Guest guest Posted July 12, 2000 Report Share Posted July 12, 2000 I've had PA for about 3 years now and seem to > have it somewhat under control. I'd be more than happy to answer any > questions about what I've done to reach this point. Do tell! I was DIAGNOSED with PA about a year ago (I've probably actually had it for about 3 years). My current treatment consists of 25mg. of Vioxx daily, exercise (most important!!!), and I just started taking Evening Primrose Oil. My symptoms are relatively mild, but some days (like today), I feel generally stiff and in pain. On days like today, I wonder if I should request stronger drugs from my Dr., but want to give milder treatments a chance. What are you doing, exactly? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2000 Report Share Posted July 14, 2000 , OK here's the scoop. I have mild conditions of psoriasis on my skin. I use an ointment " clobesteral " (I think I spelled it right) and after about 2 weeks the 4 small areas go away. The arthritis part is a little different. First off I try to swim about 1-2 times per week in the winter. In summer I play golf instead. Excersise helps if you keep at it. Currently here is what I'm taking daily- once in the morning and once in the evening. FYI- always take you med's with milk, it really helps! Sulindac- 800mg daily, Folic Acid- 2mg daily, Tylenol Arthritis- 2600mg daily, MSM Inholtra (vitamin) 4 daily and GNC " Megaman " vitamins- 2 daily I'm off MTX for now but will go back on it in a few months. I'll stop the tylenol and start the dosage of MTX at 7.5mg. (by mouth, once per week) It seems to be OK but I still have a little pain. In the past, I've gone all the way up to 15mg's by injection (in arm or thigh, once a week). This seems to get rid of all of the pain but I don't know if I need 15mgs over the rest of my life! As far as other med's I really haven't tried them. The trick is to find a good combo that works for you. Everyone is different. Good luck and talk to you later \ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 --- Welcome to the group!! I too was dx with Psoriasis in my mid twenties and dx with PA at 30. I am almost 32 now. Prob had PA awhile before I realized what it was. Wish you the best of luck and keep checking the posts here...they have informed me alot of times on things that I didn't know and are ALWAYS willing to " listen " to venting as needed. In @y..., " jakie_d " <jakie_d@y...> wrote: > Hi > > I've just came across this group. I have had psoriasis for about 9 > years since I was 24 and have just recently been diagnosed with > psoriatic arthritis although have had it for a while I think. Am > currently seeing the physio every week and the rheumatologist every 3 > months. I am taking Celebrex and Co-proxamol for the pain at the > moment but haven't had the results of the blood tests yet. > > The arthritis is mainly in my sacrilliac joint and neck but also > affects my big toes, thumb joints, knees & jaw. Psorias is scalp, > ears (inside & out), face and patches on back, stomach, arms, legs. > > The things I find worst are the chronic pain and the tiredness but I > find I can cover most of my psoriasis and washing my hair twice a day > keeps the scalp a bit clearer. > > Jakie-D > > > > [Moderator's note: Welcome to the group, Jakie-D! And thanks for introducing yourself. Ron] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2002 Report Share Posted August 30, 2002 Thanks very much. I get worried that people around me are fed up listening to me complaining!! And I think you can learn more from groups like this than you can from the doctors. Jakie > > Hi > > > > I've just came across this group. I have had psoriasis for about 9 > > years since I was 24 and have just recently been diagnosed with > > psoriatic arthritis although have had it for a while I think. Am > > currently seeing the physio every week and the rheumatologist every > 3 > > months. I am taking Celebrex and Co-proxamol for the pain at the > > moment but haven't had the results of the blood tests yet. > > > > The arthritis is mainly in my sacrilliac joint and neck but also > > affects my big toes, thumb joints, knees & jaw. Psorias is scalp, > > ears (inside & out), face and patches on back, stomach, arms, legs. > > > > The things I find worst are the chronic pain and the tiredness but > I > > find I can cover most of my psoriasis and washing my hair twice a > day > > keeps the scalp a bit clearer. > > > > Jakie-D > > > > > > > > [Moderator's note: Welcome to the group, Jakie-D! And thanks for > introducing yourself. Ron] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2003 Report Share Posted March 1, 2003 Welcome , You have joined an elite group who know that nothing is impossible. I to, think I am allergic to the world, and strange rashes & things pop up at some of the most unexpected times. I was diagnosed at the same time you were, but I am unable to take Enbrel, so MTX and Prednisone and Plaquenil & Celebrex are the drug cocktail that works for me. I don't mean to be flip, because I am sorry anyone has to start this disease battle, but the best thing you will learn from this is group is how very important attitude is for your health!!! Please don't hesitate to ask, even the embarassing questions, because we have