Guest guest Posted May 19, 2010 Report Share Posted May 19, 2010 I am so glad to hear that is having such wonderful gains.... I am crying happy tears for you and your family. I'm in complete agreement that NV is providing at least and something that their body's are craving. Not sure if you have read anything that I have posted but is now 15 weeks seizure free too:-) I read that you put also on Zii? Is she still also taking this and did you notice addtional gains do to Zii ? Smiles, Alyssa ________________________________ From: rcketchem <rcketchem@...> Sent: Wed, May 19, 2010 5:15:23 PM Subject: [ ] 's 5 Month Update  I can not believe it has been 5 months since began her journey with Nutriiveda. The life changing difference that have taken place in the last 5 months have turned our life around in a way we never dreamed possible. Not just our lives, but Nutriiveda has completely change the way my husband and I are thinking in regards to 's future. Last year this time was a very difficult time for . She needed our assistance, mainly mine, for basic life skills like dressing and eating, didn't communicate much if at all in spite of any therapies we tried, and we didn't know if there was any hope in sight even though we never gave up. I prayed each night she laid her had on the pillow to go to sleep not knowing if it was the last time I'd see her alive as she had almost died of seizures and we never knew when the next big one was coming. In addition she suffered so severely from post traumatic stress syndrome from the years of inappropriate therapy and placement when she had been misdiagnosed as autistic. We didn't even know if we would be able to keep her in our home due to her home due to her extreme PTSD issues -I can't believe I'm expressing this here, this was a worst fear of mine I hid from most. But I feel I can be honest and share because life is so good now and we are thankful. Last year feels like a bad dream now even though I know that it wasn't just last year, it was most of Mel's life. But we can't look back much as there is so much to look forward to today thanks to nutriiveda. Who would have thought some of the most dramatic success she would ever have could be so simple? Last I wrote Mel had gone through so much, another misdiagnosis as Mel still is seizure free and had pneumonia , myopathies from too much Depakote in her system which is all over now. A miracle our daughter is. continues to remain completely healed from those illnesses that almost took her life once again without showing any physical or emotional signs of the very scary times in the ICU. healed in 3 weeks oppose to the 6 to 8 months time frame that we were given upon discharge of the hospital. is happy today and she too is feeling like there is hope for her future. I have learned so much in the past year. Especially in the last 5 months. I feel I have become a better advocate for my daughter. Every time I learn something it is like another piece of 's puzzle is getting completed. I shared with you the last time that we were going to take to see a DAN doctor. After several conversations with the one specific DAN doctor that we had an appointment with, I quickly canceled her appointment as without me knowing this person she was already looking to charge thousands of dollars and have me sign a six month contract. I had shared Mel's background with this person and she actually recommended ABA therapy! The very therapy that had been linked to Mel's PTSD. I asked this DAN " Do you remember my daughter's history? " Clearly she didn't bother to read Mel's blog even though it had been shared with her. I don't know why I didn't think of this sooner but my husband and I truly felt that we needed to have an appt. with one of the doctors who helped developed the Nutriiveda product as that had been such a focal point of success for Mel- and we just don't know why. I was able to get an appt. with Dr. Tom (you can find his background on this page http://pursuitofresearch.org/advisors.html ) Thanks to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2010 Report Share Posted May 20, 2010 Hi Alyssa, Congratulations on being seizure free!!! I have been reading your updates as well as keeping me updated. I am so happy for and your family. I began using the Zrii after Mel came home from the hospital. and her sister are both taking it with their nutriiveda and when the rest of us came down with the flu and cold both of them remained healthy. I will make sure I share the results from all the testing that Dr. Tom ordered. I am hoping to have the answers to all of my questions on June 7th. I know the Nutriiveda is making a huge difference for and I am now at the point I would like to know why and how. Thank you for taking the time and interest in 's updates. It truly means a lot to our family. Robin Sent from my iPad On May 19, 2010, at 8:13 PM, Alyssa Nagy <aw_nagy@...> wrote: > I am so glad to hear that is having such wonderful gains.... I am crying happy tears for you and your family. > I'm in complete agreement that NV is providing at least and something that their body's are craving. Not sure if you have read anything that I have posted but is now 15 weeks seizure free too:-) > I read that you put also on Zii? Is she still also taking this and did you notice addtional gains do to Zii ? > Smiles, > Alyssa > > ________________________________ > From: rcketchem <rcketchem@...