Is this dyspraxia - what can we do?

[Guest guest]

Daughter is 5 and had ASD moderate diagnosis at 3.5. We have done biomedical

for 1 year and ABA for 6 months. Her ATEC is down from 74 to 28 through this.

Her OATS show bateria and mercury which we will remove in next few months. Her

sensory issues are almost zero - she is better than most in mainstream

behaviourally one day a week and the Occ Therpaist said almost no issues now,

though plenty a year ago. Her fine and gross motor skills are excellent, Her

congnition and humour, eye contact and love of children are excellent. Her

imagination is not bad. She can understand quite a lot of words and phrases.

She chews fine, doesnt dribble, appearance is amazing/ no muscle issues visible,

she will copy blowing, kiss, tongue touching lips and out in - copy all actions

with tongue and face. Her hearing is fine and so is her auditory processing.

Problem: she cannot speak more than 14 syllables. The ABA has got her using

syllables meaningfully to ask for things but she cannot say anything with 2

syllables. Many times she says the wrong ysyllable completely and has to make 4

attempts to get the correct one.

A/ Please is this apraxia

B/ What more can we do please?

Best wishes

[Guest guest]

I'm not sure if I can lend any advice as it seems baffling. Does she sleep

well? Has she had her hearing tested? Does she have any known allergies?

Have you had any of the newer genetics testing done? Possibly this is related

to a known syndrom that might be shown through that type of testing?

If you haven't done genetics, someone posted a few months ago about someone at

Harvard doing a study. I can give you his email address because possibly you

could get him to let you participate and it would be paid for? I suggest this

because our genetics tests were almost $3000 and if I had known of the study

prior I might have saved myself some money.

Based on your description it doesn't seem like she has any oral motor issues.

It does sound like apraxia to me.

Sue

[ ] Is this dyspraxia - what can we do?

Daughter is 5 and had ASD moderate diagnosis at 3.5. We have done biomedical for

1 year and ABA for 6 months. Her ATEC is down from 74 to 28 through this. Her

OATS show bateria and mercury which we will remove in next few months. Her

sensory issues are almost zero - she is better than most in mainstream

behaviourally one day a week and the Occ Therpaist said almost no issues now,

though plenty a year ago. Her fine and gross motor skills are excellent, Her

congnition and humour, eye contact and love of children are excellent. Her

imagination is not bad. She can understand quite a lot of words and phrases. She

chews fine, doesnt dribble, appearance is amazing/ no muscle issues visible, she

will copy blowing, kiss, tongue touching lips and out in - copy all actions with

tongue and face. Her hearing is fine and so is her auditory processing.

Problem: she cannot speak more than 14 syllables. The ABA has got her using

syllables meaningfully to ask for things but she cannot say anything with 2

syllables. Many times she says the wrong ysyllable completely and has to make 4

attempts to get the correct one.

A/ Please is this apraxia

B/ What more can we do please?

Best wishes

[Guest guest]

she sleeps fine, and hearing is fine

we think / hope it is mercury in brain which chelation is answer for

but need to follow SLT ideas also and not sure what t do - maybe PROMPT ?

i think genetics are waste of time

From: NotefrmSue@...

Date: Sat, 19 Dec 2009 19:36:27 -0500

Subject: Re: [ ] Is this dyspraxia - what can we do?

I'm not sure if I can lend any advice as it seems baffling. Does she sleep well?

Has she had her hearing tested? Does she have any known allergies? Have you had

any of the newer genetics testing done? Possibly this is related to a known

syndrom that might be shown through that type of testing?

If you haven't done genetics, someone posted a few months ago about someone at

Harvard doing a study. I can give you his email address because possibly you

could get him to let you participate and it would be paid for? I suggest this

because our genetics tests were almost $3000 and if I had known of the study

prior I might have saved myself some money.

Based on your description it doesn't seem like she has any oral motor issues.

It does sound like apraxia to me.

Sue

[ ] Is this dyspraxia - what can we do?

