Re: Oral Motor - Apraxia - Is it really the same thing?

[Guest guest]

I am very interested in this question. My son who will be 3 in December is

'suspected' to have Autism. His SPL is treating him as if he does, but says it

is a bit early to determine. I think it is early because he just had a palate

repair in march and was in an orphanage for the first 16 mts of his life so he

really had lots of delays. The SPL said he might have a Motor processing issue,

not sure about oral and that he may have Apraxia. It has only been 1 week so

she is observing him more.

>

> Hi Everyone,

>

> So our private SLP has asked my to refrain from using the term Apraxia for for

3 yr son. She has advised that he has Oral Motor Issues...is this the samething?

can anyone shed some light?

>

> Thanks!

>

[Guest guest]

There is oral motor apraxia and there is verbal apraxia--two different things

that can co-exist. One does not imply the other--but when there is verbal

apraxia there almost always is some oral motor component.

This insistence to not diagnose apraxia ICD 9-784.69 in kids who exhibit clear

signs of it at age 3 and earlier even is ridiculous. The kids need the

intervention--appropriate motor planning type intervention and early on--and

lots of it--or they do not progress. My daughter had 1 y of EI garden variety

speech therapy --and lost words--no progress was made--you need that diagnosis

to get insurance to cover the frequent 1:1 motor planning speech sessions

usually provided only by private practices.

If she says he only has oral motor apraxia--does that mean she is not working

with him on speech motor planning?--if she can't answer that find another SLP.

I just don't understand why they have to make it so difficult. Or she really

does not know the difference between the two--and then again--find another

SLP--one who diagnosis and treats verbal apraxia--if you suspect this is what

your child has. Oral apraxia is more about the oral cavity itself--when they

can't pucker up--can't blow bubbles, birthday candles etc etc...--it's really

very different and if that's all she can say when your child can't speak--and

all she will be working on--you're wasting your money. Find an SLP who can

diagnose and treat verbal apraxia--many cannot--but don't want to say so so they

play this " we can't tell yet " game to be safe---but it really shows their

ignorance. If a child presents with apraxic like symptoms--you put an apraxia

diagnosis--if it clears up later--no problem---their luck and it is known that

diagnosis are not written in stone--motor planning speech therapy cannot hurt

kids who end up not having apraxia. But for those who do--early motor planning

intervention can mean a world of difference.

Hope this helps.

Elena

________________________________

From: <marymejia@...>

Sent: Fri, September 10, 2010 8:14:43 AM

Subject: [ ] Oral Motor - Apraxia - Is it really the same

thing?

Hi Everyone,

So our private SLP has asked my to refrain from using the term Apraxia for for 3

yr son. She has advised that he has Oral Motor Issues...is this the samething?

can anyone shed some light?

Thanks!

------------------------------------

[Guest guest]

Hi Elena,

The thing is, he can pucker up, he can blow bubbles, he can stick out his

tongue. He had words, and then started to loose them. He was hard to

understand at one point, (2.5-3yrs) and used dadada for many words. His SLP is

using prompting, and I believe she is doing motor planning (however, if you can

give me an example of this, that would be great) he's been with this SLP for

almost 2 mths, and is doing remarkably well. He says stuff like... " mommy, why

you do this to me " his lip rounding for " W " is coming along so well, and before

he could only say " mama " is now saying " mommy " and is saying " me " rather then

" nee " anyways, those are a few examples of my son. He is the youngest of my

3...I have triplet boys, born at 34 weeks. i wonder some times if that has

anything to do with this? Could this be a developmental issue?

________________________________

From: Elena Danaila <edanaila@...>

Sent: Fri, September 10, 2010 2:40:17 PM

Subject: Re: [ ] Oral Motor - Apraxia - Is it really the same

thing?

There is oral motor apraxia and there is verbal apraxia--two different things

that can co-exist. One does not imply the other--but when there is verbal

apraxia there almost always is some oral motor component.

This insistence to not diagnose apraxia ICD 9-784.69 in kids who exhibit clear

signs of it at age 3 and earlier even is ridiculous. The kids need the

intervention--appropriate motor planning type intervention and early on--and

lots of it--or they do not progress. My daughter had 1 y of EI garden variety

speech therapy --and lost words--no progress was made--you need that diagnosis

to get insurance to cover the frequent 1:1 motor planning speech sessions

usually provided only by private practices.

If she says he only has oral motor apraxia--does that mean she is not working

with him on speech motor planning?--if she can't answer that find another SLP.

I just don't understand why they have to make it so difficult. Or she really

does not know the difference between the two--and then again--find another

SLP--one who diagnosis and treats verbal apraxia--if you suspect this is what

your child has. Oral apraxia is more about the oral cavity itself--when they

can't pucker up--can't blow bubbles, birthday candles etc etc...--it's really

very different and if that's all she can say when your child can't speak--and

all she will be working on--you're wasting your money. Find an SLP who can

diagnose and treat verbal apraxia--many cannot--but don't want to say so so they

play this " we can't tell yet " game to be safe---but it really shows their

ignorance. If a child presents with apraxic like symptoms--you put an apraxia

diagnosis--if it clears up later--no problem---their luck and it is known that

diagnosis are not written in stone--motor planning speech therapy cannot hurt

kids who end up not having apraxia. But for those who do--early motor planning

intervention can mean a world of difference.

