Re: What Dr. will I need to see first to confrim Apraxia?

[Guest guest]

---

I don't know where you live but we have been trying to figure out what is going

on with our daughter since she was 12 mths old!!! (she is now 4) we finally

took her to dr bruce cohen at the cleveland clinic (ped neuro that specializes

in meta/mito) and he just diagnosed her with oral apraxia and swallowing

dysfunction!!! so far, we are VERY pleased with him.....we also do a biomedical

route though with supplements and a gluten/casein free diet as well......hope

this helps! kim

From: clairezheng99@...

Date: Thu, 10 Dec 2009 21:53:31 +0000

Subject: [ ] What Dr. will I need to see first to confrim

Apraxia?

Hello Everyone,

I am a new mom for this group and recently my 2 and 8 months old just got

approved from EI program for 30 min. twice a week services from both special

instructor and speach thearpist eventhough she has not been clinically diagnosed

as a Apraxia child. I am happy for the services, because I know she really needs

all the help she can get.

I really like to know where to start to get a correct diagnose for Apraxia

child. Who should we see first besides her primary Ped. Dr.! I recently took her

to see an ENT dr and he cleared her hearing is normal....Thank God! This week I

will take her to see Allergy Dr. to see what allergy she might have and I do

hope everything will be OK! Now, what is next....a Neurologist Ped dr? I really

want to test her Vitamin and Mineral levels and will a Neurologist Ped Dr.

perform the tests? or I have to see a Metabolic specialist for those levels? I

am confused and lost at this point! If anyone can help by point me to the

correct direction I'll be greatly appreciated.

Thank you so much to hear my problems!

_________________________________________________________________

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[Guest guest]

Your SLP should be able to tell you if your child has apraxia but I believe for

insurance purposes your best bet is to get it diagnosed officially by a

pediatric neurologist. I personally love my neurologist and found it to be a

worthwhile visit. She ordered some preliminary genetics testing, metabolic

tests, and also an MRI. I think a neurologist is a great place to start

because if you have a good one they can get you keyed into all of the other

doctors (geneticist, ENT, cardiologist, etc). I also have found that having

the neurologist refer me to those people vs. me going on my own has made all the

difference in my insurance paying for things. She also is able to explain to

me things she observed about my sons facial shape that were indicators of

different things.

Also, one thing to keep an eye on with hearing is that if your child is running

off and on runny noses from the allergies you might want to make sure that they

aren't having a problem with fluid in their ears. My son passed 3 hearing

tests with no problems (all just happened to be a time where he wasn't having

allergies). I was shocked when I was doing my school transition and he

failed the test. It turns out he had water between his ears. He hasn't had a

lot of ear infections but I had off and on heard my pediatrician say he observed

water between the ears. I took him to the ENT again when he had a runny nose

and sure enough he had a flat timpanagram (hearing) and still fluid in there.

We had tubes put in about a week ago to resolve this and I do believe hearing

was a component in the talking. He actually sang parts of Twinkle Twinkle

with me this week and this was the very first time he has ever even attempted to

sing. Who knows if that was hearing....just something to maybe keep an eye on

as my son has a lot of allergies.

Good luck!

Sue

[ ] What Dr. will I need to see first to confrim

Apraxia?

Hello Everyone,

I am a new mom for this group and recently my 2 and 8 months old just got

approved from EI program for 30 min. twice a week services from both special

instructor and speach thearpist eventhough she has not been clinically diagnosed

as a Apraxia child. I am happy for the services, because I know she really needs

all the help she can get.

I really like to know where to start to get a correct diagnose for Apraxia

child. Who should we see first besides her primary Ped. Dr.! I recently took her

to see an ENT dr and he cleared her hearing is normal....Thank God! This week I

will take her to see Allergy Dr. to see what allergy she might have and I do

hope everything will be OK! Now, what is next....a Neurologist Ped dr? I really

want to test her Vitamin and Mineral levels and will a Neurologist Ped Dr.

perform the tests? or I have to see a Metabolic specialist for those levels? I

am confused and lost at this point! If anyone can help by point me to the

correct direction I'll be greatly appreciated.

Thank you so much to hear my problems!

[Guest guest]

See an experienced SLP who understands and treats apraxic kids. have them do a

thorough eval and if apraxia they will explain why and have them write the ASHA

definitiaon--word for word cut and pasted in the report, as well as treatment

recommendations as per ASHA.  You will need this greatly for insurance coverage

and for doctors who may NOT know apraxia as is most often the case. Then take

the report to a developmental pediatrician---preferably one who knows apraxia

and get a full eval there to rule out other things or to get additional

diagnosis and therapies like OT for sensory stuff and hypotonia etc.