Daughter is 5 and had ASD moderate diagnosis at 3.5. We have done biomedical for

1 year and ABA for 6 months. Her ATEC is down from 74 to 28 through this. Her

OATS show bateria and mercury which we will remove in next few months. Her

sensory issues are almost zero - she is better than most in mainstream

behaviourally one day a week and the Occ Therpaist said almost no issues now,

though plenty a year ago. Her fine and gross motor skills are excellent, Her

congnition and humour, eye contact and love of children are excellent. Her

imagination is not bad. She can understand quite a lot of words and phrases. She

chews fine, doesnt dribble, appearance is amazing/ no muscle issues visible, she

will copy blowing, kiss, tongue touching lips and out in - copy all actions with

tongue and face. Her hearing is fine and so is her auditory processing.

Problem: she cannot speak more than 14 syllables. The ABA has got her using

syllables meaningfully to ask for things but she cannot say anything with 2

syllables. Many times she says the wrong ysyllable completely and has to make 4

attempts to get the correct one.

A/ Please is this apraxia

B/ What more can we do please?

Best wishes

[Guest guest]

I guess the reason I said genetics is because (1) with known diagnosis you can

often get insurance to pay for more services and (2) several people on this

board that do have a known diagnosis have been able to hook up with others on

the internet with similar deletions and gain advice/support that is more tuned

to their child. Best of luck to you!

Sue

RE: [ ] Is this dyspraxia - what can we do?

she sleeps fine, and hearing is fine

we think / hope it is mercury in brain which chelation is answer for

but need to follow SLT ideas also and not sure what t do - maybe PROMPT ?

i think genetics are waste of time

[Guest guest]

,

Yes, as much as I can tell w/o seeing her( & via her report), she sounds

dyspraxic. Are there any PROMPT trained SLPs in England? You can go to

www.promptinstitute.com and search there & /or email them to find out. It's also

impt to have an SLP who is trained in Talk Tools hierarchies (structured oral

motor ex). If she knows Beckman stretches, even better.

I am trained in all 3 (+more) & use all in my evaluations.

I would recommend that her SLP start w/working on vowels. If she can improve her

vowel production, she can approximate more speech sounds. Much more than just

w/consonants. Try saying " I see the doggie " out loud w/only the vowels. In

context, someone else would probably know what u said. The jaw & the tongue

heights are responsible for vowel production. So that is why in struct. o-m ex,

we start w/improving jaw stability via bite blocks.

If your (or other SLPs) are not trained in TalkTools, they can rent/buy a dvd to

learn more. BUT they have to understand o-m skills & parameters.

www.talktools.net You can email TT for a list of trained SLPs in your area.

I wish I could see her! I know I could help so much more! I hope my suggestions

above will be workable & helpful.

Warmest wishes,

Barbara A , M.S., CCC-SLP

Executive Director, Help Me Speak, LLC

410-442-9791

RE: [ ] Is this dyspraxia - what can we do?

she sleeps fine, and hearing is fine

we think / hope it is mercury in brain which chelation is answer for

but need to follow SLT ideas also and not sure what t do - maybe PROMPT ?

i think genetics are waste of time

[Guest guest]

Thank you - you made more sense than anyone so far by a long way

Some of the things you mention are also in Myra's report

I will follow this through

thank you

From: helpmespeak@...

Date: Sun, 20 Dec 2009 13:04:29 +0000

Subject: Re: [ ] Is this dyspraxia - what can we do?

[Guest guest]

Hello,

Trust your instincts to check out if your daughter is apraxic.

My son was diagnosed about a year back when he was six.

We were doing all the 9 yrds [ ABA, Speech, OT etc...]. Initially he made

progress with ABA but after sometime he just plateaued.

WE had been doing SPeech from the time he was 3 yrs...but never made any

progress!!! I know it sound so hard...I still beat myself on this.

I had had about 7 speech therapist in from the time he was 3 to 6 yrs.

Back of my head I have felt my son never belonged to the PDD category.

By God's grace I found this group, started reading about aparaxia.

I was so surprised that none of the previous speech paths even directed me into

" apraxia " !!!

The moment he got diagnosed with verbal apraxia...we changed all his therapies.

Found a speech path who was only familiar with apraxia[we don't have a PROMPT

THERAPIST in our area]. Dropped ABA. Started fish oil in June 2009.

The result he is able to say about 150-200 words and is trying to

put 3 words together. His motor plan also has come a long way.

So its better to check it out and rule out your doubt.I always regret that I had

lost some time for my son.

Hope you find the answer for your daughter.

