes you expect better nutrition would mean better performance- you don't expect miracles across the board. If you have not read the testimony page please do http://pursuitofresearch.org/testimonials.html because until we have research to validate why this is helping so quickly and dramatically in most I can tell you as a parent it just seems like a miracle to me. I do hope others listen to Liralen and update us on all the success you are seeing if you are using it. And Liralen -CONGRATULATIONS TO YOU TOO!! I can tell you due to Tanner that it appears that continued good nutrition from nutriiveda continues to show surges months down the road long after you think there is anything that can get any better. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 congratulations! > > My son has been on NV for a few months now...but he's been taking the full dosage for only about a month. I thought it might be fun for all of us to give an update on our kids that have been on NV for several months. > I'll start. > Before NV my 36 mo old son had language, but he was largely unintelligible. He was not potty trained, woke up 3-5 times a night, would often trip when he ran, didn't sing, dance, was just learning to jump. > > Within the first month, he started sleeping through the night, potty trained, started singing and dancing and began playing imaginatively. He also gained two lbs in 3 weeks (much needed as he's in the 10th %) > > Within the next few months, he has made up songs, remembers 2-3 lines from movies he's just seen, has started jumping over things, gained another pound, dances with more coordination, has started making his toys talk to each other (or makes me be one toy and talk to the other toy), had developed a taste for water and prefers it to all other drinks. > > Things we are still working towards. pedaling his trike, getting him to use words instead of hitting in moments of frustration, talking more to his peers, eating a wider variety of food and food textures. > > What have you seen with your child in the last few months? > Liralen > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Well, Liam isn't my son, I don't post his name. And although you have the right idea you have the numbers wrong...from 20 months to 36 months, my son only gained 2 lbs In the first three weeks on NV (half dose) he gained a little over 2 lbs and in the next month gained another lb. I suspect he's grow also, but I can't find my measuring tape. Liralen > > And in addition to all you have below wasn't it you that told me that the entire last year Liam only gained a much needed pound but did that in a month on nutriiveda?! > > > > > > > My son has been on NV for a few months now...but he's been taking the full dosage for only about a month. I thought it might be fun for all of us to give an update on our kids that have been on NV for several months. > > I'll start. > > Before NV my 36 mo old son had language, but he was largely unintelligible. He was not potty trained, woke up 3-5 times a night, would often trip when he ran, didn't sing, dance, was just learning to jump. > > > > Within the first month, he started sleeping through the night, potty trained, started singing and dancing and began playing imaginatively. He also gained two lbs in 3 weeks (much needed as he's in the 10th %) > > > > Within the next few months, he has made up songs, remembers 2-3 lines from movies he's just seen, has started jumping over things, gained another pound, dances with more coordination, has started making his toys talk to each other (or makes me be one toy and talk to the other toy), had developed a taste for water and prefers it to all other drinks. > > > > Things we are still working towards. pedaling his trike, getting him to use words instead of hitting in moments of frustration, talking more to his peers, eating a wider variety of food and food textures. > > > > What have you seen with your child in the last few months? > > Liralen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 Liralen, I remember when you began the NV trial and read your comments with interest... was apraxia your son's only dx... I can't recall if you had mentioned any other dx that he had? Those are wonderful and encouragaing gains! Tatyana [ ] NV update My son has been on NV for a few months now...but he's been taking the full dosage for only about a month. I thought it might be fun for all of us to give an update on our kids that have been on NV for several months. I'll start. Before NV my 36 mo old son had language, but he was largely unintelligible. He was not potty trained, woke up 3-5 times a night, would often trip when he ran, didn't sing, dance, was just learning to jump. Within the first month, he started sleeping through the night, potty trained, started singing and dancing and began playing imaginatively. He also gained two lbs in 3 weeks (much needed as he's in the 10th %) Within the next few months, he has made up songs, remembers 2-3 lines from movies he's just seen, has started jumping over things, gained another pound, dances with more coordination, has started making his toys talk to each other (or makes me be one toy and talk to the other toy), had developed a taste for water and prefers it to all other drinks. Things we are still working towards. pedaling his trike, getting him to use words instead of hitting in moments of frustration, talking more to his peers, eating a wider variety of food and food textures. What have you seen with your child in the last few months? Liralen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 I am so happy for you! Re: [ ] NV update Liralen, I remember when you began the NV trial and read your comments with interest... was apraxia your son's only dx... I can't recall if you had mentioned any other dx that he had? Those are wonderful and encouragaing gains! Tatyana [ ] NV update My son has been on NV for a few months now...but he's been taking the full dosage for only about a month. I thought it might be fun for all of us to give an update on our kids that have been on NV for several months. I'll start. Before NV my 36 mo old son had language, but he was largely unintelligible. He was not potty trained, woke up 3-5 times a night, would often trip when he ran, didn't sing, dance, was just learning to jump. Within the first month, he started sleeping through the night, potty trained, started singing and dancing and began playing imaginatively. He also gained two lbs in 3 weeks (much needed as he's in the 10th %) Within the next few months, he has made up songs, remembers 2-3 lines from movies he's just seen, has started jumping over things, gained another pound, dances with more coordination, has started making his toys talk to each other (or makes me be one toy and talk to the other toy), had developed a taste for water and prefers it to all other drinks. Things we are still working towards. pedaling his trike, getting him to use words instead of hitting in moments of frustration, talking more to his peers, eating a wider variety of food and food textures. What have you seen with your child in the last few months? Liralen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2010 Report Share Posted June 24, 2010 My son does not have a dx and has only been in speech therapy for 2 weeks. His tongue does not work well. Is your child in NV? How's it going? > > Liralen, > > I remember when you began the NV trial and read your comments with interest... was apraxia your son's only dx... I can't recall if you had mentioned any other dx that he had? > > Those are wonderful and encouragaing gains! > > Tatyana > > [ ] NV update > > > > My son has been on NV for a few months now...but he's been taking the full dosage for only about a month. I thought it might be fun for all of us to give an update on our kids that have been on NV for several months. > I'll start. > Before NV my 36 mo old son had language, but he was largely unintelligible. He was not potty trained, woke up 3-5 times a night, would often trip when he ran, didn't sing, dance, was just learning to jump. > > Within the first month, he started sleeping through the night, potty trained, started singing and dancing and began playing imaginatively. He also gained two lbs in 3 weeks (much needed as he's in the 10th %) > > Within the next few months, he has made up songs, remembers 2-3 lines from movies he's just seen, has started jumping over things, gained another pound, dances with more coordination, has started making his toys talk to each other (or makes me be one toy and talk to the other toy), had developed a taste for water and prefers it to all other drinks. > > Things we are still working towards. pedaling his trike, getting him to use words instead of hitting in moments of frustration, talking more to his peers, eating a wider variety of food and food textures. > > What have you seen with your child in the last few months? > Liralen > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Hi all! You can send your NV updates here as Liralen asked - here's one from Becca! (I know I know all of you that have had your child on NV for months as she is asking are off doing " normal " stuff BTW by reading Becca's update and knowing Tanner's -think we do need to note that sensory is another area that improves maybe not in days -but in weeks. Will add here http://pursuitofresearch.org/pursuit.html Hope all are enjoying their summer break! from Goeken <RGoeken@...> to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 I'm new to the group--can someone tell me what NV stands for? thanks, Malinda On Fri, Jun 25, 2010 at 9:24 AM, kiddietalk <kiddietalk@...