Guest guest Posted August 2, 2009 Report Share Posted August 2, 2009 I have posted twice on this group asking for assistance or advice and no one has bothered to respond. I am a frustrated parent with a child who has severe issues with communicating and has started agressive behavior to defend himself. But I have no support and it looks like other parents in similar situations are unwilling to assist or offer advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 sorry about you not getting support from this group. i gave noticed thar during the summer thar many of the most best posters are off on vacation or busy with the kids. you could tru natural late talkers group. they have been helpful to me with great advise on raising a child w communication struggles laura Sent from my iPhone On Aug 2, 2009, at 11:06 AM, " khaoskat " <khaoskat@...> wrote: I have posted twice on this group asking for assistance or advice and no one has bothered to respond. I am a frustrated parent with a child who has severe issues with communicating and has started agressive behavior to defend himself. But I have no support and it looks like other parents in similar situations are unwilling to assist or offer advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 I am so sorry I really never post on her more just read everyonce in awhile. I have been in your shoes please email me off group and you and me can support eachother, it is hard for me too respond to post off this group but we can be email buddys zoeyar8@... (((Hug)))) Sent on the Now Network™ from my Sprint® BlackBerry [ ] Goodbye I have posted twice on this group asking for assistance or advice and no one has bothered to respond. I am a frustrated parent with a child who has severe issues with communicating and has started agressive behavior to defend himself. But I have no support and it looks like other parents in similar situations are unwilling to assist or offer advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2009 Report Share Posted August 5, 2009 Goodbye- I am sorry to here you are dissapointed with the group. I read all the emails but seldom have time to answer them but if you re post I will respond. I have a 8 year old son with apraxia, juvenile diabetes, autism and sensory integration disorder. I also have a 10 year old daughter. I am going to school at ight half time to be a special education teacher and I work 50 hours a week at home as a childcare provider.This group has been an enormous help to me for me and I have learned to help many kids besides Josh. I also have 2 elderly parents I have been helping to take care of. Mom is 72 and was diagnosed with lung cancer 8 days ago ad she is also almost totally blind. Dad is 75 and in a wheelchair. They live with my younger brother and I have been helping with meals and transportation. Even if you only read the e mails.....do not leave. I really do not know what I would have done without the support I found here. Sincerely, Charlotte Henry In a message dated 8/5/2009 9:08:24 A.M. Central Daylight Time, myra.bauza@... writes: Don't leave. I'm not sure why you've slipped through the cracks, but this forum has provided me & others countless advice & ideas on how to proceed with your child's treatment. Tell us your story. From: _ childrensaprachi_ (mailto: ) [mailto:_ childrensaprachi_ (mailto: ) ] On Behalf Of khaoskat Sent: Sunday, August 02, 2009 12:06 PM _ childrensaprachi_ (mailto: ) Subject: [childrensapraxianeSubject: I have posted twice on this group asking for assistance or advice and no one has bothered to respond. I am a frustrated parent with a child who has severe issues with communicating and has started agressive behavior to defend himself. But I have no support and it looks like other parents in similar situations are unwilling to assist or offer advice. ----------------------------------------- This transmission may contain information that is privileged, confidential, legally privileged, and/or exempt from disclosure under applicable law. If you are not the intended recipient, you are hereby notified that any disclosure, copying, distribution, or use of the information contained herein (including any reliance thereon) is STRICTLY PROHIBITED. Although this transmission and any attachments are believed to be free of any virus or other defect that might affect any computer system into which it is received and opened, it is the responsibility of the recipient to ensure that it is virus free and no responsibility is accepted by JP Chase & Co., its subsidiaries and affiliates, as applicable, for any loss or damage arising in any way from its use. If you received this transmission in error, please immediately contact the sender and destroy the material in its entirety, whether in electronic or hard copy format. Thank you. [Non-text portions of this message have been removed] **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222846709x1201493018/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd =JulystepsfooterNO115) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2009 Report Share Posted August 5, 2009 I'm sorry to hear you're not giving anyone more of a chance more than sorry to say goodbye. I've personally used the search feature and flipped through pages looking for your posts, and haven't found any (unless you have another name than khaoskat). If you're posting into another thread instead of starting a new one, people may be less likely to read it. Second, I've had quite a few questions unanswered myself. Even questions where I 'bumped' the thread after 2-3 mos of not hearing a word, and I stay because there's still plenty