Hope this helps.

Elena

________________________________

From: <marymejia@...>

Sent: Fri, September 10, 2010 8:14:43 AM

Subject: [ ] Oral Motor - Apraxia - Is it really the same

thing?

Hi Everyone,

So our private SLP has asked my to refrain from using the term Apraxia for for 3

yr son. She has advised that he has Oral Motor Issues...is this the samething?

can anyone shed some light?

Thanks!

------------------------------------

[Guest guest]

Triplets can definitely have more neurological problems than twins and

singles--that's for sure. But that's not the issue--that cannot be changed-his

therapy and other biomedical interventions can--you want to optimize his

neurological functioning--and there are lots of things to help with that

regardless of what caused the problem to begin with--apraxia is caused by brain

injury--whether known or not--it is in fact brain damage--just like in

adults--and the causes can be the same or different--it is ultimately due to

inflammation--oxidative stress on the brain due to physical external or internal

trauma--or chemical trauma--toxins (including foods one is intolerant to,

viruses, bacteria, parasite).--we've had all of these--including the physical

trauma--deformational plagiocephaly from the womb--her skull was deformed at

birth from pelvic pressure due to early descent and lack of sufficient amniotic

fluid--though thsi is a post apraxia diagnosis--at the time everyone thought she

was just fine--but she couldn't nurse properly--and then couldn't speak

properly--she had both oral and verbal apraxia and later developed autoimmune

conditions. All of these can compound the problem. Multiples tend to have

underdeveloped immune system, and various organs--including digestive--they are

overall more sensitive potentially.

But again--what exactly causes the apraxia--is not as relevant if it cannot be

changed--and the only thing you can do now is optimize neurological functioning

and make sure his therapy is appropriate. Losing words is apraxia of speech--my

daughter did and still does that--though she was much more severe than your boy

--at 3.5 couldn't say " mama " --we did biomedical interventions--B12 shots were

the most amazing thing--methylation was deficient. Co Q10--carnatine--fish oils

etc. So these were amazing for her--really made a world of difference--she is

in fact intolernat to various foods--does ahve skin autoimmune issues--which

started around the time dairy and wheat were introduced at 1 y. She is now

6--mainstreamed and talking up a storm but word retreival and multisillabics are

still aproblem--we suspect a dislexic component--so the fun continues...but she

can speak--make herself understood most of the time--although fine nuances can

be missing---she's smart and social and funny----it's great to discover my child

after 4 years when i thought she woudl be in special ed and not able to tell me

anything that happened at school. But again --you need the proper therapy and

anything that can optimize brain fucntion for your aprticular child--soem things

go across--others need to be individualized.

i can tell you more but I have to run--we're going for a week trip to the East

Coast--and I've got packing to do.

All the best,

And let me know if you want more info--this list is pretty good about some of

the biomed interventions--but you should do the research and see what applies to

your child and what doesn't what other interventions would be more appropriate.

PROMPT works really well for verbal apraxia---a therapist shoudl work on what

the child needs and if he's got verbal apraxia- intensive motor planning

techniques are the most appropriate.

All the best,

Elena

________________________________

From: Mejia <marymejia@...>

Sent: Fri, September 10, 2010 6:00:16 PM

Subject: Re: [ ] Oral Motor - Apraxia - Is it really the same

thing?

Hi Elena,

The thing is, he can pucker up, he can blow bubbles, he can stick out his

tongue. He had words, and then started to loose them. He was hard to

understand at one point, (2.5-3yrs) and used dadada for many words. His SLP is

using prompting, and I believe she is doing motor planning (however, if you can

give me an example of this, that would be great) he's been with this SLP for

almost 2 mths, and is doing remarkably well. He says stuff like... " mommy, why

you do this to me " his lip rounding for " W " is coming along so well, and before

he could only say " mama " is now saying " mommy " and is saying " me " rather then

" nee " anyways, those are a few examples of my son. He is the youngest of my

3...I have triplet boys, born at 34 weeks. i wonder some times if that has

anything to do with this? Could this be a developmental issue?

________________________________

From: Elena Danaila <edanaila@...>

Sent: Fri, September 10, 2010 2:40:17 PM

Subject: Re: [ ] Oral Motor - Apraxia - Is it really the same

thing?

There is oral motor apraxia and there is verbal apraxia--two different things

that can co-exist. One does not imply the other--but when there is verbal

apraxia there almost always is some oral motor component.

This insistence to not diagnose apraxia ICD 9-784.69 in kids who exhibit clear

signs of it at age 3 and earlier even is ridiculous. The kids need the

intervention--appropriate motor planning type intervention and early on--and

lots of it--or they do not progress. My daughter had 1 y of EI garden variety

speech therapy --and lost words--no progress was made--you need that diagnosis

to get insurance to cover the frequent 1:1 motor planning speech sessions

usually provided only by private practices.

