Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 I did not find him to be helpful Sent via BlackBerry by AT & T [ ] BIOMEDICAL INTERVENTIONS We are taking our daughter to see Dr. Bock in NY on June 25th. Anyone out there have any positive feedbacks about the biomedical route for Apraxia? THANKS! Kim _________________________________________________________________ The New Busy is not the old busy. Search, chat and e-mail from your inbox. http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\ -US:WM_HMP:042010_3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 what all did dr bock do for you? can i ask how he wasn't helpful? did he test for heavy metals, etc? From: mexstein@... Date: Wed, 9 Jun 2010 15:44:59 +0000 Subject: Re: [ ] BIOMEDICAL INTERVENTIONS I did not find him to be helpful Sent via BlackBerry by AT & T [ ] BIOMEDICAL INTERVENTIONS We are taking our daughter to see Dr. Bock in NY on June 25th. Anyone out there have any positive feedbacks about the biomedical route for Apraxia? THANKS! Kim __________________________________________________________ The New Busy is not the old busy. Search, chat and e-mail from your inbox. http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\ -US:WM_HMP:042010_3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Not sure if all are aware that even fish oils and nutriiveda are considered " biomedical " interventions. And for most of us it's the only biomedical intervention needed to bring our children up to speed as one provides essential amino acids and whole food nutrients and one essential fatty acids -all being linked today in research to neuro repair. Fish oils has been the gold standard in this group for over a decade -but even though relatively new -nutriiveda hands down, has created surges, so dramatic and sudden I might add, in so many areas for so many diagnosis and ages in this group that try it that it's mind blowing. And yes fish oils and nutriiveda appear to compliment each other and can and probably should be used together. Years ago I posted the main problem with fish oils is that once the children get up to speed the parents no longer post and reach out here to help the newbies. Translate they no longer post here. Just a few like me stick around once their children are doing well -most move on. With nutriiveda....OMG it's happening even faster that we are losing members to normal life!! (which is a good thing) I encourage any of you that are curious to go through the testimony page http://pursuitofresearch.org/testimonials.html as most of you know the parents or professionals behind each one there and appreciate there are many others here and email in private any one of those parents....because they are pretty much all moving on doing " normal " stuff. For example I just got an email from Dianne for example where she wrote " Liam is still making huge gains and everyone comments on it! He has developed a sudden and very age-appropriate love of dinosaurs and I have only been online as much as I have this afternoon because I've been searching for and ordering dinosaur bedding to surprise him. We're just so pleased to have him this interested in this! Our big boy! His speech continues to improve, as well as his language skills in general - just as using common phrases and answering WH questions. Amazing! " And as you'll read on the testimony page or from the parents direct -most did not expect to see any surges with nutriiveda...but just tried it and like all of us are shocked -in a great way! As Dr. Cal Lightman from Lie to Me says - " I'll eat my shoes " if you try nutriiveda and it doesn't work (or get you your money back since it comes with a 30 day 100 percent money back guarantee) I just want all the skeptics to try it because I know what your children are missing!!! Theories as to why it may be working http://pursuitofresearch.org/science.html (need to add a few more!) And again with this one unlike fish oils we won't need to raise monies for research and it won't be long until this is validated. The good news for those that want to wait- it even works for adults as I know from my Aunt Leona- and from 26 year old Ketchum http://littlemermaidmelanie.wordpress.com (but why would you even want to wait!) