Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Gretchen, I am sorry your friend is so disillusioned. No, there are no easy fixes, but if you understand a little about how our bodies work, and the metabolic processes that toxins interfere with and missing enzymes and the malabsorptions, both at gut and cellular levels, and how providing the missing nutrients helps. I mean this list is all about fish oil interventions and other oils in the PRO EFA?EPA and this may work great for some kids but for mine this was not helping and she was severly deficient in fatty acids in spite of all the supplementation because she was missing other things to help with fatty acid absorptions. Carnitine helped with that as did vitamin E. The B12 shots have been miraculous--she went from barely being able to say mama a year and a half ago, to being mainstreamed in kindergarten today and doing great behavior wise, speech wise, --she's a completly different child since we stumbled across the protocol that works for her and we're always refining and adjusting it based on new tests and what we see working and what doesn't. it is all trial and error and it is not cheap---but the alternative of sitting and waining and just providing therapy is not very encoutraging either. Prior to Biomed 3 apracxia experts declared they could not work with her due to non-complience, and she had less than 25 intelligeable words at 3.5 years. Her progress is amazing and it keeps getting better, she now speaks in 6-7 word sentences, has over 3000 words and we've really stopped counting, is respectful social, makes friends, tells me stories and is pretty much normal in all ways except her speech and languagte which continue to need work, but at this rate she will be catching up with her peers in the next few years and hopefully be indistingushable. ASD kids have it rougher, there are more things wrong, more malabsorptions, food intolernaces, bacteria, viruses, parasites etc--my daughter too had all these but we've been keeping them under control, healng her gut and healing her brain by providing the missing nutrients. Fish oil alone just doesn't work for many of these kids, certainly not the more affected ones who are missing so much more and certainly not for those getting just therapy and prayer. it takes effort and yes, money and the parents have to be their child's best doctor, DANs do not know it all either, this is new for everyone and many DAN protocols can actually do more harm--like improper chelation, HBOT prior to chealtion, etc. Just like with drugs, these things are not full proof and there are no guarantees. But parents should do their research and select a biomed doc whom they can work with, not one they just trust blindly becuase no one knows your child better than you, so it is up to you ultimately--but you need to learn a lot before you can even know waht to look for in a doctor on in seeing if anything is working or not. Everything is hard and complex, but many have found amazing results and healing and just because others do not have the same results should not discourage parents who are considering biomed. Again, my daughter just had apraxia and neurological soft signs, but her apraxia was severe and at 3.5 we were going no where. Biomed changed all that and I feel very sorry some parents are discouraged from even considering biomed for their neurologically damaged child becuase the gut/brain cnnection is HUGE. The neuroscience research is there, the microbiology researc is there, but mainstream clinical practice will take decades to figure out a profit angle on it so many kids will not benefit unfortunately and will not be able to overcome their brain/immune/metabolic problems. Anyway, i am sorry your frien is discouraged, and I understand how that can be, but you did mentionm her child is recovered so surely all the things she did must have helped some. In the end it is up to you, but do your research well and think outside the box, be observent and try to understand the mechanisms which are affected and what can help. Many of these kids have delayed or defecvtive methylation. MB12 helps with just that, but others have additional problems that need tpo be addressed so it will not help all kids the same way--it really is highly individualized and parents need to be involved and co construct the treatment protocol with the biomed doctor. it is a lot of responsibility and many poarents are not comfortable with that, they want the " expert " knowledge and are looking for quick fixes, but when it comes to metabolic and immune/nneyurological damage, there ar eno quick fixes. So I just wanted to put another perspective out there since I personally know many, and I mean many parents whose children are if not recovered, well on their way since biomed and my own daughter is a perfect example of biomed protocol success. And does she regress when back on a regular diet and no supplements--? Yes she does, we've tried it and seen the results. We have npo doubt we are on the right path here and we just need to keep refining and understanding and hope we get it almost right in the end. But if you don't even try, you'll never know, and I do know apraxic children whose aprents did not try biomed because they did not believe it would work, no clinical studires they said etc. Some of the kids progresed well just with therapy, but others did not. Are these aprents sorry they did not try biomed sooner???__You bet. Are they trying it now?