Re: I am really scared

[Guest guest]

Hello,

There is good news ahead of you. My son was 24 months and stopped talking

after mmr flu shots. After 2 years of intense biomedical treatment, vitamins

and suppliments he is in a managed recovery state. He speaks full sentences

and conversations and sings. Every one thinks he is neurotypical.

So, stick wtih the DAN! As biomedical treatment has really helped us. There

is also a biomedial group for apraxiadyspraxia on !

Take Care,

Colleen

Mother of Charlie 3.5 years

[ ] I am really scared

I am new to this list. I enrolled my son into ECI when he was 19 months old.

He was behind in alot of things, but has pretty much caught up. His speech

therapist says he has apraxia and the developmental pedi said either speech

delay, apraxia, or autism. He is 27 months old now and tries so hard to

talk, but all he says is " ga " . He will say a sentence, but all Ga, ba, ca,

ma.....mostly ga. I have heard him say apple once and even gator, up, and a

few other words.

When he was 16 mos old, he had hand foot mouth disease, took a round of

antibiotics (he was REAlly sick), and we never heard him talk again. He was

saying at least 6 words.

He has good eye contact, hugs, etc. He does have some sensory issues, so we

recently enrolled him into sensory integration therapy. The therapist says

she sees most of her clients' speech improve with sensory integration.

Do you find this true?

Do you think my son will ever speak?

We are seeing a DAN doc, becasue I think he has some gut issues/food

sensitivities, as I do. We see him next week.

He gets speech twice a wek through ECI and sensory twice a week/private. DO

you think we need to bump up speech in private therapy?

He is suppose to start MDO this fall, but I don't want to stick him in a

room of 12 other kids and have his self esteem crushed becasue he is the

only one who can't talk. This si so cruel to do to a family I just want

my baby to feel good about himself, and I am terrified. Please help me- is

there any good news ahead of us?

[Guest guest]

I can second this advise Coleen gave you. Stick with the DAN, but read up on

your own so you can make informed decisions about what applies to your son, even

DANs don't know it all, each child is different, and it ultimately is a trial

and error with a lot of the supplements to see what he best responds to, tests

are just data points, not 100% conclusive, no test ever is.� You have to

become your child's top therapist, advocate and in a sense doctor, becuase you

are his number one expert--you know how he reacts, you observe if something is

working for him or not and you can get help and guidence, but the ultimate

decisions as to his treatment should be made by you--as his mom you have the

most at stake, the most to gain or lodse, so learn as much as you can about your

child's condition and keep an open mind about treatments--and yes this does mean

going outside the mainstream clinical practice as mainstream doctors do not

understand metabolic and

nutritional impact on immune and endocrineand neurologicla functioning. this is

a new field and there's a lot of resistence, drug companies just want to push

drugs, not diets andsupplements, and doctors after spending 12 years training or

more do not want to ge tmore training--but more and more of them really want to

help our neurologically damaged kids and they do take that extra time and

effort, so even if they may not know it all as no one really can with these

things, there's so much individual variability, but thye can help guide us and

we have to know what to look for, how to measure progress and understand if

something is helping--and a warning sometimes the help seems like a negative at

first, even fish oils can give hyperactivity or increased sensitivities in some

kids--that's part of the healing process and starting to feel things that were

never felt before--sensory speaking and new abilities that the brain must learn

how to handle.�

We had the same issues. My daughter had less then 25 real words at 3 years,

couldn't say mama at 3.5., not consistantly, not whenever she wanted, and before

biomed interventions( diet supplements) she was very frustrated and noncompliant

with adult directed activities--3 apraxia :experts " declared they could not work

with her.

Now she's going to kindergarten with regular kids and is talking up a storm,

telling stories, dreams, waht happened at school, what she saw etc. and we can

understand her pretty well as cna other kids and adults.� This would have

never been possible without biomed, and we were already givving the fiish oils

since birth but she was not absorbing them.� Not until we added the carnitine,

E and others but the B12 shots made the biggest difference in her speech. She

really took off after that. She is still apraxic, motor planning of longer words

and sentences is still an issue for her and will continue to be, but she can

SPEAK� and be understood and we're now hopeful that she will attain normal

speech as she keeps up this progress, we're fine tuning her supplements figuring

out her diet better and are exploring toxicity issues which are usually at the

root of all metabolic disorders--which in her case it most certainly is.

Anyway have faith, you'r eon the right track, Identify the oxidative stressors

and waht does NOT belong in your child's body and figure out what enzymes and

reactions are interfered with and supplement until the body heals and he will

amaze you with the progress he will make once you start putting things into

place.� Apraxic kids have fatty acid malabsorptions, along with other

metabolic issues, take it one step at a time, identify his metabolic profile and

you'll figure it all out soon and he will begin to improve.

All the best,

Elena

[Guest guest]

Hello-

I think scared is a normal feeling to have, and as you embark on this crazy

journey the scared feeling will come and go.

At 1 year of age my son said " mama " and then didn't say another word until he

was 3. He is now almost for and although you can't always understand what he is

saying he is definitely talking up a storm. He didn't have a language explosion

until we took out milk from his diet. He is now on all kinds of supplements, and

we are GFCF. We go to private speech twice a week, and he also gets speech from

the school district as well as a special day class. Prior to 3 he was getting

Physical Therapy, Occupational Therapy, and Speech Therapy through our Regional

Center. I definitely think the more therapy the better. I am not sure where you

live but check into the state funded programs if you haven't already.

Keep your chin up. I am sure your little one will be talking up a storm before

you know it.

Have a good day,

Kara

>

> I am new to this list. I enrolled my son into ECI when he was 19 months old.

He was behind in alot of things, but has pretty much caught up. His speech

therapist says he has apraxia and the developmental pedi said either speech

delay, apraxia, or autism. He is 27 months old now and tries so hard to talk,

but all he says is " ga " . He will say a sentence, but all Ga, ba, ca,

ma.....mostly ga. I have heard him say apple once and even gator, up, and a few

other words.

> When he was 16 mos old, he had hand foot mouth disease, took a round of

antibiotics (he was REAlly sick), and we never heard him talk again. He was

saying at least 6 words.

>

> He has good eye contact, hugs, etc. He does have some sensory issues, so we

recently enrolled him into sensory integration therapy. The therapist says she

sees most of her clients' speech improve with sensory integration.

> Do you find this true?

>

> Do you think my son will ever speak?

>

> We are seeing a DAN doc, becasue I think he has some gut issues/food

sensitivities, as I do. We see him next week.

>

> He gets speech twice a wek through ECI and sensory twice a week/private. DO

you think we need to bump up speech in private therapy?

>

> He is suppose to start MDO this fall, but I don't want to stick him in a room

of 12 other kids and have his self esteem crushed becasue he is the only one who

can't talk. This si so cruel to do to a family I just want my baby to feel

good about himself, and I am terrified. Please help me- is there any good news

ahead of us?

>