RE: Follow up appt. at Neurologist

[Guest guest]

Yeah Alyssa! We are all pulling for you!

M.

[ ] Follow up appt. at Neurologist

Hi everyone,

and I just returned from his six month visit to the

neurologist. He was very pleased that is 19.5 weeks seizure

free but is still skeptical about NV. I did not want to push this on

him too much so I back off. For me the proof is in the pudding:-)

Anyway you look at it continues to do well. As of today

is still taking Depakote and Carbatrol. And his neurologist was in

agreement to start to remove the Depakote due to the levels being very

low anyway. That will leave us with a very low dose of Carbartol

totaling 400mg daily, which is not very high at all for a 100lbs of

love!

So I will start to remove 's morning dose of Depakote in

the morning for one week then I will take away his evening dose the week

after that...... Keep your fingers crossed as I am excited and nervous

at the same time....

I'll keep you posted.

Alyssa

[Guest guest]

Priceless. And this is the same doctor that had your 9 year old child scheduled

for a partial lobotomy (remove a portion of his brain for those that don't know

what that is) just FIVE MONTHS ago in an radical effort to stop seizures? No

skepticism about that huh? The same doctor that had your son on various seizure

medications that didn't work for years? No skepticism about that either huh?

This doctor does know that he is one of the (is it 4?) doctors in the world that

has not approved nutriiveda right? He is aware that since on nutriiveda- a

WHOLE FOOD? Your son has been seizure free and his depakote lowered twice now?

Doesn't he feel this should be researched? Did he read this for the basics of

what nutriiveda is http://pursuitofresearch.org/NutriiVeda_Information.pdf (I

have to add 100 percent water soluble to this -just found that out more

recently)

Perhaps he needs to reread this part of the hippocratic oath

" I will apply, for the benefit of the sick, all measures [that] are required,

avoiding those twin traps of overtreatment and therapeutic nihilism.

I will remember that there is art to medicine as well as science, and that

warmth, sympathy, and understanding may outweigh the surgeon's knife or the

chemist's drug. "

Or perhaps he needs to reread the entire thing so included it below.

I know there are other medical doctors that are looking at this as something to

be researched -and medical doctors that are world renowned famous and respected.

Thank God for you being strong enough of a parent to question this doctor, make

a health decision that this doctor did NOT agree with as I guess the surgery was

scheduled- so that saved your son part of his brain, kept him seizure free for 5

months since he's been on nutriiveda and is getting him off meds. As powerful

of a parent as you are -I just can't understand why in the Washington DC area

you can't find another doctor.

You clearly don't need luck -you need nutriiveda and prayers/faith. And again

I'd stick with the full dosage especially until he's off all meds for a least a

few months before reducing to just 2 scoops.

Congratulations and continued health and success to your family Alyssa!

Your last testimony here which is up on

http://pursuitofresearch.org/testimonials.html

NV what a surprise!!!

I was told about it back in January and of course I was thinking it was like a

million other products out there that parents with special needs children try.

However, being skeptical I did order it and started (9yrs) on it once a

day (2 scoops). Shortly after he started it I noticed very slight differences.

He seemed to have a healthy look or glow to him; his temper seemed to have

leveled off instead of extreme highs and lows. seemed to be grasping

or understanding language a bit more too. The most drastic of all the changes

is that as of today remains seizure free!! has been having

uncontrolled seizures for three years now despite whatever medications we have

tried. He has gone through many types of testing procedures and we were on the

road to have a surgery consult to remove the portion of his right temporal lobe

where his seizures were occurring. Today is drinking NV twice a day (4

scoops) and is seizure free going on 15 weeks! We have dropped his seizure

medications twice now and still remain seizure free. I remain optimistic that

when we hit the six months marker Matt’s neurologist will help us to slowly

remove all seizure medications. I am in awe of Nutriiveda and what it has done

for our family.

Alyssa

The Hippocratic Oath: Modern Version

I swear to fulfill, to the best of my ability and judgment, this covenant:

I will respect the hard-won scientific gains of those physicians in whose steps

I walk, and gladly share such knowledge as is mine with those who are to follow.

I will apply, for the benefit of the sick, all measures [that] are required,

avoiding those twin traps of overtreatment and therapeutic nihilism.

I will remember that there is art to medicine as well as science, and that

warmth, sympathy, and understanding may outweigh the surgeon's knife or the

chemist's drug.

