Update on Ross

[Guest guest]

Hi, I posted about a month ago. My son Ross, 34 months, was diagnosed with

apraxia then. He has been in speech therapy with ECI since May. In May he had

no words (2 year 3 months old), a month ago he had around 75 words. Today which

is 3 weeks after starting the ProEFA supplement, he has over 230 words and

continues to repeat things I say so the number is growing!! His articulation is

so very much improved. His SLP is amazed! I just wanted to report the great

progress and I'm so grateful for reading the Late Talker, reading the apraxia

sites, and joining this board.

Today we had a hearing test and ENT appt. His first hearing test was in May and

he scored low on the highest/lowest tones but they said he had fluid in his

ears. Well since then, I have not been to the pediatrician once where he didn't

have an infection or fluid in the ears b/w infections. Today luckily he did not

have any fluid - I couldn't believe it. But he still scored the same on the

hearing test. And scored low in his right ear with the tympanometer. The ENT

listened to me describe our background and how we ended up here. He said he

wants to try us using nasonex daily for a month and then retest. If no better,

he recommends tubes. I asked if he thought the hearing and delayed/disorder of

speech were related and he said no - and then went on to talk about how boys

talk later... which really angered me but at least I got his opinion.

Ross is always wiping his nose and eyes - even though they aren't running. He

also gets a bad cough that will last for days with ANY infection he gets. I had

bad asthma as a child. His allergist will not say if it is asthma at this point

or not. I don't know if all this is apraxia related or not.

Do you recommend us going to a neurologist? What would they do and how would it

help? I do not think that Ross is autistic, but I would like someone to tell me

for sure that we are only dealing with apraxia.

Also is there such a thing as an immunity dr.? I wonder if he is low on some

vitamin or nutrient. I read McCarthy's book and site on autism and even

though I don't believe Ross is autistic - I wonder if vaccines might have caused

his immunity to be lower and thus he's always getting sick, has the bad cough,

has a neuro disorder... I don't know... maybe I am trying to link a lot of

things that don't necessarily need to be linked.

Thanks for any advice or suggestions! And I really am just so happy with how

far we've come! He is saying Happy Birthday, Galleria, Mickey Mouse - all

pretty darn clearly! - I too am a huge Disney fan! Thanks so much for all

your efforts - I wouldn't be here with out you!!

Jackie