HELP!!!

[Guest guest]

I'm writing to share my feelings about 's situation and others

I've read. It's hard to read all of your pain, hard because I'm

reminded of my own... more than I'm comfortable with sometimes. But

mostly I want you to hear that your description of your pain strikes

chords of remembrance in most of us. We who have been there know how

hard it is to see the outside when you are all consumed by the PAIN

(nowhere near enough letters in that word for such a feeling) and the

mind numbing fatigue that goes along with a flare... I can never tell

how long it will last and I worry... will this be the one that never

ends no matter what I try.

When it ends, I admit...I don't want to remember it.. I want to act

as if my life can go back to normal... what ever that used to be.

But my reality hasn't included " normal " for the last 3 years.

I use a scooter to get around ever since my last car wreck 2 years

ago, I consistently encounter folk who assume that I just need more

exercise. My family is not near enough to see my everyday stuggle,

even friends I've had for years expect this to improve... even though

I've told them the PA may improve, that doesn't mean I get back the

damage done to my spinal cord in the werck.. they just don't get

it...they can't even imagine it.. I remind them that I'm glad they

can't imagine it, I hope they never do have a frame of reference for

this.

When people attempt to make small talk about the scooter by saying "

There's what I need " implying they are tired of walking... I

reply " Swap ya " , sometimes it gives them pause, other times I'm just

labeled cranky.

Most of the time I try to remind them and myself, that we in the US

particularly are used to medical problems that are acute, you break

your leg, it's set, the cast comes off... presto you're better... PA

doesn't work that way. Chronic disease is not thought about... we

dont't want to have chronic problems, we prefer the instantly

solveable variety please!

, I hope your days have gotten a bit easier by now... I wish

you restful sleep and quiet days.

[Guest guest]

Hi Lori, I'm new to this group too. I am so sorry about your situation. Not

having any legal background here at all, but maybe ask a special education

attorney. Since they know about most disorders, they could get you on the right

track in finding someone familiar with AS who could help your son. Poor kid, I

know he must be so afraid.

Good luck & best to you,

Liz

Houston

Lori Hards <moppinmom@...> wrote:

Hi to everyone. I am new and have been reading posts for awhile. I am

a mom to two boys-8 and 18 both with as. My older son has been arrested for a

crime he did not commit and my younger son is having behavior difficulties at

school. I need advice on how to proceed with the legal case. I don't think our

attorney knows enough about as to be as helpful as what we need. I am going to

send him info about as but i wonder if we should change attorneys. our younger

son 's teacher is quitting at mid -year to pursue career goals and he is very

upset. We are experiencing major stress issues..Help!! Any words of

advice/encouragement would be so nice right now

Thanks for listening

[Guest guest]

Does your older son have a disability? If he does you may want to contact

your local Disability Law Center or Protection and Advocacy Office. I would

request an IEP review for your younger son now to address the teacher leaving

and how they will be transitioning your son in the meantime to the changes.

Pam

[Guest guest]

--Thanks Pam....I have been looking in the phone book for the phone

numbers but can't find any. I will continue to check.

, ppanda65@... wrote:

>

> Does your older son have a disability? If he does you may want

to contact

> your local Disability Law Center or Protection and Advocacy

Office. I would

> request an IEP review for your younger son now to address the

teacher leaving

> and how they will be transitioning your son in the meantime to

the changes.

> Pam

>

>

>

[Guest guest]

My only advice would be to talk to your local autism society chapter or

a support group, and get a list of their recommended special education

attorneys, or attorneys who represent special needs people. We had to do

this back in September, and we found an absolutely wonderful one who has

been a great help...and my son is only 5, imagine needing an attorney

for a police situation for a five year old. The world has gone nuts, and

I have a five year old afraid of policemen now.

Seek some new help until you find someone you feel comfortable

representing you, and paying...ours has taken training for autism and

has an autistic grandson, so he knows his stuff. Other attorneys like

this are out there.

Good luck to you..

>

>

>

> Lori Hards <moppinmom@...

> <mailto:moppinmom%40sbcglobal.net>> wrote:

> Hi to everyone. I am new and have been reading posts for awhile. I am

> a mom to two boys-8 and 18 both with as. My older son has been

> arrested for a crime he did not commit and my younger son is having

> behavior difficulties at school. I need advice on how to proceed with

> the legal case. I don't think our attorney knows enough about as to be

> as helpful as what we need. I am going to send him info about as but i

> wonder if we should change attorneys. our younger son 's teacher is

> quitting at mid -year to pursue career goals and he is very upset. We

> are experiencing major stress issues..Help!! Any words of

> advice/encouragement would be so nice right now

>

> T

>

[Guest guest]

http://www.yellowpagesforkids.com/help/states.htm

This is a great link.. Yellow pages for special needs kids.