I will not be ashamed to say " I know not, " nor will I fail to call in my

colleagues when the skills of another are needed for a patient's recovery.

I will respect the privacy of my patients, for their problems are not disclosed

to me that the world may know. Most especially must I tread with care in matters

of life and death. If it is given me to save a life, all thanks. But it may also

be within my power to take a life; this awesome responsibility must be faced

with great humbleness and awareness of my own frailty. Above all, I must not

play at God.

I will remember that I do not treat a fever chart, a cancerous growth, but a

sick human being, whose illness may affect the person's family and economic

stability. My responsibility includes these related problems, if I am to care

adequately for the sick.

I will prevent disease whenever I can, for prevention is preferable to cure.

I will remember that I remain a member of society, with special obligations to

all my fellow human beings, those sound of mind and body as well as the infirm.

If I do not violate this oath, may I enjoy life and art, respected while I live

and remembered with affection thereafter. May I always act so as to preserve the

finest traditions of my calling and may I long experience the joy of healing

those who seek my help.

Written in 1964 by Louis Lasagna, Academic Dean of the School of Medicine at

Tufts University, and used in many medical schools today.

http://www.pbs.org/wgbh/nova/doctors/oath_modern.html

=====

[Guest guest]

Yeah Alyssa and !!  I am so hopeful that when we go to Josh's neurodoc

in the Fall, we will have the same results on NV!  Like your neurodoc, ours is

skeptical about nutrition having an effect on epilepsy/seizure disorders, so I

hope I can prove him wrong and get him to open his mind a bit!

 

Sherry and Josh

From: Alyssa Nagy <aw_nagy@...>

Subject: [ ] Follow up appt. at Neurologist

Date: Tuesday, June 15, 2010, 2:10 PM

 

Hi everyone,

and I just returned from his six month visit to the neurologist.  He

was very pleased that  is 19.5 weeks seizure free but is still skeptical

about NV.    I did not want to push this on him too much so I back off.  For

me the proof is in the pudding:-)  Anyway you look at it continues to

do well.  As of today is still taking Depakote and Carbatrol.  And his

neurologist was in agreement to start to remove the Depakote due to the levels

being very low anyway.  That will leave us with a very low dose of Carbartol

totaling 400mg daily, which is not very high at all for a 100lbs of love! 

So I will start to remove 's morning dose of Depakote in the morning for

one week then I will take away his evening dose the week after that...... Keep

your fingers crossed as I am excited and nervous at the same time....

I'll keep you posted.

Alyssa

[Guest guest]

,

Thank you for your response:-)  I have to say that I do like this doctor and he

has always been very willing to work hard for .   I wish he would look

into NV more but I understand his point of view too.  However, just because his

view point is different than mine it is not stopping me from doing what I

believe is right for .  It is also not stopping me from still thinking

he is a qualified Neurologists, we are just seeing things the same way when NV

is concerned.  

On a more positive note, also had an appointment last week with his Dev.

Ped who also  did not endorse NV when I originally ask.  However, she took

the information and was very interested in reading more now that I have told her

about 's success.   She is also a very well qualified doctor however,

she did state that she is not able to do research but thinks that someone should

look more closely at this. 

What's the old saying?  You can lead a horse to water but you can't make them

drink! 

Either way Matt's meds are coming down starting tomorrow and he continues to

drink down his NV:-)  So lets see how it goes and maybe after more time goes

bye his neurologist might become a believer..

Alyssa

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Tue, June 15, 2010 3:59:03 PM

Subject: [ ] Re: Follow up appt. at Neurologist

 

Priceless. And this is the same doctor that had your 9 year old child scheduled

for a partial lobotomy (remove a portion of his brain for those that don't know

what that is) just FIVE MONTHS ago in an radical effort to stop seizures? No

skepticism about that huh? The same doctor that had your son on various seizure

medications that didn't work for years? No skepticism about that either huh?

This doctor does know that he is one of the (is it 4?) doctors in the world that

has not approved nutriiveda right? He is aware that since on nutriiveda- a WHOLE

FOOD? Your son has been seizure free and his depakote lowered twice now? Doesn't

he feel this should be researched? Did he read this for the basics of what

nutriiveda is http://pursuitofresearch.org/NutriiVeda_Information.pdf (I have to

add 100 percent water soluble to this -just found that out more recently)

Perhaps he needs to reread this part of the hippocratic oath

" I will apply, for the benefit of the sick, all measures [that] are required,

avoiding those twin traps of overtreatment and therapeutic nihilism.