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Bek do you mean the Nordic Omega 3 fishies that taste like orange gummies? If you do I concur that these really really taste just like candy. I tried the Nordic worms that sounded really good =cherry flavored or something which typically I love -and know boys would love the fact that they are worms- but I had to spit them out -tasted like yucky cherry fish to me. I know others may love them- I'm really not a huge fan of eating fish oil even though I love sushi. But the Nordic fishies -even I can't taste the fish one bit. I've had a ton of adults who were really nervous to try the fishies try them because I kept saying " I promise you won't taste the fish at all " -and all have loved them -shocked that they too can't taste the fish -they somehow 100 percent got rid of any fish taste at all in them So if you are giving 3 fish a day that is providing 204 mg EPA 135 mg DHA So EPA over DHA -that is a good formula! Only difference is no GLA (omega 6) but clearly a great...but pretty expensive... option for one that can't get fish oils into a child since you only get 30 fishies in a canister and at 3 a day you are spending around 30 bucks every 10 days for each child? Here are some stats on the fishies: Suggested Use: For 2 years and over, 1 fish daily with food, or as directed by your health care professional or pharmacist. Please ensure child chews each fish thoroughly. General Nutrient Support * No artificial colorings, flavorings, or preservatives * Gluten FREE * Yeast FREE * Milk derivative FREE * Easy to chew Other Ingredients: organic tapioca syrup, organic evaporated cane juice, fish oil (from anchovies and sardines), porcine gelatin, pectin, citric acid, natural flavor, natural color (from annatto), sodium citrate. Sour Coating: organic sucrose crystals, fumaric acid One Fish Contains: EPA: 68 mg DHA: 45 mg Other Omega-3s: 23 mg Nordic Omega-3 Fishies from http://www.speech411.com I also love the Fishies from Nordic -but the ProEFA is SO much cheaper as you get 90 capsules for around ten dollars less and each one capsule has about the dosage of 3 gummies, and I'm not good at math but know that just means way way cheaper. also did you try the kids on the nutriiveda yet? How is that going?!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Over the years we have found that in most cases a higher EPA to DHA has created more surges. For some reason the both the essential fatty acids and the essential amino acids (from whole foods) create surges so quickly on, regressions so quick off -that it's easy enough to try various formulas yourself and find out what the rest of us did. EPA is a more expensive and harder to process fish oil. ProEPA has extremely high EPA with some DHA and no GLA. Most in our group found GLA (the O6 from primrose or borage seed oil) to be important too for some reason. The GLA has high anti inflammatory properties so perhaps enables the EPA and DHA to get to where it's needed crossing the tiny vessels into the brain? You only need a wee bit of GLA however. What you can try is...pure Omega 3 with high DHA which is the DHA Jr. See if you notice anything. For a huge parental feedback we organized through Cherab years ago most of us saw...nothing to so little maybe it was just normal small surges that you'd see in any speech impaired/apraxic child. To one capsule of ProEFA which is higher EPA to DHA -small amount of GLA and in almost all cases moderate to dramatic surges in the same few weeks. So you can find that out pretty quick and easy and don't worry about the DHA Jr going to waste- it's still healthy and you can take it. Then try this. Once your child is on 2 ProEFA and you'd like to raise it -try 3 capsules of ProEFA...and then...switch it to 2 ProEFA and 1 ProEPA and see where you notice dramatic more surges. We can wait -I'm just letting you know what has worked in this group for most for years. The only difference today is that with adding nutriiveda it appears you won't need as much fish oils after a few months of nutriiveda...not sure why. Perhaps it's because it supports the metabolic system? I just know I was able to reduce Tanner's dosage in half. A few of us from this group are now working with some of these doctors http://pursuitofresearch.org/advisors.html to find out why What's good about it as well as the entire product is a food and water soluble- even the vitamin A and vitamin E in it from whole food- this is because it's a powder and the way it's processed. Speaking of which -any fish oil from the liver of the fish naturally will contain vitamin A. Fish oils not made from the liver of the fish won't contain vitamin A. Cod liver oil does contain vitamin A so it's something to be aware of as it's a fat soluble vitamin. We learned in this group the hard way you don't want to mess with high levels of fat soluble vitamins when in liquid form unless under strict supervision of a medical doctor that has knowledge in this area and that you trust highly! And back to oil therapy -may want to read up on our professional anecdotal feedback from the First Apraxia Conference hosted by the Cherab Foundation http://www.cherabfoundation.org/2001/cherab-foundations-first-apraxia-conference ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 I'm so sorry -didn't mean to confuse you! The only reason I posted it was because had asked " > I just want to get some clarification on the fish oil. Why do we want > to mix PRO-EFA and PRO-EPA??? Why not just one? Why not the DHA Jr.? > I would love some