New National Human Genome Research Institute at the National Institutes of Health (NIH)Study

[Guest guest]

The National Human Genome Research Institute at the National Institutes

of Health (NIH) is sponsoring a study that seeks to learn more about how

parents of children with an undiagnosed medical condition think and feel

about their child's condition. We hope that this knowledge will improve

the health care and counseling for these parents. Men and women who are

18 years or older and have at least one child with a medical condition

that has remained undiagnosed for more than 2 years are needed to take

part in this study. Participation involves one survey that takes about

45 minutes to finish. The survey can be taken online or a paper copy

can be mailed to you. For additional information about this study, you

may review the Notice to Participants

< <http://www.surveymonkey.com/StudyNoticeUncertainty>

http://www.surveymonkey.com/StudyNoticeUncertainty> .

If you have questions, please contact:

Anne C. Madeo, MS, Principal Investigator

Genetic Counselor

National Human Research Institute

National Institutes of Health

Bldg. 31, Room B1B36

31 Center Drive, MSC 2073

Bethesda, MD 20892-2073

Phone: 301-443-2635

Email: <mailto:anne.madeo%40nih.gov> anne.madeo@...