If she says he only has oral motor apraxia--does that mean she is not working

with him on speech motor planning?--if she can't answer that find another SLP.

I just don't understand why they have to make it so difficult. Or she really

does not know the difference between the two--and then again--find another

SLP--one who diagnosis and treats verbal apraxia--if you suspect this is what

your child has. Oral apraxia is more about the oral cavity itself--when they

can't pucker up--can't blow bubbles, birthday candles etc etc...--it's really

very different and if that's all she can say when your child can't speak--and

all she will be working on--you're wasting your money. Find an SLP who can

diagnose and treat verbal apraxia--many cannot--but don't want to say so so they

play this " we can't tell yet " game to be safe---but it really shows their

ignorance. If a child presents with apraxic like symptoms--you put an apraxia

diagnosis--if it clears up later--no problem---their luck and it is known that

diagnosis are not written in stone--motor planning speech therapy cannot hurt

kids who end up not having apraxia. But for those who do--early motor planning

intervention can mean a world of difference.

Hope this helps.

Elena

________________________________

From: <marymejia@...>

Sent: Fri, September 10, 2010 8:14:43 AM

Subject: [ ] Oral Motor - Apraxia - Is it really the same

thing?

Hi Everyone,

So our private SLP has asked my to refrain from using the term Apraxia for for 3

yr son. She has advised that he has Oral Motor Issues...is this the samething?

can anyone shed some light?

Thanks!

------------------------------------

[Guest guest]

,

It sounds like it MAY be verbal apraxia BUT that is based on the info you

provided. As an SLP expert in apraxia, I can't diagnose via email. I would have

to see your son.

PROMPT is a motor-kinesthetic cueing system. PROMPT uses specific touch cues on

the face & under the jaw to assist the mouth with the motor muscle planning to

sequence speech sounds.

In my opinion, there should be a range of apraxia diagnoses from apraxia--no

speech, to dyspraxia--difficulty w/sound sequencing & unintelligible speech ( & a

range of severities here), to sequencing difficulties w/articulation which

result in the use of easier sound sequences in place of more sophisticated ones.

Some people view this last category as " phonological processes " . In my opinion,

a file who displays use of easier phon processes does so b/c he/she can't

sequence the sounds in more complicated ones. Every time you see sound

sequencing, read that as motor planning.

So find out if your SLP is trained in PROMPT or not & if so, which level? Level

1 is basic, level 2 teaches how to use in therapy & level 3 has completed a

self-study/ mentored certification project. Not everyone can do level 3. It is

very time intensive & only allows 4 months to complete. Last I inquired, I could

find a mentor on the East coast. So I am level 2 trained.

Let me know what other questions u may have. I may not be able to answer til Mon

since I am swamped w/my twins' bday parties & other family activities this

weekend.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

President,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Sep 10, 2010, at 11:38 PM, Elena Danaila <edanaila@...> wrote:

> Triplets can definitely have more neurological problems than twins and

> singles--that's for sure. But that's not the issue--that cannot be changed-his

> therapy and other biomedical interventions can--you want to optimize his

> neurological functioning--and there are lots of things to help with that

> regardless of what caused the problem to begin with--apraxia is caused by

brain

> injury--whether known or not--it is in fact brain damage--just like in

> adults--and the causes can be the same or different--it is ultimately due to

> inflammation--oxidative stress on the brain due to physical external or

internal

> trauma--or chemical trauma--toxins (including foods one is intolerant to,

> viruses, bacteria, parasite).--we've had all of these--including the physical

> trauma--deformational plagiocephaly from the womb--her skull was deformed at

> birth from pelvic pressure due to early descent and lack of sufficient

amniotic

> fluid--though thsi is a post apraxia diagnosis--at the time everyone thought

she

> was just fine--but she couldn't nurse properly--and then couldn't speak

> properly--she had both oral and verbal apraxia and later developed autoimmune

> conditions. All of these can compound the problem. Multiples tend to have

> underdeveloped immune system, and various organs--including digestive--they

are

> overall more sensitive potentially.

>

> But again--what exactly causes the apraxia--is not as relevant if it cannot be

> changed--and the only thing you can do now is optimize neurological

functioning

> and make sure his therapy is appropriate. Losing words is apraxia of

speech--my

> daughter did and still does that--though she was much more severe than your

boy

> --at 3.5 couldn't say " mama " --we did biomedical interventions--B12 shots were

> the most amazing thing--methylation was deficient. Co Q10--carnatine--fish

oils

> etc. So these were amazing for her--really made a world of difference--she is

> in fact intolernat to various foods--does ahve skin autoimmune issues--which

> started around the time dairy and wheat were introduced at 1 y. She is now

> 6--mainstreamed and talking up a storm but word retreival and multisillabics

are

> still aproblem--we suspect a dislexic component--so the fun continues...but

she

> can speak--make herself understood most of the time--although fine nuances can

> be missing---she's smart and social and funny----it's great to discover my

child

> after 4 years when i thought she woudl be in special ed and not able to tell

me

> anything that happened at school. But again --you need the proper therapy and

> anything that can optimize brain fucntion for your aprticular child--soem

things

> go across--others need to be individualized.

