RE: New video after 6mos on NutriiVeda

August 15, 2010

Wow Sharon both to the surges and to the job you have done in documenting this

journey. Most who are not parents or professionals that deal with apraxia won't

be as impressed by the dramatic surges because most don't appreciate what a

long, slow, intensive speech therapy almost daily road to see even a glimmer of

progress road apraxia typically is. The average person would be more moved by

an older child or teen as they probably look at this and think " cute " but think

he's just " talking like a baby " You see for most -it goes from " he's just a

late talker " to " what's wrong with him " by around the age of 4 years old. I

think you just may be able to skip the horrible stage I and many of us had to go

through -the " what's wrong with him? " stage where perfect strangers believe it

appropriate to ask you that question in public and right in front of your

precious child!!

Not only is this remarkable what you did -but even for the public that is still

cluelesss -I think this will be one of the greatest ways to bring awareness to

just what we as parents go through in raising an apraxic child -how we have to

translate for them, and we can. It also shows not all that can't talk are

autistic. clearly is not autistic but clearly is speech impaired and

desperately is trying to talk to you. And by the way Missy -you missed your

calling as a teacher -OMG you are so amazing!!!

These videos bring to light all the times when Tanner was little where he would

talk and people would look at me (his translator

And once again if apraxia had physical characteristics...for sure it means ultra

adorable!!!! What a cutie pie!!!

Before I go into my observations just wanted to point out a few technical

difficulties I had because I don't know if it was just my computer. The video

under 2 weeks after nutriiveda where is wearing the white shirt (second one

down there) it starts and stops -so either it's my computer or it's not loaded

right.

Also the video under 3 months -also the second one down -where is singing

" you are my sunshine " I recall that being longer than a sentence -did it get cut

short or did you cut it short?

Also just want to point out that CHERAB is with an 'A' (for apraxia) because you

have it with a U

My observations

1. While I rarely understood him in previous videos without your help or visual

cues -his speech and articulation...OMG what a tremendous difference!!!

2. Because you don't clarify what's what I have no idea if the surge is from

nutriiveda or the other new thing you just added as you don't really specify how

long and what exactly you are doing with it. To see that tremendous of a surge

in a few months is just amazing. I think you need to break down exactly what

created what surge. I typically waited at least 3 months before adding new

therapies so new and could explain what surges were from what therapies. The

way the blog is now if I was to read it for the first time I'd be a bit

overwhelmed in knowing what to do- what helped the most. In fact based on the

progression it appears since the 6 month update is the most dramatic and recent

that it may have to do with NAET treatments (never did them with Tanner so

unknown to me) How many did you do? I find the fish oils (the essential fatty

acids) to compliment the essential amino acids because both are essential

nutrients. You say the NAET compliments nutriiveda -what is it and how? It

would be good if you can break this down a bit more as again it's hard to know

why he surged so much again between 3 and 6 months and based on what you wrote

it looks like it's the combination...but would he have surged without NAET?

What if....now this is just a thought but I love to do this when people credit

other therapies to surges and I have done this for years with the fish

oils...you keep doing NAET...but stop the nutriiveda for a few days and document

that via video update. To me right now that is the only way of knowing what is

doing what as again it's not clear.

No matter what 's articulation, ability to correct himself when you ask,

talk on command -that's all just amazing.

My suggestion other than trying to stop nutriiveda and just using this other new

thing for a few days...is to teach how to use his toys to motor plan. From

3 years old I had Tanner using either his hands- or two toys to motor plan words

that he didn't know how to say. is talking so much and from what I was

taught by his SLPs over the years you don't want to get things into the motor

memory wrong -and it appears like with the word " tree " that says it the way

he does because it's in his motor memory that way -so comfortable. But if

he/you were to take one tree and hold it up and say " t " " t " " t " (3 times is the

magic amount I've been told) and then take another tree and hold it up and say

" ree " " ree " " ree " and have him repeat..;then take the one tree he is holding

-the " t " tree and say " t " and the " ree " tree and slowly move them together

saying as they got closer and closer " t " " ree " " t " " ree " and then saying " tree "

that is the way we taught Tanner how to correct.

I was extremely impressed with his alphabet and to me it appears he is working

extra hard in making sure his articulation for the letters was perfect.

Sharon once again this website and all you have done is just incredible and

beautiful. Please don't think I'm being hard on you by pointing out anything

-and please feel free to change or not change based on what you think is best.

I used to be an art director and worked in media and the film industry and I

myself LOVE constructive criticism as that's how we can learn to improve. I

used to hate when someone would look at something I did and just say " wow that's

great " I'd always say " well what can be improved? "

Funniest was one day someone said to me " you always say you love constructive

criticism. What's the difference between criticism and constructive criticism? "

My answer and this is a for real quote

" Criticism is when someone says 'you suck' and constructive criticism is when

someone says 'you suck because' "

Anyway in conclusion to add one more thing -I'd have a written evaluation from

your child's SLP included on this page. All of it right now is parental

anecdotal and what we can see -your child's SLP will be awesome in providing a

professional look at what's going on.

I just heard from Barbara SLP yesterday about a parent who took her child

off nutriiveda after a few months and didn't tell her- but the child had a

complete regression in both behavior and speech -ability to imitate etc.

Barbara specifically asked " did you give him his nutriiveda? " and that is when

she found out the parents took the child off for a few days to see if it still

made a difference (did) so of course put him back on and within one day he had

tremendous surges back again. Barbara is thinking of writing a case study on

this. That's what I mean -if your child's SLP is able to write something

up...just like I posted there is going to be a written report from a neurologist

from Kent University where the doctor and SLP both credit nutriiveda (and

therapy of course too) to the child going from profound to mild/moderate apraxic

in months. Now as all know...that's not reality with therapy alone.

Anyway -hope I helped and BRAVO!!! to you and !!! You must be over the moon

thrilled with progress Sharon!!! Is your husband still a skeptic? (you don't

say in the blog update)

Sharon's blog for : http://apraxiastory.wordpress.com/before-after-video

Sharon's first testimony for on Pursuit

http://pursuitofresearch.org/testimonials.html

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August 15, 2010

Hi Sharon,

Thanks for your post! It is inspiring and hopeful to see!

Miner has been on fish oils (Nordic Jr. 3-6-9) for about 4 weeks and NV for

2 weeks and has had a speech therapist coming once a week for 5 weeks now.

I have noticed more " noise " coming from him, but no real improvement in his

speech/communication. He points and says " ehh " a lot to get what he wants

or acts things out. We do have one syllable and some repeat one syllable

word cards we do with him. He can sit and say most of them with me and we

do it daily (probably 25 different words) He makes no attempt to use words

to communicate besides when I sit down with the cards. He only says mom,

dad, me and uice for juice on his own without prompting. I was hoping to

see some more progress, but am trying to have more patience!

I have not been able to find a PROMPT certified therapist in my area. I am

still looking. Some say they are " familiar " with it but not certified. (I

did contact the institute and was given a list... most went to a course, but

aren't certiified..)

I am open to other suggestions on what to try! I was wondering the

difference between the Nordic JR 3-6-9 and the PROEFA/ EPA oils?

Miner is 33 months.

Thanks again for your inspiring videos and information!

Malinda

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> Wow Sharon both to the surges and to the job you have done in documenting this