all been or are there at one time or another. It is really amazing the coping technics I have learned from this group. It truly is a God-send. Gentle Hugs & Prayers, Carol M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 In a message dated 3/2/2003 8:03:03 PM Eastern Standard Time, Dandcmayer@... writes: > You have joined an elite group who know that nothing is impossible. I to, > think I am allergic to the world, and strange rashes & things pop up at some > > of the most unexpected times. I also get red itchy rashes all the time. If some sqeezes my skin too hard, I turn red and itch. This happens whenever my BP is take on my arm. My rheumy told me it is part of the auto-immune thing. Janet Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi quickly back to you Stu. Lol Welcome to the group. Hope you have time later to let us know how things are with you. This is a good group. You can get advice if you need it. You can vent if you want to (We all like a good moan from time to time) and we can even laugh at ourselves and each other occasionally. Hope you get a chance to post. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Hi Stu and welcome to the group! Tamara > Hi > > I just found this group, and joined and wanted to say " hi " quickly. > > - Stu > > -- > -------------------------------------------- > slevin@e... > http://www.emulifestyle.com > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2004 Report Share Posted September 15, 2004 Welcome Stuart -- Sorry you felt the need to join but hope we can help you and/or your family. Cheri [ ] Just joined > Hi > > I just found this group, and joined and wanted to say " hi " quickly. > > - Stu > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Hello Ian - Mandi from the other side of Bournemouth here I aim to try the peptizyde / Zyme prime combination my son will not take tablets so is it best to get powder or split capsules? >>>>I would get the capsules and split them - very easy to open with a twist and easy to put back together as well I live on the South Coast of the UK, can you get the enzymes over here? or do i need to order them direct? and does the transit damage them ? >>>Devin has fixed up a supplier in the UK for us - you need to ring them their number is on Devins site houstonni.com I am suspicous of yeast problems and leaky gut; my son had huge amounts of antibiotics as a young child due to repeated ear infections,are there any clear indications of this and would anyone recommend any additions to address this? >>>Probably some OTC yeats busters and probiotics but I would start the enzymes first, settle out on those and reassess - enyzmes help with gut bugs as well as all the other good stuff they do! Would additional magnesium and epsom salt in the bath help with the bowel issue? and if so can i get magnesium as a powder? The section in the book about swollen bowels and lack off sensation made a lot of sense. >>>Enzymes will help with the bowel issues but you need to make sure things keep moving at all times. Magnesium Citrate and plan old Vitamin C as asorbic acid are good for this. Epsom Salts are good for most everyone - the only place we can get them now is Boots. has good info about this on her site too For a child who will only eat biege food can anyone recommend a probiotic that comes in powder form and would fit with the above? >>Bless him, maybe he knows something we don;t - there is a diet that only allows beige food LOL. I would recommend BioKult bio-kult.com - high quality small caps, dissolves completely in water (with a good shake) and doesn;t taste at all - UK made and distributed. From what i have said above has anyone got any other general pointers / recomended enzymes / supliments or advise they think may help? >>>My standard advice for people just starting out on this route is to -cut back on sugar (but dont; replace with Aspartame/Nutrasweet products), - avoid artificials and colours - cut down or cut out MSG - get some Houston enzymes and s book - stop using flouride toothpaste - try Epsom Salts baths while thats getting sorted look into Brainchild Nutritonals minerals and vits, BioKult probiotics and Eye Q. That should keep you busy for a while. Enzymes often result in an expanded diet so I'm keeping my finger crossed for you. Oh and the most importnat thing - if in doubt - shout! HTH Mandi in Uk Mum to Sam 7.5, 47XYY, Autism & Heavy Metal Toxcity Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 > I aim to try the peptizyde / Zyme prime combination my son will not > take tablets so is it best to get powder or split capsules? Either. > I am suspicous of yeast problems and leaky gut; my son had huge > amounts of antibiotics as a young child due to repeated ear > infections,are there any clear indications of this and would anyone > recommend any additions to address this? Here is my yeast info page http://www.danasview.net/yeast.htm > Would additional magnesium and epsom salt in the bath help with the > bowel issue? and if so can i get magnesium as a powder? The section > in the book about swollen bowels and lack off sensation made a lot > of sense. Here are my constipation ideas http://www.danasview.net/constip.htm > For a child who will only eat biege food can anyone recommend a > probiotic that comes in powder