>

> Daughter is 5 and had ASD moderate diagnosis at 3.5. We have done biomedical

for 1 year and ABA for 6 months. Her ATEC is down from 74 to 28 through this.

Her OATS show bateria and mercury which we will remove in next few months. Her

sensory issues are almost zero - she is better than most in mainstream

behaviourally one day a week and the Occ Therpaist said almost no issues now,

though plenty a year ago. Her fine and gross motor skills are excellent, Her

congnition and humour, eye contact and love of children are excellent. Her

imagination is not bad. She can understand quite a lot of words and phrases.

She chews fine, doesnt dribble, appearance is amazing/ no muscle issues visible,

she will copy blowing, kiss, tongue touching lips and out in - copy all actions

with tongue and face. Her hearing is fine and so is her auditory processing.

>

> Problem: she cannot speak more than 14 syllables. The ABA has got her using

syllables meaningfully to ask for things but she cannot say anything with 2

syllables. Many times she says the wrong ysyllable completely and has to make 4

attempts to get the correct one.

>

> A/ Please is this apraxia

>

> B/ What more can we do please?

>

> Best wishes

>

>

>

[Guest guest]

Well said, My son was diagnose with PDD at 2 1/2. I took him to a neurologist

when he was 2 1/2 who diagnose him with Apraxia and said possible PDD so he can

get services. My son was able to read before he could talk and a friend of mines

whos son is austistic told me about the Hyperlexia group where I found a member

who told me about this group. I started the fish oil about  a month before my

son turn 6 which will be 2 months on Dec 29th. He was only saying 2- 3 words

sentences now 5- 6 words without a written script. Some of the things that come

out of his mouth amazes us. I do believe TV captions play a big road which I got

from my hyperlexia group

but he has come a long way. He always played with other kids now he his

interacting with them more (using his words) Sometimes, I believe he use me as

practice before he trys it with his friends.

Just follow your instincts

Tracey

________________________________

From: sow <sowk721@...>

Sent: Sun, December 20, 2009 9:27:38 AM

Subject: [ ] Re: Is this dyspraxia - what can we do?

 

Hello,

Trust your instincts to check out if your daughter is apraxic.

My son was diagnosed about a year back when he was six.

We were doing all the 9 yrds [ ABA, Speech, OT etc...]. Initially he made

progress with ABA but after sometime he just plateaued.

WE had been doing SPeech from the time he was 3 yrs...but never made any

progress!!! I know it sound so hard...I still beat myself on this.

I had had about 7 speech therapist in from the time he was 3 to 6 yrs.

Back of my head I have felt my son never belonged to the PDD category.

By God's grace I found this group, started reading about aparaxia.

I was so surprised that none of the previous speech paths even directed me into

" apraxia " !!!

The moment he got diagnosed with verbal apraxia...we changed all his therapies.

Found a speech path who was only familiar with apraxia[we don't have a PROMPT

THERAPIST in our area]. Dropped ABA. Started fish oil in June 2009.

The result he is able to say about 150-200 words and is trying to

put 3 words together. His motor plan also has come a long way.

So its better to check it out and rule out your doubt.I always regret that I had

lost some time for my son.

Hope you find the answer for your daughter.

>

> Daughter is 5 and had ASD moderate diagnosis at 3.5. We have done biomedical

for 1 year and ABA for 6 months. Her ATEC is down from 74 to 28 through this.

Her OATS show bateria and mercury which we will remove in next few months. Her

sensory issues are almost zero - she is better than most in mainstream

behaviourally one day a week and the Occ Therpaist said almost no issues now,

though plenty a year ago. Her fine and gross motor skills are excellent, Her

congnition and humour, eye contact and love of children are excellent. Her

imagination is not bad. She can understand quite a lot of words and phrases. She

chews fine, doesnt dribble, appearance is amazing/ no muscle issues visible, she

will copy blowing, kiss, tongue touching lips and out in - copy all actions with

tongue and face. Her hearing is fine and so is her auditory processing.

>

> Problem: she cannot speak more than 14 syllables. The ABA has got her using

syllables meaningfully to ask for things but she cannot say anything with 2

syllables. Many times she says the wrong ysyllable completely and has to make 4

attempts to get the correct one.

>

> A/ Please is this apraxia

>

> B/ What more can we do please?

>

> Best wishes

>

>

>