Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 Hi, I know this subject has been covered a lot lately, so apologies in advance. My son (28 months, verbal apraxia and low tone) has been taking 2 EFAs for two months now. We've seen improvements in babbling/vocalizations, and a lot of intangibles like increased strength, less clumsiness, etc. We want to add both the EPA and the Nutriiveda to the mix - it's just a question of how and in what order. About 3 weeks ago, I added an EPA capsule to the mix, but the next day my son had early diarrhea (not to mention bad diaper rash and bad eczema on his chin the following day). I reduced it and then cut it out after three days. Not sure if it was a reaction to the EPA or a bug - we had a similar reaction when he first went on EFA, though again both could be purely coincidental - but we didn't want to take a chance and be forced to stop all the fish oils. We definitely plan on starting Nutriiveda, but we've been waiting because we've been in the process of increasing our Early Intervention services, plus looking for outside speech. And I mean process - it has probably taken us 4 months. We had only been getting developmental intervention, 5 hrs/wk, helpful but not exactly what he needed. I didn't want to start on the Nutriiveda until all the evaluations had been completed and the therapists had started working with him. In the past 2 weeks, we have added an OT, a PT, and one SLP from EI (somehow we got approval for 3 hrs of speech! but they have to split it out to two SLPs - who knows when we'll get that second SLP). We also had an outpatient speech eval and got insurance approval for outpatient speech (another huge surprise!), so we started one half hour with an outside SLP last week (we should be getting a second half hour/wk, but again not sure when). We're also starting the speech clinic at the local university in two weeks for the summer session (we've heard rave reviews of the speech clinic including from our head pediatrician - fortunately, my husband is a professor there, so we get priority). Hopefully, not too much - but my son has a really friendly, easy going disposition and seems to enjoy the one:one attention. So here's my question: Do we add the EPA to the mix now gradually and see how that works and then add the Nutriiveda? Or should we go right to the Nutriiveda at this point? Or do both at the same time? I noticed a difference even with the little bit of EPA he got, but I keep hearing such fabulous stuff about Nutriiveda. I also have heard people say do things one at a time so you know exactly what the reaction is. Thanks in advance for your thoughts and feedback. And thanks too to this group - I've learned a tremendous amount! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2010 Report Share Posted May 6, 2010 I think you'll get many opinions on this. I am always of the mindset of adding one item at a time, so that we can see if it makes a difference or not, positive or negative. I don't want to have our DS on more than he needs, so I add one item at a time, give it a little time to see if it's working, then add the next. Good luck! From: maryfmchugh@... Date: Thu, 6 May 2010 17:18:32 +0000 Subject: [ ] Advice - add EPA first or start Nutriiveda? Hi, I know this subject has been covered a lot lately, so apologies in advance. My son (28 months, verbal apraxia and low tone) has been taking 2 EFAs for two months now. We've seen improvements in babbling/vocalizations, and a lot of intangibles like increased strength, less clumsiness, etc. We want to add both the EPA and the Nutriiveda to the mix - it's just a question of how and in what order. About 3 weeks ago, I added an EPA capsule to the mix, but the next day my son had early diarrhea (not to mention bad diaper rash and bad eczema on his chin the following day). I reduced it and then cut it out after three days. Not sure if it was a reaction to the EPA or a bug - we had a similar reaction when he first went on EFA, though again both could be purely coincidental - but we didn't want to take a chance and be forced to stop all the fish oils. We definitely plan on starting Nutriiveda, but we've been waiting because we've been in the process of increasing our Early Intervention services, plus looking for outside speech. And I mean process - it has probably taken us 4 months. We had only been getting developmental intervention, 5 hrs/wk, helpful but not exactly what he needed. I didn't want to start on the Nutriiveda until all the evaluations had been completed and the therapists had started working with him. In the past 2 weeks, we have added an OT, a PT, and one SLP from EI (somehow we got approval for 3 hrs of speech! but they have to split it out to two SLPs - who knows when we'll get that second SLP). We also had an outpatient speech eval and got insurance approval for outpatient speech (another huge surprise!), so we started one half hour with an outside SLP last week (we should be getting a second half hour/wk, but again not sure when). We're also starting the speech clinic at the local university in two weeks for the summer session (we've heard rave reviews of the speech clinic including from our head pediatrician - fortunately, my husband is a professor there, so we get priority). Hopefully, not too much - but my son has a really friendly, easy going disposition and seems to enjoy the one:one attention. So here's my question: Do we add the EPA to the mix now gradually and see how that works and then add the Nutriiveda? Or should we go right to the Nutriiveda at this point? Or do both at the same time? I noticed a difference even with the little bit of EPA he got, but I keep hearing such fabulous stuff about Nutriiveda. I also have heard people say do things one at a time so you know exactly what the reaction is. Thanks in advance for your thoughts and feedback. And thanks too to this group - I've learned a tremendous amount! _________________________________________________________________ Hotmail is redefining busy with