--yes, but still with half measure s and it's hard at this age as the kids no longer do as mthey are told and quite franlkly the metabolic/neurologica damage has goitten worse over the years so results may be even slower to come by now. Should they keep mtrying if they see the slightest progress and keep learning? I think yes, but we all do the best we can 9in the end. Good luck to all. Elena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 hi, I agree what is helping my son is floortime, sensory intergration therapy and speech and keeping him out of special ed ________________________________ From: Gretchen Walsh <gretchie9@...> Sent: Wednesday, August 19, 2009 4:03:29 PM Subject: [ ] Biomedical and DAN Dr's Hi friends! After reading a lot of posts lately about Biomedical intervention - I looked into it for my son . is almost 4 and was diagnosed with apraxia last year. He's made great strides over the past year - learning to blow bubbles, and putting together more and more sentences. His articulation is also improving but he still has a long way to go. We have seen a lot of peaks and valleys when it comes to his improvements. Although does not have autism, I thought that possible biomedical testing might help us get to the root of the problem (heavy metals, mercury poisoning, digestion and absorption problems). I contacted a very good friend of mine whose 10-year-old son has autism. I knew if there was a therapy or test out there, she had probably tried it. Her son Jack was diagnosed with autism as a toddler, but is mainstreamed in school and doing great! I told her that the DAN Dr we contacted told us it would be $600 for our first visit, $300 for the follow up and $250 for every appointment after that - all out of pocket. You can't put a price on our child's language, so I was willing to pay that, but I was concerned about what kind of success we would see. Would dietary changes - like eliminating wheat and dairy from a kid's diet whose not allergic to either - really help? Could hyperbaric chambers and B12 shots help heal ? For those of you like me - who may be on the fence - Here was this veteran mother's response to my questions about DAN Dr's and Biomedical testing/interventio n... Gretchen- Honestly I am probably the worst person to ask this question, but you know I'll tell you the truth. I don't believe in half of the crap that is out there. It seems to me that everyone wants to get their hands on a quick fix and there just aren't any. We tried the diets and they were a miserable failure. They didn't work, and they made everyone miserable! I know McCarthy swears by DAN and the diets, and mercury poisoning and gut issues- but I have to be honest- I think time and being proactive are the best treatment you can give. It's so frustrating when they are little, because it seems like they aren't getting better- but 5-6 is a magical age when everything you've done starts to come together. I have a lot of friends in the autism community who have tried all of things you are thinking of trying, and not a one of them has had any success with any of them. We have friends who went to the DAN dr.'s, who subjected their children to chelation therapy, who severely restricted their diets, and every other miracle cure out there. Some of them are to the point of bankruptcy in trying these things, and it pisses me off. If the dr.'s really wanted to help- they could make it affordable- and it's not. It reminds me of snake oil cures. But that's just me- I'm quite the cynic. I feel like there are a lot of people out there just looking to profit on our hope. I would sell my soul for Jack to be " normal " - whatever the hell that means, but there aren't really any quick fixes to neurological disorders. I will tell you that when he turned 6, he was so much better than when he was 5. It wasn't any one thing we did in particular- it was working with him through his therapy, immersing him in normal daycare, school, and just being consistent. I don't know if that will work for you since you are dealing with something a little bit different, but I am sure everything you are doing is going to help Coop out in the long run. You will be amazed when it all comes together and you see how much everything you did actually did help him. It's just a slow steady process. I wouldn't spend money on the false hope that these dr.'s sell, but if you find something that works- let me know. I have yet to find anyone (other than jenny mccarthy) who has found any of that stuff to work. I think that until they find out what causes these disorders, it's just a shot in the dark trying to figure out how to fix it. Take care Gretchen- it will get better. Mandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Hi~ Not to put my two cents in...but I feel every child is different. What effects one child will not effect another child. With that being said, I am sad by Mandi's exprience with a DAN. I take life just like she does for my child, not expecting things to work, but willing to pay for things " just to see " . I have great people in my life that are willing to support my son and cure his autism. We have seen the same doctor that follows DAN protocols for about a year now, and I must say that there has been a " difference " in my son who is 3 years old with autism. I always say to myself " what if this is him getting better by himself or what if it's the vitamin protocol we are on " ---- I will never know> He went from non-verbal to making approx. and stimming on doors and tv to just watching doors and being able to watch tv without stimming. He also is able to sign in ASL very well and he makes approx. with