form and would fit with the above? I can't recommend a probiotic, because my son never tolerated them, but my son was also a " beige food " kid, because foods with color caused him major problems. Not even enzymes helped with that, altho you can try No-Fenol and see if it helps. Only ALA chelation removed his major intolerance to lutein/carotene [food pigment]. Dana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 Well I have a new family doctor and she is great. She sent me for the blood test that my rhummy would not send me for. Sent me to a podiatrist for my funky looking feet. I have hammer toes I feel it was because the rhummy was seeing I responded to MTX alone. He said that first we need to get down the inflammation then we can determine what to do next. Almost a week on Feldene and still stiff. Humira & Arava have had the same effect an MTX & Enbrel They are wonderful for skin I have no active patches but I am still sore and it makes me cranky. I work part time. I lost a lot of weight and can stand to lose more. Dr said no exercising until we have further test done on joints wanted to wait till all of the blood test were in. I will know more next week. > I've had PA for about 3 years now and seem to > > have it somewhat under control. I'd be more than happy to answer > any > > questions about what I've done to reach this point. > > Do tell! I was DIAGNOSED with PA about a year ago (I've probably > actually had it for about 3 years). > My current treatment consists of 25mg. of Vioxx daily, exercise (most > important!!!), and I just started taking > Evening Primrose Oil. My symptoms are relatively mild, but some days > (like today), I feel generally stiff and > in pain. On days like today, I wonder if I should request stronger > drugs from my Dr., but want to give milder > treatments a chance. > > What are you doing, exactly? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2007 Report Share Posted January 31, 2007 , welcome! You will find our group includes many young mothers your age who also have PA. We all, no matter our age, will understand EXACTLY what you are going through as far as pain, fatigue, brain fog, depression, worrying about meds, etc. I'm sure you'll find (and give!) help and support here. best regards, sherry z > > Hello Everyone! My name is Barber. I am a 28 year old Wife and > mother of 4. I was diagnosed with severe Psoratic Arthritis in October > of 2004. I have been on enbrel, MTX, Humira, Arava, > Feldene,Sulfasalazine, and enough Advil to last 10 people a lifetime. > The current combination is Humira, Arava & Feldene and still flares. I > have tried a all vegan diet lost 85 Pound. I even went off all of my > medications and tried the holistic avenue. I am just sick of people > looking at me with pity every time I explain what PA is. My husband > has been wonderfully supportive and sacrifice so much to help me > through the past 2.5 years. I just need some support from people that > understand what I am going through. > > > > [Editor's Note: Hi, and welcome to our site. You have just found 3,000 people who understand what you are going through. One of the things that helped me most in dealing with PA, was the realization that the opinion other people hold of me in terms of my disease is totally irrelevant. It doesn't matter to me if they understand, don't understand, get it or don't get it. I have enough to deal with every day without worrying about how others see me in terms of my disease. The important thing is how I see myself. I concentrate on the things I can control and I stress a lot less over the things out of my control and that includes the opinion of others. Virtually no one looks at me with pity, even when I sit in an electric cart in a store, because I present myself as a strong person utterly without need for pity - because that in fact is exactly who I am. I also realize that humans often don't know how to react to people who are different and it is unfair of me to judge people whose way of dealing with a handicapped person is to pity them. What we take as pity may be their way of extending love and kindness. Most of us don't know, really, what to say to someone who has just lost a child to illness. Most of us don't know how to behave around a friend who has just gotten a diagnosis of cancer. It is therefore quite understandable that most people don't know how to behave around us so I have no expectation of how they should behave. Ha, at this point, I'm just happy if they get out of my way when I'm scooting fast on that electric cart! I don't know if any of this helps, but I'm sure other people will provide you with how they handle this. Again, welcome. Kathy F.] > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2007 Report Share Posted June 6, 2007 , How old are you and your brother? The reason I ask is that my aspie son and his NT twin sister are 14 and they fight like crazy. He used to worship her, she used to mother him. Now as a teenager she does not try to help him in ANY way (socially or academically). I just let it go,unless they are fist fighting. I am hoping that as they grow older they will be more amicable. > > My brother has autism, pretty high functioning. I've been very > involved in his life at home and at school. I've never seen it as a > burden like other kids have. This year we were finally at the same > school together, first and final year since I just graduated. I just > wanted to see what other people did with their kids/siblings etc with > aspbergers/high functioning autism. > > Take care. > > ~ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 He's ummm *thinks* 15 almost 16. I'm 19 in november. We never fought like that ever. . . my brother gets vicious when he's mad but I always duck that's really weird and sad I hope they grow out of that. She should be way more supportive than that Best of luck to the three of you! > > > > My brother has autism, pretty high functioning. I've been very > > involved in his life at home and at school. I've never seen it as a > > burden like other kids have. This year we were finally at the same > > school together, first and final year since I just graduated. I just > > wanted to see what other people did with their kids/siblings etc with > > aspbergers/high functioning autism. > > > > Take care. > > > > ~ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2009 Report Share Posted October 12, 2009 Hi! I'm not even sure my son has speech apraxia but he's definitely speech delayed, so I thought I would ask you mamas your opinion. Here's a bit of history. He's my first child, a normal pregnancy and delivery. The nurse said he was tongue-tied, but the ped. said that he would most likely grow out of it and just to watch his language development. I breastfed, but it was a struggle to get started and I was continually tweaking his latch, etc. He never stuck his tongue out and by eleven months only said mama and baba. We had his tongue tie cut then. He began to babble using lala and dada, and we thought his speech would just take off. Well, he's 31 months and only says a handful of words. At 24 months we started using sign, because he just couldn't say what he wanted and would point and grunt and we both were getting so upset. He has about 100 signs and maybe 10-15 words. I had him evaluated by EI and they said his speech is delayed but he's a few months ahead in all other areas and so the average is within the normal limits but keep us posted. He's learned a few new words since then, so they say as long as he's advancing he's fine. He has this unintelligible babble, but as he adds words, they show up in his babble so I think he's talking but we don't understand his language. Recently, he's been mixing words and sign to communicate. I taught him the letter names and we are working on the sounds. Odd as it may sound, I've been teaching him to talk by teaching him to read. I read the book THE LATE TALKER and he has some symptoms but not others, so I sort of think he's on the line between delay and disorder. What do you think? Also, I am fine working with him without a therapist, but I need ideas. We do letter names and sounds, read simple words, ASL sign, it took months to teach him to lick a lollipop and it seems like every new word is a struggle. The speech therapist suggested animal sounds b/c you can't get those wrong. Liralen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 it sounds like an oral motor issue. My son has this and we see an oral motor specialist--we are in Atlanta, let me know if you want the name, not sure where you are). She has worked with him for 6 weeks and he can now do things he could never do--sip from a straw, lick a lollypop, etc. Its amazing. They just need to be taught how to use all those muscles in coordination. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Have you had him evaluated by your school district? Its free and they would be able to give him free speech therapy or anything else he might need.  My son has signs of verbal apraxia. Like your son, he really doesn't have anything else going on. I thought he was going to be a late talker but I don't think that is the case now. I believe that he has a severe speech delay, whether it be apraxia or an articulation disorder. At 2 1/2, I was able to teach my son the letter and sounds they make but he could never blend the sounds together. He also babbles like he is talking and sometimes you can make a word out. Even now at 3 years old, he knows his numbers and alphabet but he can't articulate them.  My son is receiving speech therapy 4x a week (they are treating it like it is Apraxia) and he is attending a preschool 3x a week. I am seeing great improvement! He is gaining new words and I'm able to understand him a little better now which has cut down on the tantrums alot.  I would get him evaluated by a speech pathologist a.s.a.p and if he/she is not in some sort of mother's day out program, I would put him in one. He needs to be around other children.  Children with Apraxia need specific treatment. Typical speech treatment for articulation do not work. From: liralendoncov <liralendoncov@...