>

> i can tell you more but I have to run--we're going for a week trip to the East

> Coast--and I've got packing to do.

> All the best,

> And let me know if you want more info--this list is pretty good about some of

> the biomed interventions--but you should do the research and see what applies

to

> your child and what doesn't what other interventions would be more

appropriate.

>

> PROMPT works really well for verbal apraxia---a therapist shoudl work on what

> the child needs and if he's got verbal apraxia- intensive motor planning

> techniques are the most appropriate.

>

> All the best,

> Elena

>

> ________________________________

> From: Mejia <marymejia@...>

>

> Sent: Fri, September 10, 2010 6:00:16 PM

> Subject: Re: [ ] Oral Motor - Apraxia - Is it really the

same

> thing?

>

> Hi Elena,

>

> The thing is, he can pucker up, he can blow bubbles, he can stick out his

> tongue. He had words, and then started to loose them. He was hard to

> understand at one point, (2.5-3yrs) and used dadada for many words. His SLP is

> using prompting, and I believe she is doing motor planning (however, if you

can

> give me an example of this, that would be great) he's been with this SLP for

> almost 2 mths, and is doing remarkably well. He says stuff like... " mommy, why

> you do this to me " his lip rounding for " W " is coming along so well, and

before

> he could only say " mama " is now saying " mommy " and is saying " me " rather then

> " nee " anyways, those are a few examples of my son. He is the youngest of my

> 3...I have triplet boys, born at 34 weeks. i wonder some times if that has

> anything to do with this? Could this be a developmental issue?

>

> ________________________________

> From: Elena Danaila <edanaila@...>

>

> Sent: Fri, September 10, 2010 2:40:17 PM

> Subject: Re: [ ] Oral Motor - Apraxia - Is it really the

same

> thing?

>

> There is oral motor apraxia and there is verbal apraxia--two different things

> that can co-exist. One does not imply the other--but when there is verbal

> apraxia there almost always is some oral motor component.

>

> This insistence to not diagnose apraxia ICD 9-784.69 in kids who exhibit clear

> signs of it at age 3 and earlier even is ridiculous. The kids need the

> intervention--appropriate motor planning type intervention and early on--and

> lots of it--or they do not progress. My daughter had 1 y of EI garden variety

> speech therapy --and lost words--no progress was made--you need that diagnosis

> to get insurance to cover the frequent 1:1 motor planning speech sessions

> usually provided only by private practices.

>

> If she says he only has oral motor apraxia--does that mean she is not working

> with him on speech motor planning?--if she can't answer that find another SLP.

> I just don't understand why they have to make it so difficult. Or she really

> does not know the difference between the two--and then again--find another

> SLP--one who diagnosis and treats verbal apraxia--if you suspect this is what

> your child has. Oral apraxia is more about the oral cavity itself--when they

> can't pucker up--can't blow bubbles, birthday candles etc etc...--it's really

> very different and if that's all she can say when your child can't speak--and

> all she will be working on--you're wasting your money. Find an SLP who can

> diagnose and treat verbal apraxia--many cannot--but don't want to say so so

they

>

> play this " we can't tell yet " game to be safe---but it really shows their

> ignorance. If a child presents with apraxic like symptoms--you put an apraxia

> diagnosis--if it clears up later--no problem---their luck and it is known that

> diagnosis are not written in stone--motor planning speech therapy cannot hurt

> kids who end up not having apraxia. But for those who do--early motor planning

> intervention can mean a world of difference.

>

> Hope this helps.

> Elena

>

> ________________________________

> From: <marymejia@...>

>

> Sent: Fri, September 10, 2010 8:14:43 AM

> Subject: [ ] Oral Motor - Apraxia - Is it really the same

> thing?

>

> Hi Everyone,

>

> So our private SLP has asked my to refrain from using the term Apraxia for for

3

>

> yr son. She has advised that he has Oral Motor Issues...is this the samething?

> can anyone shed some light?

>

> Thanks!

>

> ------------------------------------

>

>

[Guest guest]

In addition, I would recommend supplementing FIRST with the Essential Fatty

Acids found in Nordic Natural fish oils and then after a month, with the

Essential Amino Acids in NUTRIIVEDA. You don't want to start both at same time

b/c u won't know which one is doing what. If u have any questions about

Nutriiveda, email or call me.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

President,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Sep 10, 2010, at 11:38 PM, Elena Danaila <edanaila@...> wrote:

> Triplets can definitely have more neurological problems than twins and

> singles--that's for sure. But that's not the issue--that cannot be changed-his

> therapy and other biomedical interventions can--you want to optimize his

> neurological functioning--and there are lots of things to help with that

> regardless of what caused the problem to begin with--apraxia is caused by

brain

> injury--whether known or not--it is in fact brain damage--just like in

> adults--and the causes can be the same or different--it is ultimately due to

> inflammation--oxidative stress on the brain due to physical external or

internal

> trauma--or chemical trauma--toxins (including foods one is intolerant to,

> viruses, bacteria, parasite).--we've had all of these--including the physical

> trauma--deformational plagiocephaly from the womb--her skull was deformed at

> birth from pelvic pressure due to early descent and lack of sufficient

amniotic

> fluid--though thsi is a post apraxia diagnosis--at the time everyone thought

she

> was just fine--but she couldn't nurse properly--and then couldn't speak

> properly--she had both oral and verbal apraxia and later developed autoimmune

> conditions. All of these can compound the problem. Multiples tend to have

> underdeveloped immune system, and various organs--including digestive--they

are

> overall more sensitive potentially.