his mouth all the time. He's swimming and his receptive language has gone up. --- needless to say is this the theraies and biomedical treatment he is on or is this me pushing him everyday and not giving into his negative behaviors......I really don't know. But either way I am fine because the biomediacal treatment and therapied aren't hurting and my attitude towards his behaviors aren't either. Honestly I l think that the biomedical treatment has helped and I would encourage anyone with a great DAN doctor, and are seeing improvement to continue with thier treatment. Our DAN is about 90.00 a session witch is cheap comparing to your cost for a DAN doctor but my doctor is very compassinate and understand what's going on in this world. She attends all the DAN conferences and I believe she knows what she is doing. She NEVER pushes use to go to far and thanks us for understanding her ways. I say find a good doctor, and maybe you will find away to improve your child condition......good luck and hope you find what will help. disorders like autism and apraxia are mysteries hope you find what helps! ~ > > Hi friends! > > After reading a lot of posts lately about Biomedical intervention - I looked into it for my son . is almost 4 and was diagnosed with apraxia last year. He's made great strides over the past year - learning to blow bubbles, and putting together more and more sentences. His articulation is also improving but he still has a long way to go. We have seen a lot of peaks and valleys when it comes to his improvements. > > Although does not have autism, I thought that possible biomedical testing might help us get to the root of the problem (heavy metals, mercury poisoning, digestion and absorption problems). I contacted a very good friend of mine whose 10-year-old son has autism. I knew if there was a therapy or test out there, she had probably tried it. Her son Jack was diagnosed with autism as a toddler, but is mainstreamed in school and doing great! I told her that the DAN Dr we contacted told us it would be $600 for our first visit, $300 for the follow up and $250 for every appointment after that - all out of pocket. You can't put a price on our child's language, so I was willing to pay that, but I was concerned about what kind of success we would see. Would dietary changes - like eliminating wheat and dairy from a kid's diet whose not allergic to either - really help? Could hyperbaric chambers and B12 shots help heal ? > > For those of you like me - who may be on the fence - Here was this veteran mother's response to my questions about DAN Dr's and Biomedical testing/intervention... > > > Gretchen- > Honestly I am probably the worst person to ask this question, but you know I'll tell you the truth. I don't believe in half of the crap that is out there. It seems to me that everyone wants to get their hands on a quick fix and there just aren't any. We tried the diets and they were a miserable failure. They didn't work, and they made everyone miserable! I know McCarthy swears by DAN and the diets, and mercury poisoning and gut issues- but I have to be honest- I think time and being proactive are the best treatment you can give. It's so frustrating when they are little, because it seems like they aren't getting better- but 5-6 is a magical age when everything you've done starts to come together. > I have a lot of friends in the autism community who have tried all of things you are thinking of trying, and not a one of them has had any success with any of them. We have friends who went to the DAN dr.'s, who subjected their children to chelation therapy, who severely restricted their diets, and every other miracle cure out there. Some of them are to the point of bankruptcy in trying these things, and it pisses me off. If the dr.'s really wanted to help- they could make it affordable- and it's not. It reminds me of snake oil cures. But that's just me- I'm quite the cynic. I feel like there are a lot of people out there just looking to profit on our hope. I would sell my soul for Jack to be " normal " - whatever the hell that means, but there aren't really any quick fixes to neurological disorders. I will tell you that when he turned 6, he was so much better than when he was 5. It wasn't any one thing we did in particular- it was working with him through > his therapy, immersing him in normal daycare, school, and just being consistent. I don't know if that will work for you since you are dealing with something a little bit different, but I am sure everything you are doing is going to help Coop out in the long run. You will be amazed when it all comes together and you see how much everything you did actually did help him. It's just a slow steady process. I wouldn't spend money on the false hope that these dr.'s sell, but if you find something that works- let me know. I have yet to find anyone (other than jenny mccarthy) who has found any of that stuff to work. I think that until they find out what causes these disorders, it's just a shot in the dark trying to figure out how to fix it. > Take care Gretchen- it will get better. > Mandi > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Hi Gretchen , I agree with your friend. I think half of what is out there is crap. We have spent so much $ on my daughter. Diagnosed with hypotnia and Apraxia. We recently went to see a doctor in Weston Florida, Dr. Udell. I was never into the Dan approach as my daughter was never diagnosed with Autism but after my friend covinced me to see Dr. Udell I agreed to go since I was going to be in Florida