-- ( ) Re: Help!!!

--Thanks Pam....I have been looking in the phone book for the phone

numbers but can't find any. I will continue to check.

, ppanda65@... wrote:

>

> Does your older son have a disability? If he does you may want

to contact

> your local Disability Law Center or Protection and Advocacy

Office. I would

> request an IEP review for your younger son now to address the

teacher leaving

> and how they will be transitioning your son in the meantime to

the changes.

> Pam

>

>

>

[Guest guest]

Hi Lori,

I have been a Disability Advocate for the past 3 years. I have 2 suggestions.

First, every state has an Office of Disability Law. They may not be able to help

with this kind of case, but they can point you to someone who can. Second, look

into pre-paid legal. It's not a solution, but it certainly will save you money

in advise and services.

Good Luck,

Dave

( ) Help!!!

Hi to everyone. I am new and have been reading posts for awhile. I am a mom to

two boys-8 and 18 both with as. My older son has been arrested for a crime he

did not commit and my younger son is having behavior difficulties at school. I

need advice on how to proceed with the legal case. I don't think our attorney

knows enough about as to be as helpful as what we need. I am going to send him

info about as but i wonder if we should change attorneys. our younger son 's

teacher is quitting at mid -year to pursue career goals and he is very upset.

We are experiencing major stress issues..Help!! Any words of

advice/encouragement would be so nice right now

Thanks for listening

[Guest guest]

where are you located? Pam

[Guest guest]

Sorry, I forgot which information you were looking for: Here is the

information for the Protection/Advocacy (legal) Center in your area:

PROTECTION AND ADVOCACY AGENCY

L. Germer, Executive Director

Kansas Advocacy & Protective Services

3218 Kimball Ave.

Manhattan, KS 66503

(785) 776-1541; (800) 432-8276

[Guest guest]

Hi Pam,,,,,,i am in kansas not missouri...would this still be the same number

to call? Also, i need legal advice....not having problems educationally at

least for now:-) he is in junior college

ppanda65@... wrote: where are you located? Pam

[Guest guest]

Hi Pam,

Where do you find this information? I think this should be available to

everyone.

Thanks,

Dave

Re: ( ) Re: Help!!!

Sorry, I forgot which information you were looking for: Here is the

information for the Protection/Advocacy (legal) Center in your area:

PROTECTION AND ADVOCACY AGENCY

L. Germer, Executive Director

Kansas Advocacy & Protective Services

3218 Kimball Ave.

Manhattan, KS 66503

(785) 776-1541; (800) 432-8276

[Guest guest]

it is available to everyone...I just don't mind taking the time to search it

out and post it. Pam

_Disabilities State by State Guide_ (http://www.autism-pdd.net/search.htm)

[Guest guest]

www.napas.org has a list that is searchable by state.

Tonya

Re: ( ) Re: Help!!!

Hi Pam,

Where do you find this information? I think this should be available to

everyone.

Thanks,

Dave

Re: ( ) Re: Help!!!

Sorry, I forgot which information you were looking for: Here is the

information for the Protection/Advocacy (legal) Center in your area:

PROTECTION AND ADVOCACY AGENCY

L. Germer, Executive Director

Kansas Advocacy & Protective Services

3218 Kimball Ave.

Manhattan, KS 66503

(785) 776-1541; (800) 432-8276

[Guest guest]

Thank you. I'm glad to know these resources are out there. And thank you for

your time to research it.

Dave

Re: ( ) Re: Help!!!

it is available to everyone...I just don't mind taking the time to search it

out and post it. Pam

_Disabilities State by State Guide_ (http://www.autism-pdd.net/search.htm)

________________________________________________________________________________\

____

Have a burning question?

Go to www.Answers. and get answers from real people who know.

[Guest guest]

You may want to contact a special education lawyer or Disability Law Center in your area. Pam :)See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

> met with the school on Friday and was told he is now being charged

with Sexual Battery.

Wow! Okay. Since he's on the autism spectrum, inappropriate

touching (not just sexual) of others can be a problem for some. So -

I think I would practice your argument for why this is related to his

disability (part of the social interaction problems, communication,

understanding personal space of people...may be able to throw some of

that in with explanation).

