Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 I just went to the Kaufman center to do a 4 day intensive with Kaufman. She thinks my daughter may have vcfs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 No, but I searched it and did find this if you haven't seen it already! http://www.vcfsef.org/ [ ] anyone heard of vcfs? I just went to the Kaufman center to do a 4 day intensive with Kaufman. She thinks my daughter may have vcfs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Thanks so much for the info. ________________________________ From: " NotefrmSue@... " <NotefrmSue@...> Sent: Friday, September 18, 2009 8:25:10 AM Subject: Re: [ ] anyone heard of vcfs? No, but I searched it and did find this if you haven't seen it already! http://www.vcfsef. org/ [childrensapraxiane t] anyone heard of vcfs? I just went to the Kaufman center to do a 4 day intensive with Kaufman. She thinks my daughter may have vcfs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 I saw that there is a support group on : vcfsfamilysupport --- On Fri, 9/18/09, Tara Nowakowski <taranowakowski@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2009 Report Share Posted September 20, 2009 My daughter was originally diagnosed with apraxia and then upon further testing (genetic), she was found to have 22q11.2 deletion syndrome, also known as VCFS. It was a bit of a surprise because there are so many others factors present in VCFS that she doesn't have but she is pretty much completelely nonverbal. I no longer know if I can say she has apraxia because different people say different things about whether you can have both or it is just VCFS. Her medical records still say apraxia so I am going with that for now but I have found none of the supplements have made much difference to my daughter unlike many of the other kids with apraxia. Good luck in your search for answers! Tamara > > I just went to the Kaufman center to do a 4 day intensive with Kaufman. She thinks my daughter may have vcfs. > Quote Link to comment Share on other sites More sharing options...
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