Re: What causes apraxia?

[Guest guest]

my son is adopted from Texas. He as apraxia. My theory is that his birth-mother

was under extreme duress during her pregnancy as she hid the pregnancy from her

parents the entire time. As she saw herself showing @ around 7 months - she told

her parents she was going to get a summer job in another city. It turns out it

was the place where my son was born - they house would-be mothers considering

placing their children for adoption.

From:

[mailto: ] On Behalf Of easimerm

Sent: Tuesday, October 27, 2009 11:55 AM

Subject: [ ] What causes apraxia?

From all the reading I've done, I know it's a neurological disorder, but do we

know what causes it - or what the hypotheses are?

I was struck by the responses to my post about my recently adopted son, and a

few people chimed in with responses about their adopted kids (I think all from

eastern europe) and it made me wonder if there was some connection.

I know all kinds of kids have apraxia, but it seems like maybe theres a

connection.

Beth

ps do we know if it's genetic? Is certain ethnicities are more prone?

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[Guest guest]

Hi Beth,

It is funny that you might think thee is a connection with our children being

adopted from Eastern Europe. Until today I have not found anyone with an adopted

child with Apraxia and I have been on this board for a good year. I was

wondering was I the only one with an apraxia child that was adopted/ I am very

involved with many families that have come home with kids from Kazahstan and no

one that I know has apraxia. My ST say's that true apraxia is pretty rare? My

son seems to be a classic oral apraxia kid, from what they tell me and from what

I have read.

I am trilled more people with adopted kids have chimed in on this group. Thanks

and I look forward to chatting soon.

Carolyn

________________________________

From: easimerm <easimerm@...>

Sent: Tue, October 27, 2009 11:54:58 AM

Subject: [ ] What causes apraxia?

From all the reading I've done, I know it's a neurological disorder, but do we

know what causes it - or what the hypotheses are?

I was struck by the responses to my post about my recently adopted son, and a

few people chimed in with responses about their adopted kids (I think all from

eastern europe) and it made me wonder if there was some connection.

I know all kinds of kids have apraxia, but it seems like maybe theres a

connection.

Beth

ps do we know if it's genetic? Is certain ethnicities are more prone?

__________________________________________________

[Guest guest]

It's oxidative stress--be it physical--from a head trauma--or stroke--can be

prebirth, womb constriction (our case), or post birth; or most likely oxidative

stress on the brain caused by chemical factors--read--toxicity--which includes

foods we are intolerant to--which affect the brain directtly such as gluten/

casein peptides, but also preservatives, pesticides, fungicides, MSG, all that

corn syrup in everything we eat that turns out has mercury in it and so on. So

toxins aree unfortunately abundent in our environment, they trigger metabolic

disorders, enzyme deficiencies which further exacerbate the chronic

degenerative/inflammatory process and once the immune system is weakened enough

opportunistic infections take over as well, so these kids will have a lot of

metabolic/neurological issues to deal with, but increased toxicity is the main

culprit and by that I mean toxicity from--chemicals--viruses, bacteria,

parasites.

We've had all of these, battling our second type of microscopic parasites now

since they tend to favor those with gut dysbiosis--no we never had obvious

digestive problems either, but she is intolerant to gluten and that is enough to

cause the leaky gut. toxins lead to gluten intolerance genes being activated and

then the downward vicious cycle begins. And my daughter is just apraxic, not ASD

but the same fundamental principles apply.  Metabolic disorders trigger genetic

mutations that lead to further metabolic disorders and neurological

nedocrine/immune dysfunctions.    All of these cause oxidative stress on the

body, the brain is highly susceptible especially in the young and the

old---therefore the abundence of neurological and metabolic disorders among

these populations.

Best of health,

Elena

From: easimerm <easimerm@...>

Subject: [ ] What causes apraxia?

Date: Tuesday, October 27, 2009, 11:54 AM

From all the reading I've done, I know it's a neurological disorder, but do we

know what causes it - or what the hypotheses are?