I will remember that there is art to medicine as well as science, and that

warmth, sympathy, and understanding may outweigh the surgeon's knife or the

chemist's drug. "

Or perhaps he needs to reread the entire thing so included it below.

I know there are other medical doctors that are looking at this as something to

be researched -and medical doctors that are world renowned famous and respected.

Thank God for you being strong enough of a parent to question this doctor, make

a health decision that this doctor did NOT agree with as I guess the surgery was

scheduled- so that saved your son part of his brain, kept him seizure free for 5

months since he's been on nutriiveda and is getting him off meds. As powerful of

a parent as you are -I just can't understand why in the Washington DC area you

can't find another doctor.

You clearly don't need luck -you need nutriiveda and prayers/faith. And again

I'd stick with the full dosage especially until he's off all meds for a least a

few months before reducing to just 2 scoops.

Congratulations and continued health and success to your family Alyssa!

Your last testimony here which is up on

http://pursuitofresearch.org/testimonials.html

NV what a surprise!!!

I was told about it back in January and of course I was thinking it was like a

million other products out there that parents with special needs children try.

However, being skeptical I did order it and started (9yrs) on it once a

day (2 scoops). Shortly after he started it I noticed very slight differences.

He seemed to have a healthy look or glow to him; his temper seemed to have

leveled off instead of extreme highs and lows. seemed to be grasping or

understanding language a bit more too. The most drastic of all the changes is

that as of today remains seizure free!! has been having

uncontrolled seizures for three years now despite whatever medications we have

tried. He has gone through many types of testing procedures and we were on the

road to have a surgery consult to remove the portion of his right temporal lobe

where his seizures were occurring. Today is drinking NV twice a day (4

scoops) and is seizure free

going on 15 weeks! We have dropped his seizure medications twice now and still

remain seizure free. I remain optimistic that when we hit the six months marker

Matt’s neurologist will help us to slowly remove all seizure medications.

I am in awe of Nutriiveda and what it has done for our family.

Alyssa

The Hippocratic Oath: Modern Version

I swear to fulfill, to the best of my ability and judgment, this covenant:

I will respect the hard-won scientific gains of those physicians in whose steps

I walk, and gladly share such knowledge as is mine with those who are to follow.

I will apply, for the benefit of the sick, all measures [that] are required,

avoiding those twin traps of overtreatment and therapeutic nihilism.

I will remember that there is art to medicine as well as science, and that

warmth, sympathy, and understanding may outweigh the surgeon's knife or the

chemist's drug.

I will not be ashamed to say " I know not, " nor will I fail to call in my

colleagues when the skills of another are needed for a patient's recovery.

I will respect the privacy of my patients, for their problems are not disclosed

to me that the world may know. Most especially must I tread with care in matters

of life and death. If it is given me to save a life, all thanks. But it may also

be within my power to take a life; this awesome responsibility must be faced

with great humbleness and awareness of my own frailty. Above all, I must not

play at God.

I will remember that I do not treat a fever chart, a cancerous growth, but a

sick human being, whose illness may affect the person's family and economic

stability. My responsibility includes these related problems, if I am to care

adequately for the sick.

I will prevent disease whenever I can, for prevention is preferable to cure.

I will remember that I remain a member of society, with special obligations to

all my fellow human beings, those sound of mind and body as well as the infirm.

If I do not violate this oath, may I enjoy life and art, respected while I live

and remembered with affection thereafter. May I always act so as to preserve the

finest traditions of my calling and may I long experience the joy of healing

those who seek my help.

Written in 1964 by Louis Lasagna, Academic Dean of the School of Medicine at

Tufts University, and used in many medical schools today.

http://www.pbs.org/wgbh/nova/doctors/oath_modern.html

=====

[Guest guest]

I like how doctors will contend that eating a peanut can cause multiple

reactions in the body, many of them from the cellular level up starting

with that initial immune response, leading to death in someone with a

peanut allergy. Nor do they argue that a person with diabetes can

control so much of their condition with food. Yet, you tell them that

these changes that you have seen are associated with food, made up of

multiple sources and herbs, can't illicit a response in the body. Give

me an ENORMOUS break docs. For once, I know I am more intelligent than

a doctor!

M.