of good info here, even if it's not getting spelled out for you personally. I don't think there are many questions left unanswered unless there is no answer at all. There's an excellent search feature - type in a few key words that you're looking for, and I almost guarantee you'll find something. Whether it's IEPs, SLPs, fish oils, allergies, diets, other conditions, etc, there is more info than you can dream of here. Running away because you're not instantly answered will damage your child's future more than your pride. If you're leaving because no one paid you attention, guess what - you have 11 answers. There goes your " I've been ignored " problem. Like you said, there are plenty of parents in similar situations. You know how frustrating it is to go through day to day life, and how little time we have to get online. The support we have here is related to the support we give here. We read what we can, and respond to what we know about. I wish I could have the info and experience of some of our 'senior' members here so that I can answer the questions I see, but I'm also glad to say that I haven't had to experience some of the things that have taught those lessons. Hope you can learn from everyone's posts, and find the answers you need. > > I have posted twice on this group asking for assistance or advice and no one has bothered to respond. > > I am a frustrated parent with a child who has severe issues with communicating and has started agressive behavior to defend himself. But I have no support and it looks like other parents in similar situations are unwilling to assist or offer advice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2009 Report Share Posted August 5, 2009 I don't post here at all I just read what others have posted and the replies and I get my infomation from that and help my daughter that way. A lot of my questions have been answered that way. If you were the one that posted " why do I even bother " (it came from khaoskat) that was actually replied to. I don't remember who replied to that, you will have to go look. Perhaps search the archives. And my response to that post would be the same the other person said. Check your IEP and if it doesn't say on there that they can change him to EEO then you need to bring request a meeting and bring that IEP and tell them that it specifically states here in the IEP that he will be receiving services weekly and demand that they move him back weekly. If you can't get it done that way get an activist or an attorney. The email you sent sounded more of a venting then of a question. And venting is good everyone needs it, but if you want a specific question answered maybe ask a specific question. When I first joined this group I posted one email and it took several days to get a reply. Knowing how busy I am with my three with all three in speech with one severe and going from this to that I can only assume other parents are just as busy if not more. Again, if it was you that posted " why do I even bother " you posted that on 8/1 got a response then posted " goodbye " on 8/2. You need to give everyone a chance to reply. Like many said everyone has something going on and some may be on vacation. If you don't post anymore at least stay and read what comes in. You can get a lot of infomation that way. ne From: khaoskat <khaoskat@...> Subject: [ ] Goodbye Date: Sunday, August 2, 2009, 11:06 AM I have posted twice on this group asking for assistance or advice and no one has bothered to respond. I am a frustrated parent with a child who has severe issues with communicating and has started agressive behavior to defend himself. But I have no support and it looks like other parents in similar situations are unwilling to assist or offer advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2009 Report Share Posted August 5, 2009 Hi, I am sorry that your questions and your post in general was not answered. I have posted several of my own with questions and I sometimes but rarely give feedback myself to others on the list. I for one only have one child who is 11 yo. I myself am more active on the board during the months when school is in session what I mean is that I actively read the posts on a daily basis and usually will read every subject line and most of the posts also. and I tend to skip the ones I can not relate to or the ones I have no experience with. Now that it is summer I am lucky if I can find the time to read the posts a few times aweek. I am mostly skimming through reading the subject titles and not reading the actual posts themselves. Due to a very busy summer therapy schedule and summer ESY services. Please do repost to the list. I for one will be keeping my eyes open and will make sure I read it so that if I can offer some help and support I can reach out to you. Please know that the list serve does have some very supportive and informative members on it. Some have even been very helpful to me in the past in lending their support as well as knowledge to me. Jeanne NH From: khaoskat <khaoskathotmail (DOT) com> Subject: [childrensapraxiane t] Goodbye @groups. com Date: Sunday, August 2, 2009, 12:06 PM I have posted twice on this group asking for assistance or advice and no one has bothered to respond. I am a frustrated parent with a child who has severe issues with communicating and has started agressive behavior to defend himself. But I have no support and it looks like other parents in similar situations are unwilling to assist or offer advice. ------------ --------- --------- ------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Do they have a blood test for serotonin? In a message