clarification. > Thanks so much, > " So I was just explaining to her why. You don't have to do it that way -was just saying that it doesn't take long to find out which formula is the most effective. There are parents and professionals that have more inquisitive/investigative minds and want to know why- and I respect that as that's the way I am too. So just letting those people that do want to know why we advice the 2/1 ratio of ProEFA to proEPA to know why I do, how to find out for themselves -and giving some example of what we have found out in this group over the past 11 years. But to keep it simple -yes you can just use the 2 ProEFA and 1 ProEPA to start and that's what works for most of us. For those that don't care why that's the formula -ignore the rest. ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 Yes I wouldn't stress over it. Sometimes when you write stuff in emails you don't get the point across the way it's meant...I didn't mean " care " as in you don't care...I meant it in the same way you may buy " new and improved " Crest not really wanting to know every detail of why it's new and improved...know what I mean? Most likely as you are a parent you will mix it up a bit at some point...run out of something for example and pick up a different brand and think " well fish oil is fish oil " and not expect to see a regression...and not know why. So now you know- the only thing that matters when it comes to fish oil is dosage, formula, and quality of the oil...not name brand. In reality I discovered the higher EPA to be more effective when my niece was born and I was working on The Late Talker book and my husband took my boys to Boston as you can find in the archives ...the ProEPA was only meant for Dakota's ADHD and that was due to my conversation with Dr. AJ which was prior to her publication of the Durham study -and while she was at our conference. So Glenn left for Boston with both the boys and both ProEFA and ProEPA and gave both oils to both boys and all noticed the surges in Tanner's speech just in that one weekend. Like nutriiveda sometimes surprises are the best. (I wrote about that here http://pursuitofresearch.org/letter_lisa.html how I found this out to be good with Tanner but clearly so much more to it now than then) Oh by the way...my husband Glenn will say that HE is the one that discovered that higher ProEPA is better for apraxia because of what happened in Boston...and yes I guess so as that's how it started -but it's a long story and lots of us trying it behind the scenes and me noticing you can't get the EPA TOO high over the rest... even before I wrote about it in this group. I'm just trying not to confuse you more...but probably now got you more confused. ....and so yes the 2 ProEFA and the 1 ProEPA is the formula that most of us found to create the most dramatic surges. And because this is email -I know you care...just that you don't have to know every detail -unless you want to (and much of it again is in the archives) ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 my daughter was diagnosed apraxic and speech and motor and also autism and many other things. Because of the autism we foudn a DAN! dr for biomed and in 6 months after starting she was dropped from 3 speech teachers for above average speech. She was completely non-verbal before! We have the answer for speech for our child. I am really glad we tried. From: mexstein@... <mexstein@...> Subject: Re: [ ] BIOMEDICAL INTERVENTIONS Date: Wednesday, June 9, 2010, 9:44 AM  I did not find him to be helpful Sent via BlackBerry by AT & T [ ] BIOMEDICAL INTERVENTIONS We are taking our daughter to see Dr. Bock in NY on June 25th. Anyone out there have any positive feedbacks about the biomedical route for Apraxia? THANKS! Kim __________________________________________________________ The New Busy is not the old busy. Search, chat and e-mail from your inbox. http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\ -US:WM_HMP:042010_3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2010 Report Share Posted June 9, 2010 it may not be enough for your child...but this isn't an argument. Fish oil and nutriiveda are part of the huge world of biomedical science... and while basic and easy the majority may not need to go any further. Nobody is stopping you or anyone else from exploring more if you need to...but if you happen to read the testimony page of nutriiveda you'll find that there are actually quite a few parents who had tried various and complex (and expensive -one parent from NY told me she had spend ONE MILLION DOLLARS but she also flew to Europe etc) for biomedical approaches and some had some success -but some had no success...PRIOR to trying nutriiveda and then had dramatic results from as one parent said to me " something she tried for her son as a " goof " So the " goof " or the nutriiveda worked -imagine that. You want testing? Yes