tools for the New Busy. Get more from your inbox. http://www.windowslive.com/campaign/thenewbusy?ocid=PID28326::T:WLMTAGL:ON:WL:en\ -US:WM_HMP:042010_2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 I agree..I LOVE NV!! BUT I would recommend to start one item at a time too. Start with adding 1 EPA, wait a few weeks-2-4wks, then add the NV. Let me know if you have additional NV questions. I can help you with ordering. Warmest wishes, Barbara Barbara A. , M.S., CCC-SLP Executive Director/ Help Me Speak, LLC <http://www.helpmespeak.com/> http://www.helpmespeak.com (o) 410-442-9791 (f) 410-442-9783 2500 Wallington Way; Suite 103 Marriottsville, MD 21104 follow us on FaceBook: http://www.facebook.com/pages/Marriottsville-MD/Help-Me-Speak-LLC/1046288520 32 Call me with any questions about NutriiVeda! www.hms.myzrii.com From: [mailto: ] On Behalf Of Sent: Thursday, May 06, 2010 1:19 PM Subject: [ ] Advice - add EPA first or start Nutriiveda? Hi, I know this subject has been covered a lot lately, so apologies in advance. My son (28 months, verbal apraxia and low tone) has been taking 2 EFAs for two months now. We've seen improvements in babbling/vocalizations, and a lot of intangibles like increased strength, less clumsiness, etc. We want to add both the EPA and the Nutriiveda to the mix - it's just a question of how and in what order. About 3 weeks ago, I added an EPA capsule to the mix, but the next day my son had early diarrhea (not to mention bad diaper rash and bad eczema on his chin the following day). I reduced it and then cut it out after three days. Not sure if it was a reaction to the EPA or a bug - we had a similar reaction when he first went on EFA, though again both could be purely coincidental - but we didn't want to take a chance and be forced to stop all the fish oils. We definitely plan on starting Nutriiveda, but we've been waiting because we've been in the process of increasing our Early Intervention services, plus looking for outside speech. And I mean process - it has probably taken us 4 months. We had only been getting developmental intervention, 5 hrs/wk, helpful but not exactly what he needed. I didn't want to start on the Nutriiveda until all the evaluations had been completed and the therapists had started working with him. In the past 2 weeks, we have added an OT, a PT, and one SLP from EI (somehow we got approval for 3 hrs of speech! but they have to split it out to two SLPs - who knows when we'll get that second SLP). We also had an outpatient speech eval and got insurance approval for outpatient speech (another huge surprise!), so we started one half hour with an outside SLP last week (we should be getting a second half hour/wk, but again not sure when). We're also starting the speech clinic at the local university in two weeks for the summer session (we've heard rave reviews of the speech clinic including from our head pediatrician - fortunately, my husband is a professor there, so we get priority). Hopefully, not too much - but my son has a really friendly, easy going disposition and seems to enjoy the one:one attention. So here's my question: Do we add the EPA to the mix now gradually and see how that works and then add the Nutriiveda? Or should we go right to the Nutriiveda at this point? Or do both at the same time? I noticed a difference even with the little bit of EPA he got, but I keep hearing such fabulous stuff about Nutriiveda. I also have heard people say do things one at a time so you know exactly what the reaction is. Thanks in advance for your thoughts and feedback. And thanks too to this group - I've learned a tremendous amount! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2010 Report Share Posted July 21, 2010 Hi ! I too typically would say to do one thing at a time so you see what is working best, but there are exceptions. There have been cases here where people have started fish oils and NV -but then at one point or another you run out or stop one or the other and then you'll have the opportunity to see the regression. And there are also some parents that just don't want to wait: for example yesterday I met with a mom that lived by me (a transplant of course as there are hardly any other kids from this group near me!) and I gave her the ProEFA, ProEPA and nutriiveda and her son who is diagnosed autistic, but is probably a combo like most with ADHD issues, and older is starting on low dosage one capsule of fish oil and nutriiveda. Nutriiveda in itself is a bunch of whole foods that work well together and from this group we know that the essential fatty acids (fish oils) work well with the essential amino acids and nutrients from whole food sources (nutriiveda) Also your child is already on 2 capsules of ProEFA a day. I would for sure add nutriiveda first and then down the road add the extra EPA because you already have the essential fats going in -now you can add some of the other nutrients we have found to be most important. In fact when you add the ProEPA down the road you could in fact lower the dosage as even at a lower dosage of fish oils you should see more surges with the right formula. So instead of 2 proEFA -just give one ProEFA and only squeeze out half a capsule of ProEPA. Either you'll see another surge or he'll remain the same. Unless you waited awhile it will be hard to know with the added EPA as with nutriiveda from what I have seen the surges are dramatic, sudden, and they are in so many areas and they continue. Please again read this list for areas http://pursuitofresearch.org/pursuit.html So in fact you already started fish oils- whatever you've seen on them is going to give you an idea of the surges we see on the oil therapy....now again I say add nutriiveda -and here's why http://pursuitofresearch.org/science.html Do you have all the info to share with your child's doctor? Even though it's just a food- I really want everyone to share because more doctors need to be aware of these surges so other children can benefit. There are too many skeptics out there who probably