dated 8/11/2009 10:08:53 A.M. Central Daylight Time, tzebstearns@... writes: Have you looked into DAN! suggestions, the book Autism: Effective Biomedical Treatments? The /Agin article in the Jul/Aug '09 Alternative Therapies in Health and Medicine? I had my speech-delayed daughter's blood tested for serotonin and amino acid levels; the test results completely changed the doctors' previous hearing diagnoses. She has a malabsorption/diagnoses. She has a mala On Sun, Aug 2, 2009 at 12:06 PM, khaoskat <_khaoskat@..._ (mailto:khaoskat@...) > wrote: > > > I have posted twice on this group asking for assistance or advice and no > one has bothered to respond. > > I am a frustrated parent with a child who has severe issues with > communicating and has started agressive behavior to defend himself. But I > have no support and it looks like other parents in similar situations are > unwilling to assist or offer advice. > > > [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2009 Report Share Posted August 11, 2009 Have you looked into DAN! suggestions, the book Autism: Effective Biomedical Treatments? The /Agin article in the Jul/Aug '09 Alternative Therapies in Health and Medicine? I had my speech-delayed daughter's blood tested for serotonin and amino acid levels; the test results completely changed the doctors' previous hearing diagnoses. She has a malabsorption/maldigestion problem. On Sun, Aug 2, 2009 at 12:06 PM, khaoskat <khaoskat@...> wrote: > > > I have posted twice on this group asking for assistance or advice and no > one has bothered to respond. > > I am a frustrated parent with a child who has severe issues with > communicating and has started agressive behavior to defend himself. But I > have no support and it looks like other parents in similar situations are > unwilling to assist or offer advice. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2009 Report Share Posted September 4, 2009 I also lost a friend last night from the same thing...She kept it a secret..no one knew...jim On Fri, Sep 4, 2009 at 1:34 PM, Mike Golden wrote: > Hello Members > > My wife, Lori, died Wednesday evening after a five year struggle with > breast cancer. We fought it with everything we could come up with. > She had a bad five years punctuated with some wonderful highlights. > The very last few days were horrific. > I want to thank some of you who have provided information as well as > moral support the last couple of years. You know who you are. > I will be leaving all the cancer forums I belong to by Sunday night, > after Lori's service. I need to get back to my normal life. > I wish you all the very best futures you can possibly have. > Thank you. > > Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2009 Report Share Posted September 5, 2009 Mike I am really sorry to hear about your wife's death. Sometimes, we do all we can do to combat disease but sometimes it is just the will of God. Thanks for your contributions to the group and best wishes in the future. Blessings GB > > Hello Members > > My wife, Lori, died Wednesday evening after a five year struggle with > breast cancer. We fought it with everything we could come up with. > She had a bad five years punctuated with some wonderful highlights. > The very last few days were horrific. > I want to thank some of you who have provided information as well as > moral support the last couple of years. You know who you are. > I will be leaving all the cancer forums I belong to by Sunday night, > after Lori's service. I need to get back to my normal life. > I wish you all the very best futures you can possibly have. > Thank you. > > Mike > > > > -- > Best regards, > Mike mailto:goldenmike@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Dear Mike, Please accept my deepest sympathies on the death of your wife. My heart goes out to you and your family. I also echo what so many others have said. The knowledge you have contributed to this group is invaluable and so appreciated. i have so many of your posts saved to refer to later. Thanks for taking the time to share with all of us, and take care of yourself. All my best wishes pax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2009 Report Share Posted September 6, 2009 Dear Mike, Please accept my sympathies also. I have tried to keep abreast of the messages on this group and others but time is of essence for my Molly but I have also benefited and appreciated the knowledge you share I shoudl also find the posts of yours and save them but hope that you may still visit to give help and encouragement ... Many blessings be upon you Gita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2009 Report Share Posted September 7, 2009 So,so sorry mike.god bless bobby ________________________________ From: [mailto: ] On Behalf Of Mike Golden Sent: 04 September 2009 07:35 PM Subject: [ ] goodbye Hello Members My wife, Lori, died Wednesday evening after a five year struggle with breast cancer. We fought it with everything we could come up with. She had a bad five years punctuated with some wonderful highlights. The very last few days were horrific. I want to thank some of you who have provided information as well as moral support the last couple of years. You know who you are. I will be leaving all the cancer forums I belong to by Sunday night, after Lori's service. I need to get back to my normal life. I wish you all the very best futures you can possibly have. Thank you. Mike -- Best regards, Mike mailto:goldenmike@... <mailto:goldenmike%40sbcglobal.net> Quote Link to comment Share on other sites More sharing options...
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