> wrote: > > > Hi all! > > You can send your NV updates here as Liralen asked - here's one from Becca! > (I know I know all of you that have had your child on NV for months as she > is asking are off doing " normal " stuff > > BTW by reading Becca's update and knowing Tanner's -think we do need to > note that sensory is another area that improves maybe not in days -but in > weeks. Will add here http://pursuitofresearch.org/pursuit.html > > Hope all are enjoying their summer break! > > from Goeken <RGoeken@... <RGoeken%40wichitafms.com>> > to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Nutriiveda... It is a weight loss suppliment, that by accident, we found is profoundly helping our children with a variety of issues... Even though it was made for weight loss, it helps the body do what is needed, and several kids have grown and gained weight on it when they needed to! I would check the back blogs if you can... Or you can go to the Pursuitofresearch.com website. M Re: [ ] Re: NV update I'm new to the group--can someone tell me what NV stands for? thanks, Malinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 Nutriiveda Re: [ ] Re: NV update I'm new to the group--can someone tell me what NV stands for? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 On my phone but just want to point out the site ends .org and not .com. all info @ http://WWW.pursuitofresearch.org - > > Nutriiveda... It is a weight loss suppliment, that by accident, we found > is profoundly helping our children with a variety of issues... Even > though it was made for weight loss, it helps the body do what is needed, > and several kids have grown and gained weight on it when they needed to! > I would check the back blogs if you can... Or you can go to the > Pursuitofresearch.com website. > M > > Re: [ ] Re: NV update > > > I'm new to the group--can someone tell me what NV stands for? > > thanks, > Malinda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 My son has been on NV for almost 2 months now. He's 5 and a half, diagnosed with autism, apaxia, hypotonia.... I do believe his speech is slowly increasing. But he's not gaining any weight. He's in the 2%, weighing only 33lbs. Should I increase his dosage from 2 scoops per day? Maybe this would help his size and development. thank you, Nadia > > Hi all! > > You can send your NV updates here as Liralen asked - here's one from Becca! (I know I know all of you that have had your child on NV for months as she is asking are off doing " normal " stuff > > BTW by reading Becca's update and knowing Tanner's -think we do need to note that sensory is another area that improves maybe not in days -but in weeks. Will add here http://pursuitofresearch.org/pursuit.html > > Hope all are enjoying their summer break! > > from Goeken <RGoeken@...> > to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2010 Report Share Posted June 25, 2010 I'm not sure about the dosage. but I didn't notice my son's speech getting better. I was just too close to the situation. It wasn't until a few weeks, he was playing with my dad, who commented afterward how much my son was saying. The thing is, he said just as much then as before, but I guess I was the only one understanding him Ask a neighbor or teacher how his speech is. And yay on a bit more communication!! Liralen > > My son has been on NV for almost 2 months now. He's 5 and a half, diagnosed with autism, apaxia, hypotonia.... I do believe his speech is slowly increasing. But he's not gaining any weight. He's in the 2%, weighing only 33lbs. Should I increase his dosage from 2 scoops per day? Maybe this would help his size and development. > > thank you, > Nadia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2010 Report Share Posted June 26, 2010 Nadia it's best to work with your child's doctor about dosage. The product is 100 percent water soluble and yes there are many doctors both alternative and traditional that are increasing the dosages beyond what I have here http://pursuitofresearch.org/faq.html#dosage For example your doctor may say to gradually increase to another scoop -but he's also going to know you and your son to know if there is enough hydration going on because we know water intake is important for nutriiveda too. Good thing is that most MDs would have trouble monitoring changes other than parent input -but with nutriiveda the surges are in almost all cases so sudden and dramatic in so many areas that it's notable even by professionals that don't see your child week to week like SLPs do. But yes there are a few parents using 3 scoops instead of 2 with a child your child's age...or at least two heaping scoops. Nadia what other food is your son eating daily breakfast, lunch, dinner other than nutriiveda? Does he drink water? For some reason again as I stated above hydration is so important... water and nutriiveda seem to work hand in hand together. And one other thought -while we have few if any cases of nutriiveda not " working " - there are reports like yours where the progress is there but slower. There could be reasons for this. I love Gretchen's theory as to why as you can read here (toward bottom) http://pursuitofresearch.org/science.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 thanks for the input, . My son drinks only water, and I think it's enough throughout the day. Besides that, it's mostly breads and cheese. (noodles, quesadillas, bagels, pb & j, raisins, mac and cheese). I had him gfcf for an entire year, and saw initial gains, but he did ok when I slowly weaned him back to his regular diet (I was worried about his lack of weight gain and self-limited food choices). I have a really hard time getting him to eat anything else. I have to give him the NV in a syringe. He is a great, loving boy, but I'm worried about his speech, potty training and basic learning and attention skills. Believe me, he's come along way with everything we've done, but I know he has more to go. I just have to figure out what can help him. Nadia > > Nadia it's best to work with your child's doctor about dosage. The product is 100 percent water soluble and yes there are many doctors both alternative and traditional that are increasing the dosages beyond what I have here http://pursuitofresearch.org/faq.html#dosage For example your doctor may say to gradually increase to another scoop -but he's also going to know you and your son to know if there is enough hydration going on because we know water intake is important for nutriiveda too. Good thing is that most MDs would have trouble monitoring changes other than parent input -but with nutriiveda the surges are in almost all cases so sudden and dramatic in so many areas that it's notable even by professionals that don't see your child week to week like SLPs do. But yes there are a few parents using 3 scoops instead of 2 with a child your child's age...or at least two heaping scoops. > > Nadia what other food is your son eating daily breakfast, lunch, dinner other than nutriiveda? Does he drink water? For some reason again as I stated above hydration is so important... water and nutriiveda seem to work hand in hand together. > > And one other thought -while we have few if any cases of nutriiveda not " working " - there are reports like yours where the progress is there but slower. There could be reasons for this. I love Gretchen's theory as to why as you can read here (toward bottom) http://pursuitofresearch.org/science.html > > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 It is very encouraging to see how our kids are doing on NV. Here is our update on Sweet Pea. She has been on NV for just over one month. We are seeing an increase in listening to music with some humming on her own. We use a website with slow music for ESL children called: www.supersimplesongs.com. There are videos to go along with them on youtube.com. She is almost singing one of the songs. Some of it is speaking rather than singing but that is an improvement. Her imaginative play is increasing (it was virtually non-existent). She has even begun to make up a song and dance. She set up chairs in a row in the living room for a pretend choo-choo, then she put her babies/animals on the seats and said " all aboard " . She is in a growth spurt. She is saying new words and, more importantly, she is beginning to initiate conversation. IE: she was disappointed that the rides at WalMart were moved out of the store during their remodeling. She came home and said: Wahmah no have ha-ha (her word for horse). Previously, she would not have told me anything about the event, having forgotten about it by the time she got home, let along mention the store by name! She is putting herself on the school bus. More independent things are also new. On the negative side: there is increased naughtiness and she is more easily distracted when told to do something. Instead of one distraction, it can be more like five or six distractions for one event/task. She has not seen her speech therapist for most of the last month for a variety of reasons. We were anxious to see her today for her opinion. Therapist usually has to backtrack numerous lessons if she misses just one lesson. After one month on NV, she DID NOT HAVE TO BACKTRACK AT ALL. She continued right where they had left off. She was very impressed with that. Her oral motor skills were great today. Blessings, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Congrats Sandy! [ ] Re: NV update It is very encouraging to see how our kids are doing on NV. Here is our update on Sweet Pea. She has been on NV for just over one month. We are seeing an increase in listening to music with some humming on her own. We use a website with slow music for ESL children called: www.supersimplesongs.com. There are videos to go along with them on youtube.com. She is almost singing one of the songs. Some of it is speaking rather than singing but that is an improvement. Her imaginative play is increasing (it was virtually non-existent). She has even begun to make up a song and dance. She set up chairs in a row in the living room for a pretend choo-choo, then she put her babies/animals on the seats and said " all aboard " . She is in a growth spurt. She is saying new words and, more importantly, she is beginning to initiate conversation. IE: she was disappointed that the rides at WalMart were moved out of the store during their remodeling. She came home and said: Wahmah no have ha-ha (her word for horse). Previously, she would not have told me anything about the event, having forgotten about it by the time she got home, let along mention the store by name! She is putting herself on the school bus. More independent things are also new. On the negative side: there is increased naughtiness and she is more easily distracted when told to do something. Instead of one distraction, it