I searched for some things you can read through (I haven't read all

obviously) and maybe some of it will help you with your argument and

setting up a plan for school/community for him. I'll post links

below.

Does he have any services yet in your new home, case manager or

anything yet?

If there is someone from your previous city/school who knows him well

(doctor, psychologist, someone at previous school...), you could

contact them and ask them to write something up for you to include

with your defense.

http://www.edu.gov.mb.ca/k12/specedu/aut/pdf/appendixe.pdf

http://www.albany.edu/psy/autism/plan1.html

http://www.aspergers.com/Adolesc.htm

http://www.bced.gov.bc.ca/specialed/docs/autism.pdf

Go to " case studies " pages 114, 110 about " Raj " (inappropriate

touching)

http://www.scautism.org/protect.html

http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=1071 & a=6001

scroll down to " inappropriate behaviour "

http://www.autism-society.org/site/PageServer?

pagename=about_lwa_justice

These were just some quick things I pulled up. Hopefully the

school/others will realize that he needs to be helped in this area

and not charged! If the girl and/or parents are upset, they also

need to be informed about his disability and an appropriate

punishment/correction set up for your son.

Very quick thoughts! Let us know how things turn out!

> I am new to this group and I hate to introduce myself with a

problem but I need help. I am staying with a friend and she is

letting me use her email.

> I like in County. My son is 13 and is in the 7th grade. We

moved her from Michigan. In his IEP from Michigan he received many

servieces that the county has informed me over and over again that

they don't do. I have asked for a Para-pro to be with him all day and

to make sure he stays on task and help with behavior. The school said

only as needed (what does that mean?)

> This school year we have had tow incidents; 1) in gym where he

[Guest guest]

I have called several but have yet to hear from someone or their fees are more than I can pay.

-------------- Original message -------------- From: ppanda65@...

You may want to contact a special education lawyer or Disability Law Center in your area. Pam

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

THANKS!

-------------- Original message -------------- From: "" <@...>

> met with the school on Friday and was told he is now being charged with Sexual Battery.Wow! Okay. Since he's on the autism spectrum, inappropriate touching (not just sexual) of others can be a problem for some. So - I think I would practice your argument for why this is related to his disability (part of the social interaction problems, communication, understanding personal space of people...may be able to throw some of that in with explanation). I searched for some things you can read through (I haven't read all obviously) and maybe some of it will help you with your argument and setting up a plan for school/community for him. I'll post links below.Does he have any services yet in your new home, case manager or anything yet? If there is someone from your previ

ous city/school who knows him well (doctor, psychologist, someone at previous school...), you could contact them and ask them to write something up for you to include with your defense.http://www.edu.gov.mb.ca/k12/specedu/aut/pdf/appendixe.pdfhttp://www.albany.edu/psy/autism/plan1.htmlhttp://www.aspergers.com/Adolesc.htmhttp://www.bced.gov.bc.ca/specialed/docs/autism.pdfGo to "case studies" pages 114, 110 about "Raj" (inappropriate touching)http://www.scautism.org/protect.htmlhttp://

www.nas.org.uk/nas/jsp/polopoly.jsp?d=1071 & a=6001scroll down to "inappropriate behaviour"http://www.autism-society.org/site/PageServer?pagename=about_lwa_justiceThese were just some quick things I pulled up. Hopefully the school/others will realize that he needs to be helped in this area and not charged! If the girl and/or parents are upset, they also need to be informed about his disability and an appropriate punishment/correction set up for your son. Very quick thoughts! Let us know how things turn out!> I am new to this group and I hate to introduce myself with a problem but I need help. I am staying with a friend and she is letting me use her email.> I like in County. My son is 13 and is in the 7th grade. We moved her from Michigan. In his IEP from Michigan he receive

d many servieces that the county has informed me over and over again that they don't do. I have asked for a Para-pro to be with him all day and to make sure he stays on task and help with behavior. The school said only as needed (what does that mean?)> This school year we have had tow incidents; 1) in gym where he

[Guest guest]

Contact your local parent information training center. If you need help locating it let me know where you are from. Pam :)See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Every state has a federally mandated Parent Information Training Center (PTI). They can provide parents with information, guidance and support while navigating the special education system. Let me know what state you are in. Pam :)See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

I'm not sure what you mean? Are you talking about Parent Menor for County/ If not please let me know.

-------------- Original message -------------- From: ppanda65@...