You do not need to do this, with the report from the slp--definition and

treatment as per ASHA in first paragraph right after they write the ICD-9

784.69.  elieve me, it's got to be there to dsave yourself a lot of headaches

and problems with treament school district, Early Intervention --whatever.

Everyone wants to pass the buck and unless the definition is there they'll try

to tel you group therapy once a week is fine, or insurance will deny payment

etc.

And as i said, you can just go to the regular ped with that report and ask them

to write a letter of medical necessity for treatment purposes. mek sure they cut

and paste ASHA definition and treatment recommendations as well.  Again, if you

do not do this, you may regret it down the road when nobody wants to cover

services and reimburse for speech sessions. 

The reason you wnat the SLP first is becuase they LKNOW APRAXIA --they

understand the symptoms and treatment--you need an SLP anyway, so it's not like

you cna skip that step. But you cna skip the developmental ped if you ahve no

other concers.  And any pediatrician can write the letter of medical

necessity--with the eval report--they ahve to. Good luck!

Elena

From: clairezheng99 <clairezheng99@...>

Subject: [ ] What Dr. will I need to see first to confrim

Apraxia?

Date: Thursday, December 10, 2009, 4:53 PM

Hello Everyone,

I am a new mom for this group and recently my 2 and 8 months old just got

approved from EI program for 30 min. twice a week services from both special

instructor and speach thearpist eventhough she has not been clinically diagnosed

as a Apraxia child.  I am happy for the services, because I know she really

needs all the help she can get. 

I really like to know where to start to get a correct diagnose for Apraxia

child.  Who should we see first besides her primary Ped. Dr.!  I recently took

her to see an ENT dr and he cleared her hearing is normal....Thank God!  This

week I will take her to see Allergy Dr. to see what allergy she might have and I

do hope everything will be OK!  Now, what is next....a Neurologist Ped dr?  I

really want to test her Vitamin and Mineral levels and will a Neurologist Ped

Dr. perform the tests?  or I have to see a Metabolic specialist for those

levels?  I am confused and lost at this point!  If anyone can help by point me

to the correct direction I'll be greatly appreciated.

Thank you so much to hear my problems!

------------------------------------

[Guest guest]

Does the EI SLP think that your child may be Apraxic? We had the very best

Pediatric Neurologist diagnose my 8yr old daughter just before she turned 4yrs

old. He moved to Boston and we were so upset to lose him--he knew his stuff and

he knew what an Apraxia child was with out a doubt! He's the one that got us

going on an augmentive communication device and made sure that she got 4x a week

Individual in the letter he wrote to our school district.Thats who I'd suggest

starting with! The Ped Neuro we have right now is also very good and knows his

stuff very well. We were in his office one day while he fought with an insurance

company about covering testing for one of his patients..he told them--dont you

know I set the standard for this industry? Believe me- it was covered.

Apraxia is a Neurological condition. So a Neurologist would be the best place to

start. Ours is the one who sent us for her MRI's and any other testing she

needs.

You should also be starting the transition process from EI to the school

district before long.

>

> Hello Everyone,

>

> I am a new mom for this group and recently my 2 and 8 months old just got

approved from EI program for 30 min. twice a week services from both special

instructor and speach thearpist eventhough she has not been clinically diagnosed

as a Apraxia child.

[Guest guest]

I learned so much from the late talker book. Have you read that? Kate

>

> Hello Everyone,

>

> I am a new mom for this group and recently my 2 and 8 months old just got

approved from EI program for 30 min. twice a week services from both special

instructor and speach thearpist eventhough she has not been clinically diagnosed

as a Apraxia child. I am happy for the services, because I know she really

needs all the help she can get.

>

> I really like to know where to start to get a correct diagnose for Apraxia

child. Who should we see first besides her primary Ped. Dr.! I recently took

her to see an ENT dr and he cleared her hearing is normal....Thank God! This

week I will take her to see Allergy Dr. to see what allergy she might have and I

do hope everything will be OK! Now, what is next....a Neurologist Ped dr? I

really want to test her Vitamin and Mineral levels and will a Neurologist Ped

Dr. perform the tests? or I have to see a Metabolic specialist for those

levels? I am confused and lost at this point! If anyone can help by point me

to the correct direction I'll be greatly appreciated.

>

> Thank you so much to hear my problems!

>

>

>