I was struck by the responses to my post about my recently adopted son, and a

few people chimed in with responses about their adopted kids (I think all from

eastern europe) and it made me wonder if there was some connection.

I know all kinds of kids have apraxia, but it seems like maybe theres a

connection.

Beth

ps do we know if it's genetic?  Is certain ethnicities are more prone?

------------------------------------

[Guest guest]

My son is not adopted and is of the East Indian origin and has TRUE TRUE APRAXIA

confirmed by many different SLPs. True Apraxia is pretty rare from my research

and what my SLP have told me.

My son is text book case of true Apraxia.

Hetal in CA

>

> From all the reading I've done, I know it's a neurological disorder, but do we

know what causes it - or what the hypotheses are?

>

> I was struck by the responses to my post about my recently adopted son, and a

few people chimed in with responses about their adopted kids (I think all from

eastern europe) and it made me wonder if there was some connection.

>

> I know all kinds of kids have apraxia, but it seems like maybe theres a

connection.

>

> Beth

>

> ps do we know if it's genetic? Is certain ethnicities are more prone?

>

[Guest guest]

My 8dd is not adopted and has True Apraxia. She could not use two-word sentences

till she was 5.5 yrs old. She was dx with Hydrocephalus at 6mos old..another

Neurological condition, which must be related to her issues. She has a deletion

on one of her chromosomes. The Genetics dr in nyc has said that he has seen a

connection between the other kids he treats with this type of deletion and a lot

of them having True Apraxia.

[Guest guest]

what is true apraxia?

From: hpatel5652 <hpatel5652@...>

Subject: [ ] Re: What causes apraxia?

Date: Tuesday, October 27, 2009, 11:54 PM

 

My son is not adopted and is of the East Indian origin and has TRUE TRUE APRAXIA

confirmed by many different SLPs. True Apraxia is pretty rare from my research

and what my SLP have told me.

My son is text book case of true Apraxia.

Hetal in CA

>

> From all the reading I've done, I know it's a neurological disorder, but do we

know what causes it - or what the hypotheses are?

>

> I was struck by the responses to my post about my recently adopted son, and a

few people chimed in with responses about their adopted kids (I think all from

eastern europe) and it made me wonder if there was some connection.

>

> I know all kinds of kids have apraxia, but it seems like maybe theres a

connection.

>

> Beth

>

> ps do we know if it's genetic? Is certain ethnicities are more prone?

>

[Guest guest]

I'm curious about the deletion on the chromsome. My son who is 4.5 years old has

apraxia and i have been told that his case is the most servere seen in a while

be numerous SLP. Noah also has been diagnosised with autism but are now leaning

more toward apraxia, SID, and OCD, maybe PDD/NOS. They won't let him lose the

autism dx because it is allowing us to get him more help right now and it is

really helping him. What is the deletion DD has? Noah has 16p11.2, which is

associated with autism at this point.

Thank you for you help,

________________________________

From: mosense <mosense@...>

Sent: Wed, October 28, 2009 6:07:05 AM

Subject: [ ] Re: What causes apraxia?

�

My 8dd is not adopted and has True Apraxia. She could not use two-word sentences

till she was 5.5 yrs old. She was dx with Hydrocephalus at 6mos old..another

Neurological condition, which must be related to her issues. She has a deletion

on one of her chromosomes. The Genetics dr in nyc has said that he has seen a

connection between the other kids he treats with this type of deletion and a lot

of them having True Apraxia.

[Guest guest]

The genetics dr said he has seen quite a few children with her deletion that

have apraxia or some form of speech delays.

The Ped Neurologist who finally gave it a name when she was 4yrs old also said

hers was the worst case he had ever seen. It was than that he suggested the

augmentive communication. our SD SLP said the same thing when she entered K a

year later---that my dd was one of the most severe cases she'd ever seen.