> > > Sent: Wed, May 19, 2010 5:15:23 PM > Subject: [ ] 's 5 Month Update > > > I can not believe it has been 5 months since began her journey with Nutriiveda. The life changing difference that have taken place in the last 5 months have turned our life around in a way we never dreamed possible. Not just our lives, but Nutriiveda has completely change the way my husband and I are thinking in regards to 's future. > > Last year this time was a very difficult time for . She needed our assistance, mainly mine, for basic life skills like dressing and eating, didn't communicate much if at all in spite of any therapies we tried, and we didn't know if there was any hope in sight even though we never gave up. I prayed each night she laid her had on the pillow to go to sleep not knowing if it was the last time I'd see her alive as she had almost died of seizures and we never knew when the next big one was coming. In addition she suffered so severely from post traumatic stress syndrome from the years of inappropriate therapy and placement when she had been misdiagnosed as autistic. We didn't even know if we would be able to keep her in our home due to her home due to her extreme PTSD issues -I can't believe I'm expressing this here, this was a worst fear of mine I hid from most. But I feel I can be honest and share because life is so good now and we are thankful. Last > year feels like a bad dream now even though I know that it wasn't just last year, it was most of Mel's life. But we can't look back much as there is so much to look forward to today thanks to nutriiveda. Who would have thought some of the most dramatic success she would ever have could be so simple? > > Last I wrote Mel had gone through so much, another misdiagnosis as Mel still is seizure free and had pneumonia , myopathies from too much Depakote in her system which is all over now. A miracle our daughter is. continues to remain completely healed from those illnesses that almost took her life once again without showing any physical or emotional signs of the very scary times in the ICU. healed in 3 weeks oppose to the 6 to 8 months time frame that we were given upon discharge of the hospital. > > is happy today and she too is feeling like there is hope for her future. > > I have learned so much in the past year. Especially in the last 5 months. I feel I have become a better advocate for my daughter. Every time I learn something it is like another piece of 's puzzle is getting completed. I shared with you the last time that we were going to take to see a DAN doctor. After several conversations with the one specific DAN doctor that we had an appointment with, I quickly canceled her appointment as without me knowing this person she was already looking to charge thousands of dollars and have me sign a six month contract. I had shared Mel's background with this person and she actually recommended ABA therapy! The very therapy that had been linked to Mel's PTSD. I asked this DAN " Do you remember my daughter's history? " Clearly she didn't bother to read Mel's blog even though it had been shared with her. I don't know why I didn't think of this sooner but my husband and I truly felt that we needed to have an appt. > with one of the doctors who helped developed the Nutriiveda product as that had been such a focal point of success for Mel- and we just don't know why. I was able to get an appt. with Dr. Tom (you can find his background on this page http://pursuitofresearch.org/advisors.html ) Thanks to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Great, Great, Great update !!!! Keep us posted Robin !! Demi From: rcketchem <rcketchem@...> Subject: [ ] 's 5 Month Update Date: Wednesday, May 19, 2010, 5:15 PM Â I can not believe it has been 5 months since began her journey with Nutriiveda. The life changing difference that have taken place in the last 5 months have turned our life around in a way we never dreamed possible. Not just our lives, but Nutriiveda has completely change the way my husband and I are thinking in regards to 's future. Last year this time was a very difficult time for . She needed our assistance, mainly mine, for basic life skills like dressing and eating, didn't communicate much if at all in spite of any therapies we tried, and we didn't know if there was any hope in sight even though we never gave up. I prayed each night she laid her had on the pillow to go to sleep not knowing if it was the last time I'd see her alive as she had almost died of seizures and we never knew when the next big one was coming. In addition she suffered so severely from post traumatic stress syndrome from the years of inappropriate therapy and placement when she had been misdiagnosed as autistic. We didn't even know if we would be able to keep her in our home due to her home due to her extreme PTSD issues -I can't believe I'm expressing this here, this was a worst fear of mine I hid from most. But I feel I can be honest and share because life is so good now and we are thankful. Last year feels like a bad dream now even though I know that it wasn't just last year, it was most of Mel's life. But we can't look back much as there is so much to look forward to today thanks to nutriiveda. Who would have thought some of the most dramatic success she would ever have could be so simple? Last