Dr. Tom http://pursuitofresearch.org/advisors.html is offering to do testing and is working with a few from this group now as he speaks about here http://pursuitofresearch.org/science.html and one of his patients is Ketchum who at 26 had been through various testing, treatments and probably TOO many approaches because one of them was Namenda which was used off label as it's meant for mainly seniors with alzheimer's. As you may or may not be aware as there is no control for Dan docs -some are now recommending medications too. Robin and her husband Tom are thrilled about working with Dr. Tom- and even better - is super excited about this. You can read about this here http://littlemermaidmelanie.wordpress.com What's good is that all here can read all, look into all, and decide what they want to try first, second etc. We haven't heard from Kimmie for a bit since I put her in touch with an SLP in her area that is helping her 10 YO essential nonverbal outside of 2 words son who ONLY WENT TO DAN DOCTORS (and more recently Dr. Amy Yasko) FOR SIX YEARS!!!! I don't care what therapeutic approach you start with- if you have no progress in a year no less SIX years...in a ten year old??? I have ZERO respect for whatever professionals Kimmie was taking her son to prior. Perhaps you do just because they are " official " or " real " biomedical people/approaches to you...which proves my point why I don't go by what others believe. Oh and PS...so much out there I didn't know which to choose and have to get off the computer. But if you want to study up on fish oils look under PUFA such as here from the National Center for Biotechnology Information through the NIH http://www.ncibi.org/gateway/pdf/ARM4/NCIBI_ARM4_Diabetes_DBP_Update_Burant_04_2\ 9_09.pdf or essential amino acids or Proteomic and the affect on the body such as what they found here (a much newer but highly interesting new science to those of us that are seeking natural/healthy ways to improve the health and lives of our children and ourselves) Prenatal exposure to maternal low or high protein diets induces modest changes in the adipose tissue proteome of newborn piglets O. Sarr*,{dagger}, I. Louveau*,{dagger}, C. Kalbe{ddagger}, C. C. Metges{ddagger}, C. Rehfeldt{ddagger} and F. Gondret*,{dagger} * INRA, UMR1079 Systèmes d’Elevage Nutrition Animale et Humaine (SENAH), F-35590 Saint-Gilles, France , {dagger} Agrocampus Ouest, UMR1079 Systèmes d’Elevage Nutrition Animale et Humaine, F-35000 Rennes, France {ddagger} Research Units Muscle Biology & Growth and Nutritional Physiology, Research Institute for the Biology of Farm Animals (FBN), 18196 Dummerstorf, Germany Florence.gondret@... Abstract The possibility that maternal diets during gestation could affect growth and tissue development of the offspring and program their later phenotype is an emerging challenge in pig production. The objective of the current study was to investigate the effects of contrasted protein levels in diets of pregnant sows on the proteomic features of subcutaneous adipose tissue (SCAT) of the offspring at birth, and its possible persistence later in age. Sows were fed either control ©, low (LP) or high protein (HP) diets throughout gestation. A subset of piglets was killed at 1 d of age for SCAT sampling. The remaining piglets were cross-fostered to non-experimental sows during lactation. They were fed standard diets during post-weaning and fattening periods until 186 d of age. Modifications in SCAT protein abundance shortly after birth were investigated by 2-dimensional gel electrophoresis followed by mass spectrometry. A total of 65 spots was found differentially expressed (P ≤ 0.10) in SCAT of 1-d-old experimental piglets versus controls. Proteins with a higher abundance in LP piglets compared with C piglets were involved in pathways related to glucose and fatty acid metabolisms, lipid transport, and regulation of apoptosis. Up-regulation of five proteins representative of these biological pathways in LP group vs. C group were further validated (P < 0.05) by Western blot analyses. Furthermore, the specific activity of the key lipogenic enzyme fatty acid synthase was found greater (P = 0.06) in SCAT of 1-d-old LP piglets than in C piglets. The main changes evidenced in SCAT of HP piglets compared with C animals at 1 d of age rather concerned proteins putatively involved in amino acids metabolism or in protein turnover. Adipose tissue content in some proteins that had displayed a greater abundance in experimental pigs compared to controls at d 1 (e.g., transaldolase, annexins II and IV, and apolipoproteins A4) was however similar in the 3 groups at d 186 of age. Enolase 1 has a lower abundance in LP pigs compared with C pigs at this stage. Taken together, proteomics tool has allowed the identification of various pathways related to short-term adaptation of adipose tissue to prenatal exposure to different