Re: CROUP/parainfluenza virus LINK to apraxia?

December 6, 2009

Roz,

Kids with apraxia just are more vulnerable in general as they tend to have more

autoimmune and metabolic problems than the average neurotypical kid. I do not

think it is a link between a particular virus and apraxia, but it stands to

reason that if they have more autoimmune issues themselves and in general in the

family, and they are for various reasons--not all the same but

connected----malabsorbing various nutrients like the fatty acids, and others,

due to faulty metabolic processing, they will also be more vulnerable to a

variety of things--toxins, viruses, bacteria, parasites.

For us it is not anything viral so far, but we do have autoimmune issues--eczema

and severe scalp psoriasis, as well as bacterial issue sthat also indicate a

leaky gut, and we have one microscopic parasite after another it seems. Yes,

microscopic, not the kind mainstream doctotrs ever thing to test for but we

didn't go to one of those and even her DAn didn't catch this first one but we

went to a nutritionist who tests all patients with food intolernaces and claims

about 70% of them harbor at least one parasite. So he tests everyone as part of

his investigative protocol and BINGO, Cryptosporydium, and then months later

after we tested to see if the treatment worked on that BINGO---> Blastocystis

Hominis and she had no parasite symptoms either, not obvious ones that is just

some gas and burping, her digestion has always seemed fine and she's of good

weight, but she does seem to collect these critters one after the other. Good

thing we tested with the

full spectrum again to see that the treatment worked for the firs tones,

because had we just tested for that one type, we would have never known she now

had another one, even more difficult to get read of it seems, both antigen and

eggs--so there's no doubt--but you need to test around a full moon several days

in a row--and some labs are better than others as the DAN had tested her the

previous month with Doctor's Data and that had not identified it,m but she

obviously had it judging by the symptoms and --my symptoms, i certainly had it

and was treating for it already, as she seems to pass everything my way too--I

too have a leaky gut, food intolerances etc--and I too am more vulnerable..

Anyway, so for each kid it is different depending on their environmental

exposure and genetic predisposition. I guess for your kid it is the croup.

And BTW, scientists now know that one never fully gets read of a virus once we

come in contact with it, we just keep it our bay with a strong immune

system--which is why building a strong immune system to begin with is the key to

good health.

Anyway, see what others tell you but my guess is that he's just been sensitized

and others get more frequent ear infections, or sinus infections, others get

frequnet colds, mine gets every parasite within a mile and so on. itr is a

weakened immune system that is responsible for these reoccuring problems whether

they be viral, bacterial or parasitic, and they will also be mor evulnerable to

toxic factors--be they chemical or even foods they cannot break down properly.

unfortunately onvce these things get going it becomes a vicious cycle and it's

hard to know what caused what, but in general toxicity is the root casue for all

of these as it impairs metabolic functioning and the immune system leaving the

door wide open for opportunistic infections. Hope this helps.

Elena

From: hubinger <hubinger@...>

Subject: [ ] CROUP/parainfluenza virus LINK to apraxia?

Date: Sunday, December 6, 2009, 11:11 PM

Hi everyone

My 3.5 year old son has verbal apraxia. We just started with a DAN Dr a few

months back and test results show my son is, in her words, " quite viral " . This

week he got his fourth case of croup (in about a year and half). Apart from the

repeated cases of croup he has been a pretty healthy kid (only one ear

infection, one case of flu (very short durations) and a few colds since he was

born - he got over everything with supplements and didn't need any

antibiotics). I started to wonder about his repeated croup episodes. A google

search and search of apraxia groups came up with many apraxic kids who

have had repeated cases of croup. Does anyone know of a possible connection

between croup, the parainfluenza virus that causes most cases of croup, AND

apraxia? I know one idea I've heard is a the lack of oxygen during croup

episodes leading to developmental delays, but we were already aware of my son's

speech disorder BEFORE his first croup

episode.

Any and all information would be appreciated!

Thanks!

Roz

------------------------------------

December 7, 2009

All I can tell you is that my son is 2 years 8 months and has had croup two

times this year. His first episode of croup was this September and then

another episode in November. It was interesteding because the 1st episode

both he and his brother had. His brother's symptoms were fairly mild with

one or two nights of the seal like cough. My apraxic sons episode was far

worse and he had to be put on a steroid and have one of those machines to put on

his face to help with the breathing. He has hypotonia/dysarthia so I

contributred this to why he couldn't overcome it quite so easily.

I took my son in this past week to have his adenoids removed (no tonsillectomy

at this point in time). The doctor wasn't sure at first if he would take the

adenoids but decided to do it because he has mild obstructive apnea. We were

so glad that we proceeded because when we had the surgery the dr. came out and

said the adenoids were massive and were almost completely blocking his airway.

I mention this because even if your child doesn't have enlarged tonsils,

possibly the adenoids could be a factor with the croup? I have no medical

background and very little understanding of the human body so it's just a

thought..... When we got out of surgery my son sounded just like croup and

they didn't let him leave after waking up for like 2 hours (normally you are

only there for 1/2 hour after waking). Then within hours he sounded better

and had no cough at night and we can hear the difference when he is sleeping

with his airway. Amazing really!

