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Hello Families Network! Hope you are all having a wonderful summer. Please

see the below action alert from The Arc of the United States on health care

reform as it relates to individuals with developmental disabilities. There

are many opportunities to have an impact on this issue between now and Labor

Day. Please don't hesitate to contact me if you have any questions about

this issue or need any help responding to the action alert. Thanks!

Denbigh Dixon

Director, Family Advocacy Program

The Arc of New Jersey

985 Livingston Avenue

North Brunswick, NJ 08902

(732) 246-2525 ext.49

ddixon@...

www.arcfamilyadvocacy.org

Health Care Reform: Now it's PersonalMore Info

Help Bring Desperately Needed Improvements in Health Care and Long Term

Services for People with Intellectual and Developmental Disabilities

Do you know anyone who has been denied health insurance because of a

pre-existing condition?

Do you know anyone who has been unable to access quality affordable health

care?

Do you know anyone who has been waiting a long time for Medicaid home and

community based services?

Then you need to get involved right NOW.

Why Now?

The stakes have never been higher. National health care reform is hanging

in the balance.

From early August through Labor Day, Members of Congress are back in their

home districts hearing from their constituents about health care reform.

Many will be making their decisions on whether or not to support an overhaul

of our health care system.

The chance to make meaningful improvements in health care only comes along

every few decades. There are strong opponents to reform, such as the

insurance industry. If we don't speak now .....

What Do People with Intellectual and Developmental Disabilities Most Need in

Health Care Reform?

1) No Pre-existing Conditions Exclusions

Insurance companies will be prohibited from refusing coverage because of

medical history.

2) No Annual or Lifetime Caps on Coverage

Insurance companies will be prevented from placing annual or lifetime caps

on coverage.

3) Coverage for Durable Medical Equipment, Prosthetics, and Orthotics

These products will be included in any new health plans.

4) Increased Medicaid Reimbursement Rates for Primary Care Physicians

More doctors will serve Medicaid patients when their reimbursement rates are

increased to match to those of Medicare.

5) Improved Home and Community Based Services

When the institutional bias is removed from Medicaid, more states will serve

more people and allow them to choose where they receive long term services

and supports.

6) Reduced Demand for Medicaid Long Term Services and Supports

Medicaid will be strengthened when a national voluntary long term care

insurance program (from the CLASS Act) is implemented and people can receive

support without having to use Medicaid.

Take Action

Many Members of Congress will spend the August recess in their home

districts. Please participate in one or more of the following types of

events over the recess from now through September 8:

Town Halls meeting sponsored by your Members of Congress. You may be able

to find a list of town halls on your Senators' and Representatives' web

sites. Locate your Senators websites by selecting your state at the top of

http://www.senate.gov/ and your Representative's website by entering your

zip code at the top of http://www.house.gov. If you cannot locate this

information on the web sites, please call their main offices and ask to

speak to the scheduler.

In-district meetings with your Members of Congress. Please contact your

local Members offices NOW to schedule a meeting. Guidance on requesting

in-district meetings is usually provided under a " Constituent Services "

section of your Senators' and Representatives' websites. Again, you can also

call their district offices and ask to speak to their schedulers.

Other Community calendar events. Most local newspapers, chambers of

commerce, and other civic organizations have extensive listings of fairs,

parades, concerts, and other community events in which Members of Congress

may be participating. Find your local newspaper's web site by entering your

zip code at: http://capwiz.com/thearc/dbq/media/

Calls to district offices and local radio programs. Phones are already

ringing off the hook. Constituents are calling to voice strong opinions for

and against health care reform. Only you can make sure your ideas and

opinions are heard. Find the district office phone numbers at

http://www.senate.gov/ and http://www.house.gov. Find your local radio

stations' call in shows by entering your zip code at:

http://capwiz.com/thearc/dbq/media/

Please use the following materials to guide your discussions:

Fact Sheet

Talking Points

Placards

Personal stories from your community, such as:

* being on a waiting list for home and community based services

* having to quit a job to care for a loved one at home

* having to take a second job to pay a care provider

* not being able to move to another state due to loss of Medicaid services

* having to move a loved one into an institution due to lack of home and

community based services

* being unable to find appropriate medical care

Thank you in advance for your great advocacy during this historic

opportunity to improve the quality and accessibility of health care and long

term services.

If you have any questions, please feel free to contact me at 202-783-2229 or

acosta@...

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