can be more like five or six distractions for one event/task. She has not seen her speech therapist for most of the last month for a variety of reasons. We were anxious to see her today for her opinion. Therapist usually has to backtrack numerous lessons if she misses just one lesson. After one month on NV, she DID NOT HAVE TO BACKTRACK AT ALL. She continued right where they had left off. She was very impressed with that. Her oral motor skills were great today. Blessings, Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2010 Report Share Posted June 29, 2010 Sandy this is such an incredible update on Sweet Pea!! Would you mid if we put some of it up at http://pursuitofresearch.org/testimonials.html to share with others not in this private group? I have a message from you below from when you were just started your 6 year old on nutriiveda -and you had a bunch of questions. I'm curious if you would be willing to answer the questions you asked back then to help others (have them below) For example you don't note any hyperactivity -but increase in sassiness or naughtiness (but I think of it as a sign of increased confidence/independence. A good thing really but needs some strong parenting to keep it in check) Did you split the dosage in half or give it all at once? And can I add are you using a level or heaping scoop because most of us start level and go to heaping What is Sweet Pea's favorite way of eating it -in drink or with food and what flavor? What is Sweet Pea's diagnosis? You know what I'm most excited about...I have seen if myself that the kids on nutriiveda are advancing far quicker than their peers in academics. Don't be shocked if by the time the school year starts in the Fall you are looking at a completely different type of child...closer what would be the " norm " or as time continues on -above average in areas. That's what I'm seeing and this is mind blowing isn't it? It's not till people try it that they understand why I'm so excited about this -I have never seen anything else like this work for everyone, or pretty much close to 100 percent...it doesn't even seem possible. Yay for Sweet Pea for all her new progress and Yay for you Sandy for being out of the box and trying something new that isn't just therapeutic but an extremely healthy source of whole food essential nutrients too. (which funny enough was the original purpose, not the therapeutic part!!) Here's your blast from the past message from last month: Re: NutriiVeda questions for those with experience > > We have started our 6 yo on NutriiVeda. I have not been able to read through the 90000+ messages here but I have found out that she needs to be taking 2 scoops a day. Do I have to split those up or can I give them to her in the AM? What are the benefits of splitting a dose? When do you give the second dose? > > I see that many children have hyperactivity when they start NutriiVeda. Is this from caffeine in the chocolate or does vanilla cause the same reaction? How long does this hyperactivity last before the behavior levels out once again? If you miss a dose, do you see this at start up again? > > What have you had success with mixing NutriiVeda in? Anyone tried filtered water? What about juice? If you use yogurt, do you stir it in or 'blend' it? > > Am I understanding that you discontinue other nutrients when you use the NutriiVeda? > > Thanks for all your input. > Blessings > Sandy ~~~~~~~~~~~~~~~~~~~~~~~~~~ ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 , That is amazing! In my clients that are taking NV, we have seen gross motor surges 1st and then fine motor and then speech. This makes sense because that is how development occurs---gross motor (i.e. crawling, walking, climbing) then fine motor (i.e scribbling, coloring, taking off/putting on clothes) & then speech. So, continue the NV and look for small oral motor (i.e. tongue/jaw/lip movements she hasn't done before) & /or speech play (i.e. any sound play). Awesome!! Warmest wishes, Barbara Barbara A. , M.S., CCC-SLP CEO/ Help Me Speak, LLC <http://www.helpmespeak.com/> http://www.helpmespeak.com (o) 410-442-9791 (f) 410-442-9783 2500 Wallington Way; Suite 103 Marriottsville, MD 21104 Call me with any questions about NutriiVeda! From: [mailto: ] On Behalf Of gottlieb_michelle@... Sent: Wednesday, February 23, 2011 6:59 PM Apraxia Group Subject: [ ] NV update We have been giving my 2 1/2 year old son, Logan, NV for just about one month now. We give him one very heaping scoop per day. I mix a good amount of it with his oatmeal in the morning and the rest in his milk cups throughout the day. He will only tolerate a little in his milk at a time, so I spread it out. We have seen some changes in his ability to imitate movement. He dances along with The Wiggles songs. It is so cute and amazing to see!! He is also climbing in his Gymboree class with a little more confidence. He would rarely even attempt to climb before and now he is more interested. He still needs help but at least he is trying!! We have not seen any changes in speech or any other areas. He is still nonverbal. So we are now going to start ProEFA, one capsule per day. I was considering increasing his NV dosage, but since he is only 2 1/2 I'm not sure how much more NV we can actually give him?? Overall we are thrilled and hoping speech comes next! Sent from my Verizon Wireless BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 This is the order we have seen surges with my son who will be four in April. He is just now starting to talk more and more and repeat more and more words since the first of the year. I attribute it to being on NV and Coromega since April of 2010, speech therapy, PPCD and the iPad. All of them have helped but the NV and fish oils really helped with his focus and his receptive language understanding because super obvious to us shortly after starting NV and fish oils. On Wed, Feb 23, 2011 at 7:11 PM, Barbara <helpmespeak@...>wrote: > > > , > > That is amazing! In my clients that are taking NV, we have seen gross motor > surges 1st and then fine motor and then speech. This makes sense because > that is how development occurs---gross motor (i.e. crawling, walking, > climbing) then fine motor (i.e scribbling, coloring, taking off/putting on > clothes) & then speech. > > So, continue the NV and look for small oral motor (i.e. tongue/jaw/lip > movements she hasn't done before) & /or speech play > (i.e. any sound play). Awesome!! > > Warmest wishes, > > Barbara > > Barbara A. , M.S., CCC-SLP > CEO/ Help Me Speak, LLC > <http://www.helpmespeak.com/> http://www.helpmespeak.com > (o) 410-442-9791 (f) 410-442-9783 > 2500 Wallington Way; Suite 103 > Marriottsville, MD 21104 > > Call me with any questions about NutriiVeda! > > From: > [mailto: ] On Behalf Of > gottlieb_michelle@... > Sent: Wednesday, February 23, 2011 6:59 PM > Apraxia Group > Subject: [ ] NV update > > > > We have been giving my 2 1/2 year old son, Logan, NV for just about one > month now. We give him one very heaping scoop per day. I mix a good amount > of it with his oatmeal in the morning and the rest in his milk cups > throughout the day. He will only tolerate a little in his milk at a time, > so > I spread it out. > We have seen some changes in his ability to imitate movement. He dances > along with The Wiggles songs. It is so cute and amazing to see!! He is also > climbing in his Gymboree class with a little more confidence. He would > rarely even attempt to climb before and now he is more interested. He still > needs help but at least he is trying!! > > We have not seen any changes in speech or any other areas. He is still > nonverbal. > > So we are now going to start ProEFA, one capsule per day. I was considering > increasing his NV dosage, but since he is only 2 1/2 I'm not sure how much > more NV we can actually give him?? > > Overall we are thrilled and hoping speech comes next! > > > Sent from my Verizon Wireless BlackBerry > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 This is SO encouraging,even though my ped (well known decent one!) said to not continue NV, i am going to put my son back on. Thanks Barbara for reporting what you see in your clients..yet are there some that DO NOT respond? And what is the longest it may take? Ivy On Feb 23, 2011, at 8:19 PM, Stilwell <shannonstilwell@...> wrote: > This is the order we have seen surges with my son who will be four in April. > He is just now starting to talk more and more and repeat more and more words > since the first of the year. I attribute it to being on NV and Coromega > since April of 2010, speech therapy, PPCD and the iPad. All of them have > helped but the NV and fish oils really helped with his focus and his > receptive language understanding because super obvious to us shortly after > starting NV and fish oils. > > On Wed, Feb 23, 2011 at 7:11 PM, Barbara <helpmespeak@...