As far as keeping the dx of autism to keep services--do you think he is

autistic? When my dd entered K the dx she had was severe speech delay. About two

school years ago--they changed it on her IEP to Multiple Disabiities--they said

they also did it to make sure none of her services could ever be taken away.

>

> I'm curious about the deletion on the chromsome. My son who is 4.5 years old

has apraxia and i have been told that his case is the most servere seen in a

while be numerous SLP. Noah also has been diagnosised with autism but are now

leaning more toward apraxia, SID, and OCD, maybe PDD/NOS. They won't let him

lose the autism dx because it is allowing us to get him more help right now and

it is really helping him. What is the deletion DD has? Noah has 16p11.2, which

is associated with autism at this point.

>

> Thank you for you help,

>

>

>

>

>

> ________________________________

> From: mosense <mosense@...>

>

> Sent: Wed, October 28, 2009 6:07:05 AM

> Subject: [ ] Re: What causes apraxia?

>

> �

> My 8dd is not adopted and has True Apraxia. She could not use two-word

sentences till she was 5.5 yrs old. She was dx with Hydrocephalus at 6mos

old..another Neurological condition, which must be related to her issues. She

has a deletion on one of her chromosomes. The Genetics dr in nyc has said that

he has seen a connection between the other kids he treats with this type of

deletion and a lot of them having True Apraxia.

>

>

>

>

>

>

>

>

[Guest guest]

Hi Beth

our family came together thru adoption and my children are biologically

unrelated. 2 of my 3 kids have speech/language issues. My youngest (whom I

joined this board for) is nearly 3. He came home at 7.5 months with a few words

(both words started with vowels) in his native language (Korean) and thought we

were home-free (he was considered " special needs " due to prematurity, but never

thought it was an issue... still dont). I dont really think his prematurity

" caused " his challenges. We're working with a dx of " suspected apraxia " . He's

made such incredible gains in the 9 months of intense speech, not sure he even

looks " apraxic " anymore yet he does qualify to continue therapy in the 3-5

program which means he falls into the bottom 7%.

I have given a lot of thought to this. Dont think there's one " right " answer of

course. I do believe that children who are adopted have a greater risk for

challenges. Reasons: often poor pre-natal or no pre-natal care; birthmother

stress during pregnancy; birthmother illnesses/medication during pregnancy;

smoking, drinking during pregnancy or prior to knowing about pregnancy;

environmental toxins; and the huge piece for many of our children is the

disruption in that bond with birthmother and subsequent moves and potential lack

of bonding. In our case because of what we'd gone thru with our dd, we delayed

(still havent done any) vaccinations yet he got the full bevy in Korea - all the

infant, well baby until he came home. Had he been my birth child, those

vaccinations would have been heavily delayed and split up. A newborn child does

not have the immunity (ESP when stressed, i.e. losing birthmom) to handle those

immunizations, not to mention the blood/brain barrier isnt intact in a newborn.

Those are *my* feelings and many might disagree. We did start a program of

neurological reorganization which I'd hoped we do and do well, but it's an

intense program and we didnt follow thru. We may go back to it, as our son def

has some anxious attachment issues. The woman who evaluated him felt certain it

would address his speech issues as well as anything attachment related (if you

want to learn more there's good info on: www.a4everfamily.org...I opted to put

the time into speech and for now, glad we did, as he's come soooooooo far (still

not intelligible to average person but using 3-4 word sentences... drops

end/begin consonants but it's still soooo wonderful to hear him talk.. started

with 10 words or so)....Wishing you the best!

Leigh

>

> From all the reading I've done, I know it's a neurological disorder, but do we

know what causes it - or what the hypotheses are?

>

> I was struck by the responses to my post about my recently adopted son, and a

few people chimed in with responses about their adopted kids (I think all from

eastern europe) and it made me wonder if there was some connection.

>

> I know all kinds of kids have apraxia, but it seems like maybe theres a

connection.

>

> Beth

>

> ps do we know if it's genetic? Is certain ethnicities are more prone?

>

[Guest guest]

Thanks - very informative.