Re: Does anyone know a list discussing apraxia/autism research?

[Guest guest]

ApraxiaDyspraxiaBiomedSupport list

as many as 50% of ASD kids have apraxia but it is underdiagnosed and considered

to be part of autism--not treated the way it should be, --not addressed,

basically ignored as the main diagnosis takes over and everybody focuses on ABA,

RDI and the social and other obvious autistic symptoms. Many of the DS kids have

ASD and apraxia as well. They also age much faster and come down with

Alzheimer's in their 30s.  All is due to greater vulnerability to an

increasingly toxic environment  which creates oxidative stress, for the whole

body and brain in particular via malabsorptions mitochondrial dysfunction and

can be if not prevented at least delayed and greatly improved with appropriate

biomedical protocol for each patient. No it is not a one " drug " fits

all,approach. Many of the neurologicla disorders --if not all of unknown

etiology--meaning not hit by a truck or a bullet in the head--are very much

connected to metabolic processing. The brain does not exist

in a vacuum, it needs proper nutrients to function and when it doesn't get them

it begins to malfunction.  This is well established in the neuroscience

literature but clinical guidelines are dictated primarily by drug companies

interests so " feeding " the brain is not an idea that is very popular in

mainstream medicine. Not enough money in the supplements and they can't be

patented. Pro EFA is great compared to regular Costco type fish oil, but it

doesn't bring in the millions and billions of $--so drugs of all kinds are

recommended for things fish oil could address even better and without the

negative side effects. So clinical trials even on this popular and well

established substance are still lacking, and most doctors would swallow their

tongue before recommending you take something that is not in the guidelines,

even if they themselves might actually e taking it for the same reasons.

It is really a neurological spectrum continuum we're looking at, many of the

causes for the developmental disorders on the rise are similar, even when

genetic tests reveal some deletion or another--this still does not really

explain the apraxia--it is still the metabolic processing that makes that person

more vulnerable to toxins and other oxidative stressors, and this increases

their likelihood of developing neurological disorders and some may be more

prevalent than others.  Speech tends to be affected more often in children with

various known metabolic irregularities.

We are only dealing with apraxia thankfully (plus the common neurological soft

signs), but it is still brain damage, the causes are still similar--oxidative

stress due to physical and/or chemical factors.  We had all of these from birth,

deformational plagiochephaly and metabolic issues we only later found out about

which affect her immune system, enzyme production, malabsrptions at both gut and

cellular levels  and all of these make her more susceptible to opportunistic

infections--viruses, bacteria, parasites.

We've had all of these too, and yes, biomed ----done properly which identifying

what does NOT belong in the body--the oxidative stress sources and providing

appropriate diet and supplements until the oxidative stressors can be identified

and eliminated--- works miracles for some children.

It is not an easy or fast fix, but then brain damage also can take years to

develop and get progressively worse as the immune system, and metabolic

processing and neurological functioning get caught up in a vicious cycle of ill

health. there's a lot of hope for our kids.  Good luck!

Elena

From: Tim Stearns <tzebstearns@...>

Subject: [ ] Does anyone know a list discussing apraxia/autism

research?

Date: Tuesday, September 29, 2009, 7:36 PM

Hi - Does anyone know a list discussing scientific research about apraxia

and autism?

Thanks -

Tim S

[Guest guest]

WoW Elena. So much info here! I recently read the new research/article

outlining the potential connection b/w apraxia and fat malabsortion/gluten

sensitivity/low levels of many things going on in the body.

My son has mild verbal apraxia and is 2.5. He's making great progress in PROMPT

therapy, but as always we want to do more!! DO you have any guidance on

metabolic testing or allergy testing? I wonder if a change in diet

(gluten-free, etc) would make an impact, although I don't want to uproot the

entire families lifestyle if it's not something that will benefit my little guy.

What testing should we be doing? Currently all we're doing now is the Nordic

Naturals ProEFA and a basic multi-vitamin, in addition to speech therapy.

Any guidance is appreciated.

>

> From: Tim Stearns <tzebstearns@...>

> Subject: [ ] Does anyone know a list discussing

apraxia/autism research?

>

> Date: Tuesday, September 29, 2009, 7:36 PM

>

> Hi - Does anyone know a list discussing scientific research about apraxia

> and autism?

>

> Thanks -

> Tim S

>

>

>