>wrote: > > > > > > > , > > > > That is amazing! In my clients that are taking NV, we have seen gross motor > > surges 1st and then fine motor and then speech. This makes sense because > > that is how development occurs---gross motor (i.e. crawling, walking, > > climbing) then fine motor (i.e scribbling, coloring, taking off/putting on > > clothes) & then speech. > > > > So, continue the NV and look for small oral motor (i.e. tongue/jaw/lip > > movements she hasn't done before) & /or speech play > > (i.e. any sound play). Awesome!! > > > > Warmest wishes, > > > > Barbara > > > > Barbara A. , M.S., CCC-SLP > > CEO/ Help Me Speak, LLC > > <http://www.helpmespeak.com/> http://www.helpmespeak.com > > (o) 410-442-9791 (f) 410-442-9783 > > 2500 Wallington Way; Suite 103 > > Marriottsville, MD 21104 > > > > Call me with any questions about NutriiVeda! > > > > From: > > [mailto: ] On Behalf Of > > gottlieb_michelle@... > > Sent: Wednesday, February 23, 2011 6:59 PM > > Apraxia Group > > Subject: [ ] NV update > > > > > > > > We have been giving my 2 1/2 year old son, Logan, NV for just about one > > month now. We give him one very heaping scoop per day. I mix a good amount > > of it with his oatmeal in the morning and the rest in his milk cups > > throughout the day. He will only tolerate a little in his milk at a time, > > so > > I spread it out. > > We have seen some changes in his ability to imitate movement. He dances > > along with The Wiggles songs. It is so cute and amazing to see!! He is also > > climbing in his Gymboree class with a little more confidence. He would > > rarely even attempt to climb before and now he is more interested. He still > > needs help but at least he is trying!! > > > > We have not seen any changes in speech or any other areas. He is still > > nonverbal. > > > > So we are now going to start ProEFA, one capsule per day. I was considering > > increasing his NV dosage, but since he is only 2 1/2 I'm not sure how much > > more NV we can actually give him?? > > > > Overall we are thrilled and hoping speech comes next! > > > > > > Sent from my Verizon Wireless BlackBerry > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Ivy honestly the only time I heard of any pediatrician not approving NV was when we first started and we didn't have the information up on the site to explain it http://pursuitofresearch.org/find-a-professional/ Knowledgeable about nutrition medical doctors are those that are able to look at the ingredients and determine it's OK even without the info above...which is why I encourage you to seek a second opinion. We've heard from one of the country's top medical doctors in neurology " this is a very impressive good product and I can see why it's working based on the ingredients " And while it's recommended by every top medical organization, there are still those pediatricians who don't recommend giving a child fish oil. I mean sure you could give that preschool child a bottle of baby formula instead to get about the same dosage of EFAs as a capsule of ProEFA -but I just don't see that happening. As all nutrients in NV are from foods that have been used for thousands of years with no known side effects and hundreds of clinical studies to validate the importance of each, I am curious exactly which food in NV your pediatrician doesn't approve of? Call him back and ask him if it's OK if you give your child Carnation Instant Breakfast. Just curious if that would be fine. The theories in the blogs at http://www.pursuitofresearch.org are based on cutting edge research where leading scientists today are learning and validating the links between good health and good nutrition. There is the trickle down effect that eventually all doctors will learn what the leading ones are teaching. As far as percentage of kids this works for I'd like to hear from you Barbara too! What percentage of your clients does NV work for? I wish other SLPs would write here as well more. There are other SLPs that have written here about their clients as well, some of those professional reports are up on this page http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\ in-treatment-of-speech-impairments/ But Sharon's SLP has yet to write about her experience and I know that Sharon's son alone was one of her clients before Sharon moved...and speaking of Sharon (if you are reading this!!) I put the videos of that amazing 5 year old on my fb page saying " if only all children could speak this well " and put a mock warning that those of younger apraxic children are not allowed to watch this http://www.youtube.com/watch?v=0rbMHLDY1pA & feature=player_embedded and http://www.youtube.com/watch?annotation_id=annotation_525660 & v=oVoR_ZMPgVE & featu\ re=iv Sharon from our group commented -and I said " Sharon you weren't supposed to watch this! Or is it getting closer with NV progress? " And Sharon answered " Hey ! I know, but I couldn't help myself. IS getting closer with NV progress. I've got some more footage that I'll be posting soon. We're finally feeling settled and I am due with baby #3 in 6 weeks so just when we get things under control we'll be out of control again, but such is life. is doing INCREDIBLE. No one here in CO even knows he has apraxia or a speech disorder. When I told our newer friends they were shocked. We definitely still have a ways to go with ST, but he's not standing out among his peers. He's probably one of the more social kids in class even. It's just crazy. We really have no major worries at this point in life, in regards to Ry. Hope to chat soon! " So Sharon we are all looking forward to seeing the new video updates of !! There are a handful that report NV didn't work -but it seems pretty rare. Based on feedback through our survey it appears that NV is working on a multitude of conditions, ages and areas http://pursuitofresearch.org/pursuit-of-research/ which tells me it's linked to some essential nutrient or nutrients that is filling in a blank. In comparison to fish oils -another essential nutrient, some experts like Dr. Stordy who I heard at one conference put fish oil's effectiveness at around 80 percent. We know that NV is effective in some of those that had no results on fish oils and it seems almost always it works. I'd say somewhere between 80 and 100 percent chance it will work -and most likely dramatic. Barbara what the success rate you are noting in your clients? And even though most of us see dramatic surges in days, there are some who note improvements over months. , who's message is below was at first upset because she didn't believe they were seeing the same surges in her son that others were writing about here. - your message about your son in this regard is such a well written example it's the perfect archive to show there is more than one way to have an amazing surge! Progress in 9 months time..... AMAZING <> luvmykids8233 Hi all- A 4 day holiday weekend.... that included a break in all activities, school, and even my Son's Speech therapy, has caused me to have extra time to go through a huge pile of old " Mini DV Tapes " from our camcorder- to simply label what was on each of them. The pile of " non labelled tapes was really bothering me.... it was nice to finally take the time to label what was on them! I found the old tape, where I recoreded my son BEFORE NV last Feb..... I also saw the numerous videos of him that I recorded of him in the next few weeks. My Son was 35 months old when he started NV.... he is now 44 months old. I tried to take time to post these videos on You Tube.... but was not able to have success... the tapes were stored... but not forgotten! I wanted to discuss some of my feelings/observations after seeing these videos as follows: 1. My Son has a diagnosis of moderate to severe Apraxia.... (I feel that he leans more toward the Severe end).. When we started NV, I think that I expected a MIRACLE.... and it did not occur....I was too emotional with worry over my son's condition to even notice the small changes that occurred within 2 weeks after NV! Looking at all of these videos with a CLEARER MIND made me see that there WERE CLEAR DIFFERENCES! My parents even noticed the differences when watching the videos! My son seemed much more focused after the second week of NV. He also went through the typical " hyper stage " that some of our kids do-- but not in a bad way..... he simply was babbling more.... and trying harder to use " word approximations " ... which was good! (He barely made any sounds at all prior to NV.....to even get him to TRY to verbalize a " word approximation " was very hard back then). The increase in babbling was a GOOD thing.... think about it..... he had delays.... and he HAD to go through the babbling stage before attempting to master actual words. The NV helped him with this... and more and more " word approximations " started to emerge in the next few months! 2. Last year, I was so consumed with worry- my son had clear delays... he was in EI--- he soon would be turning age 3....(which to me, meant that he would be transitioning from EI to a Special Needs Pre K).... all of my energy was taken up with worry about how my son did not speak.... and how I had to FIND A WAY to FIGHT the " Special Needs PK School who did NOT believe in 1:1 pull out ST.... I was too distraught to SEE the changes in my own child! I feel that I had " high hopes " that he would have an increase in speech abilities (meaning ,to me, the use of WORDS).... which he did not during the start of NV.... As mentioned in #1.... the NV assisted with the babbling... which assisted in the development of " word approximations " and so on.... 3. After looking at all of the old videos... and comparing them to even 1 week, 1 month after NV.... all the way up to the present..... it is CLEAR that SOMETHING DID CHANGE.... FOR THE BETTER! I CAN recall feeling really upset inside in the past.... because some of the moms who took the time to post " before and after videos of their children on NV " seemed to have kids who " seemed to have better Speech abilities than my Son on their BEFORE NV Videos " ... I was happy for them....(their kid's progress AFTER NV was very obvious)! I also, felt sad when I compared my son to these other kids.... when I compared him to them, he seemed to be even more behind in speech to me.... I can recall feeling quite depressed about this. 4. Months later..... with a clearer mind..... (more time to internally ACCEPT my Son's Speech Delays- and deal with them from a point of strength)... and also due to the fact that I DID obtain 1:1 pull out ST at the PK level in my State.... (Thanks again - for empowering me to achieve this).... I CAN now see differences.. and will describe them as follows... (Again, We just looked at a bunch of old videos of our Son.... the differences were CLEAR to us... and also to our Family Members who watched these with us).... 5). BEFORE NV - all Baby videos of Tyler show hardly any babbling other than MUM MUM MUM... he WAS able to create some pretty powerful Raspberries though! - older videos show clear Sensory Issues starting at age 5 months old.... Ty was screaming every time he was placed on grass in bare feet, He also had huge sensory issues at bath time..