I wrote Mel had gone through so much, another misdiagnosis as Mel still is seizure free and had pneumonia , myopathies from too much Depakote in her system which is all over now. A miracle our daughter is. continues to remain completely healed from those illnesses that almost took her life once again without showing any physical or emotional signs of the very scary times in the ICU. healed in 3 weeks oppose to the 6 to 8 months time frame that we were given upon discharge of the hospital. is happy today and she too is feeling like there is hope for her future. I have learned so much in the past year. Especially in the last 5 months. I feel I have become a better advocate for my daughter. Every time I learn something it is like another piece of 's puzzle is getting completed. I shared with you the last time that we were going to take to see a DAN doctor. After several conversations with the one specific DAN doctor that we had an appointment with, I quickly canceled her appointment as without me knowing this person she was already looking to charge thousands of dollars and have me sign a six month contract. I had shared Mel's background with this person and she actually recommended ABA therapy! The very therapy that had been linked to Mel's PTSD. I asked this DAN " Do you remember my daughter's history? " Clearly she didn't bother to read Mel's blog even though it had been shared with her. I don't know why I didn't think of this sooner but my husband and I truly felt that we needed to have an appt. with one of the doctors who helped developed the Nutriiveda product as that had been such a focal point of success for Mel- and we just don't know why. I was able to get an appt. with Dr. Tom (you can find his background on this page http://pursuitofresearch.org/advisors.html ) Thanks to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Hi Demi, Thanks for taking time to read our latest update. Can't wait to share the results with you after the 7th. How are you and your family doing? Take care, Robin Sent from my iPad On May 21, 2010, at 11:04 AM, td232006 <td23@...> wrote: > > Great, Great, Great update !!!! Keep us posted Robin !! > > Demi > > > > From: rcketchem <rcketchem@...> > Subject: [ ] 's 5 Month Update > > Date: Wednesday, May 19, 2010, 5:15 PM > > > > I can not believe it has been 5 months since began her journey with Nutriiveda. The life changing difference that have taken place in the last 5 months have turned our life around in a way we never dreamed possible. Not just our lives, but Nutriiveda has completely change the way my husband and I are thinking in regards to 's future. > > Last year this time was a very difficult time for . She needed our assistance, mainly mine, for basic life skills like dressing and eating, didn't communicate much if at all in spite of any therapies we tried, and we didn't know if there was any hope in sight even though we never gave up. I prayed each night she laid her had on the pillow to go to sleep not knowing if it was the last time I'd see her alive as she had almost died of seizures and we never knew when the next big one was coming. In addition she suffered so severely from post traumatic stress syndrome from the years of inappropriate therapy and placement when she had been misdiagnosed as autistic. We didn't even know if we would be able to keep her in our home due to her home due to her extreme PTSD issues -I can't believe I'm expressing this here, this was a worst fear of mine I hid from most. But I feel I can be honest and share because life is so good now and we are thankful. Last > year feels like a bad dream now even though I know that it wasn't just last year, it was most of Mel's life. But we can't look back much as there is so much to look forward to today thanks to nutriiveda. Who would have thought some of the most dramatic success she would ever have could be so simple? > > Last I wrote Mel had gone through so much, another misdiagnosis as Mel still is seizure free and had pneumonia , myopathies from too much Depakote in her system which is all over now. A miracle our daughter is. continues to remain completely healed from those illnesses that almost took her life once again without showing any physical or emotional signs of the very scary times in the ICU. healed in 3 weeks oppose to the 6 to 8 months time frame that we were given upon discharge of the hospital. > > is happy today and she too is feeling like there is hope for her future. > > I have learned so much in the past year. Especially in the last 5 months. I feel I have become a better advocate for my daughter. Every time I learn something it is like another piece of 's puzzle is getting completed. I shared with you the last time that we were going to take to see a DAN doctor. After several conversations with the one specific DAN doctor that we had an appointment with, I quickly canceled her appointment as without me knowing this person she was already looking to charge thousands of dollars and have me sign a six month contract. I had shared Mel's background with this person and she actually recommended ABA therapy! The very therapy that had been linked to Mel's PTSD. I asked this DAN " Do you remember my daughter's history? " Clearly she didn't bother to read Mel's blog even though it had been shared with her. I don't know why I didn't think of this sooner but