[ ] Follow up appt. at Neurologist

<mailto: %40>

Date: Tuesday, June 15, 2010, 2:10 PM

Hi everyone,

and I just returned from his six month visit to the

neurologist. He was very pleased that is 19.5 weeks seizure

free but is still skeptical about NV. I did not want to push this on

him too much so I back off. For me the proof is in the pudding:-)

Anyway you look at it continues to do well. As of today

is still taking Depakote and Carbatrol. And his neurologist was in

agreement to start to remove the Depakote due to the levels being very

low anyway. That will leave us with a very low dose of Carbartol

totaling 400mg daily, which is not very high at all for a 100lbs of

love!

So I will start to remove 's morning dose of Depakote in

the morning for one week then I will take away his evening dose the week

after that...... Keep your fingers crossed as I am excited and nervous

at the same time....

I'll keep you posted.

Alyssa

[Guest guest]

Alyssa first off I just want to say I'm thrilled about all that is going on for

you and Matt -but want to just explain why I'm not thrilled with Mr. (the

doctor) Skeptic!

I wouldn't then use the word skepticism at this point. You can be a skeptic up

till the time you try something and decide if it's real or not. Skepticism is a

sign of intelligence- all of us were skeptics that nutriiveda would work -how

could anyone believe that we would see the surges we would.

I mean take any child and say " If I mix together baking soda and vinegar it will

create a chemical reaction that can make a volcano...or even a rocket! " and the

child may say " No way " Then you show them. How many times do you have to " show

them " over and over for the child to no longer be a skeptic? hmmmm -I'd say far

less than 5 months!

I'm shocked he's not a member of this society

http://www.alaska.net/~clund/e_djublonskopf/Flatearthsociety.htm

And forget skeptic to start... Alyssa this doctor didn't even want your child to

TRY it even though anyone who knows anything about nutrition will look at is and

say " WOW! " and be impressed -it's high quality whole food formulated by a panel

of world renowned medical doctors http://pursuitofresearch.org/advisors.html for

goodness sake! And... saying " NO " even after knowing it's stopped seizures in

others who are well documented in our group. Why? Even if the seizure aspect

didn't work which clearly it has been? Why not take the approach of 's

doctor and say " there is no other logical explanation then the nutriiveda is

healing 's brain somehow. I don't want you to stop giving her

nutriiveda " . So ask him...what else could it be in Matt's case that stopped the

seizures prior to him being able to pull out of part of your kid's brain?

Global warming? Fear of being adopted by Brittney Spears? Tooth fairy?

Before someone asks me...OK I'll answer the " why are you so angry at this

doctor? " question. Because think of the number of children this man sees- and

clearly for whatever reason Alyssa LIKES him -so I'm sure others do to. I like

my neighbor too and she's a pro golfer. This doctor was ready to cut out a

section of Matt's brain -and here he's confronted with something that is 100%

natural and 100 % whole food which is where all the nutrients and essential

amino acids are from and that had success with others prone to seizures -and he

says " no " ...and months later the same 9 YO patient remains seizure free for 5

months -and in another month will be weened off all seizures meds (!!!) So

that's why I'm mad at him. Think of the children like Matt who have parents

that either

A. Doesn't know about nutriiveda

B. Aren't as strong as Alyssa to stand up to him and say " I'm doing it anyway.

I'm just letting you know "

And instead of the child being given the chance to also have no more seizures

and no more meds -he or she has portions of the brain removed...and still on

medication right?!

you can find parents in this situation all over the net -here's just one place

http://www.mamapedia.com/article/removing-part-of-brain-to-help-with-seizure-dis\

order

And what would the reason be for not even accepting that it's POSSIBLE that

foods can help the body help itself -especially seeing it with your own eyes and

in light of the theories we wrote about here which include clinical studies

http://pursuitofresearch.org/science.html

So again -I have no problem with doctors that look at this at first and are

skeptical- to me the proof is in the pudding -if you put the nutriiveda in the

pudding that is.

And Alyssa the developmental ped's reaction is expected and fine...to me- seeing

results and being open minded. That's all we are asking for here people!

=====

[Guest guest]

My son's pediatrician approved fish oils and then nutriiveda after looking at

the ingredients. I don't think I would give my child something he did not

approve of. I would have been one of the parents that would not stand up to my

doctor. What about those children that maybe wouldn't need surgery either? You

make a good point. Kate

>

> Alyssa first off I just want to say I'm thrilled about all that is going on

for you and Matt -but want to just explain why I'm not thrilled with Mr. (the

doctor) Skeptic!