> Subject: [ ] just joined Date: Monday, October 12, 2009, 12:27 PM  Hi! I'm not even sure my son has speech apraxia but he's definitely speech delayed, so I thought I would ask you mamas your opinion. Here's a bit of history. He's my first child, a normal pregnancy and delivery. The nurse said he was tongue-tied, but the ped. said that he would most likely grow out of it and just to watch his language development. I breastfed, but it was a struggle to get started and I was continually tweaking his latch, etc. He never stuck his tongue out and by eleven months only said mama and baba. We had his tongue tie cut then. He began to babble using lala and dada, and we thought his speech would just take off. Well, he's 31 months and only says a handful of words. At 24 months we started using sign, because he just couldn't say what he wanted and would point and grunt and we both were getting so upset. He has about 100 signs and maybe 10-15 words. I had him evaluated by EI and they said his speech is delayed but he's a few months ahead in all other areas and so the average is within the normal limits but keep us posted. He's learned a few new words since then, so they say as long as he's advancing he's fine. He has this unintelligible babble, but as he adds words, they show up in his babble so I think he's talking but we don't understand his language. Recently, he's been mixing words and sign to communicate. I taught him the letter names and we are working on the sounds. Odd as it may sound, I've been teaching him to talk by teaching him to read. I read the book THE LATE TALKER and he has some symptoms but not others, so I sort of think he's on the line between delay and disorder. What do you think? Also, I am fine working with him without a therapist, but I need ideas. We do letter names and sounds, read simple words, ASL sign, it took months to teach him to lick a lollipop and it seems like every new word is a struggle. The speech therapist suggested animal sounds b/c you can't get those wrong. Liralen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Well, I suspect he's got some sensory issues, (it sort of runs in my family) He doesn't eat certain textures of foods i.e. will eat banana chips, but won't touch bananas. He hates being dirty or sticky. He's a very clean 2 year old What are " Oral motor difficulties " ? > > > > Have you had him evaluated by your school district? Its free and they would be able to give him free speech therapy or anything else he might need. > >  > > > > > > > > __________________________________________________________________ > Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now > http://ca.toolbar.. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 I agree. I think you should trust your motherly instinct. If you feel in your heart that there is just something not right with your child's speech, then you should consider talking to your pediatrician about referring you to a specialist (ie. developmental pediatrician or neurologist).  Otherwise, I would just keep doing what you are doing.  I am a dyslexia specialist and was also a classroom teacher for 6 years and I work with my son everyday but its just not the same.  Speech pathologists are highly trained to work with students who have speech delays and I rather leave him to the expert. Just my opinion. About the picky eater, I agree with Sue. There is a huge difference between a child who is a " picky eater " and a child who has oral motor issues. When I say my son is a picky eater, he will only eat certain foods but he chews and swallows just fine. He will not try new foods and if he happens to accidentally try something new, he will gag and spit it out. However, my son cannot blow bubbles ( he blows through his nose), purse his lips to give kisses, or imitate funny faces.  This is just one reason in addition they say that my son is showing signs of Apraxia. He also cannot jump and has some sensory issues (fidgets with his ear, screams bloody murder if the nurse at the doctor's office trys to take his blood pressure or weight/height, won't get off the car at the beach) When I asked, " if it turns out not to be Apraxia, then what is it? "  They said, " an articulation/phonological disorder " . Good Luck. (son, 3 years old) ________________________________ From: " NotefrmSue@... " <NotefrmSue@...> Sent: Tue, October 13, 2009 1:26:53 PM Subject: Re: [ ] Re: just joined  One thing I've often wondered is when people on these posts say " Picky Eater " if they mean the child refuses foods or if they put the food in their mouth and then spit them out???? I say this because before my apraxic son always was willing to try most things but was constantly spitting everything out.?? He didn't really make a face or anything about it.??? After a while when he recognized it was something he'd spit out several times before he would be unwilling to try it. What I found after a month or two of the oral motor was that he started eating and swallowing more and more foods.???? Now he can even swallow things like meat and breads that he didn't seem able to do before.??? He has pretty much stopped spitting things out now. When I think " Picky Eater " , I think more of my older son (who is not apraxic) who complains about food, makes faces, spits it out with obvious dislike etc.... Just something I was wondering if it's a way to maybe distinguish those with issues due to oral motor vs. just picky eaters. [childrensapraxiane t] Re: just joined ? He was evaluated by EI in July and they said b/c he understood language and he was a picky eater, he's probably stubborn and controlling what factors he can in his life. She also said there wasn't much more they could do than what I was already doing. (using baby sign, teaching him letter sounds and names, talking to him constantly, limiting TV and electronic game time, reading to him). He's 2 1/2 so the school district won't get involved until he's 3. I'm just not sure if it's a delay or a disorder--either way he's definitely behind in his speech. Liralen > > Have you had him evaluated by your school district?? Its free and they would be able to give him free speech therapy or anything else he might need.? > ? > ____________ _________ _________ _________ _________ _________ _ Canada Toolbar: Search from anywhere on the web, and bookmark your favourite sites. Download it now http://ca.toolbar. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 You asked what oral motor difficulties are.????? That could be a lot of things but here are some examples of things that might show you: If you set something very light like a cotton ball on a table could your son blow it across? Could he take a whistle or a recorder?in his lips could he blow in it and have it make noise? Can he blow a kiss? Can he chew foods that are a little harder to chew (like chicken, steak, etc.) Could he blow on a bubble wand to make a bubble? When he says certain sounds do you see his lips make the proper shape.??? For example, when you say the sounds that normally your lips would come over for like when saying oooh do his lips come out instead of lieing flat??? I discovered my son could make certain sounds and so I thought he was doing great but the therapist pointed out to me that his lips were not in the correct shape and that although he could make the correct sound it would make it hard for him to make that sound link to other sounds properly to make words.??? For example, when saying oooh his lips weren't coming out from his face.???? We have the LipSync cards and this helped me see how the lips look for most of us.?? It's not something we think of intuitively. Does your son have a gag???? If you stuck your finger gently on his gum in the frunt and just ran your finger gently along the gumline to the back would he gag???? It might be normal for anyone to gag once in a while on this but before oral motor my son would gag everytime and never would really get used to it or any hands or objects in his mouth. Can he suck through a straw? If you set a cheerio on the table and held his hands could he bend down with his face and pick it up with his lips? These are just some things I Have seen that at one time my son could not do and now can that might be an indicator given that our children are of similar ages and most children at this age could do the above items . Sue [ ] Re: just joined He was evaluated by EI in July and they said b/c he understood language and he was a picky eater, he's probably stubborn and controlling what factors he can in his life. She also said there wasn't much more they could do than what I was already doing. (using baby sign, teaching him letter sounds and names, talking to him constantly, limiting TV and electronic game time, reading to him). He's 2 1/2 so the school district won't get involved until he's 3. I'm just not sure if it's a delay or a disorder--either way he's definitely behind in his speech. Liralen > > Have you had him evaluated by your school district?? Its free and they would be able to give him free speech therapy or anything else he might need.? > ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Oral motor difficulties mean problems with moving and coordinating the muscles in and around the mouth (tongue, lips, etc.). For example, my son can't lift his tongue up to touch his upper lip. He can't move it back and forth to lick his lips. He never made raspberry noises as a baby and we didn't even see him stick out his tongue until quite late. My little guy is also a very clean 2 year old. However, I've learned by watching him closely that it's because he over-reacts to the feel of things. It's not that he likes being clean.... rather it's that he can't stand his hands being dirty. It's not really a good thing - it holds him back from enjoying activities that other kids enjoy like finger painting and playing with sand. It's a sensory issue. We hope to work on things like this with an occupational therapist in the new year. Very early on when I first noticed the speech delay I thought that maybe my son wasn't doing certain things because he " wouldn't " or " didn't want to " . I've since realized that it's never been the case that he doesn't want to - it's that he can't and doesn't know how. It was hard to realize this because he's so smart in other areas. Now that I've realized that he has problems with motor planning, I can understand his difficulties and work with him on his speech and we've had a great deal of success. ~Jen, (mom to Tiernan, 2.5 years old) > > Well, I suspect he's got some sensory issues, (it sort of runs in my family) He doesn't eat certain textures of foods i.e. will eat banana chips, but won't touch bananas. He hates being dirty or sticky. He's a very clean 2 year old What are " Oral motor difficulties " ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2009 Report Share Posted October 13, 2009 Sue- I had to laugh when I read about the cheerio on the floor! My son may be doing his own oral motor therapy on