[ ] CROUP/parainfluenza virus LINK to apraxia?

Hi everyone

My 3.5 year old son has verbal apraxia. We just started with a DAN Dr a few

months back and test results show my son is, in her words, " quite viral " . This

week he got his fourth case of croup (in about a year and half). Apart from the

repeated cases of croup he has been a pretty healthy kid (only one ear

infection, one case of flu (very short durations) and a few colds since he was

born - he got over everything with supplements and didn't need any antibiotics).

I started to wonder about his repeated croup episodes. A google search and

search of apraxia groups came up with many apraxic kids who have had

repeated cases of croup. Does anyone know of a possible connection between

croup, the parainfluenza virus that causes most cases of croup, AND apraxia? I

know one idea I've heard is a the lack of oxygen during croup episodes leading

to developmental delays, but we were already aware of my son's speech disorder

BEFORE his first croup episode.

Any and all information would be appreciated!

Thanks!

Roz

December 7, 2009

Croup has come up about 70 times are so in the thousands and thousands of

messages in the past ten years- making it highly doubtful there is any link

whatsoever between croup and apraxia.

I do not believe that kids with apraxia are more vulnerable in general unless

they have autoimmune or other immunity issues.

I agree there appears to be some sort of metabolic issue in most apraxic

children which could explain why the fish oils work -or why now metabolic

ayurvedic approaches are working. In addition to my son Tanner -now Robin's

daughter in TWO DAYS on the same product that helped Tanner started

humming for the first time in her life. is 25 years old and had been

misdiagnosed all her life as mentally retarded and autistic up till 17 when her

mom Robin found this group and she was diagnosed by a number of professionals

with profound global apraxia. (Robin has started a blog which will be up on the

PursuitofResearch.org site linked from the Cherab site soon)

But metabolic issues are not just this group. There appears to be an increase

in metabolic issues in the general population, but that doesn't mean all with

some sort of metabolic issue is prone to croup -but I can tell you that my son

Tanner is almost never sick- in fact he has been around people with strep throat

a number of times and doesn't pick it up. We can get carried away by saying

" how many kids with apraxia have brown hair " and again have a skewed opinion on

it based on those who answer etc. In order to know for sure what is particular

to this group you first have to rule out the numbers in this group are

inconsistent with the general population.

To me the most important thing we've learned in this group in the past decade is

that there appears to be pocket areas where the numbers of our children are

-there appears to be no genetic predisposition to speech impairments in the

families that have apraxic children, for the children in the areas where the

number of apraxic children are higher the fish oils tend to " work " and where the

numbers are low -the odds are less the fish oils will work. So I suspect there

is an environmental trigger which is somehow affecting the child's metabolic

absorption of the essential fats -and...probably the one that should be put on

top -EVERYONE in my opinion that has a child with apraxia should have their

carnitine levels measured by a medical doctor/pediatrician who is knowledgeable

because carnitine deficiency is typically rare -and the number of children that

are testing low in carnitine in this group is alarmingly high for some reason.

And carnitine is routinely recommended by parents in this group as as supplement

-but again one needs to know for sure if there is a deficiency because if there

is it should be taken seriously as unless it's monitored down the road it could

lead to sudden death as it affects the bodies muscles including those around the

heart...so you may not see the changes but should supplement anyway if needed

with a prescription dosage -and again monitored by a preferably a medical doctor

who is a metabolic specialist.

While carnitine deficiency is rare by anyone's standards -croup is a " common

childhood illness "

" Croup is a common childhood viral illness that is easily recognized because of

the distinctive characteristics that children have when they become infected.

Like most viral illnesses, there is no cure for croup, but there are many

symptomatic treatments that can help your child to feel better faster "

http://pediatrics.about.com/cs/commoninfections/a/croup.htm

=====

December 7, 2009

My daughter also has apraxia/dyspraxia (depending what you call it) and also had

a hard time with croup when she was little (she's 6 now) - would get the " seal

bark " (medical term is Strider, and it happens on the inhale instead of the

exhale because of what's swollen apparently). One time had to get a steroid

shot in the ER when she was a baby. She had her adenoids out when they put in

her second set of ear tubes, and her adenoids were very large as well according

to the ENT. She never had chronic ear infections, but did have chronic fluid in

her ears (pediatrician said it used to be called " glue ear " by physicians

because the fluid is like the old liquid brown glue you used with a brush) - so

that's why we did tubes. She did SO much better with ear tubes! Never a cold

or cough all winter! After the second set, she outgrew it and has had no

problem since. Didn't have to take tonsils out.

Might want to check ears for chronic fluid, or possibility that it has something

to do with it. Both my kids needed tubes for their ears with only occassional

ear infections - they were just always blocked with fluid and couldn't hear and

the eardrums couldn't vibrate normally. The tubes made a huge difference. I

know there are very different opinions about tubes and everyone has to weigh the

pros and cons for their own child. I have a friend who is very against tubes

and said that taking her son to a chiropractor she trusts helped immeasurably.

I happen to be a " pro tubes " person if it's needed.

Hope that helps!

Diane

>

> All I can tell you is that my son is 2 years 8 months and has had croup two