>

> I wouldn't then use the word skepticism at this point. You can be a skeptic

up till the time you try something and decide if it's real or not. Skepticism

is a sign of intelligence- all of us were skeptics that nutriiveda would work

-how could anyone believe that we would see the surges we would.

>

> I mean take any child and say " If I mix together baking soda and vinegar it

will create a chemical reaction that can make a volcano...or even a rocket! " and

the child may say " No way " Then you show them. How many times do you have to

" show them " over and over for the child to no longer be a skeptic? hmmmm -I'd

say far less than 5 months!

>

> I'm shocked he's not a member of this society

http://www.alaska.net/~clund/e_djublonskopf/Flatearthsociety.htm

>

> And forget skeptic to start... Alyssa this doctor didn't even want your child

to TRY it even though anyone who knows anything about nutrition will look at is

and say " WOW! " and be impressed -it's high quality whole food formulated by a

panel of world renowned medical doctors

http://pursuitofresearch.org/advisors.html for goodness sake! And... saying

" NO " even after knowing it's stopped seizures in others who are well documented

in our group. Why? Even if the seizure aspect didn't work which clearly it has

been? Why not take the approach of 's doctor and say " there is no other

logical explanation then the nutriiveda is healing 's brain somehow. I

don't want you to stop giving her nutriiveda " . So ask him...what else could it

be in Matt's case that stopped the seizures prior to him being able to pull out

of part of your kid's brain? Global warming? Fear of being adopted by Brittney

Spears? Tooth fairy?

>

> Before someone asks me...OK I'll answer the " why are you so angry at this

doctor? " question. Because think of the number of children this man sees- and

clearly for whatever reason Alyssa LIKES him -so I'm sure others do to. I like

my neighbor too and she's a pro golfer. This doctor was ready to cut out a

section of Matt's brain -and here he's confronted with something that is 100%

natural and 100 % whole food which is where all the nutrients and essential

amino acids are from and that had success with others prone to seizures -and he

says " no " ...and months later the same 9 YO patient remains seizure free for 5

months -and in another month will be weened off all seizures meds (!!!) So

that's why I'm mad at him. Think of the children like Matt who have parents

that either

> A. Doesn't know about nutriiveda

> B. Aren't as strong as Alyssa to stand up to him and say " I'm doing it

anyway. I'm just letting you know "

>

> And instead of the child being given the chance to also have no more seizures

and no more meds -he or she has portions of the brain removed...and still on

medication right?!

>

> you can find parents in this situation all over the net -here's just one place

http://www.mamapedia.com/article/removing-part-of-brain-to-help-with-seizure-dis\

order

>

> And what would the reason be for not even accepting that it's POSSIBLE that

foods can help the body help itself -especially seeing it with your own eyes and

in light of the theories we wrote about here which include clinical studies

http://pursuitofresearch.org/science.html

>

> So again -I have no problem with doctors that look at this at first and are

skeptical- to me the proof is in the pudding -if you put the nutriiveda in the

pudding that is.

>

> And Alyssa the developmental ped's reaction is expected and fine...to me-

seeing results and being open minded. That's all we are asking for here people!

>

> =====

>

[Guest guest]

Our family pediatrician is INCREDIBLY conservative.  Sometimes to a fault. 

And he thought Nutriiveda looked great.  Same with our Developmental

Pediatrician who specializes in Apraxia at Nationwide Children's Hospital.  She

was on board too.   The results keep coming for with Nutriiveda.  We

got a little lazy with dosages since school ended and vacation began and trust

me...we noticed the difference.  

Gretchen

(Columbus, OH)

________________________________

From: mykitkate <mykitkate@...>

Sent: Tue, June 15, 2010 6:56:31 PM

Subject: [ ] Re: Follow up appt. at Neurologist

My son's pediatrician approved fish oils and then nutriiveda after looking at

the ingredients. I don't think I would give my child something he did not

approve of. I would have been one of the parents that would not stand up to my

doctor.  What about those children that maybe wouldn't need surgery either? 

You make a good point.  Kate

>

> Alyssa first off I just want to say I'm thrilled about all that is going on

for you and Matt -but want to just explain why I'm not thrilled with Mr. (the

doctor) Skeptic!