(it took awhile to get him used to the sensation of being in water). there were feeding issues (gagging on certain textures) that continue to this day as well. SHORTLY BEFORE START OF NV... (age 2 forward).... I seemed to ALWAYS be trying to get Tyler to point out his body parts on old videos.... He REALLY could point to his nose, his mouth, etc.... he just never did it on a video.... I sounded so pathetic on these videos... I kept asking him to show me his nose.... I kept asking him to talk to me.... and he appeared to have a blank look on his face as I did this. He would smile from time to time.... but he also always seemed to have a " BLANK " expression on his face... and his mouth used to hang open.... His eyes often, had no sparkle.... (my dad used to tell me that he thought Tyler was autistic during these days).... Tyler always TRIED to be social with others.... he also loved to hug others.... and he DID know where his nose and mouth, etc were.... he had " no words " .... but his smiles and hand/arm " gestures " made up for this. If I asked him " how big are you " ... he would raise his arms up in the air with a huge grin and say OOO eee (so big). Looking back, it almost seems like Tyler did not like " being put on the spot " to " talk " ..... in these old videos..... Tyler was a smart little kid... he started ST with EI at age 20 months.... he used to smile, and place his fingers in his ears when the therapist tried to work with him. He KNEW that " this speech stuff " was HARD! - I have a video of Tyler the day before we started NV..... we were going through home-made " Flash Cards " together (laminated pictures of family members, favorite toys and pets).... He was very distracted.. and became upset quickly... He continued to have a " blank expression " . AFTER NV.... The blank look on his face was gone by the second month after NV.... his FOCUS improved.... which caused his attention span during his ST sessions to improve... Speech abilities transitioned from babbling to more word approximations. the increase in his attention span helped him to get more out of his ST Sessions! He was able to follow directions better-- and he was more willing to TRY! We have always loved a " Fun Class for kids " called Kindermusik.... these classes are offered in most states- and they are awesome! Prior to NV, Tyler spent his Kindermusik class times trying to crawl toward to exit door.... NOW- he is engaged, follows directions... and LOVES IT! His " Words " have increased to the point where he can put together 3 word sentences..... such as " MUH OWE ON " (My show on)... He started to have an increased interest in singing this past July for the first time..... If I " sing simple songs slowly " .... he can follow me! This is the child who seemed to have zero interest in simple Nursery Rhymes at age 2 and age 3! He will be age 4 in March.... and, starting about 2 months ago, he is " catching up " to learning all of those Nursery Rhymes! (He can't sing them like " typical kids do " ).... BUT HE IS SINGING! It is beautiful! Have to include this.... Ty's version of " Twinkle Twinkle Little Star " .... EE OHL EE OHL EE- EE ARE... (Twinkle, twinkle little star) OW AYE WUH OO OW OO ARE. ( how I wondor what you are).. W's are hard- he has learned to put his hand over his mouth to " make the windy sound " when he attempts " W's " U-PAH uh uh WHHH-ole oh AYE! (S sounds are also hard).. He can spell his name to ther tune of the song " Bingo " now as well... He says T- AYE - luh - E- R-uh. He can count out objects up to 6.... he can identify colors... he DANCES! He is drawing the letter " T " correctly-- and often does it all over my walls in crayon! (I do not like this- but he is so cute.... I ask " who did this " .... he proudly, responds " ME " . We are very busy with all of his therapies... and also have a very advanced older daughter who is a firecracker.... (involved in dancing and acting classes.. and is doing an amazing job at it at only age 5.8 yrs old)- she talked early, knew her ABCs early... EVERYTHING she did and still does is EARLY. It is a CHALLENGE to balance our lives/schedules to meet the needs of these 2 children! We never " pushed " " potty training with Tyler " .... yet, he essentially, figured it all out on his own by simply trying to copy his older sister! In conclusion, I feel that Tyler has come very far in a short time.... and I BELIEVE that NV has assisted him to do this. We also are giving him the NN Fish Oils... he takes 2 Pro EFA, and one Pro EPA per day.... (These are huge gel caps--- I pierce them with a pin- and squirt them into his mouth). HE LOVES THEM! PLEASE-- to any of you who doubt NV-- DO NOT GIVE UP if it does not seem to create " instant miracles " .... MOST people do see immediate changes.... and some do not... (I fell into this category in my son's case), but if you had the patience to read my detailed descriptions of how my son was " Prior to NV " ... you can see that he had SIGNIFICANT Speech Delays! I feel that the NV assisted my Son to " go through the normal process of achieving developmental milestones that he was not able to achieve " ...... and CHILDREN MUST go through these milestones, as part of their development! YES- we all want our children to SPEAK at an age appropriate level...... when we have kids affected by Apraxia- this DOES NOT OCCUR! I feel confidant that NV assisted my son to " catch up " .... Yes- his Speech remains delayed.... but he improves every week! My child is a SMART kid--- now that he is more focused, and more confidant-- he WANTS to try to talk MORE! He learned and memorized the entire song " BINGO " during a short drive in the car (when his older sister, who interrupts him was not present)! He also has a diagnosis of Hypotonia.... and wore DAFOs (Orthotic Braces) from age 20 months on to assist with ankle pronation. His braces have been cut down in size! He can RUN, he can climb! NV IS HELPING HIM! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2011 Report Share Posted February 24, 2011 - I LOVE that you say that if fish oils did not work on children, it does not mean that NV won't, and that it has an even higher success rate!! I think we all jave learned that WE as parents sometimes have to take initiative and teach docs what works..lol, sad but true! The ped I speak of is huge here, alternative, and totally understands many biomed treatments, the effects of mercury, the benefits of fish-oils...etc etc. I hardly had to mention any alternative supplements to him, he seemed up to date on all. He is almost a DAN doctor, without actually being one. I think he was just trying to be helpful when he said if it didnt work for us in our trial stage (which i have to admit was only 2months, slightly more to wk up to 2scoops) as he held the container, familiar with NV, that we should stop and not continue. He was saying it has helped a few. Yet, many things that help children w/apraxia, just have not helped my little guy. I on the other hand,always second guess doctors ,even thought i may be fond of the many we see. i have done plenty for my son to try to help his severe verbal apraxia, and i do want NV to work. Believe me, when he does start speaking, all will hear what worked..all of our SLPs, all OTs, all ped docs, all dev peds..etc. Oooo, and do i want that day to come...i will continue to be hopeful!!! We start on NV this AM again. Question is..do i switch to vanilla flavor when finished with chocolate? Are two scoops enough for at 30lb child, two scoops for a long period of time OR move up to three or more, since we didnt see anything on two scoops during two month trial??? Thank you, Ivy On Feb 24, 2011, at 12:54 AM, " kiddietalk " <kiddietalk@...> wrote: > Ivy honestly the only time I heard of any pediatrician not approving NV was when we first started and we didn't have the information up on the site to explain it http://pursuitofresearch.org/find-a-professional/ Knowledgeable about nutrition medical doctors are those that are able to look at the ingredients and determine it's OK even without the info above...which is why I encourage you to seek a second opinion. We've heard from one of the country's top medical doctors in neurology " this is a very impressive good product and I can see why it's working based on the ingredients " And while it's recommended by every top medical organization, there are still those pediatricians who don't recommend giving a child fish oil. I mean sure you could give that preschool child a bottle of baby formula instead to get about the same dosage of EFAs as a capsule of ProEFA -but I just don't see that happening. > > As all nutrients in NV are from foods that have been used for thousands of years with no known side effects and hundreds of clinical studies to validate the importance of each, I am curious exactly which food in NV your pediatrician doesn't approve of? Call him back and ask him if it's OK if you give your child Carnation Instant Breakfast. Just curious if that would be fine. > > The theories in the blogs at http://www.pursuitofresearch.org are based on cutting edge research where leading scientists today are learning and validating the links between good health and good nutrition. There is the trickle down effect that eventually all doctors will learn what the leading ones are teaching. > > As far as percentage of kids this works for I'd like to hear from you Barbara too! What percentage of your clients does NV work for? > > I wish other SLPs would write here as well more. There are other SLPs that have written here about their clients as well, some of those professional reports are up on this page http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\ in-treatment-of-speech-impairments/ But Sharon's SLP has yet to write about her experience and I know that Sharon's son alone was one of her clients before Sharon moved...and speaking of Sharon (if you are reading this!!) > > I put the videos of that amazing 5 year old on my fb page saying " if only all children could speak this well " and put a mock warning that those of younger apraxic children are not allowed to watch this > http://www.youtube.com/watch?v=0rbMHLDY1pA & feature=player_embedded > and > http://www.youtube.com/watch?annotation_id=annotation_525660 & v=oVoR_ZMPgVE & featu\ re=iv > > Sharon from our group commented -and I said " Sharon you weren't supposed to watch this! Or is it getting closer with NV progress? " > > And Sharon answered " Hey ! I know, but I couldn't help myself. IS getting closer with NV progress. I've got some more footage that I'll be posting soon. We're finally feeling settled and I