my husband and I truly felt that we needed to have an appt. > with one of the doctors who helped developed the Nutriiveda product as that had been such a focal point of success for Mel- and we just don't know why. I was able to get an appt. with Dr. Tom (you can find his background on this page http://pursuitofresearch.org/advisors.html ) Thanks to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2010 Report Share Posted May 21, 2010 Hi Robin,  continues to have steady progress. You can see she is more aware but I wish the language would come faster. Last time she went for horseback riding though she said " walk on horse. " which is amazing since she does not say 3 word sentences. I think for some, as you noted before, improvement continues as time goes on, so I am hoping I will see more and more speech. At school now I am getting reports of great days and doing good work. A couple of months ago I was getting notes that she was not listening and not wanting to do her work and having some meltdowns. I am keeping my fingers crossed. This month though she battled the flu with fever, then when she recovered from that she got a cold (runny nose) and then this Wednesday she got the stomach flu....which by the way we all ended up getting. Let me just say it was pretty nasty :-) So hopefully now that she has recovered for the most part from the stomach flu, we will see faster gains. As you can see the month of May was not a healthy month for her. Let me tell you her brothers really loved her passing on that stomach flu ! Let's just say the toilet had a revolving door in my house this week !!  Looking forward to reading more posts on .  Take care, Demi (part of 's cheering section :-) > > From: rcketchem <rcketchem@...> > Subject: [ ] 's 5 Month Update > > Date: Wednesday, May 19, 2010, 5:15 PM > > > > I can not believe it has been 5 months since began her journey with Nutriiveda. The life changing difference that have taken place in the last 5 months have turned our life around in a way we never dreamed possible. Not just our lives, but Nutriiveda has completely change the way my husband and I are thinking in regards to 's future. > > Last year this time was a very difficult time for . She needed our assistance, mainly mine, for basic life skills like dressing and eating, didn't communicate much if at all in spite of any therapies we tried, and we didn't know if there was any hope in sight even though we never gave up. I prayed each night she laid her had on the pillow to go to sleep not knowing if it was the last time I'd see her alive as she had almost died of seizures and we never knew when the next big one was coming. In addition she suffered so severely from post traumatic stress syndrome from the years of inappropriate therapy and placement when she had been misdiagnosed as autistic. We didn't even know if we would be able to keep her in our home due to her home due to her extreme PTSD issues -I can't believe I'm expressing this here, this was a worst fear of mine I hid from most. But I feel I can be honest and share because life is so good now and we are thankful. Last > year feels like a bad dream now even though I know that it wasn't just last year, it was most of Mel's life. But we can't look back much as there is so much to look forward to today thanks to nutriiveda. Who would have thought some of the most dramatic success she would ever have could be so simple? > > Last I wrote Mel had gone through so much, another misdiagnosis as Mel still is seizure free and had pneumonia , myopathies from too much Depakote in her system which is all over now. A miracle our daughter is. continues to remain completely healed from those illnesses that almost took her life once again without showing any physical or emotional signs of the very scary times in the ICU. healed in 3 weeks oppose to the 6 to 8 months time frame that we were given upon discharge of the hospital. > > is happy today and she too is feeling like there is hope for her future. > > I have learned so much in the past year. Especially in the last 5 months. I feel I have become a better advocate for my daughter. Every time I learn something it is like another piece of 's puzzle is getting completed. I shared with you the last time that we were going to take to see a DAN doctor. After several conversations with the one specific DAN doctor that we had an appointment with, I quickly canceled her appointment as without me knowing this person she was already looking to charge thousands of dollars and have me sign a six month contract. I had shared Mel's background with this person and she actually recommended ABA therapy! The very therapy that had been linked to Mel's PTSD. I asked this DAN " Do you remember my daughter's history? " Clearly she didn't bother to read Mel's blog even though it had been shared with her. I don't know why I didn't think of this sooner but my husband and I truly felt that we needed to have an appt. > with one of the doctors who helped developed the Nutriiveda product as that had been such a focal point of success for Mel- and we just don't know why. I was able to get an appt. with Dr. Tom (you can find his background on this page http://pursuitofresearch.org/advisors.html ) Thanks to Quote Link to comment Share on other sites More sharing options...
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