>

> But again--what exactly causes the apraxia--is not as relevant if it cannot be

> changed--and the only thing you can do now is optimize neurological

functioning

> and make sure his therapy is appropriate. Losing words is apraxia of

speech--my

> daughter did and still does that--though she was much more severe than your

boy

> --at 3.5 couldn't say " mama " --we did biomedical interventions--B12 shots were

> the most amazing thing--methylation was deficient. Co Q10--carnatine--fish

oils

> etc. So these were amazing for her--really made a world of difference--she is

> in fact intolernat to various foods--does ahve skin autoimmune issues--which

> started around the time dairy and wheat were introduced at 1 y. She is now

> 6--mainstreamed and talking up a storm but word retreival and multisillabics

are

> still aproblem--we suspect a dislexic component--so the fun continues...but

she

> can speak--make herself understood most of the time--although fine nuances can

> be missing---she's smart and social and funny----it's great to discover my

child

> after 4 years when i thought she woudl be in special ed and not able to tell

me

> anything that happened at school. But again --you need the proper therapy and

> anything that can optimize brain fucntion for your aprticular child--soem

things

> go across--others need to be individualized.

>

> i can tell you more but I have to run--we're going for a week trip to the East

> Coast--and I've got packing to do.

> All the best,

> And let me know if you want more info--this list is pretty good about some of

> the biomed interventions--but you should do the research and see what applies

to

> your child and what doesn't what other interventions would be more

appropriate.

>

> PROMPT works really well for verbal apraxia---a therapist shoudl work on what

> the child needs and if he's got verbal apraxia- intensive motor planning

> techniques are the most appropriate.

>

> All the best,

> Elena

>

> ________________________________

> From: Mejia <marymejia@...>

>

> Sent: Fri, September 10, 2010 6:00:16 PM

> Subject: Re: [ ] Oral Motor - Apraxia - Is it really the

same

> thing?

>

> Hi Elena,

>

> The thing is, he can pucker up, he can blow bubbles, he can stick out his

> tongue. He had words, and then started to loose them. He was hard to

> understand at one point, (2.5-3yrs) and used dadada for many words. His SLP is

> using prompting, and I believe she is doing motor planning (however, if you

can

> give me an example of this, that would be great) he's been with this SLP for

> almost 2 mths, and is doing remarkably well. He says stuff like... " mommy, why

> you do this to me " his lip rounding for " W " is coming along so well, and

before

> he could only say " mama " is now saying " mommy " and is saying " me " rather then

> " nee " anyways, those are a few examples of my son. He is the youngest of my

> 3...I have triplet boys, born at 34 weeks. i wonder some times if that has

> anything to do with this? Could this be a developmental issue?

>

> ________________________________

> From: Elena Danaila <edanaila@...>

>

> Sent: Fri, September 10, 2010 2:40:17 PM

> Subject: Re: [ ] Oral Motor - Apraxia - Is it really the

same

> thing?

>

> There is oral motor apraxia and there is verbal apraxia--two different things

> that can co-exist. One does not imply the other--but when there is verbal

> apraxia there almost always is some oral motor component.

>

> This insistence to not diagnose apraxia ICD 9-784.69 in kids who exhibit clear

> signs of it at age 3 and earlier even is ridiculous. The kids need the

> intervention--appropriate motor planning type intervention and early on--and

> lots of it--or they do not progress. My daughter had 1 y of EI garden variety

> speech therapy --and lost words--no progress was made--you need that diagnosis

> to get insurance to cover the frequent 1:1 motor planning speech sessions

> usually provided only by private practices.

>

> If she says he only has oral motor apraxia--does that mean she is not working

> with him on speech motor planning?--if she can't answer that find another SLP.

> I just don't understand why they have to make it so difficult. Or she really

> does not know the difference between the two--and then again--find another

> SLP--one who diagnosis and treats verbal apraxia--if you suspect this is what

> your child has. Oral apraxia is more about the oral cavity itself--when they

> can't pucker up--can't blow bubbles, birthday candles etc etc...--it's really

> very different and if that's all she can say when your child can't speak--and

> all she will be working on--you're wasting your money. Find an SLP who can

> diagnose and treat verbal apraxia--many cannot--but don't want to say so so

they

>

> play this " we can't tell yet " game to be safe---but it really shows their

> ignorance. If a child presents with apraxic like symptoms--you put an apraxia

> diagnosis--if it clears up later--no problem---their luck and it is known that

> diagnosis are not written in stone--motor planning speech therapy cannot hurt

> kids who end up not having apraxia. But for those who do--early motor planning

> intervention can mean a world of difference.