am due with baby #3 in 6 weeks so just when we get things under control we'll be out of control again, but such is life. > > is doing INCREDIBLE. No one here in CO even knows he has apraxia or a speech disorder. When I told our newer friends they were shocked. We definitely still have a ways to go with ST, but he's not standing out among his peers. He's probably one of the more social kids in class even. It's just crazy. We really have no major worries at this point in life, in regards to Ry. > > Hope to chat soon! " > > So Sharon we are all looking forward to seeing the new video updates of !! > > There are a handful that report NV didn't work -but it seems pretty rare. Based on feedback through our survey it appears that NV is working on a multitude of conditions, ages and areas http://pursuitofresearch.org/pursuit-of-research/ which tells me it's linked to some essential nutrient or nutrients that is filling in a blank. In comparison to fish oils -another essential nutrient, some experts like Dr. Stordy who I heard at one conference put fish oil's effectiveness at around 80 percent. We know that NV is effective in some of those that had no results on fish oils and it seems almost always it works. I'd say somewhere between 80 and 100 percent chance it will work -and most likely dramatic. > > Barbara what the success rate you are noting in your clients? > > And even though most of us see dramatic surges in days, there are some who note improvements over months. , who's message is below was at first upset because she didn't believe they were seeing the same surges in her son that others were writing about here. > > - your message about your son in this regard is such a well written example it's the perfect archive to show there is more than one way to have an amazing surge! > > Progress in 9 months time..... AMAZING > <> > luvmykids8233 > > Hi all- > A 4 day holiday weekend.... that included a break in all activities, school, and > even my Son's Speech therapy, has caused me to have extra time to go through a > huge pile of old " Mini DV Tapes " from our camcorder- to simply label what was on > each of them. The pile of " non labelled tapes was really bothering me.... it > was nice to finally take the time to label what was on them! > > I found the old tape, where I recoreded my son BEFORE NV last Feb..... I also > saw the numerous videos of him that I recorded of him in the next few weeks. My > Son was 35 months old when he started NV.... he is now 44 months old. I tried to > take time to post these videos on You Tube.... but was not able to have > success... the tapes were stored... but not forgotten! > > I wanted to discuss some of my feelings/observations after seeing these videos > as follows: > > 1. My Son has a diagnosis of moderate to severe Apraxia.... (I feel that he > leans more toward the Severe end).. When we started NV, I think that I expected > a MIRACLE.... and it did not occur....I was too emotional with worry over my > son's condition to even notice the small changes that occurred within 2 weeks > after NV! Looking at all of these videos with a CLEARER MIND made me see that > there WERE CLEAR DIFFERENCES! My parents even noticed the differences when > watching the videos! My son seemed much more focused after the second week of > NV. He also went through the typical " hyper stage " that some of our kids do-- > but not in a bad way..... he simply was babbling more.... and trying harder to > use " word approximations " ... which was good! (He barely made any sounds at all > prior to NV.....to even get him to TRY to verbalize a " word approximation " was > very hard back then). The increase in babbling was a GOOD thing.... think about > it..... he had delays.... and he HAD to go through the babbling stage before > attempting to master actual words. The NV helped him with this... and more and > more " word approximations " started to emerge in the next few months! > > 2. Last year, I was so consumed with worry- my son had clear delays... he was in > EI--- he soon would be turning age 3....(which to me, meant that he would be > transitioning from EI to a Special Needs Pre K).... all of my energy was taken > up with worry about how my son did not speak.... and how I had to FIND A WAY to > FIGHT the " Special Needs PK School who did NOT believe in 1:1 pull out ST.... I > was too distraught to SEE the changes in my own child! I feel that I had " high > hopes " that he would have an increase in speech abilities (meaning ,to me, the > use of WORDS).... which he did not during the start of NV.... As mentioned in > #1.... the NV assisted with the babbling... which assisted in the development of > " word approximations " and so on.... > > 3. After looking at all of the old videos... and comparing them to even 1 week, > 1 month after NV.... all the way up to the present..... it is CLEAR that > SOMETHING DID CHANGE.... FOR THE BETTER! I CAN recall feeling really upset > inside in the past.... because some of the moms who took the time to post > " before and after videos of their children on NV " seemed to have kids who > " seemed to have better Speech abilities than my Son on their BEFORE NV > Videos " ... I was happy for them....(their kid's progress AFTER NV was very > obvious)! I also, felt sad when I compared my son to these other kids.... when > I compared him to them, he seemed to be even more behind in speech to me.... I > can recall feeling quite depressed about this. > > 4. Months later..... with a clearer mind..... (more time to internally ACCEPT my > Son's Speech Delays- and deal with them from a point of strength)... and also > due to the fact that I DID obtain 1:1 pull out ST at the PK level in my > State.... (Thanks again - for empowering me to achieve this).... I CAN now > see differences.. and will describe them as follows... (Again, We just looked > at a bunch of old videos of our Son.... the differences were CLEAR to us... and > also to our Family Members who watched these with us).... > > 5). BEFORE NV > - all Baby videos of Tyler show hardly any babbling other than MUM MUM MUM... he > WAS able to create some pretty powerful Raspberries though! > - older videos show clear Sensory Issues starting at age 5 months old.... Ty was > screaming every time he was placed on grass in bare feet, He also had huge > sensory issues at bath time..(it took awhile to get him used to the sensation of > being in water). there were feeding issues (gagging on certain textures) that > continue to this day as well. > > SHORTLY BEFORE START OF NV... (age 2 forward).... I seemed to ALWAYS be trying > to get > Tyler to point out his body parts on old videos.... He REALLY could point to his > nose, his mouth, etc.... he just never did it on a video.... I sounded so > pathetic on these videos... I kept asking him to show me his nose.... I kept > asking him to talk to me.... and he appeared to have a blank look on his face as > I did this. He would smile from time to time.... but he also always seemed to > have a " BLANK " expression on his face... and his mouth used to hang open.... > His eyes often, had no sparkle.... (my dad used to tell me that he thought > Tyler was autistic during these days).... Tyler always TRIED to be social with > others.... he also loved to hug others.... and he DID know where his nose and > mouth, etc were.... he had " no words " .... but his smiles and hand/arm " gestures " > made up for this. If I asked him " how big are you " ... he would raise his arms > up in the air with a huge grin and say OOO eee (so big). Looking back, it almost > seems like Tyler did not like " being put on the spot " to " talk " ..... in these > old videos..... Tyler was a smart little kid... he started ST with EI at age 20 > months.... he used to smile, and place his fingers in his ears when the > therapist tried to work with him. He KNEW that " this speech stuff " was HARD! > > - I have a video of Tyler the day before we started NV..... we were going > through home-made " Flash Cards " together (laminated pictures of family members, > favorite toys and pets).... He was very distracted.. and became upset > quickly... He continued to have a " blank expression " . > > AFTER NV.... > The blank look on his face was gone by the second month after NV.... his FOCUS > improved.... which caused his attention span during his ST sessions to > improve... Speech abilities transitioned from babbling to more word > approximations. the increase in his attention span helped him to get more out of > his ST Sessions! He was able to follow directions better-- and he was more > willing to TRY! We have always loved a " Fun Class for kids " called > Kindermusik.... these classes are offered in most states- and they are awesome! > Prior to NV, Tyler spent his Kindermusik class times trying to crawl toward to > exit door.... NOW- he is engaged, follows directions... and LOVES IT! His > " Words " have increased to the point where he can put together 3 word > sentences..... such as " MUH OWE ON " (My show on)... He started to have an > increased interest in singing this past July for the first time..... If I " sing > simple songs slowly " .... he can follow me! This is the child who seemed to have > zero interest in simple Nursery Rhymes at age 2 and age 3! He will be age 4 in > March.... and, starting about 2 months ago, he is " catching up " to learning all > of those Nursery Rhymes! (He can't sing them like " typical kids do " ).... BUT HE > IS SINGING! It is beautiful! > > Have to include this.... Ty's version of " Twinkle Twinkle Little Star " .... > EE OHL EE OHL EE- EE ARE... (Twinkle, twinkle little star) > OW AYE WUH OO OW OO ARE. ( how I wondor what you are).. W's are hard- he has > learned to put his hand over his mouth to " make the windy sound " when he > attempts " W's " > U-PAH uh uh WHHH-ole oh AYE! (S sounds are also hard).. > > He can spell his name to ther tune of the song " Bingo " now as well... He says > T- AYE - luh - E- R-uh. He can count out objects up to 6.... he can identify > colors... he DANCES! He is drawing the letter " T " correctly-- and often does it > all over my walls in crayon! (I do not like this- but he is so cute.... I ask > " who did this " .... he proudly, responds " ME " . > > We are very busy with all of his therapies... and also have a very advanced > older daughter who is a firecracker.... (involved in dancing and acting > classes.. and is doing an amazing job at it at only age 5.8 yrs old)- she talked > early, knew her ABCs early... EVERYTHING she did and still does is EARLY. It is > a CHALLENGE to balance our lives/schedules to meet the needs of these 2 > children! We never " pushed " " potty training with Tyler " .... yet, he > essentially, figured it all out on his own by simply trying to copy his older > sister! > > In conclusion, I feel that Tyler has come very far in a short time.... and I > BELIEVE that NV has assisted him to do this. We also are giving him the NN Fish > Oils... he takes 2 Pro EFA, and one Pro EPA per day.... (These are huge gel > caps--- I pierce them with a pin- and squirt them into his mouth). HE LOVES > THEM! > > PLEASE-- to any of you who doubt NV-- DO NOT GIVE UP if it does not seem to > create " instant miracles " .... MOST people do see immediate changes.... and some > do not... (I fell into this category in my son's case), but if you had the > patience to read my detailed descriptions of how my son was " Prior to NV " ... you > can see that he had SIGNIFICANT Speech Delays! I feel that the NV assisted my > Son to " go through the normal process of achieving developmental milestones that > he was not able to achieve " ...... and CHILDREN MUST go through these milestones, > as part of their development! YES- we all want our children to SPEAK at an age > appropriate level...... when we have kids affected by Apraxia- this DOES NOT > OCCUR! I feel confidant that NV assisted my son to " catch up " .... Yes- his > Speech remains delayed.... but he improves every week! My child is a SMART > kid--- now that he is more focused, and more confidant-- he WANTS to try to talk > MORE! He learned and memorized the entire song " BINGO " during a short drive in > the car (when his older sister, who interrupts him was not present)! > > He also has a diagnosis of Hypotonia.... and wore DAFOs (Orthotic Braces) from > age 20 months on to assist with ankle pronation. His braces have been cut down > in size! He can RUN, he can climb! > NV IS HELPING HIM! > > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2011 Report Share Posted February 24, 2011 Of my clients who have tried NV, 100% have had positive changes. I have 1 client who hasn't been successful in getting her dtr to drink it because her dtr is a picky eater. IF she were to drink it consistently, I bet she would improve too. Warmest wishes, Barbara A , M.S.,CCC-SLP CEO, Help Me Speak, LLC www.helpmespeak.com 2500 Wallington Way Suite 103 Marriottsville, MD 21104 410-442-9791 Ask me about NutriiVeda! On Feb 24, 2011, at 7:26 AM, Ivy <ivygreene88@...> wrote: > - I LOVE that you say that if fish oils did not work on children, it does not mean that NV won't, and that it has an even higher success rate!! > > I think we all jave learned that WE as parents sometimes have to take initiative and teach docs what works..lol, sad but true! > > The ped I speak of is huge here, alternative, and totally understands many biomed treatments, the effects of mercury, the benefits of fish-oils...etc etc. I hardly had to mention any alternative supplements to him, he seemed up to date on all. He is almost a DAN doctor, without actually being one. > > I think he was just trying to be helpful when he said if it didnt work for us in our trial stage (which i have to admit was only 2months, slightly more to wk up to 2scoops) as he held the container, familiar with NV, that we should stop and not continue. He was saying it has helped a few. Yet, many things that help children w/apraxia, just have not helped my little guy. > > I on the other hand,always second guess doctors ,even thought i may be fond of the many we see. > i have done plenty for my son to try to help his severe verbal apraxia, and i do want NV to work. Believe me, when he does start speaking, all will hear what worked..all of our SLPs, all OTs, all ped docs, all dev peds..etc. Oooo, and do i want that day to come...i will continue to be hopeful!!! > > We start on NV this AM again. > Question is..do i switch to vanilla flavor when finished with chocolate? Are two scoops enough for at 30lb child, two scoops for a long period of time OR move up to three or more, since we didnt see anything on two scoops during two month trial??? > > Thank you, Ivy > > On Feb 24, 2011, at 12:54 AM, " kiddietalk " <kiddietalk@...> wrote: > > > Ivy honestly the only time I heard of any pediatrician not approving NV was when we first started and we didn't have the information up on the site to explain it http://pursuitofresearch.org/find-a-professional/ Knowledgeable about nutrition medical doctors are those that are able to look at the ingredients and determine it's OK even without the info above...which is why I encourage you to seek a second opinion. We've heard from one of the country's top medical doctors in neurology " this is a very impressive good product and I can see why it's working based on the ingredients " And while it's recommended by every top medical organization, there are still those pediatricians who don't recommend giving a child fish oil. I mean sure you could give that preschool child a bottle of baby formula instead to get about the same dosage of EFAs as a capsule of ProEFA -but I just don't see that happening. > > > > As all nutrients in NV are from foods that have been used for thousands of years with no known side effects and hundreds of clinical studies to validate the importance of each, I am curious exactly which food in NV your pediatrician doesn't approve of? Call him back and ask him if it's OK if you give your child Carnation Instant Breakfast. Just curious if that would be fine. > > > > The theories in the blogs at http://www.pursuitofresearch.org are based on cutting edge research where leading scientists today are learning and validating the links between good health and good nutrition. There is the trickle down effect that eventually all doctors will learn what the leading ones are teaching. > > > > As far as percentage of kids this works for I'd like to hear from you Barbara too! What percentage of your clients does NV work for? > > > > I wish other SLPs would write here as well more. There are other SLPs that have written here about their clients as well, some of those professional reports are up on this page http://pursuitofresearch.com/2010/11/22/is-nutriiveda-creating-a-paradigm-shift-\ in-treatment-of-speech-impairments/ But Sharon's SLP has yet to write about her experience and I know that Sharon's son alone was one of her clients before Sharon moved...and speaking of Sharon (if you are reading this!!) > > > > I put the videos of that amazing 5 year old on my fb page saying " if only all children could speak this well " and put a mock warning that those of younger apraxic children are not allowed to watch this > > http://www.youtube.com/watch?v=0rbMHLDY1pA & feature=player_embedded > > and > > http://www.youtube.com/watch?annotation_id=annotation_525660 & v=oVoR_ZMPgVE & featu\ re=iv > > > > Sharon from our group commented -and I said " Sharon you weren't supposed to watch this! Or is it getting closer with NV progress? " > > > > And Sharon answered " Hey ! I know, but I couldn't help myself. IS getting closer with NV progress. I've got some more footage that I'll be posting soon. We're finally feeling settled and I am due with baby #3 in 6 weeks so just when we get things under control we'll be out of control again, but such is life. > > > > is doing INCREDIBLE. No one here in CO even knows he has apraxia or a speech disorder. When I told our newer friends they were shocked. We definitely still have a ways to go with ST, but he's not standing out among his peers. He's probably one of the more social kids in class even. It's just crazy. We really have no major worries at this point in life, in regards to Ry. > > > > Hope to chat soon! " > > > > So Sharon we are all looking forward to seeing the new video updates of !! > > > > There are a handful that report NV didn't work -but it seems pretty rare. Based on feedback through our survey it appears that NV is working on a multitude of conditions, ages and areas http://pursuitofresearch.org/pursuit-of-research/ which tells me it's linked to some essential nutrient or nutrients that is filling in a blank. In comparison to fish oils -another essential nutrient, some experts like Dr. Stordy who I heard at one conference put fish oil's effectiveness at around 80 percent. We know that NV is effective in some of those that had no results on fish oils and it seems almost always it works. I'd say somewhere between 80 and 100 percent chance it will work -and most likely dramatic. > > > > Barbara what the success rate you are noting in your clients? > > > > And even though most of us see dramatic surges in days, there are some who note improvements over months. , who's message is below was at first upset because she didn't believe they were seeing the same surges in her son that others were writing about here. > > > > - your message about your son in this regard is such a well written example it's the perfect archive to show there is more than one way to have an amazing surge! > > > > Progress in 9 months time..... AMAZING > > <> > > luvmykids8233 > > > > Hi all- > > A 4 day holiday weekend.... that included a break in all activities, school, and > > even my Son's Speech therapy, has caused me to have extra time to go through a > > huge pile of old " Mini DV Tapes " from our camcorder- to simply label what was on > > each of them. The pile of " non labelled tapes was really bothering me.... it > > was nice to finally take the time to label what was on them! > > > > I found the old tape, where I recoreded my son BEFORE NV last Feb..... I also > > saw the numerous videos of him that I recorded of him in the next few weeks. My > > Son was 35 months old when he started NV.... he is now 44 months old. I tried to > > take time to post these videos on You Tube.... but was not able to have > > success... the tapes were stored... but not forgotten! > > > > I wanted to discuss some of my feelings/observations after seeing these videos > > as follows: > > > > 1. My Son has a diagnosis of moderate to severe Apraxia.... (I feel that he > > leans more toward the Severe end).. When we started NV, I think that I expected > > a MIRACLE.... and it did not occur....I was too emotional with worry over my > > son's condition to even notice the small changes that occurred within 2 weeks > > after NV! Looking at all of these videos with a CLEARER MIND made me see that > > there WERE CLEAR DIFFERENCES! My parents even noticed the differences when > > watching the videos! My son seemed much more focused after the second week of > > NV. He also went through the typical " hyper stage " that some of our kids do-- > > but not in a bad way..... he simply was babbling more.... and trying harder to > > use " word approximations " ... which was good! (He barely made any sounds at all > > prior to NV.....to even get him to TRY to verbalize a " word approximation " was > > very hard back then). The increase in babbling was a GOOD thing.... think about > > it..... he had delays.... and he HAD to go through the babbling stage before > > attempting to master actual words. The NV helped him with this... and more and > > more " word approximations " started to emerge in the next few months! > > > > 2. Last year, I was so consumed with worry- my son had clear delays... he was in > > EI--- he soon would be turning age 3....