My Child Could be the Poster Child for Apraxia

[Guest guest]

I have been watching youtube videos of people's children diagnosed with Apraxia,

even 's. Out of all the videos I have watched thus far, I am able to

comprehend these children's speech, even with some difficulty. My son has

improved greatly, but we still have extreme difficulty deciphering most of what

he says outside of speech therapy beyond *some* limited one or two word phrases

or a much practiced sign and say session. I know there must be many levels of

apraxia, but why is it I understand all these children with greater ease than my

own?

This is frustrating. I know for sure that my son has classic, 100% full-blown

true profound apraxia. I have never seen any other case as bad as him. He should

be the poster child, as the SLP said.

[Guest guest]

How old is your child ?

>

> I have been watching youtube videos of people's children diagnosed with

Apraxia, even 's. Out of all the videos I have watched thus far, I am able

to comprehend these children's speech, even with some difficulty. My son has

improved greatly, but we still have extreme difficulty deciphering most of what

he says outside of speech therapy beyond *some* limited one or two word phrases

or a much practiced sign and say session. I know there must be many levels of

apraxia, but why is it I understand all these children with greater ease than my

own?

> This is frustrating. I know for sure that my son has classic, 100% full-blown

true profound apraxia. I have never seen any other case as bad as him. He should

be the poster child, as the SLP said.

>

>

[Guest guest]

~ You are not alone. My son Tanner has pure Verbal Apraxia and while he

has made HUGE leaps with his vocabulary, he is no where even close to what a 5

year old child should sound like. Our insurance is terrible and we only get 20

sessions a year and continue to appeal it. The school system in our county is

also a huge joke. Tanner gets 20 minutes a week and we stopped going last year

when there was zero progress being made and they wouldn't even label him as

apraxic, so the therapy they were using was pointless. Since we are a

homeschooling family, I have just incorporated his therapy into our school days.

Kristie

[ ] Re: My Child Could be the Poster Child for

Apraxia

How old is your child ?

>

> I have been watching youtube videos of people's children diagnosed with

Apraxia, even 's. Out of all the videos I have watched thus far, I am able

to comprehend these children's speech, even with some difficulty. My son has

improved greatly, but we still have extreme difficulty deciphering most of what

he says outside of speech therapy beyond *some* limited one or two word phrases

or a much practiced sign and say session. I know there must be many levels of

apraxia, but why is it I understand all these children with greater ease than my

own?

> This is frustrating. I know for sure that my son has classic, 100% full-blown

true profound apraxia. I have never seen any other case as bad as him. He should

be the poster child, as the SLP said.

>

>

=

[Guest guest]

,

I've been part of the group for a while and I don't participate much, but I read

all the messages and I learn a lot here. I just wanted to say that I feel the

same way you do. I sometimes wish that people would give a little more info, not

to " compare " but I guess to base if the treatment my son is receiving is enough

or even to see if there's something else besides the apraxia...sometimes I

under...

My son is 4 1/2 and has been diagnose with severe apraxia and hypotonia. His

hypotonia always affected him more on his lower body..he crawled, sat and walked

late.

Everytime I watch a video or hear comments here I feel that he is way behind

other apraxic children. He does not count to 10 on his own, he knows some

colors,but gets mix up a lot (most the time I'm not quite sure if the speech or

if he's really confused). He started talking in two word sentences around

Febuary/March and occasionally will do three words sentences, but they are all

unclear and only my husband and I are able to understand them (unless we prompt

him to talk slow, use his big boy words,etc..but like you said, they are the

words we practice a lot). He does not know any songs..if he sings, he does two

words of the song and then he's done. I sense that he knows that he's not able

to speak the words so he just stops. He has improved a ton the past year, going

from 40-60 unclear words to over 200 now but when we use cards to do vocabulary,

a lot of the times he doesn't know what they are. His motor skills are very low

as well. He doesn't know how to hold scissors. He hold crayons very lightly and

does not draw any circles..he just scribbles a lit bit. He learned to pedal his

tricycle back in January when he was 3y 10m old and he learned to his bike a

month later. He doesn't know how to move his tongue on his mouth and do funny

faces. We're still struggling with potty training..he's been doing great

progress, and now is more of a willingness issue than a control issue. I have

read here that apraxic children potty train much later, but how much later?

Anyway, I'm just writing mostly to let you know a little about my son and to let

you know that I feel the same way...I'm not trying to compare, I'm very happy

when I see a children with apraxia doing progress. I don't know how is your

son's situation, but just know that you are not alone. Today I was talking to

his special ed teacher and I even mentioned to her that I'm happy to see his

progress. I do try not to compare him with other kids, but look at where he was

a year ago and what he has gain/learned this past year. A year ago he just said

a few words and did sign language, everything else was just " daaaa " ...and know

he ends his words with prompt and is starting to talk in sentences even if it's

prompted, he's able to do it...and that's what I try to focus on.

Best wishes,

From: mykitkate@...

Date: Thu, 9 Sep 2010 02:29:03 +0000

Subject: [ ] Re: My Child Could be the Poster Child for

Apraxia

How old is your child ?

>

> I have been watching youtube videos of people's children diagnosed with

Apraxia, even 's. Out of all the videos I have watched thus far, I am able

to comprehend these children's speech, even with some difficulty. My son has

improved greatly, but we still have extreme difficulty deciphering most of what

he says outside of speech therapy beyond *some* limited one or two word phrases

or a much practiced sign and say session. I know there must be many levels of

apraxia, but why is it I understand all these children with greater ease than my

own?

> This is frustrating. I know for sure that my son has classic, 100% full-blown

true profound apraxia. I have never seen any other case as bad as him. He should

be the poster child, as the SLP said.

>

>

[Guest guest]

,

My son, Larsyn, is 4 1/2 and sounds very similar to yours! He has been diagnosed

with severe verbal apraxia, dyspraxia, hypotonia and sensory processing

dysfunction. Cognitively he also sounds similar. His fine motor was just tested

again...70% delay. Can't hold scissors, pens, pencils, right, unless placed in

his hand. Sort of scribbles a bit. Can count to 3, knows his primary colors

(sometimes!), is no where near potty trained, can't ride a bike/tricycle. Also

has oral motor problems (he sees a speech therapist for feeding therapy and oral

motor exercises). Sing songs...haha!!

He has been in OT, PT, ST, Feeding Therapy since he was 18 months. Oh also 10

hrs/week of ABA Therapy. He has been in special ed preschool since age 3.

His progress is EXTREMELY slow. It definitely isn't from his lack of hard work!!

If you ever want to " talk " you can email me :-) imcaligal@...

-Jenna

Orange County, CA

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> > I have been watching youtube videos of people's children diagnosed with

Apraxia, even 's. Out of all the videos I have watched thus far, I am able

to comprehend these children's speech, even with some difficulty. My son has

improved greatly, but we still have extreme difficulty deciphering most of what

he says outside of speech therapy beyond *some* limited one or two word phrases

or a much practiced sign and say session. I know there must be many levels of

apraxia, but why is it I understand all these children with greater ease than my

own?

>

> > This is frustrating. I know for sure that my son has classic, 100%

full-blown true profound apraxia. I have never seen any other case as bad as

him. He should be the poster child, as the SLP said.

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