Guest guest Posted November 27, 2009 Report Share Posted November 27, 2009 Tina thank you so much for sharing -and just in time for this Thanksgiving season!! I would LOVE to have more details- please share more here or feel free to email me at lisa@... or call me 772 335 5135. My son Tanner is now 13 years old and has been mainstreamed since kindergarten however I don't always have many older apraxics to look to for positive outcomes. I know years ago many apraxic children fell through the cracks due to ignorance and were not provided appropriate therapy and placements...so I am once again thrilled to read about your son's incredible success. Here are some of my questions: 1. Is your son in the mainstream and if so has he always been there, and if not when was he switched? 2. What was the most important therapy in your opinion for your son's success today? 3. Does your son have any coexisting issues outside of the apraxia and are they too resolved? 4. When tired, stressed, or having to express something complex does your son break down. And...does your son only allow himself to break down in front of family and close friends? (I'm noticing that more and more with my son Tanner) 5. What are your son's goals for the future? 6. Would your son be willing to write something for all of us as parents in this group for us to share with our children? Any words of advice from one who walked the walk/talked the talk? Again thank you SO much and would love to hear more from you! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 It is so nice to read your update post. Folks don't often share the stories of success with the older kids. It is so important for others just starting this journey to know there is a light at the end of the tunnel!! I have a 11 year old son that is doing great. He was diagnosed as severly apraxic at the age of 3. He was nonverbal & had sensory issues. He is now in mainstream 6th grade. His testing scores support him being in advanced & honors classes but we made the decision to keep him in regular classes. He had all A's & a B on his first report card this year. I never dreamed he would do this well in school. We still struggle with some issues but overall you would never know there was a problem. We started him on Pro Efa at the age of 3 & noticed word approximations within 3 weeks. He had private speech therapy until age 6 but then just school therapy after that. I took him out of therapy this year since he was entering middle school & kids can be so cruel at that age. I feel he has come far enough to take a break from it. We have never tried any of the diets or Vit E that others have done. For us, therapy, Pro Efa & sports have been the trick. He loves soccer & baseball & is very good at both. We also did the ride therapy a few summers in a row with & her kids. That was fun, & yes believe it or not going on amusement rides & water slides really makes a difference in my son's speech!! Don't know how??? Hope this is a peek into the future of your children. Tammy I. in FL mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 It is always wonderful to read the success stories Here is a little update on my daughter . She was diagnosed with Apraxia 1 year ago at age 4. She was nonverbal at that time and we did not know if she would ever speak. She also did not make much of an effort to communicate. She has a chromosome deletion and the neurologist believes she might be on the Autism Spectrum. Personally, I am not sure if the chromosome deletion is of any significance and I also do not believe that she is autistic. She does have apraxia and I had been suspecting it all along. Anyway, one year and a wonderful Speech language pathologist that started her with Prompt and Fast ForWord later, she is speaking in 3 word sentences and has well over 100 words that I know of, new words are coming out daily. She is working on clarity still and there are some sounds she cannot say like L and R, but from not speaking at all to where she is today is just amazing to me. And the more she speaks, the more she can show us how amazing and smart she is. She knows much much more than her teenage brother knew when he was her age and he is an A, honor student. She taught herself to read, knows all the colors, shapes and numbers, knows her alphabet....and I could just go on and on Thanks for all the encouragement from this group. We decided to just go with the appropriate therapy and lots of support at home and she has amazed us with her progress. Anja On Mon, Nov 30, 2009 at 10:26 AM, tammyplus4 <tammyplus4@...> wrote: > > > > It is so nice to read your update post. Folks don't often share the stories > of success with the older kids. It is so important for others just starting > this journey to know there is a light at the end of the tunnel!! > > I have a 11 year old son that is doing great. He was diagnosed as severly > apraxic at the age of 3. He was nonverbal & had sensory issues. He is now in > mainstream 6th grade. His testing scores support him being in advanced & > honors classes but we made the decision to keep him in regular classes. He > had all A's & a B on his first report card this year. I never dreamed he > would do this well in school. We still struggle with some issues but overall > you would never know there was a problem. > > We started him on Pro Efa at the age of 3 & noticed word approximations > within 3 weeks. He had private speech therapy until age 6 but then just > school therapy after that. I took him out