Re: dosage for nutriveda/answering questions from

[Guest guest]

Hi ,

You asked about Nate's placement and therapies. Due to some great documentation

about therapy for dyspraxia that I found through CHERAB , Nate is now receiving

2 hours per week private therapy paid for by the school system to continue for

another year--during the school year he also will get group therapy several

times a week. His placement this year is in the only inclusive kindergarten

classroom in our county. Last year I had him in a typical vpk program w/a 1 to

5 ratio. Previously, Nate's speech therapy was not appropriate for his needs.

I began questioning the therapists about apraxia before he turned 3. I finally

took him to the children's hospital in our area and he was diagnosed w/severe to

moderate dyspraxia last August. His current therapist considers his dyspraxia

severe. She seems to be very good. Yet, things are coming along slowly. I am

not sure how this kinderagarten classroom will affect him, yet the teachers are

awesome and great advocates for the kids. I am wondering if he will need an

aid???!!! I was surprised they let him in this class. Two other children who

have Down syndrome are in this class. One was a late talker--the other is very

verbal.

Nate was never immunized. He had Down syndrome, yet no other health issues

until after he was two and began having bouts of pneumonia. He then would be

in the hospital w/antibiotics, prednisone, inhalers etc etc etc. I do feel

that the meds over the past three years have caused some damage that causes some

autistic sensory behaviours. We had a swallow study done this summer and the

speech therapist believes he aspirates due to weak swallow. So, he is on

thickened liquiids. We are waiting for UHC to approve therapy for dysphasia,

yet I just met a mom whose child began having seizures due to this therapy at

our same clinic. Her child does have a neurological disorder--yet I am now

questioning whether we should do the " electrode " therapy on Nate's diaphram.

Sometimes I feel like I am " feeling " my way along this path to help my child

talk. Everything clicked for Nate except for language. Even though he has Down

syndrome--language is the only area that is of great concern to me. I am

considering the nutriiveda. I have noticed (and his preschool teachers also)

that he is more alert and communicates better when on healthy supplements. We

have done barley, fish oil, probiotics, vitamin C and multi vitamins. The

barely and fish oil really helped him heal his immune system and thyroid. It

took about 6 months!

Thanks for all your help!

Colleen

>

> Hi Colleen!

>

> Most with children your child's age and weight would be using 2 scoops (or

heaping scoops) a day. But some doctors have raised that up to 3 scoops because

the product is just whole food and it's water soluble.

>

> You can find lot of information at http://www.pursuitofresearch.org This page

is to share with your child's doctor

http://pursuitofresearch.org/NutriiVeda_Information.pdf and this provides some

simple Q and A http://pursuitofresearch.org/faq.html and testimonies mainly from

parents and professionals from this group

http://pursuitofresearch.org/testimonials.html Well you get the point -you can

find much there. If you have other questions just let me know as I am in touch

with the doctors behind the formula. http://pursuitofresearch.org/advisors.html

>

> The reason you may not have found anything on the net about this outside of

our sites and our parents who have started blogs is because the product was

launched in 2009 as a weight management product. It's not a weight loss

product, but it supports the metabolic system so if one needs to lose or gain it

will work with the body's needs. The manufacturer is fully aware of what is

going on with our group as I have met with the owner Bill Farley and the doctors

behind the formula http://pursuitofresearch.org/advisors.html Until there is

research which again I know there will be -we can put up what we are seeing as

well as theories here http://pursuitofresearch.org/science.html but the company

can't yet.

>

> Do you need any other help with answering questions about your child's

dyspraxia/apraxia? What is his current placement and how is he doing? What

type of therapies have you done so far and have been successful?

>

> =====

>