>

> I wouldn't then use the word skepticism at this point.  You can be a skeptic

up till the time you try something and decide if it's real or not.  Skepticism

is a sign of intelligence- all of us were skeptics that nutriiveda would work

-how could anyone believe that we would see the surges we would.

>

> I mean take any child and say " If I mix together baking soda and vinegar it

will create a chemical reaction that can make a volcano...or even a rocket! " and

the child may say " No way "   Then you show them.  How many times do you have to

" show them " over and over for the child to no longer be a skeptic?  hmmmm -I'd

say far less than 5 months!

>

> I'm shocked he's not a member of this society

http://www.alaska.net/~clund/e_djublonskopf/Flatearthsociety.htm

>

> And forget skeptic to start... Alyssa this doctor didn't even want your child

to TRY it even though anyone who knows anything about nutrition will look at is

and say " WOW! " and be impressed -it's high quality whole food formulated by a

panel of world renowned medical doctors

http://pursuitofresearch.org/advisors.html for goodness sake!  And... saying

" NO " even after knowing it's stopped seizures in others who are well documented

in our group.  Why? Even if the seizure aspect didn't work which clearly it has

been?  Why not take the approach of 's doctor and say " there is no other

logical explanation then the nutriiveda is healing 's brain somehow.  I

don't want you to stop giving her nutriiveda " .  So ask him...what else could it

be in Matt's case that stopped the seizures prior to him being able to pull out

of part of your kid's brain?  Global warming?  Fear of being adopted by

Brittney Spears?  Tooth fairy?

>

> Before someone asks me...OK I'll answer the " why are you so angry at this

doctor? " question.  Because think of the number of children this man sees- and

clearly for whatever reason Alyssa LIKES him -so I'm sure others do to.  I like

my neighbor too and she's a pro golfer.  This doctor was ready to cut out a

section of Matt's brain -and here he's confronted with something that is 100%

natural and 100 % whole food which is where all the nutrients and essential

amino acids are from and that had success with others prone to seizures -and he

says " no " ...and months later the same 9 YO patient remains seizure free for 5

months -and in another month will be weened off all seizures meds (!!!)  So

that's why I'm mad at him.  Think of the children like Matt who have parents

that either

> A.  Doesn't know about nutriiveda

> B.  Aren't as strong as Alyssa to stand up to him and say " I'm doing it

anyway. I'm just letting you know "

>

> And instead of the child being given the chance to also have no more seizures

and no more meds -he or she has portions of the brain removed...and still on

medication right?!

>

> you can find parents in this situation all over the net -here's just one place

http://www.mamapedia.com/article/removing-part-of-brain-to-help-with-seizure-dis\

order

>

> And what would the reason be for not even accepting that it's POSSIBLE that

foods can help the body help itself -especially seeing it with your own eyes and

in light of the theories we wrote about here which include clinical studies 

http://pursuitofresearch.org/science.html

>

> So again -I have no problem with doctors that look at this at first and are

skeptical- to me the proof is in the pudding -if you put the nutriiveda in the

pudding that is.

>

> And Alyssa the developmental ped's reaction is expected and fine...to me-

seeing results and being open minded.  That's all we are asking for here

people!

>

> =====

>

[Guest guest]

you are very passionate in your fight for NV and I am there with you.  I

just wanted to correct a couple of things:  Matt's doctor didn't endorse NV

that is different then saying not to use it.  He has been open minded to

dropping medications.  He does agree that there are proprieties in NV that do

help with seizures.  He just can not say that Nutriiveda is the one and only

factor in controlling his seizures. 

I agree that it would be wonderful if he jumped in and wanted to help in this

study but he is not turning his nose at it...

All I care about at this point is Matt is seizure free!! And tonight I dropped

off his depakote so he is left with only his morning dose....So in the grand

picture that is the most important thing.

Thank you to everyone for your emails and well wishes.

Alyssa

________________________________

From: kiddietalk <kiddietalk@...>

Sent: Tue, June 15, 2010 6:06:38 PM

Subject: [ ] Re: Follow up appt. at Neurologist

 

Alyssa first off I just want to say I'm thrilled about all that is going on for

you and Matt -but want to just explain why I'm not thrilled with Mr. (the

doctor) Skeptic!

I wouldn't then use the word skepticism at this point. You can be a skeptic up

till the time you try something and decide if it's real or not. Skepticism is a

sign of intelligence- all of us were skeptics that nutriiveda would work -how

could anyone believe that we would see the surges we would.