of therapy this year since he was > entering middle school & kids can be so cruel at that age. I feel he has > come far enough to take a break from it. We have never tried any of the > diets or Vit E that others have done. For us, therapy, Pro Efa & sports have > been the trick. He loves soccer & baseball & is very good at both. We also > did the ride therapy a few summers in a row with & her kids. That was > fun, & yes believe it or not going on amusement rides & water slides really > makes a difference in my son's speech!! Don't know how??? Hope this is a > peek into the future of your children. > > Tammy I. in FL mom to > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 Just wanted to add that was in early intervention with Speech and physical therapy since before she turned one. She did not seem to make any progress until she was 4. On Mon, Nov 30, 2009 at 5:48 PM, Anja <anjasanchez@...> wrote: > It is always wonderful to read the success stories > Here is a little update on my daughter . She was diagnosed with > Apraxia 1 year ago at age 4. She was nonverbal at that time and we did not > know if she would ever speak. She also did not make much of an effort to > communicate. She has a chromosome deletion and the neurologist believes she > might be on the Autism Spectrum. Personally, I am not sure if the chromosome > deletion is of any significance and I also do not believe that she is > autistic. She does have apraxia and I had been suspecting it all along. > Anyway, one year and a wonderful Speech language pathologist that > started her with Prompt and Fast ForWord later, she is speaking in 3 word > sentences and has well over 100 words that I know of, new words are coming > out daily. She is working on clarity still and there are some sounds she > cannot say like L and R, but from not speaking at all to where she is today > is just amazing to me. And the more she speaks, the more she can show us how > amazing and smart she is. She knows much much more than her teenage brother > knew when he was her age and he is an A, honor student. She taught > herself to read, knows all the colors, shapes and numbers, knows her > alphabet....and I could just go on and on Thanks for all the > encouragement from this group. We decided to just go with the appropriate > therapy and lots of support at home and she has amazed us with her progress. > Anja > > On Mon, Nov 30, 2009 at 10:26 AM, tammyplus4 <tammyplus4@...> wrote: > >> >> >> >> It is so nice to read your update post. Folks don't often share the >> stories of success with the older kids. It is so important for others just >> starting this journey to know there is a light at the end of the tunnel!! >> >> I have a 11 year old son that is doing great. He was diagnosed as severly >> apraxic at the age of 3. He was nonverbal & had sensory issues. He is now in >> mainstream 6th grade. His testing scores support him being in advanced & >> honors classes but we made the decision to keep him in regular classes. He >> had all A's & a B on his first report card this year. I never dreamed he >> would do this well in school. We still struggle with some issues but overall >> you would never know there was a problem. >> >> We started him on Pro Efa at the age of 3 & noticed word approximations >> within 3 weeks. He had private speech therapy until age 6 but then just >> school therapy after that. I took him out of therapy this year since he was >> entering middle school & kids can be so cruel at that age. I feel he has >> come far enough to take a break from it. We have never tried any of the >> diets or Vit E that others have done. For us, therapy, Pro Efa & sports have >> been the trick. He loves soccer & baseball & is very good at both. We also >> did the ride therapy a few summers in a row with & her kids. That was >> fun, & yes believe it or not going on amusement rides & water slides really >> makes a difference in my son's speech!! Don't know how??? Hope this is a >> peek into the future of your children. >> >> Tammy I. in FL mom to >> >> >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2009 Report Share Posted November 30, 2009 Thanks Tammy for sharing, I only give my son Pro Efa and in he is in  alot of  sport activities. He just turn 6. I hope and pray that I have good news to share with all. Tracey ________________________________ From: tammyplus4 <tammyplus4@...> Sent: Mon, November 30, 2009 9:26:36 AM Subject: [ ] Re: Hi all an update  It is so nice to read your update post. Folks don't often share the stories of success with the older kids. It is so important for others just starting this journey to know there is a light at the end of the tunnel!! I have a 11 year old son that is doing great. He was diagnosed as severly apraxic at the age of 3. He was nonverbal & had sensory issues. He is now in mainstream 6th grade. His testing scores support him being in advanced & honors classes but we made the decision to keep him in regular classes. He had all A's & a B on his first report card this year. I never dreamed he would do this well in school. We still struggle with some issues but overall you would never know there was a problem. We started him on Pro Efa at the age of 3 & noticed word approximations within 3 weeks. He had private speech therapy until age 6 but then just school therapy after that. I took him out of therapy this year since he was entering middle school & kids can be so cruel at that age. I feel he has come far enough to take a break from it. We have