Guest guest Posted August 22, 2010 Report Share Posted August 22, 2010 Dawn this is of course the most fabulous news!!! You must be beyond thrilled and having a 14 year old myself I know must be too and would love to hear his views!! Tanner was just on the phone today with Charlotte's 9 year old son telling him to take his nutriiveda because " nutriiveda was very very helpful to me in so many ways. After I took it I was able to jump over a bush and I could never do that before " (he did mention school stuff too but the jumping over the bush was first hahah!) Congratulations and please don't only share the rest of 's update in private -please do share both of your children's updates here!! I'm sure people from all over would love to know more. We should really look to see if 's or someone else's seizure doc is willing to write up a case study on what we are seeing -I mean it's just incredible. Thank you so much for sharing and for bringing even more excitement to the findings for nutriiveda. If you don't mind would you please write something up for both your kids for our testimony page? http://pursuitofresearch.org/testimonials.html I'm thinking of redoing the site and separating out ages and conditions and we really need to update it as there are so many now!!! And please all continue to take the survey after you have used it for 2 months as well http://pursuitofresearch.org/survey.html thank you!! Congratulations again Dawn to you and your entire family!!! ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 Hey Dawn. I've been following your and 's story and I am so thrilled for you. What an amazing breakthrough and a HUGE weight off your shoulders. Would you have ever thought this possible a year ago? Amazing. I have a friend who's son has seizures as well and she just started him on NutriiVeda. Hopefully they'll have similar positive news to report soon too! So proud for you and excited for . Sharon > > > > > > Hi Everyone, My children have had an incredible week! First off, my son will be off his seizure medication Tegretol in 3 weeks! He has been on this med. for 9 years. I am thrilled for him to be off of medication since I am not a BIG fan of any meds. and their host of side effects. This week he went on a school field trip to Atlantis Marine World in Riverhead. He was with his teacher and speech therapist most of time. They were ecstatic that he was talking the whole day, saying " what's that " and pointing, " come over here " " where we going " . He even responded to something that was said over the loud speaker!!Also they had their Special Olympic horsebackriding lesson yesterday and it was the first day that the instructor was teaching them left and right turns. Well, Lily was pulling on the correct reins when the instructor called out and I didn't even know that she knew her left from her right!! did this as well! They have been on Nutriiveda since February and it's not that I see something new every day but it's consistent and they are definitely changing. We are even seeing improvements in the toileting area which is HUGE (you saw how old they are) in cooperation and success. My daughter had a terrible sleep issue last year and it lasted about 8 months, she was waking up to 5 times a night, we were sleeping in there, it was a nightmare, finally her neuro. dr. put her on Clonidine, which is a blood pressure med. that they use on kids because 1. they don't like to use sedatives on kids and 2. the main side effect is sleep. So we did that and behavioral. Well, we got her to the point of only waking up 1 time a night and this lasted for a couple of months, so I told the Dr. that I wanted her off the Clonidine,(he said that her sleep pattern was readjusted now)and I was just going to accept the fact that she (and I) would be waking up every night. Well guess what, back in February when she started Nutriiveda,she slept through the night after being on it 1 DAY!!! My husband and I were in shock, she is still sleeping through the night.I want all to know that this is something to just give it a try, Its just FOOD, probably the healthiest food your children or you can consume thats available. It's incredible stuff. If anyone wants to speak to me directly my number is 631-447-0615 or > daffy4@ optonline.net > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2010 Report Share Posted August 24, 2010 I am curious as to what the doctor thinks about this. What joyous news for your child! > > > > > > > > Hi Everyone, My children have had an incredible week! First off, my son will be off his seizure medication Tegretol in 3 weeks! He has been on this med. for 9 years. I am thrilled for him to be off of medication since I am not a BIG fan of any meds. and their host of side effects. This week he went on a school field trip to Atlantis Marine World in Riverhead. He was with his teacher and speech therapist most of time. They were ecstatic that he was talking the whole day, saying " what's that " and pointing, " come over here " " where we going " . He even responded to something that was said over the loud speaker!!Also they had their Special Olympic horsebackriding lesson yesterday and it was the first day that the instructor was teaching them left and right turns. Well, Lily was pulling on the correct reins when the instructor called out and I didn't even know that she knew her left from her right!! did this as well! They have been on Nutriiveda since February and it's not that I see something new every day but it's consistent and they are definitely changing. We are even seeing improvements in the toileting area which is HUGE (you saw how old they are) in cooperation and success. My daughter had a terrible sleep issue