>

> Hope this helps.

> Elena

>

> ________________________________

> From: <marymejia@...>

>

> Sent: Fri, September 10, 2010 8:14:43 AM

> Subject: [ ] Oral Motor - Apraxia - Is it really the same

> thing?

>

> Hi Everyone,

>

> So our private SLP has asked my to refrain from using the term Apraxia for for

3

>

> yr son. She has advised that he has Oral Motor Issues...is this the samething?

> can anyone shed some light?

>

> Thanks!

>

> ------------------------------------

>

>

[Guest guest]

Hi Barbara,

Thank you for responding. Well, my son's SLP works on prompting (she appears to

be very strict and in control) and I believe she is certified in prompting. She

Focuses on jaw grading, and repetition....is there anything else I should maybe

bring up with her? My son is doing very well with her. She has truly been a

blessing. I had him on 2 EFA and 1 EPA, but have noticed he's done well on 1

EFA and 1 EPA.....I'm on the verge of getting NV....it's not that I am

skeptical, I'm afraid that everything new, may have a downfall long term.....I

mean, it maybe helpful to my child at this moment, what I am afraid of, what

effects may it have on him years from now?

I will keep your # and hopefully be able to speak to you soon, with a list of

questions! )

Thanks again!

________________________________

From: Barbara <helpmespeak@...>

" " < >

Sent: Sat, September 11, 2010 8:08:18 AM

Subject: Re: [ ] Oral Motor - Apraxia - Is it really the same

thing?

In addition, I would recommend supplementing FIRST with the Essential Fatty

Acids found in Nordic Natural fish oils and then after a month, with the

Essential Amino Acids in NUTRIIVEDA. You don't want to start both at same time

b/c u won't know which one is doing what. If u have any questions about

Nutriiveda, email or call me.

Warmest wishes,

Barbara A , M.S.,CCC-SLP

President,

Help Me Speak, LLC

www.helpmespeak.com

2500 Wallington Way

Suite 103

Marriottsville, MD 21104

410-442-9791

Ask me about NutriiVeda!

On Sep 10, 2010, at 11:38 PM, Elena Danaila <edanaila@...> wrote:

> Triplets can definitely have more neurological problems than twins and

> singles--that's for sure. But that's not the issue--that cannot be changed-his

> therapy and other biomedical interventions can--you want to optimize his

> neurological functioning--and there are lots of things to help with that

> regardless of what caused the problem to begin with--apraxia is caused by

brain

>

> injury--whether known or not--it is in fact brain damage--just like in

> adults--and the causes can be the same or different--it is ultimately due to

> inflammation--oxidative stress on the brain due to physical external or

>internal

>

> trauma--or chemical trauma--toxins (including foods one is intolerant to,

> viruses, bacteria, parasite).--we've had all of these--including the physical

> trauma--deformational plagiocephaly from the womb--her skull was deformed at

> birth from pelvic pressure due to early descent and lack of sufficient

amniotic

>

> fluid--though thsi is a post apraxia diagnosis--at the time everyone thought

>she

>

> was just fine--but she couldn't nurse properly--and then couldn't speak

> properly--she had both oral and verbal apraxia and later developed autoimmune

> conditions. All of these can compound the problem. Multiples tend to have

> underdeveloped immune system, and various organs--including digestive--they

are

>

> overall more sensitive potentially.

>

> But again--what exactly causes the apraxia--is not as relevant if it cannot be

> changed--and the only thing you can do now is optimize neurological

functioning

>

> and make sure his therapy is appropriate. Losing words is apraxia of

speech--my

>

> daughter did and still does that--though she was much more severe than your

boy

>

> --at 3.5 couldn't say " mama " --we did biomedical interventions--B12 shots were

> the most amazing thing--methylation was deficient. Co Q10--carnatine--fish

oils

>

> etc. So these were amazing for her--really made a world of difference--she is

> in fact intolernat to various foods--does ahve skin autoimmune issues--which

> started around the time dairy and wheat were introduced at 1 y. She is now

> 6--mainstreamed and talking up a storm but word retreival and multisillabics

>are

>

> still aproblem--we suspect a dislexic component--so the fun continues...but

she

>

> can speak--make herself understood most of the time--although fine nuances can

> be missing---she's smart and social and funny----it's great to discover my

>child

>

> after 4 years when i thought she woudl be in special ed and not able to tell

me

>

> anything that happened at school. But again --you need the proper therapy and

> anything that can optimize brain fucntion for your aprticular child--soem

>things

>

> go across--others need to be individualized.

>

> i can tell you more but I have to run--we're going for a week trip to the East

> Coast--and I've got packing to do.

> All the best,

> And let me know if you want more info--this list is pretty good about some of

> the biomed interventions--but you should do the research and see what applies

>to

>

> your child and what doesn't what other interventions would be more

appropriate.

>

>

> PROMPT works really well for verbal apraxia---a therapist shoudl work on what

> the child needs and if he's got verbal apraxia- intensive motor planning

> techniques are the most appropriate.