Contact your local parent information training center. If you need help locating it let me know where you are from. Pam

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Not to scare you, but I would find an attorney. An attorney can help

you navigate the system as well as protect your son from unfair and

inappropriate punishment. If I were you, I'd also put together

documentation showing that this can happen as a result of your son's

diagnosis, and maybe see if your doctor can help, or a caseworker if

you're in the state's regional center (or equivalent) program.

I can't go into detail, my son's only 6 and I'm still in disbelief at

times at what we went through this past year, but let me just say that

our attorney's advice was invaluable. Police investigating your son can

scare him, and if they aren't knowledgeable about autism, they may not

be aware that the kids can be very literal and you don't want something

taken out of context when they question him either.

Good luck to you, you'll be in my prayers that this is resolved quickly

and your son doesn't have to deal with unnecessary problems.

aprildiamonds@... wrote:

I am new to this group and I hate to introduce myself with a

problem but I need help. I am staying with a friend and she is letting

me use her email.

I like in County. My son is 13 and is in the 7th grade.

We moved her from Michigan. In his IEP from Michigan he received many

servieces that the county has informed me over and over again that they

don't do. I have asked for a Para-pro to be with him all day and to

make sure he stays on task and help with behavior. The school said only

as needed (what does that mean?)

This school year we have had tow incidents; 1) in gym where he

touched a young lady inappropreately and recently in science when he

rubbed up against another young lady. I realize he is in puberty and I

can't help that but I have spoken to him and asked the school yet

again to help me. This last incident resulted in a suspention.

I met with the school on Friday and was told he is now being

charged with Sexual Battery. My head is spinning and a hearing has been

set for this coming Thursday. I need help yesterday.

[Guest guest]

Don't give up -- there are affordable ones out there.

Contact your local autism society and post to local autism lists for

references in your area. Not all attorneys are outrageously priced --

ours was, dare I say it, downright affordable, and I GLADLY wrote the

checks. Ours has an autistic grandson and a huge field of experience,

and his heart is truly in the right place. He can't be the only one.

aprildiamonds@... wrote:

I have called several but have yet to hear from someone or their

fees are more than I can pay.

--------------

Original message --------------

From: ppanda65aol

You may want to contact a special education lawyer or Disability

Law Center in your area. Pam

[Guest guest]

You need to find an advocate to help you sort out the problems. The county can't tell you that they "don't do" a particular service. Service is based on NEED of the child. So if he needs something, they need to provide it - period. Obviously, since he is having problems in class, you are smart to have asked for the aide. Since he is now being charged with "sexual battery", you will have to sort all of that out but at the school, get an "FBA" (functional behavior assessment" done so that you can make a behavior plan and have someone with him at all times until he can monitor his own behavior better. Do not stop until you get him what he needs! Visit www.wrightslaw.com for more information on your and your child's rights in the education process.

RoxannaAutism Happens

( ) HELP!!!

I am new to this group and I hate to introduce myself with a problem but I need help. I am staying with a friend and she is letting me use her email.

I like in County. My son is 13 and is in the 7th grade. We moved her from Michigan. In his IEP from Michigan he received many servieces that the county has informed me over and over again that they don't do. I have asked for a Para-pro to be with him all day and to make sure he stays on task and help with behavior. The school said only as needed (what does that mean?)

This school year we have had tow incidents; 1) in gym where he touched a young lady inappropreately and recently in science when he rubbed up against another young lady. I realize he is in puberty and I can't help that but I have spoken to him and asked the school yet again to help me. This last incident resulted in a suspention.

I met with the school on Friday and was told he is now being charged with Sexual Battery. My head is spinning and a hearing has been set for this coming Thursday. I need help yesterday.

[Guest guest]

THANK YOU ALL. I have many irons in the fire an dhelp is in the works. I will let you all know what the out is.

THANKS AGAIN!

--------- ( ) HELP!!!

I am new to this group and I hate to introduce myself with a problem but I need help. I am staying with a friend and she is letting me use her email.

I like in County. My son is 13 and is in the 7th grade. We moved her from Michigan. In his IEP from Michigan he received many servieces that the county has informed me over and over again that they don't do. I have asked for a Para-pro to be with him all day and to make sure he stays on task and help with behavior. The school said only as needed (what does that mean?)

This school year we have had tow incidents; 1) in gym where he touched a young lady inappropreately and recently in science when he rubbed up against another young lady. I realize he is in puberty and I can't help that but I have spoken to him and asked the school yet again to help me. This last incident resulted in a suspention.

I met with the school on Friday and was told he is now being charged with Sexual Battery. My head is spinning and a hearing has been set for this coming Thursday. I need help yesterday.