Re: oral motor issues-and then voila speech??

[Guest guest]

While I think getting the right diagnosis is important, I think the most

important thing is helping your son progress in his speech.� I realized it

really didn't matter what label he was given but that he was given

the�correct�treatment.� Most of the doctors/speech therapist we saw also

didn't want to diagonsis Reid until he was 3 either but all had a gut feeling

that it was apraxia (as did I since he was 18 months) and we have treated him as

such by providing frequent and consistent speech therapy (3x week) and work with

him at home.�

�

Reid is now 3.5 and at the beginning of this year I was totally upset b/c he

only had about 15-20 words and no sentences even with his frequent speech

therapy.� I couldn't understand how we would possibly get over this hump.�

However, all I can say is stick with it b/c I now know we will get there.� He

now have probably 75 words and can put together a�3 word sentence

frequently.� It isn't easy for him and his intelligiblity is not good but it

is major, major progress.� And he knows it too and is so proud of himself.�

His recnet success has really given him confidence.� In fact, he just recently

has begun trying to repeat whatever we say (similar to how a normally developing

child at�18-24 months would).�

Sorry for the rambling email.� Just wanted you to not�worry so much about

the label right now but on giving him the consistent and frequent speech therapy

he needs to progress.�

�

Best of luck,

�

Michele

[Guest guest]

Many kids will go on to have normal or almost normal speech. I don't have

statistics, but over the last 4 years on this list and others I have seen

countless kids make HUGE improvements. I'm a believer that apraxia itself

never just goes away, but it does reach a point where it can resolve. My

son was like yours at 26 months, still functionally non-verbal at age 4.

He's 8 now and most people can't tell he has a speech issue. He has

language issues, but no longer obvious speech issues.

There's nothing wrong with reading both Einstein Syndrome and educating

yourself on apraxia! I happen to believe that both are very real!

Miche

On Sat, Oct 24, 2009 at 8:47 PM, lucy4gets <lucy2max@...> wrote:

>

>

> my BIG question...

>

> I called a few SLP's in NJ that specialize in apraxia and they tell me they

> will have a hard time diagnosing before age three...well I have had this

> question for a LONG time- why? I don't understand their answers. I have read

> that the child has to be speaking a bit to hear word structure. so what if

> my son always has jargon without words, non ASD, receptive normal...even

> past three?!?!? he is 26 months now.....come on..how many " just pop out of

> this " ?

>

> because believe me- I'd rather be reading the " Einstein Syndrome " rather

> than all about verbal, oral apraxia.

>

> How many kids actually talk normally after being diagnosed with oral motor

> planning issues???????

>

> thanks,

>

> Iveta

>

[Guest guest]

thank you .

>

> Many kids will go on to have normal or almost normal speech. I don't have

> statistics, but over the last 4 years on this list and others I have seen

> countless kids make HUGE improvements.