>

> All the best,

> Elena

>

> ________________________________

> From: Mejia <marymejia@...>

>

> Sent: Fri, September 10, 2010 6:00:16 PM

> Subject: Re: [ ] Oral Motor - Apraxia - Is it really the

same

>

> thing?

>

> Hi Elena,

>

> The thing is, he can pucker up, he can blow bubbles, he can stick out his

> tongue. He had words, and then started to loose them. He was hard to

> understand at one point, (2.5-3yrs) and used dadada for many words. His SLP is

> using prompting, and I believe she is doing motor planning (however, if you

can

>

> give me an example of this, that would be great) he's been with this SLP for

> almost 2 mths, and is doing remarkably well. He says stuff like... " mommy, why

> you do this to me " his lip rounding for " W " is coming along so well, and

before

>

> he could only say " mama " is now saying " mommy " and is saying " me " rather then

> " nee " anyways, those are a few examples of my son. He is the youngest of my

> 3...I have triplet boys, born at 34 weeks. i wonder some times if that has

> anything to do with this? Could this be a developmental issue?

>

> ________________________________

> From: Elena Danaila <edanaila@...>

>

> Sent: Fri, September 10, 2010 2:40:17 PM

> Subject: Re: [ ] Oral Motor - Apraxia - Is it really the

same

>

> thing?

>

> There is oral motor apraxia and there is verbal apraxia--two different things

> that can co-exist. One does not imply the other--but when there is verbal

> apraxia there almost always is some oral motor component.

>

> This insistence to not diagnose apraxia ICD 9-784.69 in kids who exhibit clear

> signs of it at age 3 and earlier even is ridiculous. The kids need the

> intervention--appropriate motor planning type intervention and early on--and

> lots of it--or they do not progress. My daughter had 1 y of EI garden variety

> speech therapy --and lost words--no progress was made--you need that diagnosis

> to get insurance to cover the frequent 1:1 motor planning speech sessions

> usually provided only by private practices.

>

> If she says he only has oral motor apraxia--does that mean she is not working

> with him on speech motor planning?--if she can't answer that find another SLP.

> I just don't understand why they have to make it so difficult. Or she really

> does not know the difference between the two--and then again--find another

> SLP--one who diagnosis and treats verbal apraxia--if you suspect this is what

> your child has. Oral apraxia is more about the oral cavity itself--when they

> can't pucker up--can't blow bubbles, birthday candles etc etc...--it's really

> very different and if that's all she can say when your child can't speak--and

> all she will be working on--you're wasting your money. Find an SLP who can

> diagnose and treat verbal apraxia--many cannot--but don't want to say so so

>they

>

>

> play this " we can't tell yet " game to be safe---but it really shows their

> ignorance. If a child presents with apraxic like symptoms--you put an apraxia

> diagnosis--if it clears up later--no problem---their luck and it is known that

> diagnosis are not written in stone--motor planning speech therapy cannot hurt

> kids who end up not having apraxia. But for those who do--early motor planning

> intervention can mean a world of difference.

>

> Hope this helps.

> Elena

>

> ________________________________

> From: <marymejia@...>

>

> Sent: Fri, September 10, 2010 8:14:43 AM

> Subject: [ ] Oral Motor - Apraxia - Is it really the same

> thing?

>

> Hi Everyone,

>

> So our private SLP has asked my to refrain from using the term Apraxia for for

>3

>

>

> yr son. She has advised that he has Oral Motor Issues...is this the samething?

> can anyone shed some light?

>

> Thanks!

>

> ------------------------------------

>

>

[Guest guest]

Hi Elena, I read you post to ...my daughter is 2 and had gross motor delays

in addition to speech delays and what appears to be apraxia. She has a history

of oral motor issues. She currently has few words. The last neurologist she

saw recommended metobolic testing. I am interetsed in you elabotaing on you

previous post, what helped your child?? Did you do metobolic testing?

Thanks,

Suzanne

>

> Triplets can definitely have more neurological problems than twins and

> singles--that's for sure. But that's not the issue--that cannot be

changed-his

> therapy and other biomedical interventions can--you want to optimize his

> neurological functioning--and there are lots of things to help with that

> regardless of what caused the problem to begin with--apraxia is caused by

brain

> injury--whether known or not--it is in fact brain damage--just like in

> adults--and the causes can be the same or different--it is ultimately due to

> inflammation--oxidative stress on the brain due to physical external or

internal

> trauma--or chemical trauma--toxins (including foods one is intolerant to,

> viruses, bacteria, parasite).--we've had all of these--including the physical

> trauma--deformational plagiocephaly from the womb--her skull was deformed at

> birth from pelvic pressure due to early descent and lack of sufficient

amniotic

> fluid--though thsi is a post apraxia diagnosis--at the time everyone thought

she

> was just fine--but she couldn't nurse properly--and then couldn't speak

> properly--she had both oral and verbal apraxia and later developed autoimmune

> conditions. All of these can compound the problem. Multiples tend to have

> underdeveloped immune system, and various organs--including digestive--they

are

> overall more sensitive potentially.