never tried any of the diets or Vit E that others have done. For us, therapy, Pro Efa & sports have been the trick. He loves soccer & baseball & is very good at both. We also did the ride therapy a few summers in a row with & her kids. That was fun, & yes believe it or not going on amusement rides & water slides really makes a difference in my son's speech!! Don't know how??? Hope this is a peek into the future of your children. Tammy I. in FL mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2009 Report Share Posted December 2, 2009 Hi Dave! I'm not Tammy but I'm the that Tammy talks about regarding the " ride therapy " It was just an observation I made years ago..and then I named it " ride therapy " because just like I found fish oils to help my son -just like I found a preschool for the deaf to help my son- just like I noticed that many of the kids in our group appeared to have the same low tone that my son had and encouraged everyone to see a neuromedical doctor back when the only advice was to see an SLP (and back around 1999 even all the SLPs didn't agree that apraxia in children even was an actual diagnosis!) just like I pointed out constipation in my son and found a natural way to help the group of parents that seemed to come out of the woodwork with the same issue in their child in our group...or nose blowing for that matter...OK you get the point -I noticed it and pointed it out and then others noticed that what I found to help my son in most cases helped their son. It's my opinion that this is because Tanner is a very typical apraxic child with multifaceted apraxia -and I happen to be an out of the box parent who co authored The Late Talker book in 2003 and shockingly it's still probably one of the best books if your child is a late talker (we do need one for older kids!). And in light of my past discoveries that have helped many in this group -I also want to do a call to attention about http://www.pursuitofresearch.org to read about my son's reaction on this ayurvedic product called Nutriiveda because in the world of " OMG " it's " OMG!!! " so right up there with the fish oils which is pretty high up there in my book. We don't know if the side benefits that happened in Tanner will happen in others- but right now others are sharing it with their child's docs like I did and getting the green light to try it too. 's mom Robin just got the Nutriiveda from http://www.pursuitofresearch.org today and will be updating our group every day sharing the diary of what they notice as well as photos. We are documenting it because I have a huge hunch that once again what " worked " for Tanner isn't 'just' going to work for Tanner- and to me it's just exciting that here we have 5000 year old medicine today combined with modern science that probably just about nobody in this group even knew about no matter how educated they are. Last night I spoke with Sowmya from our group who said she is familiar with every single ingredient in Nutriiveda and they are all things that you would eat in a meal in India....but the " medicine " is when an expert like Dr. Deepak Chopra combines them. I don't understand why this is working now -but again this is a metabolic ayurvedic product. But back to ride therapy -so super fun. Below is an archive on why this may help For those that asked nobody really knows for sure why the G force rides appear to help Tanner and others that then tried it as reported here. For younger children some effects can be seen by taking them on water slides - things like that. The changes for my son are not that day but the next day and they begin to fade after a day or two. The theories about ride therapy are the following. 1. Stimulation to the vestibular system which is tied to speech? That appears to be one of the most popular beliefs. 2. Release of adrenaline or other chemicals into the body that stimulate speech? 3. Electromagnetic forces effect on speech? In the archives there were some interesting studies done by NASA that I posted about. I did a search again just now but don't remember which ones I posted. This one is interesting about rebounding however and I know Tanner LOVES rebounding! http://www.reboundoz.com.au/research12-print.htm Dr. Jonas, Tanner's one SLP here in Florida, got to see the remarkable surges in Tanner a few years back after he had a day of ride therapy and she agreed this is something that should be studied. For us the rides that appear to work would be things like Space Mountain, Rock n Roller Coaster, the Hulk, Revenge of the Mummy, Expedition Everest- but we also go on Tower of Terror and Splash Mountain and Big Thunder Mountain...not that we do all in the same day! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2009 Report Share Posted December 10, 2009 We are having a very difficult time with our son Josh and sensory issues. Some days he is fine and other days he will put on the same cloths and have a tantrum that " why don't my cloths fit. " He is going to be 7 in January. It took two hours to do 20 minutes of homework last night. He refuses to do his homework and keeps asking " why do I have to do it---my friends don't. " He will have a tantrum screaming and laying on the floor and will not do the homework. Do you have any suggestions? This is very difficult on the entire family. Dave [ ] Re: Hi all an update Hi Dave! I'm not Tammy but I'm the that Tammy talks about regarding the " ride therapy " It was just an observation I made years ago..and then I named it " ride therapy " because just like I found fish oils to help my son -just like I found a preschool for the deaf to help my son- just like I noticed that many of the kids in our group appeared to have the same low tone that my son had and encouraged everyone to see a neuromedical doctor back when the only advice was to see an SLP (and back around 1999 even all the SLPs didn't agree that apraxia in children even was an actual diagnosis!) just like I pointed out constipation in my son and found a natural way to help the group of parents that seemed to come out of the woodwork with the same issue in their child in our group...or nose blowing for that matter...OK you get the point -I noticed it and pointed it out and then others noticed that what I found to help my son in most cases helped their son. It's my opinion that this is because Tanner is a very typical apraxic child with multifaceted apraxia -and I happen to be an out of the box parent who co authored The Late Talker book in 2003 and shockingly it's still probably one of the best books if your child is a late talker (we do need one for older kids!). And in light of my past discoveries that have helped many in this group -I also want to do a call to attention about http://www.pursuitofresearch.org to read about my son's reaction on this ayurvedic product called Nutriiveda because in the world of " OMG " it's " OMG!!! " so right up there with the fish oils which is pretty high up there in my book. We don't know if the side benefits that happened in Tanner will happen in others- but right now others are sharing it with their child's docs like I did and getting the green light to try it too. 's mom Robin just got the Nutriiveda from http://www.pursuitofresearch.org today and will be updating our group every day sharing the diary of what they notice as well as photos. We are documenting it because I have a huge hunch that once again what " worked " for Tanner isn't 'just' going to work for Tanner- and to me it's just exciting that here we have 5000 year old medicine today combined with modern science that probably just about nobody in this group even knew about no matter how educated they are. Last night I spoke with Sowmya from our group who said she is familiar with every single ingredient in Nutriiveda and they are all things that you would eat in a meal in India....but the " medicine " is when an expert like Dr. Deepak Chopra combines them. I don't understand why this is working now -but again this is a metabolic ayurvedic product. But back to ride therapy -so super fun. Below is an archive on why this may help For those that asked nobody really knows for sure why the G force rides appear to help Tanner and others that then tried it as reported here. For younger children some effects can be seen by taking them on water slides - things like that. The changes for my son are not that day but the next day and they begin to fade after a day or two. The theories about ride therapy are the following. 1. Stimulation to the vestibular system which is tied to speech? That appears to be one of the most popular beliefs. 2. Release of adrenaline or other chemicals into the body that stimulate speech? 3. Electromagnetic forces effect on speech? In the archives there were some interesting studies done by NASA that I posted about. I did a search again just now but don't remember which ones I posted. This one is interesting about rebounding however and I know Tanner LOVES rebounding! http://www.reboundoz.com.au/research12-print.htm Dr. Jonas, Tanner's one SLP here in Florida, got to see the remarkable surges in Tanner a few years back after he had a day of ride therapy and she agreed this is something that should be studied. For us the rides that appear to work would be things like Space Mountain, Rock n Roller Coaster, the Hulk, Revenge of the Mummy, Expedition Everest- but we also go on Tower of Terror and Splash Mountain and Big Thunder Mountain...not that we do all in the same day! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 My son is like this when his yeast is kicking up. > > We are having a very difficult time with our son Josh and sensory issues. Some days he is fine and other days he will put on the same cloths and have a tantrum that " why don't my cloths fit. " He is going to be 7 in January. It took two hours to do 20 minutes of homework last night. He refuses to do his homework and keeps asking " why do I have to do it---my friends don't. " He will have a tantrum screaming and laying on the floor and will not do the homework. Do you have any suggestions? This is very difficult on the entire family. > > Dave > > [ ] Re: Hi all an update > > > > Hi Dave! I'm not Tammy but I'm the that Tammy talks about regarding the " ride therapy " It was just an observation I made years ago..and then I named it " ride therapy " because just like I found fish oils to help my son -just like I found a preschool for the deaf to help my son- just like I noticed that many of the kids in our group appeared to have the same low tone that my son had and encouraged everyone to see a neuromedical doctor back when the only advice was to see an SLP (and back around 1999 even all the SLPs didn't agree that apraxia in children even was an actual diagnosis!) just like I pointed out constipation in my son and found a natural way to help the group of parents that seemed to come out of the woodwork with the same issue in their child in our group...or nose blowing for that matter...OK you get the point -I noticed