doubt the testimonies http://pursuitofresearch.org/testimonials.html are real. They aren't only real...they are appearing to be across the board from the survey. The main problem reported by some is the trouble getting it in (which is why I came up with this page http://pursuitofresearch.org/serving_suggestions.html ) and wow you guys have come up with such interesting recipes!!! Liralen...I never would have thought of nutriiveda jello!!! The cookies all sounded good...I would never have thought of the Rice Krispy treats either Kate!! I guess I'm lucky in that my boys just drink it with water now..me too ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2010 Report Share Posted July 23, 2010 Hi , Again, thanks for responding to my post. It's actually an older post, and we ended up choosing to add the EPA first before the NV. We started with a half capsule of EPA in early May and added the second half about 2 weeks later. With both additions, we noticed a lot more babbling. In fact an hour after I gave him his first full dose of EPA, he was babbling up such a storm, my husband and I just looked at each other. Could it be, that quick??? The downside was A LOT of drool for a week or so, especially after we upped him to a full EPA, which then caused bad eczema on his chin. We added NV to the mix sometime in mid June but really gradually. I think I started with 2 teaspoons and then upped the dose by a teaspoon after three days. He finally got on a full dose (a good heaping spoonful) late June/early July? Have to check my notes at home to confirm. We've been really pleased with the results and will definitely keep the NV in the mix. I can't say we've seen dramatic surges in his speech, but maybe more pre-speech development? We've also seen improvements in his gross/fine motor skills, as well as some sensory issues (mostly an increase in body awareness and coordination). It's hard to tell what is helping - the fish oil, the NV, the additional therapy (especially the PT and OT) he started getting in May. More likely the full mix. I printed out a survey - I'll try to post this weekend. One more note - we are pretty fortunate that my son will take the NV in milk or yogurt. My son is a huge Wiggles fan and particularly likes to watch short Wiggles videos on you tube (introduced to both by my hubby - lol). I started mixing the fish oils in yogurt and feeding it to him while watching the Wiggles before we headed out in the morning. Now, I just add the NV to his fish oil/yogurt cocktail. He eats it right up, but I can pretty much feed him or do anything to him while he's watching the Wiggles :-) Not proud to admit it, but thought I'd pass that suggestion on to anyone who's really struggling. Daycare feeds him breakfast/lunch/snack 5 days a week, so I needed to find a way to give it to him earlier rather than wait until dinner. Weekends we give it to him more gradually throughout the morning/lunch hour. Warm regards, - > > Hi ! > > I too typically would say to do one thing at a time so you see what is working best, but there are exceptions. There have been cases here where people have started fish oils and NV -but then at one point or another you run out or stop one or the other and then you'll have the opportunity to see the regression. And there are also some parents that just don't want to wait: for example yesterday I met with a mom that lived by me (a transplant of course as there are hardly any other kids from this group near me!) and I gave her the ProEFA, ProEPA and nutriiveda and her son who is diagnosed autistic, but is probably a combo like most with ADHD issues, and older is starting on low dosage one capsule of fish oil and nutriiveda. Nutriiveda in itself is a bunch of whole foods that work well together and from this group we know that the essential fatty acids (fish oils) work well with the essential amino acids and nutrients from whole food sources (nutriiveda) > > Also your child is already on 2 capsules of ProEFA a day. I would for sure add nutriiveda first and then down the road add the extra EPA because you already have the essential fats going in -now you can add some of the other nutrients we have found to be most important. In fact when you add the ProEPA down the road you could in fact lower the dosage as even at a lower dosage of fish oils you should see more surges with the right formula. So instead of 2 proEFA -just give one ProEFA and only squeeze out half a capsule of ProEPA. Either you'll see another surge or he'll remain the same. Unless you waited awhile it will be hard to know with the added EPA as with nutriiveda from what I have seen the surges are dramatic, sudden, and they are in so many areas and they continue. Please again read this list for areas > http://pursuitofresearch.org/pursuit.html > > So in fact you already started fish oils- whatever you've seen on them is going to give you an idea of the surges we see on the oil therapy....now again I say add nutriiveda -and here's why http://pursuitofresearch.org/science.html > > Do you have all the info to share with your child's doctor? Even though it's just a food- I really want everyone to share because more doctors need to be aware of these surges so other children can benefit. There are too many skeptics out there who probably doubt the testimonies http://pursuitofresearch.org/testimonials.html are real. They aren't only real...they are appearing to be across the board from the survey. The main problem reported by some is the trouble getting it in (which is why I came up with this page http://pursuitofresearch.org/serving_suggestions.html ) and wow you guys have come up with such interesting recipes!!! Liralen...I never would have thought of nutriiveda jello!!! The cookies all sounded good...I would never have thought of the Rice Krispy treats either Kate!! I guess I'm lucky in that my boys just drink it with water now..me too > > ===== > Quote Link to comment Share on other sites More sharing options...
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