I mean take any child and say " If I mix together baking soda and vinegar it will

create a chemical reaction that can make a volcano...or even a rocket! " and the

child may say " No way " Then you show them. How many times do you have to " show

them " over and over for the child to no longer be a skeptic? hmmmm -I'd say far

less than 5 months!

I'm shocked he's not a member of this society

http://www.alaska.net/~clund/e_djublonskopf/Flatearthsociety.htm

And forget skeptic to start... Alyssa this doctor didn't even want your child to

TRY it even though anyone who knows anything about nutrition will look at is and

say " WOW! " and be impressed -it's high quality whole food formulated by a panel

of world renowned medical doctors http://pursuitofresearch.org/advisors.html for

goodness sake! And... saying " NO " even after knowing it's stopped seizures in

others who are well documented in our group. Why? Even if the seizure aspect

didn't work which clearly it has been? Why not take the approach of 's

doctor and say " there is no other logical explanation then the nutriiveda is

healing 's brain somehow. I don't want you to stop giving her

nutriiveda " . So ask him...what else could it be in Matt's case that stopped the

seizures prior to him being able to pull out of part of your kid's brain? Global

warming? Fear of being adopted by Brittney Spears? Tooth fairy?

Before someone asks me...OK I'll answer the " why are you so angry at this

doctor? " question. Because think of the number of children this man sees- and

clearly for whatever reason Alyssa LIKES him -so I'm sure others do to. I like

my neighbor too and she's a pro golfer. This doctor was ready to cut out a

section of Matt's brain -and here he's confronted with something that is 100%

natural and 100 % whole food which is where all the nutrients and essential

amino acids are from and that had success with others prone to seizures -and he

says " no " ...and months later the same 9 YO patient remains seizure free for 5

months -and in another month will be weened off all seizures meds (!!!) So

that's why I'm mad at him. Think of the children like Matt who have parents that

either

A. Doesn't know about nutriiveda

B. Aren't as strong as Alyssa to stand up to him and say " I'm doing it anyway.

I'm just letting you know "

And instead of the child being given the chance to also have no more seizures

and no more meds -he or she has portions of the brain removed...and still on

medication right?!

you can find parents in this situation all over the net -here's just one place

http://www.mamapedia.com/article/removing-part-of-brain-to-help-with-seizure-dis\

order

And what would the reason be for not even accepting that it's POSSIBLE that

foods can help the body help itself -especially seeing it with your own eyes and

in light of the theories we wrote about here which include clinical studies

http://pursuitofresearch.org/science.html

So again -I have no problem with doctors that look at this at first and are

skeptical- to me the proof is in the pudding -if you put the nutriiveda in the

pudding that is.

And Alyssa the developmental ped's reaction is expected and fine...to me- seeing

results and being open minded. That's all we are asking for here people!

=====

[Guest guest]

Totally agree, !  When I talked to Josh's neurodoc about the NV, he said

he just does not believe there is a connection between nutrition and

neurological disorders.  I reminded him about the fish oils success, and I

brought up that I, as a diabetic (granted, not neurological), can control my

sugar levels by eating more or less carbohydrates, so why shouldn't there be a

connection between the NV and Josh's epilepsy?  So, while he said to just watch

the protein levels, he didn't see anything harmful in Josh taking the NV.  I

just can't wait to see what progress there is by the time of our appointment in

the Fall and then have him make the same conclusions!

 

Sherry and Josh

From: Alyssa Nagy <aw_nagy@...

<mailto:aw_nagy%40> >

Subject: [ ] Follow up appt. at Neurologist

<mailto: %40>

Date: Tuesday, June 15, 2010, 2:10 PM

Hi everyone,

and I just returned from his six month visit to the

neurologist. He was very pleased that is 19.5 weeks seizure

free but is still skeptical about NV. I did not want to push this on

him too much so I back off. For me the proof is in the pudding:-)

Anyway you look at it continues to do well. As of today

is still taking Depakote and Carbatrol. And his neurologist was in

agreement to start to remove the Depakote due to the levels being very

low anyway. That will leave us with a very low dose of Carbartol

totaling 400mg daily, which is not very high at all for a 100lbs of

love!

So I will start to remove 's morning dose of Depakote in

the morning for one week then I will take away his evening dose the week

after that...... Keep your fingers crossed as I am excited and nervous

at the same time....

I'll keep you posted.

Alyssa