(which to me, meant that he would be > > transitioning from EI to a Special Needs Pre K).... all of my energy was taken > > up with worry about how my son did not speak.... and how I had to FIND A WAY to > > FIGHT the " Special Needs PK School who did NOT believe in 1:1 pull out ST.... I > > was too distraught to SEE the changes in my own child! I feel that I had " high > > hopes " that he would have an increase in speech abilities (meaning ,to me, the > > use of WORDS).... which he did not during the start of NV.... As mentioned in > > #1.... the NV assisted with the babbling... which assisted in the development of > > " word approximations " and so on.... > > > > 3. After looking at all of the old videos... and comparing them to even 1 week, > > 1 month after NV.... all the way up to the present..... it is CLEAR that > > SOMETHING DID CHANGE.... FOR THE BETTER! I CAN recall feeling really upset > > inside in the past.... because some of the moms who took the time to post > > " before and after videos of their children on NV " seemed to have kids who > > " seemed to have better Speech abilities than my Son on their BEFORE NV > > Videos " ... I was happy for them....(their kid's progress AFTER NV was very > > obvious)! I also, felt sad when I compared my son to these other kids.... when > > I compared him to them, he seemed to be even more behind in speech to me.... I > > can recall feeling quite depressed about this. > > > > 4. Months later..... with a clearer mind..... (more time to internally ACCEPT my > > Son's Speech Delays- and deal with them from a point of strength)... and also > > due to the fact that I DID obtain 1:1 pull out ST at the PK level in my > > State.... (Thanks again - for empowering me to achieve this).... I CAN now > > see differences.. and will describe them as follows... (Again, We just looked > > at a bunch of old videos of our Son.... the differences were CLEAR to us... and > > also to our Family Members who watched these with us).... > > > > 5). BEFORE NV > > - all Baby videos of Tyler show hardly any babbling other than MUM MUM MUM... he > > WAS able to create some pretty powerful Raspberries though! > > - older videos show clear Sensory Issues starting at age 5 months old.... Ty was > > screaming every time he was placed on grass in bare feet, He also had huge > > sensory issues at bath time..(it took awhile to get him used to the sensation of > > being in water). there were feeding issues (gagging on certain textures) that > > continue to this day as well. > > > > SHORTLY BEFORE START OF NV... (age 2 forward).... I seemed to ALWAYS be trying > > to get > > Tyler to point out his body parts on old videos.... He REALLY could point to his > > nose, his mouth, etc.... he just never did it on a video.... I sounded so > > pathetic on these videos... I kept asking him to show me his nose.... I kept > > asking him to talk to me.... and he appeared to have a blank look on his face as > > I did this. He would smile from time to time.... but he also always seemed to > > have a " BLANK " expression on his face... and his mouth used to hang open.... > > His eyes often, had no sparkle.... (my dad used to tell me that he thought > > Tyler was autistic during these days).... Tyler always TRIED to be social with > > others.... he also loved to hug others.... and he DID know where his nose and > > mouth, etc were.... he had " no words " .... but his smiles and hand/arm " gestures " > > made up for this. If I asked him " how big are you " ... he would raise his arms > > up in the air with a huge grin and say OOO eee (so big). Looking back, it almost > > seems like Tyler did not like " being put on the spot " to " talk " ..... in these > > old videos..... Tyler was a smart little kid... he started ST with EI at age 20 > > months.... he used to smile, and place his fingers in his ears when the > > therapist tried to work with him. He KNEW that " this speech stuff " was HARD! > > > > - I have a video of Tyler the day before we started NV..... we were going > > through home-made " Flash Cards " together (laminated pictures of family members, > > favorite toys and pets).... He was very distracted.. and became upset > > quickly... He continued to have a " blank expression " . > > > > AFTER NV.... > > The blank look on his face was gone by the second month after NV.... his FOCUS > > improved.... which caused his attention span during his ST sessions to > > improve... Speech abilities transitioned from babbling to more word > > approximations. the increase in his attention span helped him to get more out of > > his ST Sessions! He was able to follow directions better-- and he was more > > willing to TRY! We have always loved a " Fun Class for kids " called > > Kindermusik.... these classes are offered in most states- and they are awesome! > > Prior to NV, Tyler spent his Kindermusik class times trying to crawl toward to > > exit door.... NOW- he is engaged, follows directions... and LOVES IT! His > > " Words " have increased to the point where he can put together 3 word > > sentences..... such as " MUH OWE ON " (My show on)... He started to have an > > increased interest in singing this past July for the first time..... If I " sing > > simple songs slowly " .... he can follow me! This is the child who seemed to have > > zero interest in simple Nursery Rhymes at age 2 and age 3! He will be age 4 in > > March.... and, starting about 2 months ago, he is " catching up " to learning all > > of those Nursery Rhymes! (He can't sing them like " typical kids do " ).... BUT HE > > IS SINGING! It is beautiful! > > > > Have to include this.... Ty's version of " Twinkle Twinkle Little Star " .... > > EE OHL EE OHL EE- EE ARE... (Twinkle, twinkle little star) > > OW AYE WUH OO OW OO ARE. ( how I wondor what you are).. W's are hard- he has > > learned to put his hand over his mouth to " make the windy sound " when he > > attempts " W's " > > U-PAH uh uh WHHH-ole oh AYE! (S sounds are also hard).. > > > > He can spell his name to ther tune of the song " Bingo " now as well... He says > > T- AYE - luh - E- R-uh. He can count out objects up to 6.... he can identify > > colors... he DANCES! He is drawing the letter " T " correctly-- and often does it > > all over my walls in crayon! (I do not like this- but he is so cute.... I ask > > " who did this " .... he proudly, responds " ME " . > > > > We are very busy with all of his therapies... and also have a very advanced > > older daughter who is a firecracker.... (involved in dancing and acting > > classes.. and is doing an amazing job at it at only age 5.8 yrs old)- she talked > > early, knew her ABCs early... EVERYTHING she did and still does is EARLY. It is > > a CHALLENGE to balance our lives/schedules to meet the needs of these 2 > > children! We never " pushed " " potty training with Tyler " .... yet, he > > essentially, figured it all out on his own by simply trying to copy his older > > sister! > > > > In conclusion, I feel that Tyler has come very far in a short time.... and I > > BELIEVE that NV has assisted him to do this. We also are giving him the NN Fish > > Oils... he takes 2 Pro EFA, and one Pro EPA per day.... (These are huge gel > > caps--- I pierce them with a pin- and squirt them into his mouth). HE LOVES > > THEM! > > > > PLEASE-- to any of you who doubt NV-- DO NOT GIVE UP if it does not seem to > > create " instant miracles " .... MOST people do see immediate changes.... and some > > do not... (I fell into this category in my son's case), but if you had the > > patience to read my detailed descriptions of how my son was " Prior to NV " ... you > > can see that he had SIGNIFICANT Speech Delays! I feel that the NV assisted my > > Son to " go through the normal process of achieving developmental milestones that > > he was not able to achieve " ...... and CHILDREN MUST go through these milestones, > > as part of their development! YES- we all want our children to SPEAK at an age > > appropriate level...... when we have kids affected by Apraxia- this DOES NOT > > OCCUR! I feel confidant that NV assisted my son to " catch up " .... Yes- his > > Speech remains delayed.... but he improves every week! My child is a SMART > > kid--- now that he is more focused, and more confidant-- he WANTS to try to talk > > MORE! He learned and memorized the entire song " BINGO " during a short drive in > > the car (when his older sister, who interrupts him was not present)! > > > > He also has a diagnosis of Hypotonia.... and wore DAFOs (Orthotic Braces) from > > age 20 months on to assist with ankle pronation. His braces have been cut down > > in size! He can RUN, he can climb! > > NV IS HELPING HIM! > > > > > > ===== > > Quote Link to comment Share on other sites More sharing options...
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