it and pointed it out and then others noticed that what I found to help my son in most cases helped their son. It's my opinion that this is because Tanner is a very typical apraxic child with multifaceted apraxia -and I happen to be an out of the box parent who co authored The Late Talker book in 2003 and shockingly it's still probably one of the best books if your child is a late talker (we do need one for older kids!). > > And in light of my past discoveries that have helped many in this group -I also want to do a call to attention about http://www.pursuitofresearch.org to read about my son's reaction on this ayurvedic product called Nutriiveda because in the world of " OMG " it's " OMG!!! " so right up there with the fish oils which is pretty high up there in my book. We don't know if the side benefits that happened in Tanner will happen in others- but right now others are sharing it with their child's docs like I did and getting the green light to try it too. > > 's mom Robin just got the Nutriiveda from http://www.pursuitofresearch.org today and will be updating our group every day sharing the diary of what they notice as well as photos. We are documenting it because I have a huge hunch that once again what " worked " for Tanner isn't 'just' going to work for Tanner- and to me it's just exciting that here we have 5000 year old medicine today combined with modern science that probably just about nobody in this group even knew about no matter how educated they are. Last night I spoke with Sowmya from our group who said she is familiar with every single ingredient in Nutriiveda and they are all things that you would eat in a meal in India....but the " medicine " is when an expert like Dr. Deepak Chopra combines them. I don't understand why this is working now -but again this is a metabolic ayurvedic product. > > But back to ride therapy -so super fun. Below is an archive on why this may help > > For those that asked nobody really knows for sure why the G force > rides appear to help Tanner and others that then tried it as reported > here. For younger children some effects can be seen by taking them > on water slides - things like that. The changes for my son are not > that day but the next day and they begin to fade after a day or two. > > The theories about ride therapy are the following. > > 1. Stimulation to the vestibular system which is tied to speech? > That appears to be one of the most popular beliefs. > 2. Release of adrenaline or other chemicals into the body that > stimulate speech? > 3. Electromagnetic forces effect on speech? > > In the archives there were some interesting studies done by NASA that > I posted about. I did a search again just now but don't remember > which ones I posted. This one is interesting about rebounding > however and I know Tanner LOVES rebounding! > http://www.reboundoz.com.au/research12-print.htm > > Dr. Jonas, Tanner's one SLP here in Florida, got to see the > remarkable surges in Tanner a few years back after he had a day of > ride therapy and she agreed this is something that should be > studied. For us the rides that appear to work would be things like > Space Mountain, Rock n Roller Coaster, the Hulk, Revenge of the > Mummy, Expedition Everest- but we also go on Tower of Terror and > Splash Mountain and Big Thunder Mountain...not that we do all in the > same day! > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2009 Report Share Posted December 11, 2009 Hi Dave, The best thing you can do now that you've identified that your son has sensory issues, is buy the book " the out-of-sync-child "  It has lots of great strategies to deal with this. I found that after i read it, I looked at why my son was doing certain things. For example, if he was ripping things, I knew that he needed proprioceptive input so I'd put a recycling box aside that he could rip things while getting the input he needed. I put a small trampoline in the basement so that he could jump on it before attempting homework. I also have a ball for him to sit on instead of a chair (he has one at school as well)because he needed the extra input in order to concentrate. Once i started really looking at his behavior with the " sensory eye " i really got a feel for what he needed to calm and organize his body better. I'd start a reward system first for homework if you could. Let him choose what he wants, then you can say " first " we do our homework " then " you can have/do ect. But make sure his body is ready for the time needed to sit still first. The " first " " then " strategy works well here. BTW, there is also another book called " the sensory child has fun " too. Lots and lots of great strategies in both books. hth sandy ________________________________ From: Huizenga <dave@...> Sent: Thu, December 10, 2009 9:50:08 AM Subject: Re: [ ] Re: Hi all an update  We are having a very difficult time with our son Josh and sensory issues. Some days he is fine and other days he will put on the same cloths and have a tantrum that " why don't my cloths fit. " He is going to be 7 in January. It took two hours to do 20 minutes of homework last night. He refuses to do his homework and keeps asking " why do I have to do it---my friends don't. " He will have a tantrum screaming and laying on the floor and will not do the homework. Do you have any suggestions? This is very difficult on the entire family. Dave Quote Link to comment Share on other sites More sharing options...
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