last year and it lasted about 8 months, she was waking up to 5 times a night, we were sleeping in there, it was a nightmare, finally her neuro. dr. put her on Clonidine, which is a blood pressure med. that they use on kids because 1. they don't like to use sedatives on kids and 2. the main side effect is sleep. So we did that and behavioral. Well, we got her to the point of only waking up 1 time a night and this lasted for a couple of months, so I told the Dr. that I wanted her off the Clonidine,(he said that her sleep pattern was readjusted now)and I was just going to accept the fact that she (and I) would be waking up every night. Well guess what, back in February when she started Nutriiveda,she slept through the night after being on it 1 DAY!!! My husband and I were in shock, she is still sleeping through the night.I want all to know that this is something to just give it a try, Its just FOOD, probably the healthiest food your children or you can consume thats available. It's incredible stuff. If anyone wants to speak to me directly my number is 631-447-0615 or > > daffy4@ optonline.net > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2010 Report Share Posted August 25, 2010 First off, thank you Sharon, it is a huge weight off our shoulders, the doctor did say we have a 6 month high risk period but because of NV I'm not AS NERVOUS about it.Hopefully your friend's son will have the same results.I spoke to the neurologist about NV when they were both on it for 3 wks already, and he told me to keep giving it to them, because he saw a change in them from the previous appt. When we decided to take off his meds. the Dr. did not attribute this to NV but I will be talking to him more about this and possibly seeing if he will do a case study. Thanks for all the support, Dawn Falley, N.Y. 631-447-0615 > > > > > > > > > > Hi Everyone, My children have had an incredible week! First off, my son will be off his seizure medication Tegretol in 3 weeks! He has been on this med. for 9 years. I am thrilled for him to be off of medication since I am not a BIG fan of any meds. and their host of side effects. This week he went on a school field trip to Atlantis Marine World in Riverhead. He was with his teacher and speech therapist most of time. They were ecstatic that he was talking the whole day, saying " what's that " and pointing, " come over here " " where we going " . He even responded to something that was said over the loud speaker!!Also they had their Special Olympic horsebackriding lesson yesterday and it was the first day that the instructor was teaching them left and right turns. Well, Lily was pulling on the correct reins when the instructor called out and I didn't even know that she knew her left from her right!! did this as well! They have been on Nutriiveda since February and it's not that I see something new every day but it's consistent and they are definitely changing. We are even seeing improvements in the toileting area which is HUGE (you saw how old they are) in cooperation and success. My daughter had a terrible sleep issue last year and it lasted about 8 months, she was waking up to 5 times a night, we were sleeping in there, it was a nightmare, finally her neuro. dr. put her on Clonidine, which is a blood pressure med. that they use on kids because 1. they don't like to use sedatives on kids and 2. the main side effect is sleep. So we did that and behavioral. Well, we got her to the point of only waking up 1 time a night and this lasted for a couple of months, so I told the Dr. that I wanted her off the Clonidine,(he said that her sleep pattern was readjusted now)and I was just going to accept the fact that she (and I) would be waking up every night. Well guess what, back in February when she started Nutriiveda,she slept through the night after being on it 1 DAY!!! My husband and I were in shock, she is still sleeping through the night.I want all to know that this is something to just give it a try, Its just FOOD, probably the healthiest food your children or you can consume thats available. It's incredible stuff. If anyone wants to speak to me directly my number is 631-447-0615 or > > > daffy4@ optonline.net > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2010 Report Share Posted September 17, 2010 Hi, was on seizure meds. for 9 yrs. He was taken off because he had not had a seizure for awhile and the big thing was that I asked for an EEG a couple of months after being on NV and it was totally normal! My son's EEG was not even normal BEFORE he started having seizures! And Yes, I do think that NV is good for sensory issues especially seeing how he regressed after being off of it. if you would like to talk you can call me anytime at 631-447-0615. ~~Dawn Falley > > > > Hi everyone, so far so good, has been totally off his seizure meds. 3 wks. now! But I wanted to let all know that last week we had 3 days of h#ll, because I ran out of NV and he did not have any at all for 4 days. NOT GOOD!!! He was having emotional meltdowns, he was super sensitive to any sounds, like even if I was opening a bag of something, the crinkling was making him cringe!He only got about 3 solid hrs. of sleep each night, because he kept waking and the ceiling fan was scaring him. It was crazy and I felt sooo bad for him. His speech definitely declined. Needless to say I ordered extra so this does NOT happen again. As soon as he had 1 NV drink he started to get back to himself.I just wanted to let everyone know what happened to us when we ran out. If anyone would like to contact me my # is 631-447-0615 in New York. > > > Quote Link to comment Share on other sites More sharing options...
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