anyway. Before I even went I called him to see if he thought he could help my daughter, he talked to me on the phone for over an hour. When I went to see him we spent 2 hours with him and he only charged me 200.00. this is what he told me on the phone before I even went " I'm an older wealthy doctor. I've made my $ and I don't have any special needs family members, I just have an interest in this. I've taken all the Dan courses to see what the hype was about. i feel some of the methods and protocols are good and others are dangerous and not realistic. I have had great success improving tone in children and most times the speech improves as well. " I went to see Dr. Udell about a month ago, he put my daughter on B12 shots, vitamins, probiotics, and something called gluthiosine (wrong spelling) I will also start the fish oil again. I haven't started anything yet becuase my daughter has been sick. I liked him becuase he didn't charge a fortune and truly seemed to be interested in my daughter. Since I've been back in Ga he has called me several times to see how my daughter is doing. He's also going to be sending me some kit to have some testing done. He seems like a genuine person. I don't know if any of this will make a difference but you never know. ________________________________ From: Gretchen Walsh <gretchie9@...> Sent: Wednesday, August 19, 2009 7:03:29 PM Subject: [ ] Biomedical and DAN Dr's Hi friends! After reading a lot of posts lately about Biomedical intervention - I looked into it for my son . is almost 4 and was diagnosed with apraxia last year. He's made great strides over the past year - learning to blow bubbles, and putting together more and more sentences. His articulation is also improving but he still has a long way to go. We have seen a lot of peaks and valleys when it comes to his improvements. Although does not have autism, I thought that possible biomedical testing might help us get to the root of the problem (heavy metals, mercury poisoning, digestion and absorption problems). I contacted a very good friend of mine whose 10-year-old son has autism. I knew if there was a therapy or test out there, she had probably tried it. Her son Jack was diagnosed with autism as a toddler, but is mainstreamed in school and doing great! I told her that the DAN Dr we contacted told us it would be $600 for our first visit, $300 for the follow up and $250 for every appointment after that - all out of pocket. You can't put a price on our child's language, so I was willing to pay that, but I was concerned about what kind of success we would see. Would dietary changes - like eliminating wheat and dairy from a kid's diet whose not allergic to either - really help? Could hyperbaric chambers and B12 shots help heal ? For those of you like me - who may be on the fence - Here was this veteran mother's response to my questions about DAN Dr's and Biomedical testing/interventio n... Gretchen- Honestly I am probably the worst person to ask this question, but you know I'll tell you the truth. I don't believe in half of the crap that is out there. It seems to me that everyone wants to get their hands on a quick fix and there just aren't any. We tried the diets and they were a miserable failure. They didn't work, and they made everyone miserable! I know McCarthy swears by DAN and the diets, and mercury poisoning and gut issues- but I have to be honest- I think time and being proactive are the best treatment you can give. It's so frustrating when they are little, because it seems like they aren't getting better- but 5-6 is a magical age when everything you've done starts to come together. I have a lot of friends in the autism community who have tried all of things you are thinking of trying, and not a one of them has had any success with any of them. We have friends who went to the DAN dr.'s, who subjected their children to chelation therapy, who severely restricted their diets, and every other miracle cure out there. Some of them are to the point of bankruptcy in trying these things, and it pisses me off. If the dr.'s really wanted to help- they could make it affordable- and it's not. It reminds me of snake oil cures. But that's just me- I'm quite the cynic. I feel like there are a lot of people out there just looking to profit on our hope. I would sell my soul for Jack to be " normal " - whatever the hell that means, but there aren't really any quick fixes to neurological disorders. I will tell you that when he turned 6, he was so much better than when he was 5. It wasn't any one thing we did in particular- it was working with him through his therapy, immersing him in normal daycare, school, and just being consistent. I don't know if that will work for you since you are dealing with something a little bit different, but I am sure everything you are doing is going to help Coop out in the long run. You will be amazed when it all comes together and you see how much everything you did actually did help him. It's just a slow steady process. I wouldn't spend money on the false hope that these dr.'s sell, but if you find something that works- let me know. I have yet to find anyone (other than jenny mccarthy) who has found any of that stuff to work. I think that until they find out what causes these disorders, it's just a shot in the dark trying to figure out how to fix it. Take care Gretchen- it will get better. Mandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2009 Report Share Posted August 19, 2009 Hi Gretchen- I am very much in the same position as you. My son is 27 mos and has been in