Re: Autism Rate Now at One Percent of All US Children? yep i'm pissed off!

[Guest guest]

I understand where you are coming from about your niece BUT you have not walked

into a room a saw a little boy who wanted there mommy after she got off of work,

he would crawl to me with a big smile saying " mama " .My son was NORMAL at 2 years

old he was using 2 words and dancing to music and was able to tell me when he

was hungry or needed his pamper changed. Two weeks later he got a shot (MMR plus

chicken poxs in one shot called pro-qaud, which was later recalled stating it

gave children siezures, not autism)regressed into non-verbal and a very stimmy

little guy who was 4 months later diagnoised with autism.

NOW~ My son doesn't care if I'm in the room or not and is non-verbal.

Let me guess, you want me to teach my son to have emotions, so when I walk into

a room he gets happy! Well, I'm reaching for the moon, and one day all his

emotions will be nautral!!

What you are saying that parents are over rating this horrible thing called

" Autism " .... say what you want, but you are so wrong!

Because of therapy and bio-medical intervention, my son is coming back to us and

your words are all pretty and tied into a little bow, that's the story we are

all fighting for!

You can tear into all the parents you want but you having that take on a life

with autism is wrong. You need to have empathy because your niece could have

easily been one of our children that we are fighting so hard for!

Saying that we are not giving credit to parents that worked with children that

don't have labels, you are wrong again. There are many parents that can't get

diagnosis for there child. That should show you how pervalent autism is and why

things need to be done now!!

Your story is bitter sweet, glad to see your niece is better but you need a

brain in your head!I always say if people could have a chance to raise a child

with autism and see what I did, they would change there minds!

This website is for people that want to help people out!

~

>

> I am sorry - I will say that first, because I am probably going to annoy/piss

off/or anger a number of people on this page - but I have to respond to this...

>

> At the very bottom of this - there is a trio of possible explanations - why

why why is that not the LEAD of this information - because really the point is:

> 1. That a LOT of children are mis-diagnosed, for many many financial reasons -

it benefits insurance companies, school districts, psychologists, counselors,

etc etc etc and above all drug companies to have more and more children

diagnosed with SOMETHING - to have the spectrum expanded more and more and more

to include any and all things no matter what.

> 2. That some children recovered from ASD on their own - without treatment -

I'm sorry again - what is NOT counted in this group is the parents -and

grandparents who taught the child, who work with them - as all parents used to -

the teachers who worked with a child who was struggling a little - to get them

up to grade level - WITHOUT putting a label on them - or sending them to special

ed or extra classes that would create a label on them for life..

>

> I have watched for 2 years as my niece was bounced from place to place - after

being speech delayed - due to a one-time high fever that affected her brain

function - watched 'experts' who spent 20 minutes with her diagnose her as

PDD... because she would not interact with them - because she was 2, and didnt

know them?? 20 years ago that was a shy child - not one with a " disorder " - and

their parents gradually taught them how to interact more - not by taking them to

classes, not by putting them in therapies, and training, and worrying about

whether they would ever function, because they are " autistic " -- but by taking

them out, having expectations for them, modeling the behavior they expected, and

accepting nothing less than that - by spending time -

>

> Yes, I know - I am going to be put out there as the evil one who doesnt

understand challenges, and who is heartless.. nothing is further from the truth

- I have watched my sister, and my nieces father, and ALL of the extended family

teach her to talk, work through her tantrums with her, her frustration - that

YES, at times can mimic autistic behavior. We even tried putting her in a class

for PDD/ASD children - anyone want to know what happened? she mirrored THAT

behavior - the rocking started, the tantrums got worse, WHY? because that was

behavior that was accepted as part of the spectrum in the classroom - that it

would stop when the child was ready, etc etc. When we pulled her out - and

restructured her expectations, all behaviors that would have been considered

'spectrum' stopped. It takes work, it takes dedication.

>

> Am I saying there are no autistic children - NO - there absolutely are! But -

just as with diabetes 10 years ago - when you change the definition, or the

parameters, then you can say " Look, the rate is rising " - and get more money.

>

> Wake up - Work with your children who are just barely on the 'spectrum' -

don't just accept the diagnosis - look at the child - they are more than the

label - they are yours - and you are responsible - ultimately for making them

functional in society - which will make them happy - i promise you! The

tantrums will slow and stop when they understand the rules of life.. it is the

not knowing that will cause a toddler to flip out mysteriously.

>

> Thank you for listening - and again - I say this not to hurt, but to say -

PLEASE PLEASE do NOT accept numbers and labels - they are CHILDREN - and they

need your time - and your love- and your discipline- not a label and a

counselor, psychologist, therapist, etc.

>

> Best to all.

> LT

>

>

>

[Guest guest]

I never said there was no children with Autism - and I will NEVER say that - I

have worked with children like your son, and you have my sympathy- and my

support

My point was the One Percent - it is a change in criteria, not for children like

your son, but for children with speech delays, or lesser issues - They are NOT

autistic, and they CAN be " cured " because there was no autism there to begin

with.

Again - I apologize if I offended you - your situation is NOT what I was

referring to at all. It is the growth of the ASD definitions, to include speech

delay, slight emotional withdrawl, shyness even - are now " disorders " - that was

my point - question the diagnosis.

My best to you - and your son - I hope he continues to grow, and you find ways

to reach him, in his world, and bring him into yours. If I may suggest - this

website www.option.org - there is an AWESOME program there that has been in

process for 30 years - there are children who were diagnosed autistic, who went

on to graduate from college, and more - because of the work done there - the

ability they have to go into the child's world, and bring them back to us.

best always

LT