Re: Re: I am really scared

[Guest guest]

Hi,

 

Just wanted to tell you to try and not get discouraged as you go thru these

tought times with your child.  I know it is hard, been there and am starting

again with my younger son who is 22 months old (have a 3 1/2 yr old who has

apraxia).  I too believe the more therapy the better and the more you can work

with him at home with what the therapist is doing in the sessions the more

progress you will see!  I find my son works better with me than with the

therapist at times.  Have you tried the cd Singing Sounds?  I think the website

is www.songsforteaching.com  it is like $15 or so and it is an amazing cd that

has helped both my kids learn new sounds and words.  The first time my 22 month

old heard the song he loved it and was trying to make the sounds!  Then the

second time, he said boom,boom!  It is a great cd, I would suggest trying! 

Music just has a way of getting to some kids!  There is also some other kid's

music cds out there by

Learningexpress train you can get them at thespecialneedsstore.com they are

more pricey but are also supposed to help kids that are nonverbal and verbal.  I

just ordered them so we will see how my kids like them! 

 

Oh and about the MDO, every child is different so just keep that in mind.  But

with my son we started MDO when he was 2 1/2 and even though he could barely

talk, only a few words he loved it!  He loved being around the other kids and it

helped motivate him to try to talk.  The kids were accepting of him as well.  My

only worry with sending him was if something happened to him or if someone tried

to hurt him he wouldn't be able to tell me.  That is always my concern. I would

just tell the teacher about your son so she is aware of it and can keep an eye

out on any issues that may arise. 

 

Hope this helps some!

Tina

From: karababyq <karababyq@...>

Subject: [ ] Re: I am really scared

Date: Tuesday, August 4, 2009, 4:52 PM

 

Hello-

I think scared is a normal feeling to have, and as you embark on this crazy

journey the scared feeling will come and go.

At 1 year of age my son said " mama " and then didn't say another word until he

was 3. He is now almost for and although you can't always understand what he is

saying he is definitely talking up a storm. He didn't have a language explosion

until we took out milk from his diet. He is now on all kinds of supplements, and

we are GFCF. We go to private speech twice a week, and he also gets speech from

the school district as well as a special day class. Prior to 3 he was getting

Physical Therapy, Occupational Therapy, and Speech Therapy through our Regional

Center. I definitely think the more therapy the better. I am not sure where you

live but check into the state funded programs if you haven't already.

Keep your chin up. I am sure your little one will be talking up a storm before

you know it.

Have a good day,

Kara

>

> I am new to this list. I enrolled my son into ECI when he was 19 months old.

He was behind in alot of things, but has pretty much caught up. His speech

therapist says he has apraxia and the developmental pedi said either speech

delay, apraxia, or autism. He is 27 months old now and tries so hard to talk,

but all he says is " ga " . He will say a sentence, but all Ga, ba, ca,

ma.....mostly ga. I have heard him say apple once and even gator, up, and a few

other words.

> When he was 16 mos old, he had hand foot mouth disease, took a round of

antibiotics (he was REAlly sick), and we never heard him talk again. He was

saying at least 6 words.

>

> He has good eye contact, hugs, etc. He does have some sensory issues, so we

recently enrolled him into sensory integration therapy. The therapist says she

sees most of her clients' speech improve with sensory integration.

> Do you find this true?

>

> Do you think my son will ever speak?

>

> We are seeing a DAN doc, becasue I think he has some gut issues/food

sensitivities, as I do. We see him next week.

>

> He gets speech twice a wek through ECI and sensory twice a week/private. DO

you think we need to bump up speech in private therapy?

>

> He is suppose to start MDO this fall, but I don't want to stick him in a room

of 12 other kids and have his self esteem crushed becasue he is the only one who

can't talk. This si so cruel to do to a family I just want my baby to feel

good about himself, and I am terrified. Please help me- is there any good news

ahead of us?

>