maternal protein supply. http://jas.fass.org/cgi/content/abstract/jas.2009-2542v1 And The Proteome Project � Human Protein Just when we`re finally familiar with the term genome (a blueprint of human DNA structure), here comes another phrase out of the mists of scientific research - the Human Proteome Project. Just when we're finally familiar with the term genome (a blueprint of human DNA structure), here comes another phrase out of the mists of scientific research: the Human Proteome Project. It's so new, my computer spell-check thinks it's a typo. The August 2001 issue of Scientific American identifies the Human Proteome Project as the next large international research effort, of the same magnitude as the genome project. The objective of this project is to systematically identify all the proteins and their cellular interactions in the human body. Early estimates suggest that there are 300,000 to 400,000 identifiable proteins which may individually interact with five to ten protein partners. That are four million cellular interactions, and the research is only getting started. Why are human proteins the subject of the next scientific mega-project? According to Professor Ian Humphery- of the University of Utrecht, " Proteins are central to our understanding of cellular function and disease process. " 1. The project is attracting the cooperation of Harvard Medical School, the universities of Geneva and Tokyo, and the Ludwig Institute for Cancer Research, to name just a few. We have known for some time that human protein interactions go well beyond building muscle tissue. The Human Proteome Project is about to create an explosion of interest in the intricate universe of human protein function. There is already a base of research that demonstrates how high-biological dietary proteins can positively effect human immune function, fighting cancer, bacteria, and viral activity, as well as reducing cholesterol and slowing aging. It is interesting to see the direct links between human protein function and dietary protein intake. Recent studies have identified a master switch for human immune function, a protein called CD4. One protein subfraction called lactoferrin, also known as a micropeptide, is found in high biological value whey protein and human breast milk. It is found to enhance the function of CD4, improving overall immune function.2 Whey protein has repeatedly demonstrated a capacity to fight cancer. In one study, breast cancer cell growth was inhibited with the introduction of low quantities of dietary whey protein.3 Another study showed a regression of cancerous growths with the addition of 30g per day of whey protein.4 Cellular interactions in humans are extremely complex. For example, we know that glutathione, a protein produced in the body, is extremely important for healthy immune function. We also know that cancerous tumour cells have unusually high levels of glutathione. This often diminishes the effectiveness of chemotherapy. What is therapeutically needed is a substance that would raise the levels of glutathione in healthy cells while lowering the levels in the cancerous cells. The function is that of an adaptagen, which brings cells back into balance. A study in anti-cancer research showed that high biological value whey proteins appear to function in exactly this manner.5 Other dietary proteins did not appear to have a similar effect. However, it is not understood how whey peptides have such an effect. Hopefully, this information will come with the extensive research of the Human Proteome Project. Other disease-fighting properties of dietary whey protein include anti-bacterial and anti-viral functions. Lactoferrin can be considered a medicinal food. Several studies reveal that lactoferrin balances iron functions. In the instance of bacterial infections such as e-coli, salmonella or streptococcus, lactoferrin's iron-binding properties destroy the bacterial membrane, inhibiting growth and function.6 Lactoferrin has also been identified as a potent dietary anti-oxidant.7 Cell-preserving and disease-inhibiting properties contribute to the overall anti-aging function of dietary protein. Optimal cellular regeneration and function, over time, appear to be supported by the regular consumption of high biological value whey protein. A study of mice demonstrated a significant longevity increase, corresponding to a 25-year increase in human longevity.8 The Human Proteome Project will not only expand our understanding of the universe of cellular function and disease but also identify the foods that rebuild and regenerate the body. http://www.vistamagonline.com/vista_articles/page.php?tp=4 & p=1 & id=20 & s=the_prote\ \ ome_project_%96_human_protein How it ties into http://pursuitofresearch.org/science.html ===== Quote Link to comment Share on other sites More sharing options...
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