>

>

> But again--what exactly causes the apraxia--is not as relevant if it cannot be

> changed--and the only thing you can do now is optimize neurological

functioning

> and make sure his therapy is appropriate. Losing words is apraxia of

speech--my

> daughter did and still does that--though she was much more severe than your

boy

> --at 3.5 couldn't say " mama " --we did biomedical interventions--B12 shots were

> the most amazing thing--methylation was deficient. Co Q10--carnatine--fish

oils

> etc. So these were amazing for her--really made a world of difference--she is

> in fact intolernat to various foods--does ahve skin autoimmune issues--which

> started around the time dairy and wheat were introduced at 1 y. She is now

> 6--mainstreamed and talking up a storm but word retreival and multisillabics

are

> still aproblem--we suspect a dislexic component--so the fun continues...but

she

> can speak--make herself understood most of the time--although fine nuances can

> be missing---she's smart and social and funny----it's great to discover my

child

> after 4 years when i thought she woudl be in special ed and not able to tell

me

> anything that happened at school. But again --you need the proper therapy and

> anything that can optimize brain fucntion for your aprticular child--soem

things

> go across--others need to be individualized.

>

> i can tell you more but I have to run--we're going for a week trip to the East

> Coast--and I've got packing to do.

> All the best,

> And let me know if you want more info--this list is pretty good about some of

> the biomed interventions--but you should do the research and see what applies

to

> your child and what doesn't what other interventions would be more

appropriate.

>

>

> PROMPT works really well for verbal apraxia---a therapist shoudl work on what

> the child needs and if he's got verbal apraxia- intensive motor planning

> techniques are the most appropriate.

>

>

> All the best,

> Elena

>

>

>

>

> ________________________________

> From: Mejia <marymejia@...>

>

> Sent: Fri, September 10, 2010 6:00:16 PM

> Subject: Re: [ ] Oral Motor - Apraxia - Is it really the

same

> thing?

>

> Hi Elena,

>

> The thing is, he can pucker up, he can blow bubbles, he can stick out his

> tongue. He had words, and then started to loose them. He was hard to

> understand at one point, (2.5-3yrs) and used dadada for many words. His SLP

is

> using prompting, and I believe she is doing motor planning (however, if you

can

> give me an example of this, that would be great) he's been with this SLP for

> almost 2 mths, and is doing remarkably well. He says stuff like... " mommy, why

> you do this to me " his lip rounding for " W " is coming along so well, and

before

> he could only say " mama " is now saying " mommy " and is saying " me " rather then

> " nee " anyways, those are a few examples of my son. He is the youngest of my

> 3...I have triplet boys, born at 34 weeks. i wonder some times if that has

> anything to do with this? Could this be a developmental issue?

>

>

>

>

>

> ________________________________

> From: Elena Danaila <edanaila@...>

>

> Sent: Fri, September 10, 2010 2:40:17 PM

> Subject: Re: [ ] Oral Motor - Apraxia - Is it really the

same

> thing?

>

>

> There is oral motor apraxia and there is verbal apraxia--two different things

> that can co-exist. One does not imply the other--but when there is verbal

> apraxia there almost always is some oral motor component.

>

> This insistence to not diagnose apraxia ICD 9-784.69 in kids who exhibit clear

> signs of it at age 3 and earlier even is ridiculous. The kids need the

> intervention--appropriate motor planning type intervention and early on--and

> lots of it--or they do not progress. My daughter had 1 y of EI garden variety

> speech therapy --and lost words--no progress was made--you need that diagnosis

> to get insurance to cover the frequent 1:1 motor planning speech sessions

> usually provided only by private practices.

>

> If she says he only has oral motor apraxia--does that mean she is not working

> with him on speech motor planning?--if she can't answer that find another SLP.

> I just don't understand why they have to make it so difficult. Or she really

> does not know the difference between the two--and then again--find another

> SLP--one who diagnosis and treats verbal apraxia--if you suspect this is what

> your child has. Oral apraxia is more about the oral cavity itself--when they

> can't pucker up--can't blow bubbles, birthday candles etc etc...--it's really

> very different and if that's all she can say when your child can't speak--and

> all she will be working on--you're wasting your money. Find an SLP who can

> diagnose and treat verbal apraxia--many cannot--but don't want to say so so

they

>

>

> play this " we can't tell yet " game to be safe---but it really shows their

> ignorance. If a child presents with apraxic like symptoms--you put an apraxia

> diagnosis--if it clears up later--no problem---their luck and it is known that

> diagnosis are not written in stone--motor planning speech therapy cannot hurt

> kids who end up not having apraxia. But for those who do--early motor

planning

> intervention can mean a world of difference.

>

> Hope this helps.

> Elena

>

> ________________________________

> From: <marymejia@...>

>

> Sent: Fri, September 10, 2010 8:14:43 AM

> Subject: [ ] Oral Motor - Apraxia - Is it really the same

> thing?

>

> Hi Everyone,

>

> So our private SLP has asked my to refrain from using the term Apraxia for for

3

>

>

> yr son. She has advised that he has Oral Motor Issues...is this the samething?

> can anyone shed some light?

>

> Thanks!

>

> ------------------------------------

>

>