speech therapy for apraxia for about 4 months. He is making great progress with his SLP who specializes in apraxia and knows all the different methods (Kaufman, PROMPT etc) but he too has a long way to go. I have also been researching biomed intervention. I do think there is definitely a connection although I don't consider biomed to be a cure all but I do think it can help. I have found this link about supplementation from Dr Agin's website very helpful: http://www.dbpny.com/nutrition.html. We do the EFA and EPA supplements for . Plan to add a multivitamin shortly and maybe a probiotic. I am also considering the MB 12 nasal spray for speech improvement and carnitine supplements for low tone. The MB 12 nasal spray is not that expensive and I think if I collect enough positive research about it my pedi will be willing to try it without us having to go to a DAN which is a huge expense with no guarantee. Check out the website of Stan Kurtz who developed the MB 12 nasal spray. I think he is mentioned in one of McCarthy's books although I have not read them. I am going to talk to 's GI dr tmrw about the carnitine. There is an FDA approved supplement called Carnitor. The other stuff...chelation, HBOT, etc...scares me so I am sticking right now to stuff that in my mind has little risk of major side effects or regression. We have not tried the gluten or casein free diet either but I did just order an Omega 3 cookbook and a raw foods cookbook to try. I am also reading books like the LCP Solution and the book by Dr Bock about healing the 4 A's. Good luck to you! Keep us posted. --- In , Gretchen Walsh < Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Gretchen, Look around...our DAN charges HALF of what the DAN you looked into charges, doesn't require a non-refundable deposit, etc. If you want our DAN's information, email me offline ( whitmore_dh at ) Our DAN does additional things, also, that other DAN's don't do regarding allergies. Her treatments are a little expensive, but I found a doctor right here in my town that does it for practically nothing. I am going to see him myself tomorrow. WIll let you know how things go! in OH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Thanks ! We called Dr Demio's office. He charges $275 just to make the appointment! Then the rest of the $600 is due when you have your initial consultation. I remember the name of the doctor you have me in NE Ohio. I'll give them a call too. My husband is from Youngstown, so that would be convenient for us! Thanks again! Gretchen From: whitmore_dh <whitmore_dh@...> Subject: [ ] Re: Biomedical and DAN Dr's Date: Thursday, August 20, 2009, 6:18 AM Gretchen, Look around...our DAN charges HALF of what the DAN you looked into charges, doesn't require a non-refundable deposit, etc. If you want our DAN's information, email me offline ( whitmore_dh at ) Our DAN does additional things, also, that other DAN's don't do regarding allergies. Her treatments are a little expensive, but I found a doctor right here in my town that does it for practically nothing. I am going to see him myself tomorrow. WIll let you know how things go! in OH ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Gretchen: Your friend is right on many points. My 8dd had hydrocephalus surgery 3x between 1 and 2yrs old. So her physical challenges were her most important. We had Early Intervention her 3x a week--SLP, OT and Speech. They always told me one challenge at a time. She always reached a new milestone after her surgeries--like a blockage had been taken away and she could progress. When she finally walked on her own at 2.5 yrs old--everyone said--now she can concentrate on her speech! I didnt do any special diets, we've never to this day, been to a DAN Dr. There are a lot of autistic parents who swear by them, and that is wonderful. We have not needed one and no one has ever sugggested we go. Like your son, my dd is not autistic- so I never felt the need to take the gut issue route. I would have added the vitamins suggests in her book. There are so many things you can do on your own without going to special DAN drs. You can reduce or cut out dairy and see if it changes anything. Cut out wheat and see if you notice surges. The biggest point your friend made that is so very correct is that something really does " click " when they are 5-6 yrs old! That was the year my dd's speech literally tripled at the very least between Sept and Dec of that K year! Her therapies stayed the same---it really just seemed like she matured or the work of all those EI and preschool therapies started to kick in! Good luck and keep us posted. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Hi Gretchen, Thanks for sharing your friend's response, I too have always wondered how those interventions worked for those families trying it. It is food for thought, I appreciate your friend's insight, and I know other parents here will have different insights. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Hi my son is already 9 almost 10 and still cant get his words out he knows what he wants to say but just cant and I have been doing all kinds of biomed for 6 years i hear poeple on here talking about their kids speaking better but how do you get your child to speak at all? � thank you Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Elena, Thank you for all the wonderful information. I am wondering about bruising with Fish oil and adding vitamin E? When you are doing ProEFA and EPA from Nordic Naturals, are you using the Junior or Child's version, or the adult formulation? Have you noticed any bruising with the fish oils? If you add small amounts of Vitamin E, does that help metabolize the Fish Oil? Also, where do you purchase your Vitamin E at small doses? Thank you so much for all your advice. Jen Mother to Colleen (6 years old: apraxia and hearing impaired: nonverbal as of now. Hopeful though!!!) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2009 Report Share Posted August 20, 2009 Hi Gretchen, Dealing with biomedial is a very confusing and scary journey to go on. Unlike your friend we have had great success with biomedical/DAN! drs. We started with a DAN! in November of 07. We began the gf/cf diet on November 27th and my son said " I love you " to me for the 1st time on December 10th, he was 3. Yes, there were some things that we tried that didn't work, but just like autism, apraxia and all developmental delays it is not one size gits all. What works for one might not work for another. The absolute best thing we did for our son was hyperbaric chamber oxygen therapy (HBOT). Within the 1st 10 dives, Bradys language doubled, by the 20th his words became clear and it was the 1st time he has EVER had a normal BM. By the 40th dive his eye contact was amazing, he was participating in group play, they took off his pressure vest at school and went thru about 7 or 8 goals on his IEP (all in 1 week). But the biggest, hugest improvement we had was that we were able to potty train Brady. He was 5. Another benefit we found about going to a DAN! is that he has a seizure disorder. Actually he has 3 different type of seizures. 1) absent seizures 2) sub clinical seizures and 3)Laudeau-Kneffner Varient. Our regular ped. just said it was part of Autism and didn't bother to investigate further. Thank goodness i didn't listen to her! I could go on for a few more paragraphs but i think you get my jist. if you have any questions,e-mail me privately! Have a great evening!! le P.S. I owe a lot to McCarthy. If anything she got me off my butt and made me become an advocate for my son instead of just doing what the developemental ped told me nothing was going to help, just st/ot/pt and 1,2,3 magic! > > Hi friends! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 Gretchen, I am a cynic, much like your friend. HOWEVER, I'm too scared not to experiment with biomed because so many families truly believe that it has helped their children. Thus, we have embarked on a biomedical journey, although there are certain things on the DAN protocol that we have chosen not to do. We take the " no harm " approach. If we are confident that something will not harm our son, we will try it. So far, we're on the GFCFSF diet, probiotics, cod liver oil, vitamins, supplements, etc., but haven't seen any improvement that we attribute to biomed. It is quite possible, however, that it is helping his remediation, albeit in a very subtle manner ... who knows! We will be trying MB12 shots soon and have started a sequential homeopathy program to help with natural detox. I don't want to look back 5 years from now and say that " I wish I had _________ [fill in the blank] " Again, as long as it won't harm him, and, to the extent I can afford it without filing bankruptcy, I'll try it (even though deep down I'm skeptical). I know that a lot of people are making a lot of money on desperate parents like myself, but I simply can't leave any stones unturned ... so I try to find people that I can trust to assist me in this journey. Just another perspective ... Good luck! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2009 Report Share Posted August 21, 2009 I have done Biomed, sequencial homeopathy, B12 shots, diet, suppliments and therapy. All have helped my son who was oralverbal apraxic appear NT in 2 years. Amazing Amazing results. I have absolutely no regrets! Colleen Mother of Charlie 4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2009 Report Share Posted August 22, 2009 I was skeptical also - until we tried fish oil and my son started babbling within a couple of days (at the age of 5 1/2 years old). The best thing you can do is educate yourself. Go to generationrescue and order a couple of books and read, read, read. Start with basic supplements that all DANs recommend. Keep a log - note things that work and don't work. Keep things that work and move on slowly. Take your time. You don't have to go to a DAN! until you feel you can't proceed without one. Our DAN doctor is really good to work with. You could never work with a mainstream ped. the way you can work with a DAN (at least ours). You should never do anything that you think could hurt your child. Read about all protocols and join other . You'll get a ton of information from parents who have blazed the trail before us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2009 Report Share Posted August 23, 2009 Gretchen, I was reading the posts and you mentioned you live in Ohio. We live near Cleveland and there is a great Dan doctor near us. If you wish, please email me and I will give you more information. I think it's really important to educate yourself before you make the commitment. Go to websites, order books from the library and join other groups. We started biomed when my daughter was five and she has made tremendous strides in her apraxia. I also found a wonderful therapist who taught me how to work with her on a daily basis. This was the key for her, but I also think biomed help her very much so. Quote Link to comment Share on other sites More sharing options...
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