himself many times a day when he bends over and eats his snacks off the floor! Stairs are extra fun and delicious! Iveta -- Sent from my Palm PreNotefrmSue@... wrote:  You asked what oral motor difficulties are.????? That could be a lot of things but here are some examples of things that might show you: If you set something very light like a cotton ball on a table could your son blow it across? Could he take a whistle or a recorder?in his lips could he blow in it and have it make noise? Can he blow a kiss? Can he chew foods that are a little harder to chew (like chicken, steak, etc.) Could he blow on a bubble wand to make a bubble? When he says certain sounds do you see his lips make the proper shape.??? For example, when you say the sounds that normally your lips would come over for like when saying oooh do his lips come out instead of lieing flat??? I discovered my son could make certain sounds and so I thought he was doing great but the therapist pointed out to me that his lips were not in the correct shape and that although he could make the correct sound it would make it hard for him to make that sound link to other sounds properly to make words.??? For example, when saying oooh his lips weren't coming out from his face.???? We have the LipSync cards and this helped me see how the lips look for most of us.?? It's not something we think of intuitively. Does your son have a gag???? If you stuck your finger gently on his gum in the frunt and just ran your finger gently along the gumline to the back would he gag???? It might be normal for anyone to gag once in a while on this but before oral motor my son would gag everytime and never would really get used to it or any hands or objects in his mouth. Can he suck through a straw? If you set a cheerio on the table and held his hands could he bend down with his face and pick it up with his lips? These are just some things I Have seen that at one time my son could not do and now can that might be an indicator given that our children are of similar ages and most children at this age could do the above items . Sue [ ] Re: just joined He was evaluated by EI in July and they said b/c he understood language and he was a picky eater, he's probably stubborn and controlling what factors he can in his life. She also said there wasn't much more they could do than what I was already doing. (using baby sign, teaching him letter sounds and names, talking to him constantly, limiting TV and electronic game time, reading to him). He's 2 1/2 so the school district won't get involved until he's 3. I'm just not sure if it's a delay or a disorder--either way he's definitely behind in his speech. Liralen > > Have you had him evaluated by your school district?? Its free and they would be able to give him free speech therapy or anything else he might need.? > ? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 Hee Hee. Thanks for the chuckle. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2009 Report Share Posted October 14, 2009 > > > If you set something very light like a cotton ball on a table could your son blow it across? > No he can't do that. > > > Could he take a whistle or a recorder?in his lips could he blow in it and have it make noise? > No, he can't do that. > > Can he blow a kiss? Yes, he makes kissing sounds, but his lips are not round but straight and he doesn't blow, but sends it with his hand (like the thank you sign) > > > Can he chew foods that are a little harder to chew (like chicken, steak, etc.) > Yes, he doesn't have a problem with this, he prefers hard to chew food, it's the mushy stuff that gets to him > > Could he blow on a bubble wand to make a bubble? > No, he can't > > > When he says certain sounds do you see his lips make the proper shape.??? For example, when you say the sounds that normally your lips would come over for like when saying oooh do his lips come out instead of lieing flat??? I discovered my son could make certain sounds and so I thought he was doing great but the therapist pointed out to me that his lips were not in the correct shape and that although he could make the correct sound it would make it hard for him to make that sound link to other sounds properly to make words.??? For example, when saying oooh his lips weren't coming out from his face.???? We have the LipSync cards and this helped me see how the lips look for most of us.?? It's not something we think of intuitively. > I watched him a bit last night while he babbles. he's not making the ooh sound correctly at all. his lips are wide and flat not round out puckered. > > Does your son have a gag???? If you stuck your finger gently on his gum in the frunt and just ran your finger gently along the gumline to the back would he gag???? It might be normal for anyone to gag once in a while on this but before oral motor my son would gag everytime and never would really get used to it or any hands or objects in his mouth. > Not sure about this one, he keeps biting me!! > > Can he suck through a straw? > Yes, we taught him to use a straw before his tongue tie was cut, around nine months. > > If you set a cheerio on the table and held his hands could he bend down with his face and pick it up with his lips? > Not sure, about this one. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.